Sleeping with CPAP blog post
Hi,This post is about sleep apnea and blood sugars. Thanks for reading.http://sleepingwithcpap.blogspot.com/See More
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ZolliStar replied to ZolliStar's discussion What's the Right Machine?"Thanks for this, Mary.
Worse comes to worse, I'll buy a used machine from Second Wind. First I'm going to see if I can get my doctor to prescribe one.
Maybe this is the final answer. Meanwhile, I'm surely happy to have…"
Mary Z replied to ZolliStar's discussion What's the Right Machine?"Zollistar, I think the ASV is hands down the best machine. It took me four years to get hooked up. Because of lingering depression and continued day time sleepiness with a high AHI my doctor suggested a night in the lab with an…"
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"May I ask two dumb-dumb questions? What do "Dx" and "CSA" mean?
And here is a not-so-dumb-dumb question (I hope!): From your experience, do people sleep better using an ASV machine?
I look forward to your answer.
"
RockRpsgt replied to ZolliStar's discussion What's the Right Machine?"You will most likely not be able to get insurance approval for an ASV without a Dx of CSA. I think that saying that an ASV breathes with you is false. ASV does however provide a better breath support and algorithm for auto use. The newer ASV units…"
Mary Z replied to ZolliStar's discussion Beating Sleep Maintenance Insomnia"Zollistar, what a good idea! The music is nice and relaxing on some of them."
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"Thanks for this information Lisa. It really helps.
Anyone else?
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Lisa replied to ZolliStar's discussion What's the Right Machine?"Hi Zollistar, I much prefer using an Apap to a straight Cpap. I changed over a few years ago and found straight away that I had much less of a problem with leaks. Another thing that I have noticed is I used to have ongoing problems with my nose…"
Terry Vella replied to ZolliStar's discussion What's the Right Machine?"He's still going, a bit of a pain sometimes but that's life, thanks for asking."
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"This helps a lot, Terry! Thanks for letting me know.
How is your dog??
"
Terry Vella replied to ZolliStar's discussion What's the Right Machine?"ZolliStar, I went straight to an auto so can't really compare but from what I have heard there are two major benefits, first, the comfort factor of not having the high pressure all night and second, it adjusts to what you require, so if you use…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"Ginny, they are probably not doing anything against the law- though it may seem like fraud to us it may be an accepted practice. I would rather change DME's. Have you talked to the manager. They don't want to lose your…"
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"It really burns me up that they are doing things like this. Monday I am going to lok up th eMedicare complaint number and give them an ear full.
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RockRpsgt replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"Companies like this will have to pay in the end. Medicare is taking no prisoners in their effort to reform medicare fraud."
RockRpsgt replied to Mary Z's discussion Symptoms"I had zero symptoms. I was testing equipment one night and fell asleep hooked up. When I woke up my doc said I had an AHI of 10 with 30 second events. I have been on PAP ever since."
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"I just use a large rubber band and safety pin to attach i tho the sheet. It doesn't exactly kink, but rather seems to have almost bends that don't quite ever go away. I have one that doesn't but all the others seem to.…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"My light weight tubing does not have a tendency to kink. It just hangs down from the stand and comes back up to the bed. I tried a hose hanger, but bought the cheaper travel model and it just wasn't up to the task."
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"I was really surprised when the congestion improved without the humidification. Yes, I use the lighter weight tubing too. Do you have trouble getting the bends and kinks out of them???? I have one favorite that is broken in and I hate…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"The reasoning behind changing the tubing is that it may develop small holes or tears which causing leakage. I am careful with my tubing and don't have any animals or children playing with the tubing. I don't feel like they have…"
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Thank you for visiting the SleepGuide discussion forum. We are committed to allowing freedom of expression for our members, and that includes maintaining a safe space for people with opposing views to express themselves. We get posts from patients and pros all over the country and even the globe, so needless to say, people come with different viewpoints on Sleep Apnea. We see this diversity and variety as a real strength-- dialogue and debate are an integral part of the educational process, as well as an important tool in exploring different sides of complex issues.
SleepGuide Code of Conduct
Okay, I know we said we want you to have the freedom to express yourselves. And we do. But a few rules never hurt, right?
• Be nice! No flaming. Many posters come here for information, not to be called names.
• Please respect the different backgrounds and education of posters—especially when it comes to diverse perspectives on Sleep Apnea from patients and pros alike.
• No one needs to hear you correct them on proper grammar and spelling. Let’s talk Sleep Apnea, not the difference between affect and effect.
• Wanna talk about religion and race? Well, we don’t. We wanna talk about Sleep Apnea.
• Don’t gang up with other posters against one person. It’s not nice!
• Did I mention you should…talk about Sleep Apnea? Cool! Now get to it and have fun!
Thank you for visiting the SleepGuide discussion forum. We are committed to allowing freedom of expression for our members, and that includes maintaining a safe space for people with opposing views to express themselves. We get posts from patients and pros all over the country and even the globe, so needless to say, people come with different viewpoints on Sleep Apnea. We see this diversity and variety as a real strength-- dialogue and debate are an integral part of the educational process, as well as an important tool in exploring different sides of complex issues.
SleepGuide Code of Conduct
Okay, I know we said we want you to have the freedom to express yourselves. And we do. But a few rules never hurt, right?
• Be nice! No flaming. Many posters come here for information, not to be called names.
• Please respect the different backgrounds and education of posters—especially when it comes to diverse perspectives on Sleep Apnea from patients and pros alike.
• No one needs to hear you correct them on proper grammar and spelling. Let’s talk Sleep Apnea, not the difference between affect and effect.
• Wanna talk about religion and race? Well, we don’t. We wanna talk about Sleep Apnea.
• Don’t gang up with other posters against one person. It’s not nice!
• Did I mention you should…talk about Sleep Apnea? Cool! Now get to it and have fun!
Tags: apnea, community, sleep, welcome
Views: 743
Replies to This Discussion
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Permalink Reply by Mary Z on -
There are machines you want to avoid- one being the ResMed Escape because it only gives compliance data, and you'll want to get more data from the machine than that. There comes a point where you just have to trust your doctor. You would be completely in the dark choosing your own supplier and there is an advantage to the supplier and doctor having a relationship. If later you find you want to change suppliers this is easily done. I like the supplier I use now- the company is one that my second doc used (I have since changed docs, but kept the same DME) Often any problems with a supplier can be solved or avoided by dealing with the same tech all of the time and if there's a problem a call to the supervisor- they don't want to lose your business.
There are many fine machines out there. The brand doesn't matter. As I've said before, you want a machine that tells you AHI, AI, and leak at the very least. Explain this to the supplier, tell him/her that you want to be involved in your care and learn all there is to learn about therapy. There's a steep learning curve- you won't know exactly what to ask until you get into therapy. I suggest going to cpap.com and reading up on the popular machines- you may have some questions about what you read, ask us or ask the supplier. One of the most important aspects to therapy is finding a mask that is comfortable and doesn't leak. This takes practice. You may want to have the supplier help fit you with a mask. Did you like the mask used in your titration? Find out their return policy, usually a mask can be exchanged for a different mask during the first 30 days.
Don't be scared. Get familiar with the machines. Read the information available on the site. This is an excellent post- http://www.sleepguide.com/forum/topics/top-five-things-new-pap-users. I would not worry about copies of the sleep study aand such just yet. It wasn't important to me.
I don't know of any lemon machines out there. Before you actually use the machine you may want to write to the forum and ask if it's a good machine. As I keep repeating, data capable. You don't want a machine tht only tells the hours used.
Be alert, don't let the supplier rush you, get their phone number, be satisfied before they leave.
Don't be scared or nervous.
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Permalink Reply by Gina Ash on -
HI all i arnt sure if ive posted in the right place
Thanks for the welcome yes i am new to this i started treatment for sleep apnea about 4 weeks ago but i have been struggling big time i stuck with a mask that i could not get along with cos i did really long how long to struggle on trying with it . That in the end ive gone off sick from work i then found hope2sleep site and Kath and have had lots of support from there i am just hoping as time goes on all the will become second nature to me . i am a comunity nurse in a little place in England called hornsea and have been nursing for the last 34 years and even i have no idea about sleep apnea well untill i few weeks ago any way now it is time to learn again
ginax
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Permalink Reply by Mary Z on
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Hi Gina, yes this is a fine place to post your intro. Glad you are getting support from our UK sister site. The mask fitting is the hardest part (one of them!) in getting used to using the machine.
Good luck, keep us posted.
Mary Z.
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Permalink Reply by Mary Z on
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Gina, we all have a long way to go. It's just one night at a time. Problems can come up for any of us at any time. Of course we hope once you get going you never have to look back. Keep us posted on your progress, please.
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Permalink Reply by Steve Sklar on -
Hi,
My name is Steve Sklar, and I’m a Minneapolis-based musician and sound-healer. Recently, I founded the Worldwide Sleep Apnea-Didgeridoo Network. Just launched in January, 2012, we already have 23 teacher members in nine countries! I invite you to visit us online at http://sleepapneadidgeridoo.com
Thanks,
Steve
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Permalink Reply by Mary Z on
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We have so many new members I thought I would bump this discussion up a notch- there is so much information in these 13 pages- be prepared for some reading!
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Permalink Reply by Carolyn Lucas on
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My husband has had sleep apnea for a number of years. I have had an oximeter test which was abnormal. This is supposed to be 85% accurate in predicting whether a person has sleep apnea. My sleep study is scheduled for next weekend. Any tips or insights? I also have Afib and am on coumadin. I have been so sleepy, taking long naps and still sleeping at night.
susan finn said:Hi, I'm Susan, from NC...I was diagnosed w/ OSA 3 years ago...went on my honeymoon for my 2nd marriage & my husband said, "Baby, you snore!"....well my ex had told me that, but his mouth was open which usually meant he was lying...actually, this time he was telling me the truth! Got back home from the honeymoon & when my hubby started threatening to sleep in the other room, I went to the E.N.T. b/c I thought it was sinus related, it wasn't & you all know what happened from there...I used to be very diligent about wearing my CPAP, but I've gotten slack lately, for one thing, hubby started truck driving over a year ago & now I don't have to worry about disturbing him w/ my snoring...I can most definitely tell a difference when I don't wear it, on a really bad night I wake up feeling like I've been run over by a train! A lot of days though I can't tell a big difference, until I get REAL sleepy at work or worse, driving!
I'm glad to have found this forum...sorry I'm such a bad example for consistent use!!!
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Permalink Reply by Lala on -
Geez, I haven't been here in like....forever! Good to see this site is still pumping with lots of info and knowledgeable contributors! I see some folks on here that I know. Just thought I'd check in and see what's happening with the community! Hi y'all!
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Permalink Reply by Mary Z on
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Carolyn, take something comfortable and loose to sleep in. If you have a special pillow that you like take that. Take a list of all your meds. If you think you'll have any trouble sleeping with all the wires and gear ask your doctor for a sleeping pill. It should not affect the results of the test. Take your evening/night meds with you or take them before you go.
Good luck and keep us posted on the results.
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