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Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Monday
Fred updated their profile
Monday
ZolliStar posted a discussion

New mouth device on the market

I've been hearing advertising for this product over the past few days.  It's sold as something to help snoring, but as I look at the information it seems to me that it would work just as well as my mandibular advancement device (MAD).In other words, this could help some of us with sleep apnea.Read about it here.Anybody have any thoughts about this?  See More
Mar 31
99 replied to Mary Z's discussion AHI finally under five.
"Hi Richard I mainly use an empty humidifier as it reduces noise"
Feb 16
richard graham left a comment for richard graham
"When I can afford it I'd like to get New machine with heated tube"
Feb 10
richard graham replied to Mary Z's discussion AHI finally under five.
"I would like to see this forum active again as well. I will be more aware of what's going on"
Feb 10
ZolliStar posted a discussion

If you have trouble falling asleep....

I thought that when I got my sleep apnea diagnosis, that -- at last! -- all my sleep problems had come to an end.Ha!I have trouble falling asleep. Indeed, I rarely feel sleepy at night although I do feel tired. I even cut back on computer at night, etc., etc. (and installed f.lux on my computer) but I still had trouble. Now I'm doing something different: wearing special glasses (Uvex S1933X Skyper Safety Eyewear glasses). They block out the blue -- and they're making a difference! First I tried…See More
Feb 1
99 replied to 99's discussion colloidal silver
"i have purchased some silver the make my own colloidal silver"
Dec 21, 2014
99 replied to 99's discussion colloidal silver
"just add to the distilled water it is antimicrobial eg cleans your machine and is beneficial for keeping you healthy  from bugs germs viruses you get the picture and when you need to clean the humidifier out, put water on your plants the silver…"
Dec 21, 2014
Mary Z left a comment for richard graham
"If the heated tube works with your machine I would try that.  They also make covers for your tubing which may help some.  I think the heated tube may be your answer.  Keep us posted."
Dec 21, 2014
Mary Z left a comment for richard graham
"Richard, some folks just use the humidifier in a Passover mode.  They just don't turn it on, but let the air pick up moisture without heat."
Dec 21, 2014
Mary Z replied to 99's discussion colloidal silver
"99, where have you been?  Do you add the colloidal silver to your humidifier?"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"I Andy, I realize I'm months behind your post.  I have no idea why your S8 would stoop collecting data.  I'm glad to hear  you're having such improvement with your apnea.  I have made great strides since I changed…"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S10 AirSense - Anyone have one? Any feedback?
"Andy, just found your post.  I don't know anything about this new machine.  How are you liking your new ResMed?"
Dec 21, 2014
Mary Z left a comment for Kay Day
"Kay, I haven't been around myself and miss the old, active forum."
Dec 21, 2014
Mary Z left a comment for richard graham
"Hi Richard,  I don't bother with a humidifier.  Someone on the forum suggested not using it and I'm a lot less congested without it.  A good AHI is under 5.  I use the Wisp and have been since it came out.  I think…"
Dec 21, 2014
hifay replied to Mary Z's discussion Sleep apnea increases risk of osteoporosis
"Always something. Thanks for the information."
Dec 21, 2014
99 posted a discussion

colloidal silver

a humidifier can be used with colloidal silverthis can keep the humidifier clean for day maybe weeks or longer without the need to clean the humidifiersilver colloidal is antimicrobial and you could just top up your humidifier without cleaning and at the same time treat your bodyor you just put silver on it own into the humidifierSee More
Dec 20, 2014
richard graham posted a status
"I feel like the humidifier is making me feel yucky and I'm waking up hacking and having to clear my throat a lot for a while."
Nov 3, 2014
richard graham posted a discussion

what's a good AHI?

I've been using and auto and it says my AHI HAS been between 4 and 6 and wondering what's a good range.
Nov 2, 2014
Hi! Ready to Rock This Forum?
Thank you for visiting the SleepGuide discussion forum. We are committed to allowing freedom of expression for our members, and that includes maintaining a safe space for people with opposing views to express themselves. We get posts from patients and pros all over the country and even the globe, so needless to say, people come with different viewpoints on Sleep Apnea. We see this diversity and variety as a real strength-- dialogue and debate are an integral part of the educational process, as well as an important tool in exploring different sides of complex issues.

SleepGuide Code of Conduct
Okay, I know we said we want you to have the freedom to express yourselves. And we do. But a few rules never hurt, right?
• Be nice! No flaming. Many posters come here for information, not to be called names.
• Please respect the different backgrounds and education of posters—especially when it comes to diverse perspectives on Sleep Apnea from patients and pros alike.
• No one needs to hear you correct them on proper grammar and spelling. Let’s talk Sleep Apnea, not the difference between affect and effect.
• Wanna talk about religion and race? Well, we don’t. We wanna talk about Sleep Apnea.
• Don’t gang up with other posters against one person. It’s not nice!
• Did I mention you should…talk about Sleep Apnea? Cool! Now get to it and have fun!

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There are machines you want to avoid- one being the ResMed Escape because it only gives compliance data, and you'll want to get more data from the machine than that.  There comes a point where you just have to trust your doctor.  You would be completely in the dark choosing your own supplier and there is an advantage to the supplier and doctor having a relationship.  If later you find you want to change suppliers this is easily done.  I like the supplier I use now- the company is one that my second doc used (I have since changed docs, but kept the same DME)  Often any problems with a supplier can be solved or avoided by dealing with the same tech all of the time and if there's a problem a call to the supervisor- they don't want to lose your business.

 

There are many fine machines out there.  The brand doesn't matter. As I've said before, you want a machine that tells you AHI, AI, and leak at the very least.  Explain this to the supplier, tell him/her that you want to be involved in your care and learn all there is to learn about therapy.  There's a steep learning curve- you won't know exactly what to ask until you get into therapy.  I suggest going to cpap.com and reading up on the popular machines- you may have some questions about what you read, ask us or ask the supplier.  One of the most important aspects to therapy is finding a mask that is comfortable and doesn't leak.  This takes practice.  You may want to have the supplier help fit you with a mask.  Did you like the mask used in your titration?  Find out their return policy, usually a mask can be exchanged for a different mask during the first 30 days.

Don't be scared. Get familiar with the machines.  Read the information available on the site. This is an excellent post- http://www.sleepguide.com/forum/topics/top-five-things-new-pap-users.  I would not worry about copies of the sleep study aand such just yet.  It wasn't important to me.

 

I don't know of any lemon machines out there.  Before you actually use the machine you may want to write to the forum and ask if it's a good machine.  As I keep repeating, data capable.  You don't want a machine tht only tells the hours used.

Be alert, don't let the supplier rush you, get their phone number, be satisfied before they leave.

Don't be scared or nervous.

HI all i arnt sure if ive posted in the right place

Thanks for the welcome yes i am new to this i started treatment for sleep apnea about 4 weeks ago but i have been struggling big time i stuck with a mask that i could not get along with cos i did really long how long to struggle on trying with it . That in the end ive gone off sick from work  i then found hope2sleep site and Kath and have had lots of support from there i am just hoping as time goes on all the will become second nature to me . i am a comunity nurse in a little place in England called hornsea and have been nursing for the last 34 years  and even i have no idea about sleep apnea well untill i few weeks ago any way now it is time to learn again

ginax

Hi Gina, yes this is a fine place to post your intro.  Glad you are getting support from our UK sister site.  The mask fitting is the hardest part (one of them!) in getting used to using the machine.

Good luck, keep us posted.

Mary Z. 

i have a long way to go !!!!

Gina, we all have a long way to go.  It's just one night at a time.  Problems can come up for any of us at any time.  Of course we hope once you get going you never have to look back.  Keep us posted on your progress, please.

ok i will do thanks x

 

Hi, 

My name is Steve Sklar, and I’m a Minneapolis-based musician and sound-healer. Recently, I founded the Worldwide Sleep Apnea-Didgeridoo Network. Just launched in January, 2012, we already have 23 teacher members in nine countries! I invite you to visit us online at http://sleepapneadidgeridoo.com

Thanks,

Steve

We have so  many new members I thought I would bump this discussion up a notch- there is so much information in these 13 pages- be prepared for some reading!

My husband has had sleep apnea for a number of years. I have had an oximeter test which was abnormal. This is supposed to be 85% accurate in predicting whether a person has sleep apnea. My sleep study is scheduled for next weekend. Any tips or insights? I also have Afib and am on coumadin. I have been so sleepy, taking long naps and still sleeping at night.

susan finn said:

Hi, I'm Susan, from NC...I was diagnosed w/ OSA 3 years ago...went on my honeymoon for my 2nd marriage & my husband said, "Baby, you snore!"....well my ex had told me that, but his mouth was open which usually meant he was lying...actually, this time he was telling me the truth! Got back home from the honeymoon & when my hubby started threatening to sleep in the other room, I went to the E.N.T. b/c I thought it was sinus related, it wasn't & you all know what happened from there...I used to be very diligent about wearing my CPAP, but I've gotten slack lately, for one thing, hubby started truck driving over a year ago & now I don't have to worry about disturbing him w/ my snoring...I can most definitely tell a difference when I don't wear it, on a really bad night I wake up feeling like I've been run over by a train! A lot of days though I can't tell a big difference, until I get REAL sleepy at work or worse, driving!

I'm glad to have found this forum...sorry I'm such a bad example for consistent use!!!

you may have circulation problems try the oxymeter on the ear

Geez, I haven't been here in like....forever! Good to see this site is still pumping with lots of info and knowledgeable contributors! I see some folks on here that I know. Just thought I'd check in and see what's happening with the community! Hi y'all!

Carolyn, take something comfortable and loose to sleep in.  If you have a special pillow that you like take that.  Take a list of all your meds.  If you think you'll have any trouble sleeping with all the wires and gear ask your doctor for a sleeping pill.  It should not affect the results of the test. Take your evening/night meds with you or take them before you go.

Good luck and keep us posted on the results.

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