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Latest Activity

Mary Z replied to ZolliStar's discussion Non-invasion approach that can relieve mild sleep apnea
"Hi ZolliStar, I've heard before that speech therapy, or singing lessons can help sleep apnea.  The problem at that time was there was no way to determine which exercises help.  Getting research done, rather than anecdotal would be…"
Jul 28
ZolliStar posted a discussion

Non-invasion approach that can relieve mild sleep apnea

Some people report that singing -- singing! -- really helps their sleep apnea. Dr. Stephen Park said that myology (which are exercises to strengthen muscles around the inside of one's mouth area) helps some. I think singing would be better.  If you read all the FAQs on this (click below), I think you'll agree that it makes sense for some. Maybe you.http://www.singingforsnorers.com/index.htmSee More
Jul 28
ZolliStar posted a discussion
Jul 20
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14
richard graham replied to richard graham's discussion mouth breathing
"I still use humidity but less of it. It seems to be working OK.."
Jun 14
ZolliStar replied to richard graham's discussion mouth breathing
"I rarely use the humidifier. I think it's less necessary during the summer when there is humidity.   I also switch between my mouth device and the APAP.  I like each for different reasons. Not sure with which I sleep better, though.…"
May 21
Mary Z replied to richard graham's discussion sick again
"I've been doing well.  I think you were going to try the cpap without humidity- did that help at all?  I haven't had a cold for a couple of years."
May 14
Ginny Edmundson replied to richard graham's discussion sick again
"CPAP seems to cause stuffiness in many of us.  ANother reason I hate it so much!Do you rinse your nose with saline once a day…maybe before you go to bed for the night? "
May 5
richard graham replied to richard graham's discussion sick again
"I do wake up stuffed up most days"
May 5
richard graham replied to richard graham's discussion sick again
"I do have non allergic rhinitis. Now I'm thinking that's probably it because I only feel that way for a day or 2. Thank you"
May 4
Ginny Edmundson replied to richard graham's discussion sick again
"I have been lucky.  Not one cold past three years. Could some of your problem be allergies?"
May 4
richard graham posted a discussion

sick again

It seems like I am sick with colds more often when I'm on the CPAP. Anybody experience that.
Apr 30
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"As of now I no longer have to use a chin strap.  I am anxious about the sleep study.  Wondering if I will be able to sleep WITHOUT the CPAP….even thought I hate it it is a part of every night now and is what I am used to.  "
Apr 20

It was time for a new mask, so I thought I would try the one that inserts into your nostrils. Terrible. Same as the mask that fits over your nose only. The problem is that due to allergies, colds,etc., I breathe through my mouth a good part of the night and of course, snore while doing so. So I tried the mask that covers your nose and mouth but not your whole face. HORRIBLE!! Ended up waking every night and tearing it off as it drove me crazy!!! Or crazier!! :) Unless anyone has some brilliant solution for this, I guess it is back to the full face mask for me!! Was hoping to find something else, but nothing works.

I wish you could hook up a small cannister of Oxygen to these machines!! I have often awoke in the night, thinking that a couple of good shots of O2 would be a life saver.

Hi to everyone. Haven't visited for a while. The winter blues I guess!!

Gary

Tags: masks, oxygen

Views: 111

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I have had the Mirage Liberty for about a month now and I really like it... It is what I guess you would consider a hybrid mask. It goes around just the mouth and has nasal pillows on-top of it so I feel significantly less claustrophobic. There is nothing pushing on the bridge of our nose so there is no pressure there and if you are congested or your mouth pops open there is no problem.

The only issue is .. if the skin between your upper lip and your nose is super sensitive it may take a while to get used to this mask. It really is the only down side I have seen.

ALSO - the setup comes with L,M,S nasal pillows so you can change them out at your discretion. You can even cut them apart and use a combination of sizes together if you need it. But generally your supplier will only supply you with ONE size of plastic that goes around the mouth piece so make sure you get fitted properly or chose carefully what size to go with. I am using a small mouth piece with medium pillows.

I understand your !#$%&^% frustration! I have tried so many masks in the past six months its enough to make your head spin. Just my own experience. Maybe something like this will help you.

Gary - I, too suffer from a gazillion allergies. What I do is every night, just seconds before I put on my mask, I give myself a shot of nasal decongestant up each nostril. THEN mask up and go to sleep. Works like a charm! DO NOT USE A DECONGESTANT AT ANY OTHER TIME DURING THE DAY!!!!! You CAN become addicted to it and the consequences are truly nasty! I watched a classmate of mine trying to withdraw from it and it taught me a scary lesson! The last I heard, they were considering surgery to reopen her nasal passages. Save it for at night ONLY! Also, I have learned, I MUST use the humidifier at all times. I used to think it was for winter time only. Because of my allergies, for me that proved untrue.
Gary - I had a respiratory therapist advise me against supplemental oxygen. He said it would negatively affect my oxygen absorption during the day. Try the decongestant. It made a world of difference for me.

Have you looked into making your bed less of an 'allergy zone'? All the bugs that cause allergies love nothing more than to bed down in our mattresses where it's dark and damp and a perfect breeding ground for them! Check out latex mattresses and pillows or also consider a pillow protector or low allergenic bedding - made from wool or tencel, both of which are natural fibres and contain no chemicals which may irritate your allergies (and bed bugs don't like!).  These products won't solve your apnoea but they will make your sleep much more restful, because your allergies will be under control.....sometimes simple changes can make a big difference.

Good luck and wishing you better sleep! If you are in NZ, www.naturalsleepshop.com delivers these products free to your door, so when you are ready to upgrade, check it out!

Hayley - what makes my nose swell shut at night isn't so much "allergies" per se. It's the constant stream of air from he CPAP machine going up my nose and irritating the crap out of my sinus passages, just like allergies.

If it's stressing you out, could you practise breathing techniques for relaxation? This is one of the keys to getting better sleep whether you suffer with sleep apnoea or not - we all breathe too shallowly during the day and live life at such a frantic pace! Can't hurt to give it a try and see if it makes any difference....
Sorry to hear of your discomfort - hope it improves.  :)

Thank you Hayley!! Wouldn't have any Scottish Blood,  would you?? Lovely name.

Thanks for your comments. We have a neighbour problem. I think they are vampires, never hear them all day, and they go all night!! I am often awakened by them, and often cannot get back to sleep. Over the last 3 nights I have been up at 4AM,2AM and 5AM!! But I have been doing breathing exercises to relax, and practicing "Mindfulness Meditation" which I would recommend to one and all!!!!

Thank you everyone for the most helpful comments!! Much appreciated!!

Gary

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