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Latest Activity

ZolliStar posted a discussion
Sunday
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14
richard graham replied to richard graham's discussion mouth breathing
"I still use humidity but less of it. It seems to be working OK.."
Jun 14
ZolliStar replied to richard graham's discussion mouth breathing
"I rarely use the humidifier. I think it's less necessary during the summer when there is humidity.   I also switch between my mouth device and the APAP.  I like each for different reasons. Not sure with which I sleep better, though.…"
May 21
Mary Z replied to richard graham's discussion sick again
"I've been doing well.  I think you were going to try the cpap without humidity- did that help at all?  I haven't had a cold for a couple of years."
May 14
Ginny Edmundson replied to richard graham's discussion sick again
"CPAP seems to cause stuffiness in many of us.  ANother reason I hate it so much!Do you rinse your nose with saline once a day…maybe before you go to bed for the night? "
May 5
richard graham replied to richard graham's discussion sick again
"I do wake up stuffed up most days"
May 5
richard graham replied to richard graham's discussion sick again
"I do have non allergic rhinitis. Now I'm thinking that's probably it because I only feel that way for a day or 2. Thank you"
May 4
Ginny Edmundson replied to richard graham's discussion sick again
"I have been lucky.  Not one cold past three years. Could some of your problem be allergies?"
May 4
richard graham posted a discussion

sick again

It seems like I am sick with colds more often when I'm on the CPAP. Anybody experience that.
Apr 30
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"As of now I no longer have to use a chin strap.  I am anxious about the sleep study.  Wondering if I will be able to sleep WITHOUT the CPAP….even thought I hate it it is a part of every night now and is what I am used to.  "
Apr 20
Clueless in Redwood Shores replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"I had it on the same outpatient basis.  Much pain, no long term gain.  I did not have the annual repetition - that might or might not have made the difference. "
Apr 20
Mary Z replied to richard graham's discussion mouth breathing
"glad to hear it, Richard.  Keep us posted."
Apr 13
learned from Dr. Guilleminault at Stanford today that low blood pressure corresponds with sleep apnea as well as high blood pressure. Knew all about the high blood pressure sleep apnea conection, which results from lack of oxygen in the system. Didn't know about the low blood pressure sleep apnea connection, which Guilleminault says stems from negative pressure that builds up in the chest cavity when the body's "motor" for getting air into the lungs, which is the diaphragm, fails to get the air into the body due to an obstruction, in my wife's case in her nasal passage.

Anyone else have low blood pressure issues or otherwise familiar with this phenomenon? I don't think this is either well document or well understood, so i wouldn't be surprised if we can't get anyone with any knowledge about this.

Tags: Guilleminault, apnea, blood, low, pressure, sleep, stanford

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Wow, that's interesting. I don't have badly low bp, but i have very good bp (which always surprises docs I think who expect it to be awful because I'm heavy).

Is this low bp all the time? Or something where the bp drops down really scary low while the person is sleeping?
Dr. Guilleminault has written a lot of papers on people with upper airway resistance syndrome and low blood pressure. There are other studies that show mostly young, thin women with "orthostatic intolerance" who get dizzy or light-headed when they stand up too quickly. They also tend to have cold hands or feet, and various nasal/sinus/headache issues. Interestingly, what I find is that as they age and slowly gain weight, the low BP becomes normal, and the cold hands get better, but later as they gain more weight (or after menopause in women), they'll have high blood pressure. Many young thin people with low blood pressure have at least one parent that have high blood pressure. I don't remember the exact mechanism, but I vaguely remember that it has to do with autonomic dysfunction. My wife has this too.
Yep, that was me, my entire life - except for dizzy and/or light headed. Until COPD. Now my BP tends to run in "normal" ranges. Still no problem w/high BP. Only the last 6 months weight gain - but the Crohn's could account for the lack of weight gain.
in my wife's case, it's chronically low blood pressure, not just during sleep, which is worst just when she gets up in the morning.

amott1973 said:
Wow, that's interesting. I don't have badly low bp, but i have very good bp (which always surprises docs I think who expect it to be awful because I'm heavy).

Is this low bp all the time? Or something where the bp drops down really scary low while the person is sleeping?
sure enough, Dr. Park, my wife indeed has "cold hands and feet, and various nasal/sinus/headache issues." And Dr. Guilleminault also noted that as we age and we put on more weight, the apnea gets worse, as does the sp02, which leads someone with low blood pressure to then have high blood pressure. if anyone's interested in doing a study, maybe i can convince my wife to be a subject ;-)

Steven Y. Park, MD said:
Dr. Guilleminault has written a lot of papers on people with upper airway resistance syndrome and low blood pressure. There are other studies that show mostly young, thin women with "orthostatic intolerance" who get dizzy or light-headed when they stand up too quickly. They also tend to have cold hands or feet, and various nasal/sinus/headache issues. Interestingly, what I find is that as they age and slowly gain weight, the low BP becomes normal, and the cold hands get better, but later as they gain more weight (or after menopause in women), they'll have high blood pressure. Many young thin people with low blood pressure have at least one parent that have high blood pressure. I don't remember the exact mechanism, but I vaguely remember that it has to do with autonomic dysfunction. My wife has this too.

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