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Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13
Fred updated their profile
Apr 13
ZolliStar posted a discussion

New mouth device on the market

I've been hearing advertising for this product over the past few days.  It's sold as something to help snoring, but as I look at the information it seems to me that it would work just as well as my mandibular advancement device (MAD).In other words, this could help some of us with sleep apnea.Read about it here.Anybody have any thoughts about this?  See More
Mar 31
99 replied to Mary Z's discussion AHI finally under five.
"Hi Richard I mainly use an empty humidifier as it reduces noise"
Feb 16
richard graham left a comment for richard graham
"When I can afford it I'd like to get New machine with heated tube"
Feb 10
richard graham replied to Mary Z's discussion AHI finally under five.
"I would like to see this forum active again as well. I will be more aware of what's going on"
Feb 10
ZolliStar posted a discussion

If you have trouble falling asleep....

I thought that when I got my sleep apnea diagnosis, that -- at last! -- all my sleep problems had come to an end.Ha!I have trouble falling asleep. Indeed, I rarely feel sleepy at night although I do feel tired. I even cut back on computer at night, etc., etc. (and installed f.lux on my computer) but I still had trouble. Now I'm doing something different: wearing special glasses (Uvex S1933X Skyper Safety Eyewear glasses). They block out the blue -- and they're making a difference! First I tried…See More
Feb 1
99 replied to 99's discussion colloidal silver
"i have purchased some silver the make my own colloidal silver"
Dec 21, 2014
99 replied to 99's discussion colloidal silver
"just add to the distilled water it is antimicrobial eg cleans your machine and is beneficial for keeping you healthy  from bugs germs viruses you get the picture and when you need to clean the humidifier out, put water on your plants the silver…"
Dec 21, 2014
Mary Z left a comment for richard graham
"If the heated tube works with your machine I would try that.  They also make covers for your tubing which may help some.  I think the heated tube may be your answer.  Keep us posted."
Dec 21, 2014
Mary Z left a comment for richard graham
"Richard, some folks just use the humidifier in a Passover mode.  They just don't turn it on, but let the air pick up moisture without heat."
Dec 21, 2014
Mary Z replied to 99's discussion colloidal silver
"99, where have you been?  Do you add the colloidal silver to your humidifier?"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"I Andy, I realize I'm months behind your post.  I have no idea why your S8 would stoop collecting data.  I'm glad to hear  you're having such improvement with your apnea.  I have made great strides since I changed…"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S10 AirSense - Anyone have one? Any feedback?
"Andy, just found your post.  I don't know anything about this new machine.  How are you liking your new ResMed?"
Dec 21, 2014
Mary Z left a comment for Kay Day
"Kay, I haven't been around myself and miss the old, active forum."
Dec 21, 2014
Mary Z left a comment for richard graham
"Hi Richard,  I don't bother with a humidifier.  Someone on the forum suggested not using it and I'm a lot less congested without it.  A good AHI is under 5.  I use the Wisp and have been since it came out.  I think…"
Dec 21, 2014
hifay replied to Mary Z's discussion Sleep apnea increases risk of osteoporosis
"Always something. Thanks for the information."
Dec 21, 2014
99 posted a discussion

colloidal silver

a humidifier can be used with colloidal silverthis can keep the humidifier clean for day maybe weeks or longer without the need to clean the humidifiersilver colloidal is antimicrobial and you could just top up your humidifier without cleaning and at the same time treat your bodyor you just put silver on it own into the humidifierSee More
Dec 20, 2014
richard graham posted a status
"I feel like the humidifier is making me feel yucky and I'm waking up hacking and having to clear my throat a lot for a while."
Nov 3, 2014
richard graham posted a discussion

what's a good AHI?

I've been using and auto and it says my AHI HAS been between 4 and 6 and wondering what's a good range.
Nov 2, 2014
learned from Dr. Guilleminault at Stanford today that low blood pressure corresponds with sleep apnea as well as high blood pressure. Knew all about the high blood pressure sleep apnea conection, which results from lack of oxygen in the system. Didn't know about the low blood pressure sleep apnea connection, which Guilleminault says stems from negative pressure that builds up in the chest cavity when the body's "motor" for getting air into the lungs, which is the diaphragm, fails to get the air into the body due to an obstruction, in my wife's case in her nasal passage.

Anyone else have low blood pressure issues or otherwise familiar with this phenomenon? I don't think this is either well document or well understood, so i wouldn't be surprised if we can't get anyone with any knowledge about this.

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Wow, that's interesting. I don't have badly low bp, but i have very good bp (which always surprises docs I think who expect it to be awful because I'm heavy).

Is this low bp all the time? Or something where the bp drops down really scary low while the person is sleeping?
Dr. Guilleminault has written a lot of papers on people with upper airway resistance syndrome and low blood pressure. There are other studies that show mostly young, thin women with "orthostatic intolerance" who get dizzy or light-headed when they stand up too quickly. They also tend to have cold hands or feet, and various nasal/sinus/headache issues. Interestingly, what I find is that as they age and slowly gain weight, the low BP becomes normal, and the cold hands get better, but later as they gain more weight (or after menopause in women), they'll have high blood pressure. Many young thin people with low blood pressure have at least one parent that have high blood pressure. I don't remember the exact mechanism, but I vaguely remember that it has to do with autonomic dysfunction. My wife has this too.
Yep, that was me, my entire life - except for dizzy and/or light headed. Until COPD. Now my BP tends to run in "normal" ranges. Still no problem w/high BP. Only the last 6 months weight gain - but the Crohn's could account for the lack of weight gain.
in my wife's case, it's chronically low blood pressure, not just during sleep, which is worst just when she gets up in the morning.

amott1973 said:
Wow, that's interesting. I don't have badly low bp, but i have very good bp (which always surprises docs I think who expect it to be awful because I'm heavy).

Is this low bp all the time? Or something where the bp drops down really scary low while the person is sleeping?
sure enough, Dr. Park, my wife indeed has "cold hands and feet, and various nasal/sinus/headache issues." And Dr. Guilleminault also noted that as we age and we put on more weight, the apnea gets worse, as does the sp02, which leads someone with low blood pressure to then have high blood pressure. if anyone's interested in doing a study, maybe i can convince my wife to be a subject ;-)

Steven Y. Park, MD said:
Dr. Guilleminault has written a lot of papers on people with upper airway resistance syndrome and low blood pressure. There are other studies that show mostly young, thin women with "orthostatic intolerance" who get dizzy or light-headed when they stand up too quickly. They also tend to have cold hands or feet, and various nasal/sinus/headache issues. Interestingly, what I find is that as they age and slowly gain weight, the low BP becomes normal, and the cold hands get better, but later as they gain more weight (or after menopause in women), they'll have high blood pressure. Many young thin people with low blood pressure have at least one parent that have high blood pressure. I don't remember the exact mechanism, but I vaguely remember that it has to do with autonomic dysfunction. My wife has this too.

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