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Latest Activity

Mary Z replied to richard graham's discussion mouth breathing
"glad to hear it, Richard.  Keep us posted."
Apr 13
Mary Z left a comment for richard graham
"Glad to hear it's working, Richard."
Apr 11
richard graham replied to richard graham's discussion mouth breathing
"The chin strap is helping. Been having better sleep. Thanks Ginny and Mary for your help"
Apr 11
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Thanks, Mary~  Fingers are crossed.  My pressure is one point lower than when I began (7) and AHI is some lower (7 day average).  I am anxious about sleep study as I have not slept without CPAP in 2.5 years!   "
Apr 6
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Good job, Ginny Hope the sleep study shows some good results."
Apr 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Last procedure done!  This time he gave me meds to take before so less anxiety while waiting!  For the first time I was able to eat normal food on the way home after the procedure.  No pain after 12 hours.  If it only works.…"
Apr 5
Mary Z replied to richard graham's discussion mouth breathing
"Some folks run their humidifiers in passover mode- not turning on the heat just letting the air blow over the water.  That would not give any heat though. "
Apr 5
richard graham replied to richard graham's discussion mouth breathing
"Interesting, I actually feel a little better when I don't use the humidifier, but the humidifier helps with sinuses. The cold air stuff's me up. Gonna try running heat and a nasal spray"
Apr 4
Mary Z replied to richard graham's discussion mouth breathing
"Good luck with it- let us know how you do, Richard."
Apr 4
richard graham replied to richard graham's discussion mouth breathing
"I just picked up a new chin strap and will use it with my ultra mirage."
Apr 4
richard graham posted a discussion

nasal sprays

Just wanting some suggestions for some good nasal sprays to dry up sinusus. Thank you
Apr 3
richard graham replied to richard graham's discussion mouth breathing
"Thanks Mary"
Apr 3
Mary Z replied to richard graham's discussion mouth breathing
"I have both.  I use the chin strap with my Wisp and I also have a FFM if I choose to use that one. I'm a mouth breather.  I find nasal masks are easier to fit without leaks"
Apr 3
Mary Z replied to Mary Z's discussion Using comfort features
"Nasacort is now available without a prescription.  I personally use Afrin on the rare nights I need it for being stuffed up."
Apr 3
richard graham replied to Mary Z's discussion Using comfort features
"Mary, do you recommend a good nasal spray?"
Apr 2
richard graham replied to richard graham's discussion mouth breathing
"Wondering if mouth breathers do better with FFM"
Apr 2
richard graham posted a discussion

mouth breathing

I'm a mouth breather, and am wondering weather to get a chin strap or affm
Apr 2
richard graham replied to Mary Z's discussion Using comfort features
"I've been thinking about trying a nasal spray. Thanks that's useful info."
Apr 2
Mary Z replied to Mary Z's discussion Using comfort features
"I have to admit, it's easier to fall asleep."
Mar 31
Ginny Edmundson replied to Mary Z's discussion Using comfort features
"have always used the comfort setting since starting. I tried it once without and hated it. "
Mar 30
learned from Dr. Guilleminault at Stanford today that low blood pressure corresponds with sleep apnea as well as high blood pressure. Knew all about the high blood pressure sleep apnea conection, which results from lack of oxygen in the system. Didn't know about the low blood pressure sleep apnea connection, which Guilleminault says stems from negative pressure that builds up in the chest cavity when the body's "motor" for getting air into the lungs, which is the diaphragm, fails to get the air into the body due to an obstruction, in my wife's case in her nasal passage.

Anyone else have low blood pressure issues or otherwise familiar with this phenomenon? I don't think this is either well document or well understood, so i wouldn't be surprised if we can't get anyone with any knowledge about this.

Tags: Guilleminault, apnea, blood, low, pressure, sleep, stanford

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Wow, that's interesting. I don't have badly low bp, but i have very good bp (which always surprises docs I think who expect it to be awful because I'm heavy).

Is this low bp all the time? Or something where the bp drops down really scary low while the person is sleeping?
Dr. Guilleminault has written a lot of papers on people with upper airway resistance syndrome and low blood pressure. There are other studies that show mostly young, thin women with "orthostatic intolerance" who get dizzy or light-headed when they stand up too quickly. They also tend to have cold hands or feet, and various nasal/sinus/headache issues. Interestingly, what I find is that as they age and slowly gain weight, the low BP becomes normal, and the cold hands get better, but later as they gain more weight (or after menopause in women), they'll have high blood pressure. Many young thin people with low blood pressure have at least one parent that have high blood pressure. I don't remember the exact mechanism, but I vaguely remember that it has to do with autonomic dysfunction. My wife has this too.
Yep, that was me, my entire life - except for dizzy and/or light headed. Until COPD. Now my BP tends to run in "normal" ranges. Still no problem w/high BP. Only the last 6 months weight gain - but the Crohn's could account for the lack of weight gain.
in my wife's case, it's chronically low blood pressure, not just during sleep, which is worst just when she gets up in the morning.

amott1973 said:
Wow, that's interesting. I don't have badly low bp, but i have very good bp (which always surprises docs I think who expect it to be awful because I'm heavy).

Is this low bp all the time? Or something where the bp drops down really scary low while the person is sleeping?
sure enough, Dr. Park, my wife indeed has "cold hands and feet, and various nasal/sinus/headache issues." And Dr. Guilleminault also noted that as we age and we put on more weight, the apnea gets worse, as does the sp02, which leads someone with low blood pressure to then have high blood pressure. if anyone's interested in doing a study, maybe i can convince my wife to be a subject ;-)

Steven Y. Park, MD said:
Dr. Guilleminault has written a lot of papers on people with upper airway resistance syndrome and low blood pressure. There are other studies that show mostly young, thin women with "orthostatic intolerance" who get dizzy or light-headed when they stand up too quickly. They also tend to have cold hands or feet, and various nasal/sinus/headache issues. Interestingly, what I find is that as they age and slowly gain weight, the low BP becomes normal, and the cold hands get better, but later as they gain more weight (or after menopause in women), they'll have high blood pressure. Many young thin people with low blood pressure have at least one parent that have high blood pressure. I don't remember the exact mechanism, but I vaguely remember that it has to do with autonomic dysfunction. My wife has this too.

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