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Latest Activity

liz4cps commented on liz4cps's group Prince William Co, VA support group
"BluePoint Medical* holding their next Remedy event on June 4 with Terry Cralle, RN on "Sleep in the Mordern Family".  They will also be checking CPAP machines and providing breakfast. Click on link above for more…"
May 7
Dan Lyons posted a discussion

CPAP & Dry Mouth

In recent months, I have developed extreme dry mouth as a result of the CPAP.  I am a mouth breather when using CPAP.Recently, I saw an advertisement for the symptoms of dry mouth, but as usual, when I need the information to have a discussion with both my primary care  physician and my dentist I haven't seen the ad. Has anyone else seen the ad and can anyone remember the info in the ad?Thanks in advance,DanSee More
Mar 30
richard graham posted a status
"My deductible is double what a machine is online but I can't get the machine set up. Any ideas?"
Mar 10
BeeAsleep posted a status
"Hi all. I am just checking in and saying hi after being gone for a long time. I am doing GREAT! Just got a new machine and mask. Feel like I"
Jan 23
BeeAsleep updated their profile
Jan 23
99 replied to Fred's discussion CPAP - cure worse than the disease
"Do not turn light on as this hinder you from falling asleep or choose red light instead which do not afect your sleep"
Oct 27, 2015
99 left a comment for Joan Williams Rice
"Hi Joan visiting pelham and I have osa"
Oct 27, 2015
99 left a comment for martha crabtree
"Hi maths visiting pelham "
Oct 27, 2015
99 left a comment for Rhonda Harrison
"Hi Rhondda I am visiting pelham and have osa "
Oct 27, 2015
99 posted a discussion

Leaky gut

Do you have a leaky gutHow would you knowA telltale sign for leaky gut is Athletes footI wish to ask do you have or suffer from itThe reason I ask is maybe this is a common denominatorJust text yes or text noAnd if you are the first to text also keep a tallyExample38 yes 0 noYour input would alter the tally39 yes 0 noSo now I will input first1 yes. 0 noSee More
Sep 26, 2015
richard graham posted a status
"For the first time in a while I got a whole night sleep with my machine but woke up beat and left side of my head feels weird, not sure if"
Sep 2, 2015
Brendan Duffy posted a status
"How did you slhttp://blog.aastweb.org/winners-and-losers-food-for-thought-sleep-and-athletic-success?utm_campaign=subscribers&utm_source=hs_"
Jul 9, 2015
Pat Kniel updated their profile
Jul 7, 2015
ZolliStar replied to Fred's discussion CPAP - cure worse than the disease
"I'm wondering: what prompted you to consider whether you have sleep apnea in the first place? Also, waking throughout the night isn't uncommon especially as we (*sigh*) age.  I seem to every 90 minutes or so. This pattern probably…"
Jun 27, 2015
ZolliStar replied to ZolliStar's discussion New mouth device on the market
"You can try this website:  http://zyppah.com/ I have a MAD (mandibular advancement device). Dr. Steven Park evaluated my mouth and throat (not everyone can use a MAD, it turns out) and pronounced me a candidate for it. The truth?  I…"
Jun 27, 2015
Mary Z replied to ZolliStar's discussion New mouth device on the market
"The link didn't work so me so I couldn't see the product.  I do have experience with a supposedly reliable boil and bite device.  I should know by now I have a small mouth and nothing regular size fits.  I don't think…"
Jun 27, 2015
richard graham replied to ZolliStar's discussion New mouth device on the market
"If I thought something could work other than this lousy cpap that would be awesome"
May 22, 2015
richard graham posted a status
"I moved and have been sick a lot and can't use cpap because of cough and I'm depressed a lot"
Apr 26, 2015
Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13, 2015
Fred updated their profile
Apr 13, 2015
learned from Dr. Guilleminault at Stanford today that low blood pressure corresponds with sleep apnea as well as high blood pressure. Knew all about the high blood pressure sleep apnea conection, which results from lack of oxygen in the system. Didn't know about the low blood pressure sleep apnea connection, which Guilleminault says stems from negative pressure that builds up in the chest cavity when the body's "motor" for getting air into the lungs, which is the diaphragm, fails to get the air into the body due to an obstruction, in my wife's case in her nasal passage.

Anyone else have low blood pressure issues or otherwise familiar with this phenomenon? I don't think this is either well document or well understood, so i wouldn't be surprised if we can't get anyone with any knowledge about this.

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Wow, that's interesting. I don't have badly low bp, but i have very good bp (which always surprises docs I think who expect it to be awful because I'm heavy).

Is this low bp all the time? Or something where the bp drops down really scary low while the person is sleeping?
Dr. Guilleminault has written a lot of papers on people with upper airway resistance syndrome and low blood pressure. There are other studies that show mostly young, thin women with "orthostatic intolerance" who get dizzy or light-headed when they stand up too quickly. They also tend to have cold hands or feet, and various nasal/sinus/headache issues. Interestingly, what I find is that as they age and slowly gain weight, the low BP becomes normal, and the cold hands get better, but later as they gain more weight (or after menopause in women), they'll have high blood pressure. Many young thin people with low blood pressure have at least one parent that have high blood pressure. I don't remember the exact mechanism, but I vaguely remember that it has to do with autonomic dysfunction. My wife has this too.
Yep, that was me, my entire life - except for dizzy and/or light headed. Until COPD. Now my BP tends to run in "normal" ranges. Still no problem w/high BP. Only the last 6 months weight gain - but the Crohn's could account for the lack of weight gain.
in my wife's case, it's chronically low blood pressure, not just during sleep, which is worst just when she gets up in the morning.

amott1973 said:
Wow, that's interesting. I don't have badly low bp, but i have very good bp (which always surprises docs I think who expect it to be awful because I'm heavy).

Is this low bp all the time? Or something where the bp drops down really scary low while the person is sleeping?
sure enough, Dr. Park, my wife indeed has "cold hands and feet, and various nasal/sinus/headache issues." And Dr. Guilleminault also noted that as we age and we put on more weight, the apnea gets worse, as does the sp02, which leads someone with low blood pressure to then have high blood pressure. if anyone's interested in doing a study, maybe i can convince my wife to be a subject ;-)

Steven Y. Park, MD said:
Dr. Guilleminault has written a lot of papers on people with upper airway resistance syndrome and low blood pressure. There are other studies that show mostly young, thin women with "orthostatic intolerance" who get dizzy or light-headed when they stand up too quickly. They also tend to have cold hands or feet, and various nasal/sinus/headache issues. Interestingly, what I find is that as they age and slowly gain weight, the low BP becomes normal, and the cold hands get better, but later as they gain more weight (or after menopause in women), they'll have high blood pressure. Many young thin people with low blood pressure have at least one parent that have high blood pressure. I don't remember the exact mechanism, but I vaguely remember that it has to do with autonomic dysfunction. My wife has this too.

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