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Latest Activity

Andy posted a discussion

Resmed S10 AirSense - Anyone have one? Any feedback?

Hi All,I've just ordered a new Resmed S10 AirSense, and I was wondering if anyone here has used one?Any information or input would be appreciated!See More
Sep 29
Andy replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"Hi All, Well, I went to the sleep doc today, and he ordered a new S10 for me! I still don't know why my S8 is not tracking data anymore. Anyone have any ideas?"
Sep 29
Oscar Lemus updated their profile
Sep 25
liz4cps commented on liz4cps's group Prince William Co, VA support group
"Just found they have a Facebook for the REMedy event, 1st Class Sleep REMedy Wellness Health Fair."
Sep 25
liz4cps commented on liz4cps's group Prince William Co, VA support group
"Reminder: REMedy event is this Saturday, 10 am to 2pm.  Topics include: Nutrition and Weight Management with Sarah Kelly, Registered Nutritionist/Dietitian Oral Appliance Therapy for Sleep Apnea with Drs. Rena Vakay & Lara…"
Sep 25
Kay Day left a comment for Kay Day
"September 1, 2014 My apologies to Sleep Guide for not participating in a long time. In January 2012 I started classes at the local community college (my husband is an instructor there, and my tuition is refunded when my grades are above a C. My…"
Sep 1
Mary Z posted a discussion

Sleep apnea increases risk of osteoporosis

Sleep apnea/osteoporosis study finds “increased” health riskA recently published study may have found a connection between obstructive sleep apnea (OSA) and osteoporosis, marking yet another health…See More
Aug 23
Mary Z replied to ZolliStar's discussion Non-invasion approach that can relieve mild sleep apnea
"Hi ZolliStar, I've heard before that speech therapy, or singing lessons can help sleep apnea.  The problem at that time was there was no way to determine which exercises help.  Getting research done, rather than anecdotal would be…"
Jul 28
ZolliStar posted a discussion

Non-invasion approach that can relieve mild sleep apnea

Some people report that singing -- singing! -- really helps their sleep apnea. Dr. Stephen Park said that myology (which are exercises to strengthen muscles around the inside of one's mouth area) helps some. I think singing would be better.  If you read all the FAQs on this (click below), I think you'll agree that it makes sense for some. Maybe you.http://www.singingforsnorers.com/index.htmSee More
Jul 28
ZolliStar posted a discussion
Jul 20
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14
richard graham replied to richard graham's discussion mouth breathing
"I still use humidity but less of it. It seems to be working OK.."
Jun 14
ZolliStar replied to richard graham's discussion mouth breathing
"I rarely use the humidifier. I think it's less necessary during the summer when there is humidity.   I also switch between my mouth device and the APAP.  I like each for different reasons. Not sure with which I sleep better, though.…"
May 21

Hi there,

 

I am having issues with my full face mask.  First mask I tried was the Quattro mask but it kept moving too close to my eyes while sleeping and my skin was irritated.  They immediately gave me the Quattro FX mask but I am having trouble with it too.  I have wore it twice and then by Friday I woke up with extremely dry skin with my eyes draining.  I tried to put moisturizer on my face during the day to alleviate the dryness and tightness but it majorly burn.  Again I had to give the mask a break so that my skin could heal as well as my eye areas.  It look like wrinkle alligator skin and now is flaking of dry skin.  My face hurt to move throughout the weekend due to tightness and uncomfortableness.  Today is my skin is a little better.  I let my doctor and DME know and they gave me several options.  DME thinks I am allergic to it and think I should try nasal pillows.  I have several questions and wonder if anyone dealt with the same problems like me.  I REALLY think the air from vent is deflecting into my eyes. 

 

Doctor said I should try the Liberty mask by ResMed which she said I wont have to worry about the air blowing into your eyes.  However part of the mask is nasal pillows and that give me major concerns.  During my titration study, they try a nasal mask on me but I about had a panic attack.  The air from the nasal mask burn in my nose and I felt like I could not breathe.  Is that normal and something I have to get use to?  I am sure I have a slight deviated septum and get several sinus infections every year with constant congestion.

Another option is to try the CPAP mask liners from Remzzz.com but they do not have a liner for Quattro FX.  Has anyone got these liners for the Quattro FX and it improve their skin problems? 

I also they suggested to wash my mask everyday and make sure my face is clean right before sleeping with mask.

 

I am torn because I do not know what I should and I am really scared to try something due reactions from my skin.  Has anybody dealt with this before?  Or should I try nasal pillows even though I can hardly breathe through my nose?  Any advice is greatly appreciated!  I am ready to throw in the towel on this.  Corinne

 

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I would believe due to your deviated septum, using a Liberty mask might be in your best interest.  The pressure into your nostrils would not seem as intense because your have the mouth portion as well.  Claustrophobia is not an unusual problem to develop with starting therapy.  You may wish to bring the new mask home, try it on again and use it for a short period of time with therapy using your ramp button. You may need to do this several times before sleeping with it.  Also occupying yourself while you are trying to 'desensitize' yourself to the new mask by reading or watching tv.
Hi Corinne--- I recently got the Swift Mirage FX nasal pillows mask, it is heaven to me, it has a supply tube that's like a slinky, it moves freely in all directions, but I have to wear a chinstrap underneath, the DME sent me the Cardinal/Carefusion/Primier "Puresom" it's a great chinstrap, not too bulky, not too unsubstantial, and he did say when I asked about a fullface mask "Liberty" was the first recommend. Let us know how you are doing.

Thanks!  I am torn on whether getting mask liners for mask and try the mask again.  Or just try the Liberty mask even though my nose is congested most of the time. 

The chinstrap does not sound appealing since I am constantly breathing through my mouth day and night.  I noticed that I have drooled some into my face mask.  My skin is still extremely dry but no longer hurt when I put on moisturizer on my face.

Okay, so my sleep clinic is letting me stop in tomorrow to get some mask liners.  She also recommend that I wash my mask today in Dawn w/Bleach (or Ajax w/bleach) to get rid of everything that might irritating my skin.  Keeping my hopes up in knowing all will improve over time.  Thanks everyone!
Hi Corinne, I have been using for about a week now food grade glycerine from "NOW foods" It is a moisturiser and a protectant from "wind burn" it is waterbased and slightly stickey thus helps mask seal better.AYR nasal gell can also help but is more money . My wind burn has stopped . Night time eye gell will help with dry eye . Good Sleep,Chris
I am having trouble with masks at the moment I finally got used to using my nasal mask but it was starting to rub the corner of one eye because I am a side sleeper so when I went to my appointment on Monday they gave me a nasal pillow to try being the UK NHS I could not bring my original mask home due to costs (even though they know where I live) anyway I just can't get used to the leaks from the pillow I have not had a good nights sleep this week the thing was the technician only put it against my nose not even bothering to find out what sized pillow I need I have just telephoned them to ask for my original mask back am still waiting for a reply but it will probably now be Monday before anything changes. On my last mask I mamanged to sleep for hours every night for four weeks. So frustrating to get things done never see the same person twice at the clinic.

I used to have problems with the Mirage Quattro FF mask leaking on the bridge of my nose and shooting an irritating stream of air into my eyes. But I've come up with a new way of putting my mask on that seems to help.

 

Rather than placing the mask directly onto the bridge of my nose I place it mid nose and slide it up towards the bridge of my nose stopping just a bit short. I think this method creates more contact between the mask membrane and my nose for a better seal and less leeking.

 

Best of luck, Tom 

Have you found any relief ......?

Hey Chris,  I found some relief the mask liners which I got my order today.  I am still dealing with air blowing into my eyes.  Might end getting a eye mask to wear.  It slowly getting better.  Once my frustration and anxiety goes down I will relax and hopefully eventually get use to a mask on my face while sleeping.  I do get frustrated to trying to comfortable sleeping on my side with the mask.  I finally will see my sleep doctor next week so we will see. I never heard of food grade glycerine from "NOW foods".

 

Tom I will try that technique.  Thanks

Well this mask kept blowing air into my eyes and my sleep doctor did not like that.  I traded my Quattro FX mask for the Liberty Hybrid mask.  I will always have some leaks apparently since my face is so tiny.  So far this mask is more bearable and no skin breakouts and little leaks.  This is my third mask and hope it my last one.  I am noticing that for the last few days I have been waking up at 4 or 5am and take off the mask then go back to sleep. I guess I get sick of it.  Shame on me..lol.  Now I need to break this habit. After a month of sleep with the CPAP sporadically people already commented that I sound and look better.  Woohoo!
Can you obtain the Pad a Cheek liners in the uk. Apparently the reason the Nasal Pillow did not work is because I have a very slight bend in my nose? so back to my Mirage Softgel Nasal Mask but for a birthday treat to myself I have ordered a Sleepweaver Mask I hope this works because it cost £100-00 our NHS do not supply them will let you know the outcome when it arrives 

Mike C (at the Beach!) said:
I had found BOTH my Quattro & then FX useless. I tried Pad A Cheek mask liner=FIXED my problems. ALL of them it seems. She also adds a little "exrta" padding to the NOSE BRIDGE. No MORE SKIN IRRITATION, no more leaks. I have now set a new world record...6 nights of full 8 hours sleep. First time on almost 50 years. The BEST part is unlike the expensive RemZzzs liners, these are fully ATTACHED. Just work perfect and I can pop off the mask all I need to and no goofing around to line everything up. I tried that $15.00 gel pad too. For ONE night & tossed it! Try just one single Pad A Cheek. But mention to Karen you have a problem with stuff near your eyes. She has a new style out now to help with that. I have 3 more on the way. Now I have 4 masks but will never, EVER take off my Quattro that I used to cuss for most the next day....

Hi Corinne, Now foods products are not carried by regular grocery stores a health food type store or on line will get you there. Their is also Chapstick it is helpful in preventing wind burn on your face not just lips.I hope you find relief soon I know its frusterating Keep looking for your solutions, When it is set up just right for you their will be a lot more than 1 woohoos for you.Good Sleep,Chris

Corinne said:

Hey Chris,  I found some relief the mask liners which I got my order today.  I am still dealing with air blowing into my eyes.  Might end getting a eye mask to wear.  It slowly getting better.  Once my frustration and anxiety goes down I will relax and hopefully eventually get use to a mask on my face while sleeping.  I do get frustrated to trying to comfortable sleeping on my side with the mask.  I finally will see my sleep doctor next week so we will see. I never heard of food grade glycerine from "NOW foods".

 

Tom I will try that technique.  Thanks

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