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99 replied to Mary Z's discussion AHI finally under five.
"Hi Richard I mainly use an empty humidifier as it reduces noise"
Feb 16
richard graham left a comment for richard graham
"When I can afford it I'd like to get New machine with heated tube"
Feb 10
richard graham replied to Mary Z's discussion AHI finally under five.
"I would like to see this forum active again as well. I will be more aware of what's going on"
Feb 10
ZolliStar posted a discussion

If you have trouble falling asleep....

I thought that when I got my sleep apnea diagnosis, that -- at last! -- all my sleep problems had come to an end.Ha!I have trouble falling asleep. Indeed, I rarely feel sleepy at night although I do feel tired. I even cut back on computer at night, etc., etc. (and installed f.lux on my computer) but I still had trouble. Now I'm doing something different: wearing special glasses (Uvex S1933X Skyper Safety Eyewear glasses). They block out the blue -- and they're making a difference! First I tried…See More
Feb 1
99 replied to 99's discussion colloidal silver
"i have purchased some silver the make my own colloidal silver"
Dec 21, 2014
99 replied to 99's discussion colloidal silver
"just add to the distilled water it is antimicrobial eg cleans your machine and is beneficial for keeping you healthy  from bugs germs viruses you get the picture and when you need to clean the humidifier out, put water on your plants the silver…"
Dec 21, 2014
Mary Z left a comment for richard graham
"If the heated tube works with your machine I would try that.  They also make covers for your tubing which may help some.  I think the heated tube may be your answer.  Keep us posted."
Dec 21, 2014
Mary Z left a comment for richard graham
"Richard, some folks just use the humidifier in a Passover mode.  They just don't turn it on, but let the air pick up moisture without heat."
Dec 21, 2014
Mary Z replied to 99's discussion colloidal silver
"99, where have you been?  Do you add the colloidal silver to your humidifier?"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"I Andy, I realize I'm months behind your post.  I have no idea why your S8 would stoop collecting data.  I'm glad to hear  you're having such improvement with your apnea.  I have made great strides since I changed…"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S10 AirSense - Anyone have one? Any feedback?
"Andy, just found your post.  I don't know anything about this new machine.  How are you liking your new ResMed?"
Dec 21, 2014
Mary Z left a comment for Kay Day
"Kay, I haven't been around myself and miss the old, active forum."
Dec 21, 2014
Mary Z left a comment for richard graham
"Hi Richard,  I don't bother with a humidifier.  Someone on the forum suggested not using it and I'm a lot less congested without it.  A good AHI is under 5.  I use the Wisp and have been since it came out.  I think…"
Dec 21, 2014
hifay replied to Mary Z's discussion Sleep apnea increases risk of osteoporosis
"Always something. Thanks for the information."
Dec 21, 2014
99 posted a discussion

colloidal silver

a humidifier can be used with colloidal silverthis can keep the humidifier clean for day maybe weeks or longer without the need to clean the humidifiersilver colloidal is antimicrobial and you could just top up your humidifier without cleaning and at the same time treat your bodyor you just put silver on it own into the humidifierSee More
Dec 20, 2014
richard graham posted a status
"I feel like the humidifier is making me feel yucky and I'm waking up hacking and having to clear my throat a lot for a while."
Nov 3, 2014
richard graham posted a discussion

what's a good AHI?

I've been using and auto and it says my AHI HAS been between 4 and 6 and wondering what's a good range.
Nov 2, 2014
Andy posted a discussion

Resmed S10 AirSense - Anyone have one? Any feedback?

Hi All,I've just ordered a new Resmed S10 AirSense, and I was wondering if anyone here has used one?Any information or input would be appreciated!See More
Sep 29, 2014
Andy replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"Hi All, Well, I went to the sleep doc today, and he ordered a new S10 for me! I still don't know why my S8 is not tracking data anymore. Anyone have any ideas?"
Sep 29, 2014
Oscar Lemus updated their profile
Sep 25, 2014

I just recently went on vacation with 18 other people.  Four of us are diagnosed with Sleep

Apnea.  I decided to try and talk to everyone about their machines and compliance.  Three of us use our machines regularly and one has put it in the closet.  No one else knew anything about the settings on the machine or had any interest in seeing/tracking their own data. Everyone, except the woman who is not using hers brought their machine on vacation.  I did not get to talk to the woman not using hers any more about why.  Her roommate told me she was not using it, but before I could ask her why, she got a message that her 57 year old brother had died in his sleep and she went home.  I don't know why her brother died, or if he had OSA.

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Replies to This Discussion

Thanks for you welcome note, Mary.

Hate bringing my machine with me but have no choice. In addition to the sleep apnea, my nose is stopped up 24/7 and closes up so much that I can't breathe when lying down. I was offered surgery with no guarantees, tried every med on the market. Then used Zicam (which worked better than any prescription) and lost my sense of smell, now use the Breathe Rite strips with the machine. Was told to lose weight because it would help and I lost 37# with no change in the apnea. I turned down a great opportunity to teach English because the remote village didn't have electricity.
i bring the machine with me every single time i sleep away from home. if i didn't have it one night, i think i would panic at first, then just set up pillows so that i'm as elevated as possible in the bed to counter the force of gravity on the tissue in the back of my throat.
I have seen posts from some people who feel that they shouldn't need to use their CPAP while on vacation, camping, or on a business trip. I have no idea where these people are getting the idea that they don't need to use their CPAP while away from home. Are DMEs telling people that they don't need to use their CPAP while on vacation?
I always take my CPAP with me when I go on vacation. I was diagnosed with Apnea over 10 years ago and have only missed using my CPAP two nights in that time.
I always bring and use it on vacation and I get my BEST sleep on vacations. The distractions of being at home always keep me up later and thinking about commitments for the the next day always wakes me up early or in the middle of the night. It would be such a shame to waste the opportunity for great sleep without the machine. (I love vacations).

But I haven't been camping in the years since my diagnosis and getting the machine (and having two kids)- I'm not sure what I will do the next time I go camping! (What are the options for going camping without an electrical outlet near your bed with a CPAP?)
I do use my CPAP everytime I sleep. Naps, nightime, away from home, they all get me on the hose. I love the sleep I get when I use the CPAP, and I hate the lack of sleep I would get without it.
Simple, I use CPAP when I sleep, wherever I sleep. It is for my health. We camp and go on trips and do all the things normal people do, I just have an extra bag with me. No problem as I see it.

I do hope more people will get the message that if you have OSA, you need to use a CPAP when you sleep.

I just got my cpap in feb. so don't have a lot of experience with it yet but I did go camping with it twice this summer, the second time for a week and a half, and it worked just fine. Slept really well. I brought along a marine battery to power it. I plan on bringing it on all vacations in the future.
1. If one uses a CPAP/APAP machine - it is not for pleasure but rather is for sustaining life and anyone who would go on vacation and not take it with is not thinking straight.
2. Not only do we take our APAP machine with us on vacation; we take our spare as well (but leave the humidifier, etc. at home). If we are going somewhere that has regular power issues/outages, we leave the spare and take a UPS with us.
3. Most folks who put their CPAP machines in the closet have no clue as to the importance (URGENCY!) of using CPAP once diagnosed with OSA/etc. It is LIFE sustaining and is considered by law as such in the United States and most airlines to the extent that it may be brought into the cabin as carry-on without being counted as carry-on luggage. These folks simply don't get it.
4. The gal that lost her brother at 57 in his sleep? I would bet my bottom dollar, barring any terminal illness that was missed, that the brother died as a result of having OSA/etc. and NOT being diagnosed or being diagnosed and not compliant. Regretably, MOST ALL cases of "he died peacefully in his sleep" are the result of untreated OSA. Untreated OSA causes many critical organs in the body to perform below par but the biggest threat comes from SpO2 desaturations during apnea/hypopnea events; when the blood oxygen saturation plummets, the blood pressure can spike sky high, causing heart attack, stroke, aneurism, etc. And as "he died peacefully in his sleep" a post-mortem is rarely done.

I not only have a data recording APAP (ResMed S9 Auto), I also have a fingetip pulse oximeter to provide myself and my MD's with a fuller picture of what is going on with my body even with APAP in use. The use of APAP/CPAP is no guarantee that your SpO2 is remaining in the 'healthy' range. In terms of what paramedics are taught? Any SpO2 below 90% is considered to be respiratory distress and O2 is administered. I would be willing to bet that most CPAP users have no idea of what their SpO2 is on a regular basis. A pulse oximeter (Contec CMS50E for example) is about $120 and can save your life in the long run.

I would not dream of going on a vacation anywhere without one of my APAP machines in tow. Out of the question. Period.
I always bring my CPAP. I travel alot for business and it's always with me. I have the airport routine down.

Ashburn, VA
If I want to sleep comfortable while on vacation, I have to take my machine with me. I hate taking it through airports, because they practically dismantle it to check it out. We usually take driving vacations, so it is no big deal. I have found, however, that I must carry a 3-way plug. Not all motels/hotels have adequate plug-ins.
I would rather miss my flight than get on in without my faithful friend :D Holidays are very precious to me, and no way would I ever ruin a holiday through extreme tiredness/exhaustion. I also take more than one mask with me, just in case...... I agree with Karen too, and am always stressing the importance to people of using CPAP even for daytime naps.
I have been taking my machine on business and vacation trips. However, I have been told that one can mitigate the effects of leaving the machine at home, by substituting an oral (mouth piece) device for short trips.

Could/would anyone care to weigh-in on that suggestion?


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