Ginny Edmundson

Clyde, NC

United States

Profile Information:

My Interest in Sleep Apnea
I have Sleep Apnea
Treatment Being Used, if any
CPAP
If Machine Being Used, What Type? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Phillips Respironics REMstar Auto A-Flex
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Phillips Respironics GoLife~made for men, but I am a woman!

Comment Wall:

  • Mary Z

    Ginny, as a fellow member of the forum I would like to welcome you to SleepGuide
  • Mary Z

    Ginny, I've never had the RT take measurements, but he would bring over a bunch of masks and let me try them on.  The bridge of my nose breaks down easily so that's what we had to work around.

    Good Luck

  • sleepycarol

    Welcome to the forum.  We are glad you joined.
  • Mary Z

    You reminded me of this Steven Wright joke (sorry it's in bad taste).  I had no shoes and I felt sorry for myself.  Then I met a man with no feet, and I asked him- You got any shoes you don't need?  A  better one is I wish I had a dollar for every dollar I ever spent. Yahoo! I'd have all my money back.

    Yeah, no one wants to be here, but I've learned so much and gotten so much encouragement from this forum. Again, welcome.

  • bigzeds

    Yes,I know but it takes the spontaneity out of the situation,and always think it would be rude of me to presume I was going to be asked to stay.I am glad I am not a pick up artist as I think many ladies would ask me what was in my rucksack on my back[cpap]
  • Russell Macmillan

    Yes, please feel free to visit our website at http://sleepapneasolutionsinc.com
  • Lisa

    Hi Ginny, I'm the same age as you, but got my diagnosis of S.A. about 18 years ago, thanks to my husband spotting that I frequently stopped breathing when asleep. (SATS were down to 79% on my first sleep study). This site and its sister site in UK are great sources of info., as is Dr Park's site. I've also learned loads from listening to his expert interviews -tho' Dr Park's 8pm start is 1am for me in UK! Check out the info on UARS- you might well find you fit the profile, I know I did.

    Good luck with getting sorted.  Oh and don't give up the travelling. My machine has been all over Europe and out to Australia. Best wishes and happy travelling.

  • Noreen LaVallo

    QVC had it also I think I saw it at Sears on line.  If you google L shaped pillow they will come up.  Mine cost about $28.00.
  • Noreen LaVallo

    I also saw the boomerang pillow on the WalMart website and that is supposed to be the best one.  It is worth a try.  It has been a lifesaver for me.
  • Noreen LaVallo

    You put one side at your back and the other is like a longer regular pillow but narrow enough for your head to go on the edge without disturbing the mask.  I sleep as close to the edge as possible and it works wonders...I have a huge leakage problem due to having a 30 pressure as my high point.  This almost eliminates the leakage issues for me.  You can even lie on your back on it for a while and it is very comfortable.  Some years ago I used one of those pillows that they sit babies in to teach them to sit up...it is smaller that the boomerang and worked great until it wore out.  This one worked best for me and I have been trying pillows for years until I found this one.
  • J.Hingg

    Hi Ginny,

    thanks for the info. I have been diagnosed with mild positional SA and the sleep specialist has suggested looking at sleep pillow therapy. Have started on the Sona Pillow, still too early days to notice any change. At this point trying to get use to the pillow is a challenge.

  • Mary Z

    Sorry Ginny.  I should not have mentioned the custom nasal masks that are obviously out of reach for 99% of us, and I believe you had mentioned you use a FFM.. I don't know what I was thinking of!

    Mary Z.

  • Lynn Rochell

    how far down the nose do you put top of FX mask and how tight do you make straps
  • Judy

    I start the Quattro FX MUCH higher UP the nose than I do any other mask, full face OR nasal cushion.

    Under the thin outer cover there is a somewhat thicker, stronger cover cut out for the nose bridge. I can feel the "corners" of that firmer cover and fit those corners comfortably over the bridge of my nose close to the inside corner of my eyes area. I know that's worrisome, you worry about your eyes. When fitting it this way I also tip the entire mask up a bit as shown in the instructions that come w/the Quattro FX. I then tip the mask down to fit my face, lay down, snap the bottom straps into place and turn my PAP on. I give it a few seconds to fill the cushion w/air. If I feel a leak around my eyes I first pull the mask headgear up by the top straps AT THE BACK OF MY HEAD. If necessary I may then press the top of the mask tightly to my face and release. That tends to align the cushion meeting the skin. If still a minor leak around the eye I try running my fingertip GENTLY along the seamline between mask cushion cover and skin. Once in a while I have to turn my PAP off, undo the headgear straps and start all over again whilst still laying down. Once I'm laying down I am NOT getting up until "potty time"!!! I do NOT keep my headgear straps tight, I keep them AND my mask fit COMFORTABLE.