"please keep me updated about oximeters "
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CPAP Alert Service - OnStar for CPAPers
Rock's reaction is below for a CPAP Alert Service a la OnStar for cars, but for CPAPers. Who should be behind such a service -- i.e., sleep techs, doctors, etc. -- and would people actually buy it?
"The idea is that a company be started such as the 24-hour [support line]. This program would analyse efficacy data for pts as often as they needed. Then efforts would be made to improve on the therapy."Is there a demand for this type of service? I would really like to know." http://www.sleepguide.com/forum/topics/how-dangerous-are-cpap?comme...
Views: 167
Replies to This Discussion
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Permalink Reply by RockRpsgt on
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(despite what some techs here seem to think)
Why do you keep attacking us banyon? I have never done anything to you. I am trying to figure out a way to help. I would like to add that I am doing so without smear politics. I still wonder which insurance company you work for.
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Permalink Reply by Sheila Knowles on
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Why wouldn't everyone WANT to monitor or control their own therapy..? WANTING to and BEING ABLE to are two completely different things. Before the economy crashed I could have gone out and bought the most expensive CPAP, BIPAP or APAP machine that I wanted ( had I any knowledge about them at the time)
.. I lost almost everything I had when stock market fell like it did.. and NOW
have to actually apply for aid . The only reason I could see that someone would NOT be interested in monitoring their machines would be if they were ill and had a caregiver.. then I believe the caregiver would STILL be interested in helping
that person by monitoring their machine and it's readouts. Before I even KNEW anything about CPAP machines.. I was
placed on one.. told how to wear the mask..adjust it.... and " Buh Bye" from supplier. I have learned a lot from this discussion group . I feel
duped by my supplier...and will change this when I can..until then I feel it is unfair to say.. that "Not everyone wants to control their therapy. The ones that do most likely are already doing so"
THERE are a myriad of extenuating circumstances that can affect whether or not someone IS or can monitor their SA.
condition
Rock Hinkle said:I agree jnk. The idea of everyone monitoring there own therapy is a great one. In the real world not everyone is like you, banyon, or Rooster. Not everyone wants to control their therapy. The ones that do most likely are already doing so.
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Permalink Reply by Mary Z on
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CPAP is Continuous Positive Air Pressure- this is a mchine set to deliver air pressure at one constant flow number, say a pressure of eight, BiPAP delivers two different set pressures- an IPAP and an EPAP; that is an inspiratory pressure which is the high number (mine is 16) and a different, lower expiratory pressure (mine is 12). An AUTO delivers a range of pressure set by the doctor with a low pressure and a high pressure, say a low of 12 and a high of 16. The machine automatically cycles to the highest pressure needed to prevent apnea events. Hope this has been some help. The FAQ which you can navigate to via the main page may explain
it better.
Sheila Knowles said:I KNOW there must be a ton of discussions around here about this.. so sorry.. but just WHAT is the difference between
the CPAP, BIPAP and APAP? I have seen you comment about how wonderful the APAP is.. just another dumb question here..
" feeling dumber by the minute"
99 said:they should ban CPAP and make APAP compulsory this would make APAP a tad cheaper to purchase
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I thought the CPAP On Star really started out as a joke. But for those with ResTrax, do the DME's actually monitor data, or just compliance? I've never heard of them calling someone whose numbers aren't good, or contacting their Doc. I'll have to ask my DME next time I see him.
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thank you Mary..///(*,*)\\\
Mary Z said:CPAP is Continuous Positive Air Pressure- this is a mchine set to deliver air pressure at one constant flow number, say a pressure of eight, BiPAP delivers two different set pressures- an IPAP and an EPAP; that is an inspiratory pressure which is the high number (mine is 16) and a different, lower expiratory pressure (mine is 12). An AUTO delivers a range of pressure set by the doctor with a low pressure and a high pressure, say a low of 12 and a high of 16. The machine automatically cycles to the highest pressure needed to prevent apnea events. Hope this has been some help. The FAQ which you can navigate to via the main page may explain
it better.
Sheila Knowles said:I KNOW there must be a ton of discussions around here about this.. so sorry.. but just WHAT is the difference between
the CPAP, BIPAP and APAP? I have seen you comment about how wonderful the APAP is.. just another dumb question here..
" feeling dumber by the minute"
99 said:they should ban CPAP and make APAP compulsory this would make APAP a tad cheaper to purchase
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Try pushing the left and right arrow buttons down simultaneously, holding them for a few seconds. A menu should come up. I believe what you want is Menu- scroll down to results and then the sub menu "efficacy". You may have to experiment with the different menus a bit. Let us know how this works.
Claude said:I know I'm going to be the 'dumb' one in this conversation, but here goes. I have no idea how to get this type of information off of my machine, if it even gives it, that is.
I know my mask leaks sometimes, because it wakes me up. I try to adjust to fix it, but am not always successful. I went for quite a while feeling really good during the day, and now I'm back to not feeling as good. I know I'm not getting the good sleep that I need to function properly during the day.
I live 250 miles away from the nearest doctor of any kind, let alone a specialist in sleep therapy.
I've been using my CPAP since 2004, and do the best I can. I am faithful and use it EVERY night, because I almost go into panic mode if I don't.
The machine is an "autoset Spirit".
Any suggestions?
Thank you.
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Touche my skinny nosed friend. :)
There is no question that everyone should have a fully data machine. I thought we had worked through this issue months ago.
Therefore, my personal answer to Rock's statement would be to flip it the other way and say: "Not everyone wants someone else to control his therapy. The ones that do most likely are already having someone else do so for them."
This is not a true statement with the current system. Many people are fighting to get their DMEs, docs, or medical teams to help them. Not everyone is as inclined to understand and analyze data the way that you or I am. We all know people that in the present day do not understand their PC, car, or a simple DVR remote let alone an APAP. Why should these people suffer because you do? Then as someone said their are those that need help such as the elderly, disabled, and htose that just plain don't want to do so themselves..
j n k said:I think I get where Rock is coming from when he says:"Not everyone wants to control their therapy. The ones that do most likely are already doing so."
Some folks do great on therapy from day one. They happen to get a mask that works for them, first try, and a machine set to the exact right pressure that works for them all night every night. Those people have no desire to learn about their machines or their therapy because it is going so well.
It is usually people who have some difficulty with therapy or who want to squeeze all the possible benefit out of their therapy who have a reason to care what their numbers are and mean.
In that sense, I agree with Rock's statement.
But I do feel strongly that every patient should have a machine that gives leak and efficacy data, since it can be expensive to fix future therapy problems without that data. And I feel that every patient with the mental capacity to learn about his or her therapy owes it to himself or herself to get the facts on his or her own medical conditions and treatments.
I don't call a doc to ask if I should take an aspirin, because I have no known allergy to it and it doesn't seem to harm me. Similarly, my sleep doc has no trouble with me tweaking therapy, since I am not particularly prone to pressure centrals and being comfortable with effective PAP is important to someone with a condition as severe as mine. I have chosen to take over the role for myself that an RT might otherwise fill. But if I had a good RT available to me, I would prefer to have him or her in the loop. Everyone's situation is different, but the patient's needs and preferences should be paramount in any long-term health treatment.
I think most patients are surprised how easy it is to read leak and AHI numbers from the screen of a ResMed machine once someone shows them how. It keeps the patient involved and keeps the patient taking therapy seriously and puts the patient's mind at ease that things are "working." Those things are important. And easy. A lot easier than troubleshooting a wireless connection to someplace else for someone else to notice when each patient seems to deviate from the norm for that one patient. That would be tedious and expensive work involving technical equipment.
Therefore, my personal answer to Rock's statement would be to flip it the other way and say: "Not everyone wants someone else to control his therapy. The ones that do most likely are already having someone else do so for them."
:-)
-jeff
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