"please keep me updated about oximeters "
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During the sleep study my husband's events were average 33 an hour. Since we've been able to monitor ourselves, (almost two months) his HI ranges from 1.7 to 3.7, AI 0.00 to 0.1 with 0.00 being the majority of nights. His pressure is 14/10 soon to be changed to 15/11. If he is maintaining "target area" events and getting 6 plus hours a night now, why would the increase be needed? Will there be a noticeable difference to him with the pressure change?
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Replies to This Discussion
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Permalink Reply by Judy on
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W/consistent data like that I'd be darned if I'd let them raise my pressure!!!! How is he FEELING? Is he FEELING rested? If he still isn't feeling rest another month from now then I'd consider letting them raise the pressure to 15/11 and USUALLY a 1 cm pressure adjustment of IPAP and EPAP wouldn't make a "comfort" difference as far as tolerance or getting acclimated to it.
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Permalink Reply by RockRpsgt on
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What is their reason for raising his pressure? Like Judy said how does he feel?
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Permalink Reply by SleepMBA on
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Hmmm, from what you mentioned, it doesn't seem clear why they would want to change his pressure. On top of all the questions already asked: Is he snoring?
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He has noticed more energy (some days more than others), less mid-day nap needs, a small weight loss and a joy in having increased hours. He does have low usage nights and so he has something to compare things too. He's not snoring that I'm aware of although that had been a problem before he hit the usage beyond an hour or so. When he's on, he's on and all the previous problems don't seem to be there: snoring, leg movement, frequent getting up, restlessness, mask situations, etc. When he's off it seems to be if something has upset/frustrated him during the day hours and it doesn't get set aside when it's bedtime and so machine/sleep time doesn't get off to a good start and rolls on into less usage. Events remain low either way.
They were supposed to change pressure today (Wed), that's when appt was set up. However, they came yesterday (Tues) and we were not home so it did not get done.
Judy said:W/consistent data like that I'd be darned if I'd let them raise my pressure!!!! How is he FEELING? Is he FEELING rested? If he still isn't feeling rest another month from now then I'd consider letting them raise the pressure to 15/11 and USUALLY a 1 cm pressure adjustment of IPAP and EPAP wouldn't make a "comfort" difference as far as tolerance or getting acclimated to it.
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I would show them the data and see what they say. If anything you will find out real quick how they feel about you and your husband being involved with his therapy. You stated that you have been able to monitor your husbands data for about 2 months. How long has he been on therapy.
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Initial sleep study done July 09. Results: Severe OSA, 31 events/hr (169 HI & 13 AI), Nocturanal hypoxemia secondary to OSA, Inadequate sleep hygiene (too much time in bed looking for sleep-consolidate sleep time suggested) ((PLM Index of 24-not associated with significant arousal pattern) Titration August 09. CPAP ordered at 16/12 at that time. Sept 09 Bipap ordered at 16/12 due to inability to tolerate CPAP. Bipap pressure lowered to 14/10 Jan 10 due to husband's inability to breathe and low usage. (approx 1 hr nightly since start of therapy) Feb we made an appt to discuss things with sleep dr....keep trying, don't give up, loose weight, insurance will take machine if no use (learned ins comp had already purchased it so no compliance issues), suggested considating sleep time for better sleep hygiene.
Last week of April I found the online forums from which came the suggestions to practice while awake with machine, try relocating bed/machine and of course, the ability to read the nightly information. He did begin to practice, he moved the machine to the living room and the hours increased from 8 months of approx 1 hr to the 2-4 hour range, but not anywhere near consistant.. The bipap read only 74 hours total use from Sept to April. Than he moved to the front bedroom (which was probably more comfortable) 1st part of May and the hours increased 5-8 hrs, inconsistanly but within that range. Events have been low ever since we have been able to read the information along with low leak rate. From end of April to date usage has increase 162 hours from the 74 when we began to read information, so progress is being made.
I had called the sleep center to discuss the lack of progress in Jan 10 and get some assistance in improving things. He was still in the living room at that time and we were only about two weeks of readings, which I shared. He was sometimes snoring under the mask, removing it during the night, and still lower usage. We were doing all the right things, keep it up, don't give up and maybe we need to up the pressure. I understood the pressure change to maybe increase usage time. Now a month later after this conversation the appt was set to do the change but they came a day early with no notice and nobody was home.
Although we have higher usage there are nights it comes off and stays off unless I get up to prompt and sometimes it comes off again. He feels he is getting the hang of it, seems to look forward to the happy place he finds, has noticed energy increases, no mid-day naps but has no idea what brings on the low use nights or why the mask comes off.
There has been no contact from sleep center nor DME during this time unless I have made it. The machine has not been read by either unless it was done at the time the bipap pressure was reduced. What to do?
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