Replies to This Discussion

Permalink Reply by Renee on March 22, 2010 at 3:56pm

Hey Rock ~

It opened fine for me on SG.

Thanks again,
Renee

Rock Hinkle said:

For some reason I can'tget it to open. I can get it to open on my PC, but not for SG.

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Permalink Reply by RockRpsgt on March 22, 2010 at 4:12pm

Somehow some of my personal info got connected to that med effects file. As soon as I figure out how to separate them I will repost it.

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Permalink Reply by RockRpsgt on March 22, 2010 at 4:24pm

Sorry there was a hidden file attached to that download. Exposed me a little more than I felt comfortable with.

Attachments:

• Meds_Effects.xls, 57 KB

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Permalink Reply by Renee on March 22, 2010 at 4:59pm

Hey again Jeff,

I'm in agreement - and even more so . . . I'm also for the potential of anyone (with a few exceptions) being weaned off potent RX - AND I think it's worth considering even without a large event such as CPAP intervening. But - the opportunity of a major and, positive, energizing experience such as CPAP presents an additional worthwhile consideration.

And I'm fortunate in that I don't think many are as lucky as I am in having such an truly excellent relationship with their doctor as I do. So I guess we'll take this subject up in due time.

All the best,
Renee

j n k said:

It is my belief that anyone (with a few exceptions) put on a drug like that one before PAP therapy should seriously allow themselves to consider being weaned off of it completely, under a doctor's close supervision, just to see what happens, once PAP therapy is working. I believe many people may be treating symptoms they would no longer have if they came off the med.

Obviously, if it is determined that the person should go back on it, that is the thing to do. But why not find out if the patient still needs it? Untreated OSA is a perfectly logical explanation of why it was needed in the first place. Taking the drug when you need it is one thing. Taking it when you don't need it can be damaging, in my opinion. In fact, it may cause the very symptom it is meant to treat. So I think it important to find out if you need it once PAP therapy is up and running and documented as being effective. It is even more important, though, that it be done as you say--logically, and supervised by a doctor.

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Permalink Reply by Judy on March 22, 2010 at 5:08pm

Renee, back about 1996-1998 a sleep neuro sent me for neuropsych testing as well. Only I wasn't quite so fortunate as you. Altho somewhat minor it did reveal some weaknesses. I forget the term now, but basically in "secretarial" skills, storage and filing and in coordination. Slowed processing of information. I remember one of the most indicative tests was the finger tapping test. Interestingly, she never referred me for a sleep study, instead scripting Trazadone, etc. trials. I finally decided stuff that and worked my way into an in-lab PSG at our local hospital. I also had alpha intrusion into delta sleep. That was so long ago I don't remember much more about it. I didn't know enough at that time to get a copy of the full report. How I wish I had!! I saw it but was never given a copy and never thought (at that time) to ask for it. I don't know that the full scored data summary report w/condensed graphs would even still be available.

It sounds like your sleep is a challenge AND, more importantly, that you have a sleep doctor who likes a challenge! That can make all the difference in the world. Good luck! "I" find your "case" interesting and I'm not even a sleep professional.

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Permalink Reply by Renee on March 22, 2010 at 8:42pm

Hello Judy,

Yes, I agree, I do feel that I am fortunate being in the good company of those who are trying to help with my sleep challenges. At this point, I think my sleep doctor could do without the "challenge"; but, he doesn't seem about to duck out of it . . . so onward and upward. Given the complexities - he and my therapist are darn good advocates ! Over the past 2 years, when each doctor I went to visit: internists, endocrinologist, GI doctor, etc. - all said: "Aah . . . Nope . . . Nothing wrong with you. - Oh, except, it must be psychological, you must be depressed". And even though I got more and more tired and fatigued, my therapist said: "No. Not depressed" and I must say, I agreed with him. And, sure enough, we were right !

By the way, I, too, find my case interesting - but, I wish that I was realizing my interest in someone else's case.

Oh, and I found the neuro test rather interesting and invigorating. It actually woke me up on a rather sleepy day - it was quite a quixotic mental work out. Of course, I was tired again at the end, but I wasn't surprised after a 4 hour mental agility test.

Thanks for your thoughts.

Best,
Renee


Judy said:

Renee, back about 1996-1998 a sleep neuro sent me for neuropsych testing as well. Only I wasn't quite so fortunate as you. Altho somewhat minor it did reveal some weaknesses. I forget the term now, but basically in "secretarial" skills, storage and filing and in coordination. Slowed processing of information. I remember one of the most indicative tests was the finger tapping test. Interestingly, she never referred me for a sleep study, instead scripting Trazadone, etc. trials. I finally decided stuff that and worked my way into an in-lab PSG at our local hospital. I also had alpha intrusion into delta sleep. That was so long ago I don't remember much more about it. I didn't know enough at that time to get a copy of the full report. How I wish I had!! I saw it but was never given a copy and never thought (at that time) to ask for it. I don't know that the full scored data summary report w/condensed graphs would even still be available.

It sounds like your sleep is a challenge AND, more importantly, that you have a sleep doctor who likes a challenge! That can make all the difference in the world. Good luck! "I" find your "case" interesting and I'm not even a sleep professional.

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Permalink Reply by D. W. Conn on March 23, 2010 at 4:12pm

Renee,
There have been times when patients with untreated chronic pain and fibromyalgia show REM delay or lack of REM, alpha intrusion and limited SWS.

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Permalink Reply by Judy on March 23, 2010 at 10:32pm

Buy a copy of tonight's presentation by Dr Bhola at Dr Park's website. "How To Read Your Sleep Study Report". She went well beyond the subject title. Including MSLTs and MWTs. AND she did discuss lack of Stage 3, REM, etc.

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Permalink Reply by Renee on March 24, 2010 at 2:09am

Hello Judy ~

Thank you for thinking of me - and I am definitely going to get a copy of the presentation you recommended.

I thought you might be interested to know that I just got a copy of my most recent titration report and, although I seem to have adjusted better to sleeping in a lab setting because I slept for 1-1/2 hours longer than my 2 previous overnight stays - and I had only 1/3 the # of AI, Central Apneas and Hypopneas, still my S-3 (SWS) and REM went down further. S-3 went down from 6.3% to 2.8% and REM - from 0.6% to 0.0%. Well, at least I don't have to worry about my REM going down any further . . . fyi . . . below is a history of sleep study reports.

Thanks again for thinking of sending along the mention about the presentation. I think I am rather good at research but trying to find reliable, authoritative (actually, almost any) info on the possible causes of the lack of SWS (in particular) and the lack of REM - has not proved very successful. So I'll look forward to getting hold of the presentation.

Thanks again,
Renee
___________________________________________

Sleep Stages – S-1 . . . .S-2 . . . .S-3 . . . REM
___________________________________________

2-23-10
3rd Titration
WITH CPAP . . .41.2% - 56.0% - 2.8% - 0.0%

12-7-09
2nd Titration
WITH CPAP . . .42.9% - 50.2% - 6.3% - 0.6%

9-15-09
1st Titration
WITH CPAP . . .68.2% - 18.6% - 6.5% - 6.7%

9-8-09
1st Sleep Study
W / OUT CPAP 35.6% - 35.9% - 20.2% - 8.4%
___________________________________________

Normal Sleep
Architecture . . .5-10% - 45-55% - 20-25% - 20-25%
___________________________________________

Judy said:

Buy a copy of tonight's presentation by Dr Bhola at Dr Park's website. "How To Read Your Sleep Study Report". She went well beyond the subject title. Including MSLTs and MWTs. AND she did discuss lack of Stage 3, REM, etc.

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Permalink Reply by Renee on March 24, 2010 at 2:20am

Hello DW ~

Good to hear from you. Yes, in my research I have read of the connection between chronic pain, fibromyalgia and lack of REM, alpha intrusion and limited SWS. I am glad to be able to report that I am not beleaguered by such pain - thank goodness. You may find something else interesting that I discovered along the way. There is another strong connection, that is, with (CFS) Chronic Fatigue Syndrome. So as not to take up too much space with a real long posting, I would like to refer you to page 1 of this discussion because I posted excerpts along with url addresses for 2 interesting articles that you might find of interest.

Thanks again for your thoughtfulness and suggestions.

Best,
Renee

D. W. Conn said:

Renee,
There have been times when patients with untreated chronic pain and fibromyalgia show REM delay or lack of REM, alpha intrusion and limited SWS.

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Permalink Reply by Renee on March 24, 2010 at 1:53pm

Hello Judy,

I went to Dr. Park's website at: http://doctorstevenpark.com/ - but I couldn't find any way to buy a copy of the presentation. I, then, posted a question on Dr. Park's SG page inquiring about how to get a copy but haven't gotten a reply so I thought I would check back in with you. If it isn't too complicated to explain, could advise how / where did you find a way to get a copy of the discussion through Dr. Park's website?

Thanks again,
Renee

Judy said:

Buy a copy of tonight's presentation by Dr Bhola at Dr Park's website. "How To Read Your Sleep Study Report". She went well beyond the subject title. Including MSLTs and MWTs. AND she did discuss lack of Stage 3, REM, etc.

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Permalink Reply by Renee on March 24, 2010 at 4:15pm

Hey Judy,

I got a reply from Dr. Park and am able to view a pdf at: http://AttendThisEvent.com/?eventid=11869860.
I'll get to digging into it.

Thanks again,
Renee
____________________

Renee said:

Hello Judy,

I went to Dr. Park's website at: http://doctorstevenpark.com/ - but I couldn't find any way to buy a copy of the presentation. I, then, posted a question on Dr. Park's SG page inquiring about how to get a copy but haven't gotten a reply so I thought I would check back in with you. If it isn't too complicated to explain, could advise how / where did you find a way to get a copy of the discussion through Dr. Park's website?

Thanks again,
Renee

Judy said:

Buy a copy of tonight's presentation by Dr Bhola at Dr Park's website. "How To Read Your Sleep Study Report". She went well beyond the subject title. Including MSLTs and MWTs. AND she did discuss lack of Stage 3, REM, etc.

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