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Rant: Where the F is the PR System One Patient Software!?
ok, cat's out of the bag: i'm not the most patient person in the world ;-)
Views: 13
Replies to This Discussion
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Permalink Reply by Judy on
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Those of us who want it are the vast MINORITY. Patient software for the SystemOne is NOT a priority.
I submit that IF the manufacturers would provide the patient version software there would be fewer of us attempting to adjust their own therapy settings, who would watch their data trends and contact their sleep doctor for assistance when the data trend indicated. We can NOT rely on our sleep doctors!!!
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Permalink Reply by Mike on
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Short sighted of manufacturers, who benefit financially from satisfied patients who are "lifers" for recurring revenue.
Also, this is not complex software. If they wanted it done, it would take a couple of days to repurpose the existing clinician software for the patient. I'll do it for them if they would ask me to.
Judy said:Those of us who want it are the vast MINORITY. Patient software for the SystemOne is NOT a priority.
I submit that IF the manufacturers would provide the patient version software there would be fewer of us attempting to adjust their own therapy settings, who would watch their data trends and contact their sleep doctor for assistance when the data trend indicated. We can NOT rely on our sleep doctors!!!
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Permalink Reply by sleepycarol on
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Mike, Mike, Mike
Do you really think they care about us? Let's face it they could give a diddly squat about the patient, except for our pocket books.
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That's why I'm making an argument why they should based on their financial self-interest.
sleepycarol said:Mike, Mike, Mike
Do you really think they care about us? Let's face it they could give a diddly squat about the patient, except for our pocket books.
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Hey, its a medical device. We need it. What other choices do we have? So we squawk but we don't have much choice.
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the choice is really to use it or not to use it. to the extent it is user-friendly and helpful to patients, it becomes something more likely to be used, which means more likely to be purchased and upgraded when a new model comes out, which means more money to the manufacturers. that's why i think it's in their selfish financial interest to listen to our "squawking" instead of dismissing it as they seem inclined to.
Judy said:Hey, its a medical device. We need it. What other choices do we have? So we squawk but we don't have much choice.
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I'm not as hard on the manufacturers as you are, Mike. Resmed led the way in providing patient access to their data via the LCD screen, tho they did leave it up to the doctor whether to allow the patient that access - which was giving the doctors credit for knowing more than they do about the various devices and their options. I "think" that the S8 IIs provide info in the Users Manual how to access patient data on the LCD screen w/o needing the doctor's order for that access but I'd have to go back and check the manual to be sure about that.
Respironics led the way in providing a patient software, EncoreViewer, but then they turned around and introduced a new series of xPAPs that was incompatible w/EncoreViewer and so far haven't introduced a patient software for the new series nor indicated they have intention to do so.
DeVilbiss has introduced a new series of fully data capable xPAPs and allow patients access to their data.
I'm of the opinion that the manufacturers are a heck of a lot more progressive than the sleep doctors and more willing to allow us access to our data but are restricted by the US medical professions. Since the FDA rules xPAPs a script item we need the doctors to get the devices so the manufacturers can not afford to offend the doctors who are the key to our access to the manufacturers' product.
Not all who need CPAP have access to the internet and the vast majority of those who need CPAP have no knowledge of online DME providers. The vast majority of CPAPs are sold via local brick & mortar DME providers so there again the manufacturers must walk a thin line.
While the product is intended for us, the users, access to the product is limited to a choking neck hold of the combination of FDA, the medical profession and the local DME providers thru which the manufacturers MUST move their product. Thus the manufactuers' "customers", like it or not, are the local DME providers.
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Well said, Judy. In fact, I like this summary of the state of affairs so much, I'll be sending newbies to this thread for years to come, I'm sure.
My beef is more about what SHOULD exist. But you have very astutely summarized what DOES in fact exist today. And people need to know that.
Judy said:I'm not as hard on the manufacturers as you are, Mike. Resmed led the way in providing patient access to their data via the LCD screen, tho they did leave it up to the doctor whether to allow the patient that access - which was giving the doctors credit for knowing more than they do about the various devices and their options. I "think" that the S8 IIs provide info in the Users Manual how to access patient data on the LCD screen w/o needing the doctor's order for that access but I'd have to go back and check the manual to be sure about that.
Respironics led the way in providing a patient software, EncoreViewer, but then they turned around and introduced a new series of xPAPs that was incompatible w/EncoreViewer and so far haven't introduced a patient software for the new series nor indicated they have intention to do so.
DeVilbiss has introduced a new series of fully data capable xPAPs and allow patients access to their data.
I'm of the opinion that the manufacturers are a heck of a lot more progressive than the sleep doctors and more willing to allow us access to our data but are restricted by the US medical professions. Since the FDA rules xPAPs a script item we need the doctors to get the devices so the manufacturers can not afford to offend the doctors who are the key to our access to the manufacturers' product.
Not all who need CPAP have access to the internet and the vast majority of those who need CPAP have no knowledge of online DME providers. The vast majority of CPAPs are sold via local brick & mortar DME providers so there again the manufacturers must walk a thin line.
While the product is intended for us, the users, access to the product is limited to a choking neck hold of the combination of FDA, the medical profession and the local DME providers thru which the manufacturers MUST move their product. Thus the manufactuers' "customers", like it or not, are the local DME providers.
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I am actually holding off on getting the System One because the user software isn't available yet. Furthermore, my doctor said he's not crazy about the new system one software available to doctors because he has to go through a lot of screens (he said mostly compliance kinds of data, equipment reminders etc) before he could get to any of the useful data.
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Horray for your doctor, Jan. The vast majority of sleep doctors don't really have much interest, if any at all, in the efficacy data produced by the fully data capable CPAPS.
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Oh-- I bring my card in with me when I go to see him and we go over the data together. When I have been away from home and have needed to talk with him, I will reference the data so we can discuss it. And, if I am gone for an extended period of time, he wants me to either send him the card with the data, or to send him print out of the reports.
My DME on the other hand, has not been at all interested...but as long as I have the bases covered, I'm happy.
One question, speaking of Data....I'm using respironics bipap fully data capable with card and card reader...Does anyone know how often these cards need to be switched out-- ie. when do they get full?
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