Laura Hand posted this as a comment elsewhere:
"This is the exact reason I bypassed the insurance all together and purchased my machine out right. I took the advice from here about getting a script written fo a "machine and mask of the patients comfort" and asked for my data. My doctor looked at me like I was insane. (how dare I be an empowered patient) I looked at the script and set the machine up myself, and tucked the instruction manual (that says plainly on the front to remove before giving to patient) away for future reference. I had my machine in my house and set up and using it for four days before the DME even contacted me....much less started the process to actually get a machine.
If my life depends on this machine, you better believe I will be an expert on how to use it!!"
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