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Anyone else experience this.  Not quite dizziness, do no tfeel loss of balance.  It is hard to describe.  Perhaps caused by pressure on ears while using CPAP???

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Yep, sometimes. I feel like I'm hyperventilating. I'm going to ask my sleep doc about that when I see her 9/1. I just switched to a BiPAP machine a month ago so maybe it was an adjustment thing. I don't notice that so much anymore.
Well, at least it isn't just me! 

Marcia Herman said:
Yep, sometimes. I feel like I'm hyperventilating. I'm going to ask my sleep doc about that when I see her 9/1. I just switched to a BiPAP machine a month ago so maybe it was an adjustment thing. I don't notice that so much anymore.

Hi Ginny, When do you wave these issues? When you first wake? After doing activity? just sitting? Good Sleep,Chris

Ps , A call to your Doc wouldnt hurt.

I see the Doc next week so will hang on until then.  The "issues" are not caused by activity.  They usually start shortly after I first wake up.  Sometimes I will have a day withour any and others for most of th eday.  It can occur while sitting, or being up & about.  I have been wondering if ear related as they seem to be "popping" more and I feel pressure in them when I swallow with CPAP on.  Is this feeling something everyone feels when on CPAP when swallowing?  It is a little uncomfortable. Also headache and I never had headaches in recent years.  I am blaming the tightness of the headgear around the back of my neck.  SO many theories and no real answer.  I am afraid my Doc will think I am a croc!
I haven't had any of these symptoms, Ginny.  Don't worry about what your doc will think, just be sure to accurately state the problems you are having so that he/she can help you.  The DME may help with mask fitting.
I think you hit the nail on the head, Mike.  I have had the popping noise etc for years, not really bothersome, but used to it.  I think the CPAP pressure may aggravate it.  I plan to mention to my sleep doctor on 8/29.  Today I have had not one problem with it.  But I had turned the humidity up to 5 on machine.  ? perhaps helped.  Will you go back on CPAP after the ear tubes?  Don't know much about them except when my kids were little it seemed like many kids were getting them.  Wonder if you can feel them once in place?  Good luck, Mike.

Mike C (at the Beach!) said:

Well for what it's worth (not much!), this is how my saga began that led to me stopping pap. Long story very short is the problem has continued for the 2 months even OFF pap....Turns out I never had sinus infection but both my Eustachian tubes are "out of whack" whatever my latest doctor means by that? My ENT surgeon who did my sinus surgery almost 2 years ago will do the surgery to place tubes into (through) BOTH ear drums once I give permission but holding off till near November IF I can stand the come & go earaches. I refuse to take any more antibiotics since that is SUCH a bad thing to do when something comes along that then finds I am not any longer helped by them later! I hate having tubes in both ears but can't really live with ear aches and hope the dizziness that comes & goes will also go away. Maybe you have similar issues, maybe not? I wish you the best whatever it is.

Mike



Ginny Edmundson said:

I see the Doc next week so will hang on until then.  The "issues" are not caused by activity.  They usually start shortly after I first wake up.  Sometimes I will have a day withour any and others for most of th eday.  It can occur while sitting, or being up & about.  I have been wondering if ear related as they seem to be "popping" more and I feel pressure in them when I swallow with CPAP on.  Is this feeling something everyone feels when on CPAP when swallowing?  It is a little uncomfortable. Also headache and I never had headaches in recent years.  I am blaming the tightness of the headgear around the back of my neck.  SO many theories and no real answer.  I am afraid my Doc will think I am a croc!

If one of your Eustachian tube's is blocked, which is a known effect of CPAP, you may get a different pressure between your middle ears.


This can cause dizziness. (Alternobaric Vertigo) - even in high degree.

 

A drain (tube)  in the ear will instantly solve this problem, although it is not a long term solution.

 

You can't feel a drain in the ear, but it give some limits of swimming. The tube will fall out by itself within a year.

Henning

So after one year does one have to have another, since the problem is still there (due to ongoing use of CPAP)?  It does come and go, not nearly as bad today but I don't think I can stand if this is most likely a permanent problem.  

Henning said:

If one of your Eustachian tube's is blocked, which is a known effect of CPAP, you may get a different pressure between your middle ears.


This can cause dizziness. (Alternobaric Vertigo) - even in high degree.

 

A drain (tube)  in the ear will instantly solve this problem, although it is not a long term solution.

 

You can't feel a drain in the ear, but it give some limits of swimming. The tube will fall out by itself within a year.

Henning

You can get ear tubes that can hold several years, but I still see it as a temporary solution.

You can find my (very long) story here on the site.

But this intervention is very small, you can not feel anything, and will not feel that you have a tube inserted into the ear. It helps immediately, so I would not hesitate a moment.

Henning

Thanks!

Henning said:

You can get ear tubes that can hold several years, but I still see it as a temporary solution.

You can find my (very long) story here on the site.

But this intervention is very small, you can not feel anything, and will not feel that you have a tube inserted into the ear. It helps immediately, so I would not hesitate a moment.

Henning

Good to hear from you Henning. Are you still PAP free?

 

When are you flying me over the pond for dinner?

Yes, I'm still free of CPAP. My last sleep study was also perfect.

You can just arrive, and I will give both dinner and show you around in Copenhagen.

Henning

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