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Self Titration
There is an interesting thread on www.apneaboard.com about self titration with scientific correlation if any one is interested. The thread is on the Main Forum and titled "Self Titration".
Views: 426
Replies to This Discussion
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Permalink Reply by Mike on
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thanks, Mary, I'll take a look. at a high level, can you tell us whether the feeling expressed in the thread is that self-titration is ok, or that it's a bad thing?
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Permalink Reply by Mary Z on
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I think they are saying that it's (self titration) is just as effective as titration in a lab.
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Permalink Reply by Tom Cannon on
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I agree with your interpretation of the article Mary.
So this means that basically ResMed with it's secretive distribution of clinical manuals etc. is selling us very expensive equipment but diminishing it's value by withholding critical information.
Further my experience with the support of their DME network is laughable. I kept sending in my data card for some feedback on my OSA and got one excuse after another about how the card was blank, then the next card was damaged, etc. I don't think they have a clue how to read the cards, use the software or interpret the data to help the user. There distribution channel has not kept pace with the technology.
Eventually the internet based OSA community will get it's act together and there will be a class action suit against ResMed to wrest control of our machines and sleeping lives from them.
To paraphrase a saying from the 60s POWER TO THE SLEEPER.
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I agree, Tom. Luckily the clinical manuals are pretty easy to come by. Do you have a data capable machine where you can check your numbers yourself?
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I love how you think, Tom. first i love THAT you think. same can't be said for 99% of the public who blindly accept what the DMEs and manufacturers would have us believe. it's a self-serving system to deprive us of control over our own health so that they can protect their businesses.
Tom Cannon said:
I agree with your interpretation of the article Mary.
So this means that basically ResMed with it's secretive distribution of clinical manuals etc. is selling us very expensive equipment but diminishing it's value by withholding critical information.
Further my experience with the support of their DME network is laughable. I kept sending in my data card for some feedback on my OSA and got one excuse after another about how the card was blank, then the next card was damaged, etc. I don't think they have a clue how to read the cards, use the software or interpret the data to help the user. There distribution channel has not kept pace with the technology.
Eventually the internet based OSA community will get it's act together and there will be a class action suit against ResMed to wrest control of our machines and sleeping lives from them.
To paraphrase a saying from the 60s POWER TO THE SLEEPER.
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Hi Mike
Thanks for your comments. I've enjoyed you many contributions to this forum over the months; are you one of the founders?
I've been trying to come up with a good analogy that explains the relationship triangle between the Mfg.-DME-End User but have failed so far.
In some ways it reminds me of the legal battles that went on between the independent auto repair shops and the auto manufacturers which were trying to deny access to the on board microprocessors containing all the engine performance data. I need to do some research to see how that legal battle ended.
Best, Tom
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Permalink Reply by Chris H on
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Hi Tom, I too had data card problems.My dme printed 2 reports with no data and sent them to my doctor! I had asked for my own copies my GP did not even know the report was blank! The dme swapped out the machine. At an AWAKE meeting I learned from a rep that the sensors burnout if you have excessive rain out and water runns back in to the blower. I was affraid of pushing the wrong buttons but was turned on to a manual .I now track my numbers manually.
Went to the dme for a new mask and data print out ,showed the fellow my data.....All of the sudden the data was retrevable. he said "why are you checking your data?" .....I said because I need to know what of my comorbidities is making me feel like @#$%. He said "OH" I participate in my treatment It is Me whom suffers when their is a screw up. They give classes for diabetics, why not us? Equiptment failures mean heart attacks and strokes for us and ultimatly the big sleep. Good Sleep,Chris
Tom Cannon said:
I agree with your interpretation of the article Mary.
So this means that basically ResMed with it's secretive distribution of clinical manuals etc. is selling us very expensive equipment but diminishing it's value by withholding critical information.
Further my experience with the support of their DME network is laughable. I kept sending in my data card for some feedback on my OSA and got one excuse after another about how the card was blank, then the next card was damaged, etc. I don't think they have a clue how to read the cards, use the software or interpret the data to help the user. There distribution channel has not kept pace with the technology.
Eventually the internet based OSA community will get it's act together and there will be a class action suit against ResMed to wrest control of our machines and sleeping lives from them.
To paraphrase a saying from the 60s POWER TO THE SLEEPER.
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Time to get rid of the Rx requirement and make home testing and APAP available for all who want to risk the money on it, a quick email of a few nights data to the manufacturer's rep should show if someone is having obstructive or central apnoeas and the whole thing could save the insurers a fortune in testing and aftercare...
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How was an RX made a requirement to get CPAPs etc.? Who did the "sleep doctors" and insurance companies and the MFGs/DMEs lobby to get their way? When were the laws enacted?
I'd bet that there are no laws per se but insurance companies policies require an Rx to save them money.
So how about this:
1. If an insurance company is going to pay for the machine then you need an Rx.
2. If you're going to pay for it yourself, then no Rx required.
3. MFGs must give all manuals and data gathering software to the end users regardless.
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4. Have a class in care, operation and data .Like diabetics do to learn their numbers.
Tom Cannon said:How was an RX made a requirement to get CPAPs etc.? Who did the "sleep doctors" and insurance companies and the MFGs/DMEs lobby to get their way? When were the laws enacted?
I'd bet that there are no laws per se but insurance companies policies require an Rx to save them money.
So how about this:
1. If an insurance company is going to pay for the machine then you need an Rx.
2. If you're going to pay for it yourself, then no Rx required.
3. MFGs must give all manuals and data gathering software to the end users regardless.
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Very true Chris. After all with CPAP we really are treating a problem by numbers, if CPAP is the solution then we simply find a pressure range that is low enough to be comfortable but high enough to be effective, looking at ODI and AHI, numbers that can be read from the machine or from a cheap oxymeter.
Other than that only the patient can decide if a mask is comfortable, the machine can tell you if it leaks while you're asleep and most modern Auto CPAP machines will let you know if you need some other kind of treatment.
Chris H said:4. Have a class in care, operation and data .Like diabetics do to learn their numbers.
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