The plot thickens. I learned from one of the comments on yesterday's blog that there is "a clash of wills between the medical profession & the rights of US CPAPers to actively get involved in our own monitoring & regulation." Moreover, in the U.S. it is against the law for manufacturers of CPAP devices to explain to people how to change the settings on their machine.
So the powers that be have decided that we CPAPers are too stupid and inept to analyze compliance data from the CPAP machines, and to get insights into how we may improve our treatment based on that analysis? Funny, because that's how I'd characterize a lot of the doctors, DMEs and other clinicians charged with making those decisions for us.
At least we CPAPers have incentives to scrutinize the data -- our lives depend on it. There are no incentives in place, however, for doctors, DMEs and other clinicians to do the same: insurers don't reimburse them a dime more if they get our treatment right than if they get it wrong. As long as the machine is blowing for >4 hours a night most nights, their work is done.
How could this be? Why are CPAPers being punished?
The model needs to shift from a top down approach, where the doctor/clinician controls all the information, to a bottom up approach, where the patient has access to all the information about his/her therapy, and can work together with the doctor/clinician to improve therapy. Am I missing something? Why wouldn't that be good for everybody?