"Ginny, I so agree with your DME frustration. I still haven't gotten billing for my original Wisp. I've since gotten one cushion & am calling this next week about another new one & frame. I too don't like not having extra…"
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Lee Dryden posted a discussionSleeping with CPAP blog post
Hi,Here is a new blog post on the debate over veterans receiving sleep apnea coverage.http://sleepingwithcpap.blogspot.com/See More
Ginny Edmundson replied to ZolliStar's discussion Wisp nasal mask part for free: Size petite"I also have the petite and large that someone can have!!!"
ZolliStar posted a discussionWisp nasal mask part for free: Size petite
This isn't the headgear, only the nasal part. I won't be using it and hate to let it go to waste.Anyone want it? If so, contact me privately.See More
Mary Z replied to ZolliStar's discussion What's the Right Machine?"Zollistar, the more I learn about sleep apnea the more I find I do not know. At least research is ongoing- there's a lot of money in the field.
You're right- there are differences in how each machine senses and treats an…"
RockRpsgt replied to ZolliStar's discussion Beating Sleep Maintenance Insomnia"Not a problem, Z. It's important to know and can take a minute to wrap your head around. I know it did for me. Very few sleep disorders fall into a "breathing disorder" catagory.
"
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"Dear Mary,
Thanks for the clarification that good sleep and apnea are probably two different things. I'm still grateful to Terry Vella for pointing out that sleep apnea is a breathing disorder, not a sleep disorder. That opened my eyes and now…"
ZolliStar replied to ZolliStar's discussion Beating Sleep Maintenance Insomnia"Thanks for the clarification, Rock.
"
Mary Z replied to ZolliStar's discussion What's the Right Machine?"Zollistar, if you haven't seem this video by Dr. Krakow take a look. It's about ASV.
http://www.youtube.com/watch?v=7fMki3KFRgg"
Mary Z replied to ZolliStar's discussion What's the Right Machine?"Dx is diagnosis and CSA is central apnea.
As to whether people sleep better with an ASV, well if you slept well before ASV I'd imagine you would continue to sleep well. I slept well on all modes, but found none that worked for me…"
RockRpsgt replied to ZolliStar's discussion Beating Sleep Maintenance Insomnia"Apnea is not a breathing disorder. It actually has very little to do with pulmonary function short of causing O2 desaturations. Sleep apnea is a neuromuscular sleep disorder. Central sleep a[nea is a breathing disorder."
"I've confirmed that our next meeting is Thursday, June 27 at 7 pm."
Lee Dryden posted a discussionSleeping with CPAP blog post
Hi,This post is about sleep apnea and blood sugars. Thanks for reading.http://sleepingwithcpap.blogspot.com/See More
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"Thanks for this, Mary.
Worse comes to worse, I'll buy a used machine from Second Wind. First I'm going to see if I can get my doctor to prescribe one.
Maybe this is the final answer. Meanwhile, I'm surely happy to have…"
Mary Z replied to ZolliStar's discussion What's the Right Machine?"Zollistar, I think the ASV is hands down the best machine. It took me four years to get hooked up. Because of lingering depression and continued day time sleepiness with a high AHI my doctor suggested a night in the lab with an…"
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"May I ask two dumb-dumb questions? What do "Dx" and "CSA" mean?
And here is a not-so-dumb-dumb question (I hope!): From your experience, do people sleep better using an ASV machine?
I look forward to your answer.
"
RockRpsgt replied to ZolliStar's discussion What's the Right Machine?"You will most likely not be able to get insurance approval for an ASV without a Dx of CSA. I think that saying that an ASV breathes with you is false. ASV does however provide a better breath support and algorithm for auto use. The newer ASV units…"
Mary Z replied to ZolliStar's discussion Beating Sleep Maintenance Insomnia"Zollistar, what a good idea! The music is nice and relaxing on some of them."
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William Rentfrow
- 39, Male
- Stevens Point, WI
- United States
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William Rentfrow's Discussions
Two weeks post op.
3 Replies
Started this discussion. Last reply by Mike May 5, 2009.
My story as requested by Mike
13 Replies
Started this discussion. Last reply by William Rentfrow May 28, 2009.
William Rentfrow's Page
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William Rentfrow replied to William Rentfrow's discussion My story as requested by Mike"I'm doing all right. At this point I'm basically all healed up.
I did two write-ups about recovery after surgery which can be found as Sleep Apnea: Surgery and Recovery and at Sleep Apena 1 month Post UPPP.
I'll summarize by saying…"
Jeannie Christmas Smith replied to William Rentfrow's discussion My story as requested by Mike"I have 90% blockage in left nostril from bone spur so that will be removed and the uppp/tonsilectomy. Both my drs say this is only option, one of whom has had the surgery. I understand how painful this will be for a few days, I just have to get…"
Jeannie Christmas Smith replied to William Rentfrow's discussion My story as requested by Mike"Mike said:William,
First off, welcome. I read your story and was hanging on every word. Thanks for posting it. It seems as if everyone's story is so different, but there are some commonalities we all share. In any case, I never tire of reading…"
Mike replied to William Rentfrow's discussion My story as requested by Mike"William, we have a member, Jeannie Christmas Smith, who wants to learn more about surgery. Can you let us know how you're doing lately?"
Mike replied to William Rentfrow's discussion Two weeks post op."the 4 sentences you devoted to your post-op bad breath and and the part about being able to laugh an M&M out your nose are the things that initially made the biggest impact on me. and the pain. the kind of pain that brings a grown man to his…"
William Rentfrow replied to William Rentfrow's discussion Two weeks post op."Naturally at this point I do not know. They say you start to feel "normal" 3-4 weeks after surgery and it takes a while longer than that for the scar tissue to firm up. This is what actually stiffens your soft palate and prevents snoring…"
Mike replied to William Rentfrow's discussion Two weeks post op."WIlliam, thanks for posting this. I'll go to your blog and check out what you've reported. i'm on the edge of my seat. big question : did it "work"? for this, you'd need to do another sleep study and compare with the…"
William Rentfrow posted a discussionTwo weeks post op.
Okay - so I posted recently that I was having UPPP + deviated septum repair. This generated a few questions, etc.It has now been two weeks since I had the surgery. The entire post-op report can be found at my personal blog (hope it's okay to link that) which starts at Sleep Apnea: The back story. Yes, I'm too lazy to type it all in again.Things to note:1.) Vidodin is addictive. I went through withdrawal coming off…See More
Mike replied to William Rentfrow's discussion My story as requested by Mike"Ruth raises some good points. Have you also been made aware of considerations regarding anesthesia and sleep apnea?
Ruth Rayceen said:Hi William, you and Rick London tell compelling stories about sleep apnea and proposed and actual apnea surgery.…"
Ruth Rayceen replied to William Rentfrow's discussion My story as requested by Mike"Hi William, you and Rick London tell compelling stories about sleep apnea and proposed and actual apnea surgery. You said you would answer questions - I'm ready to fire them to you. Several of the replies mention UPPP surgery. I read your story…"
Barbara replied to William Rentfrow's discussion My story as requested by Mike"Whatever you do I hope it works fast so you and the wife can get some good all night snuggle time! If I was married I don't think I could tolerate my snuggle partner being a room away. I'd buy heavy duty ear plugs and yell "ready or…"
sleepycarol left a comment for William Rentfrow"Welcome to the forum!!
We are glad you joined. You will find informative information about sleep apnea, treatment options, and other information to help enhance your sleep.
If you are fairly new to the world of sleep apnea, please check out the…"
Rick London replied to William Rentfrow's discussion My story as requested by Mike"Enjoyed your story very much. As one who went through three ENT's to find out how to solve this problem, I opted for the surgery too. It was a complicated one; not just tonsils, uvula etc but reconstructing the respiratory system (and…"
Judy replied to William Rentfrow's discussion My story as requested by Mike"I do have some understanding and sympathy for the panic attack. My husband had a drastic nightmare and woke w/a severe panic attack during just his sleep evaluation! He could't sleep a wink the rest of the night, swears he couldn't even…"
Judy replied to William Rentfrow's discussion My story as requested by Mike"I wouldn't be thrilled about the septoplasty and even turbinate reduction but .... I'd consider it depending on the problems I had w/the deviated septum, just as you are doing.
As far the UPPP???? And I've read a couple of excellent…"
William Rentfrow replied to William Rentfrow's discussion My story as requested by Mike"I am scheduled to have the Uvulapalatopharyngoplasty and a Septoplasty. Add a turbinate reduction and a mole removal for good measure.
Might get a lube and tune while I'm in there... :)
So far my impressions are the same - I approach this…"
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- I have Sleep Apnea
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- Surgery
Comment Wall (1 comment)
- At 5:00pm on April 8, 2009, sleepycarol said…
- Welcome to the forum!!
We are glad you joined. You will find informative information about sleep apnea, treatment options, and other information to help enhance your sleep.
If you are fairly new to the world of sleep apnea, please check out the new users group and the collective wisdom section. In those groups you will find informative discussions that maybe of interest to you.
If you have been around the world of sleep apnea for a while, we hope you still find the site informative and of interest.
Please feel free to share your thoughs, ideas, comments, questions, etc.
Again, Welcome to the forum!!
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