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Latest Activity

Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"As of now I no longer have to use a chin strap.  I am anxious about the sleep study.  Wondering if I will be able to sleep WITHOUT the CPAP….even thought I hate it it is a part of every night now and is what I am used to.  "
Sunday
Clueless in Redwood Shores replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"I had it on the same outpatient basis.  Much pain, no long term gain.  I did not have the annual repetition - that might or might not have made the difference. "
Sunday
Mary Z replied to richard graham's discussion mouth breathing
"glad to hear it, Richard.  Keep us posted."
Apr 13
Mary Z left a comment for richard graham
"Glad to hear it's working, Richard."
Apr 11
richard graham replied to richard graham's discussion mouth breathing
"The chin strap is helping. Been having better sleep. Thanks Ginny and Mary for your help"
Apr 11
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Thanks, Mary~  Fingers are crossed.  My pressure is one point lower than when I began (7) and AHI is some lower (7 day average).  I am anxious about sleep study as I have not slept without CPAP in 2.5 years!   "
Apr 6
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Good job, Ginny Hope the sleep study shows some good results."
Apr 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Last procedure done!  This time he gave me meds to take before so less anxiety while waiting!  For the first time I was able to eat normal food on the way home after the procedure.  No pain after 12 hours.  If it only works.…"
Apr 5
Mary Z replied to richard graham's discussion mouth breathing
"Some folks run their humidifiers in passover mode- not turning on the heat just letting the air blow over the water.  That would not give any heat though. "
Apr 5
richard graham replied to richard graham's discussion mouth breathing
"Interesting, I actually feel a little better when I don't use the humidifier, but the humidifier helps with sinuses. The cold air stuff's me up. Gonna try running heat and a nasal spray"
Apr 4
Mary Z replied to richard graham's discussion mouth breathing
"Good luck with it- let us know how you do, Richard."
Apr 4
richard graham replied to richard graham's discussion mouth breathing
"I just picked up a new chin strap and will use it with my ultra mirage."
Apr 4
richard graham posted a discussion

nasal sprays

Just wanting some suggestions for some good nasal sprays to dry up sinusus. Thank you
Apr 3
richard graham replied to richard graham's discussion mouth breathing
"Thanks Mary"
Apr 3
Mary Z replied to richard graham's discussion mouth breathing
"I have both.  I use the chin strap with my Wisp and I also have a FFM if I choose to use that one. I'm a mouth breather.  I find nasal masks are easier to fit without leaks"
Apr 3
Mary Z replied to Mary Z's discussion Using comfort features
"Nasacort is now available without a prescription.  I personally use Afrin on the rare nights I need it for being stuffed up."
Apr 3
richard graham replied to Mary Z's discussion Using comfort features
"Mary, do you recommend a good nasal spray?"
Apr 2
richard graham replied to richard graham's discussion mouth breathing
"Wondering if mouth breathers do better with FFM"
Apr 2
richard graham posted a discussion

mouth breathing

I'm a mouth breather, and am wondering weather to get a chin strap or affm
Apr 2
richard graham replied to Mary Z's discussion Using comfort features
"I've been thinking about trying a nasal spray. Thanks that's useful info."
Apr 2
Joan
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  • Chesterfield, MO
  • United States
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Joan's Discussions

New to forum...Anyone else have OSA and Sjogrens Syndrome?
17 Replies

Wondering how others are managing the two.  Symptoms are similar (other than the actual breathing issue) and it seems not many Doctors are familiar with Sjogrens or take Sleep Anpnea seriously. …Continue

Started this discussion. Last reply by Diana Slater Mar 12, 2012.

 

Joan's Page

Latest Activity

Diana Slater replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"I have had OSA for about 7 years now and wouldn't give up my CPAP for anyone. I was diagnosed with Sjogrens last week - strong positives on blood tests. However, I don't have the severe dryness of the mouth and eyes that some do. My nasal…"
Mar 12, 2012
Mary Z replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"Maybe a humidifier in the room,oo.  I understand about not tolerating CPAP because of the dryness.  Good  luck"
Mar 12, 2012
Rick Thompson replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"Hi Joan, I just signed up in this forum, as I did a search for the exact same problem you describe!  I have both severe OSA, and recently diagnosed with Sjogrens.  And I'm a male!  One of those in the minority!I cannot tolerate…"
Mar 12, 2012
99 replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"i live in uk and was wrong to suggest you hang on to machine as there are different arrangements for different countries "
Mar 11, 2012
Kathy Mason replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"Why? It's costing me about $85 a month for 12 months. "
Mar 11, 2012
Mary Z replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"Thanks for the update, Kathy.  If you are paying rental on the machine I would return it, too. Have you thought about trying Provent?   You might not even consider it since the recliner seems to be working so well for you.  We…"
Mar 11, 2012
Kathy Mason replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"It's been a while since I posted on here and I thought I'd give anyone interested an update. First, I had a lung biopsy in December and learned I have sarcoidosis, which is basically an inflammatory disease. I am on an extended period of…"
Mar 11, 2012
Joan replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"Mary, I understand what you are going through COMPLETELY!  I was diagnosed with severe sleep apnea 3 years ago and when I began using the equiptment, I began having sinus infections.  The sleep doctor dismissed the connection (and still…"
Dec 19, 2011
Kathy Mason replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"I also have Sjogren's and sleep apnea. I was not able to use CPAP because it gave me excruciating sinus headaches. I was recently tested with the BIPAP and it did not give me a headache but it made my right ear plug up and it did not subside…"
Dec 19, 2011
Joan replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"Andrew,  I believe that the symptoms you mention can also just be from the osa and cpap.  My bipap machine with humidifier really helps with the dryness.  There is a blood test available for Sjogrens Syndrome and it might…"
Oct 16, 2011
Andrew M replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"Hi Joan, Thanks for words of encouragement,I have looked at the symptoms online and I have a to many of them to reject this.Dry eyes and mouth.The scariest one for me is the fatigue:I tend to sit on the bed or chair -directly after I wake up, for…"
Oct 14, 2011
Joan replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"Thanks Mary.  I do keep my equiptment clean and also soak in vinegar solution weekly.  Appreciate your input.     "
Oct 9, 2011
Joan replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"Hi Andrew,  Sjogren's Syndrome is an Autoimmune and Inflammatory disorder that affects the exocrine/mucous-secreting (salivary) glands mostly but also causes fatigue.  Most obvious symptoms are dry eyes and dry…"
Oct 7, 2011
Andrew M replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"Hi Joan,I have been on cpap for 8 months and not happy with results yet -could i have this?.Can you tell more of the symptoms for you?"
Oct 6, 2011
Joan posted a discussion

New to forum...Anyone else have OSA and Sjogrens Syndrome?

Wondering how others are managing the two.  Symptoms are similar (other than the actual breathing issue) and it seems not many Doctors are familiar with Sjogrens or take Sleep Anpnea seriously.  Frustrating!See More
Oct 6, 2011
Joan is now a member of SleepGuide
Oct 6, 2011

Profile Information

My Interest in Sleep Apnea
I have Sleep Apnea
Treatment Being Used, if any
Bi-Level
If Machine Being Used, What Type? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Respironics RemStarPlus M-Series
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
ResMed Swift Light for her

Comment Wall (2 comments)

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At 9:42am on October 7, 2011, Mary Z said…
Joan,  as a fellow member of the forum and on behalf of the SleepGuide Crew I would like to welcome you to SleepGuide.   I hope you find the information on the site and the discussions to be helpful.  I have been on APAP for 3 1/2 years and we have complete newbies to people on the machine for many years.  I hope you will feel free to post comments, suggestions, and questions.  You never know what will help another user.

Glad you are already posting. 

 I hope you get some answers to your question. Sjogrens is not something I know about.

Mary Z.

At 12:02pm on October 6, 2011, Mary Z said…

Joan, as a fellow member of the forum and on behalf of the SleepGuide Crew I would like to welcome you to SleepGuide.  We have members from all over the world from complete newbies to those who have been on therapy for many years, and Sleep Professionals.  I hope you find the information on the site and the discussions to be helpful.  Please feel free to lurk or jump right in with feedback, support, or questions.  We value your input.

Mary Z.

 
 
 

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