Sleeping with CPAP blog post
Hi,This post is about sleep apnea and blood sugars. Thanks for reading.http://sleepingwithcpap.blogspot.com/See More
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ZolliStar replied to ZolliStar's discussion What's the Right Machine?"Thanks for this, Mary.
Worse comes to worse, I'll buy a used machine from Second Wind. First I'm going to see if I can get my doctor to prescribe one.
Maybe this is the final answer. Meanwhile, I'm surely happy to have…"
Mary Z replied to ZolliStar's discussion What's the Right Machine?"Zollistar, I think the ASV is hands down the best machine. It took me four years to get hooked up. Because of lingering depression and continued day time sleepiness with a high AHI my doctor suggested a night in the lab with an…"
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"May I ask two dumb-dumb questions? What do "Dx" and "CSA" mean?
And here is a not-so-dumb-dumb question (I hope!): From your experience, do people sleep better using an ASV machine?
I look forward to your answer.
"
RockRpsgt replied to ZolliStar's discussion What's the Right Machine?"You will most likely not be able to get insurance approval for an ASV without a Dx of CSA. I think that saying that an ASV breathes with you is false. ASV does however provide a better breath support and algorithm for auto use. The newer ASV units…"
Mary Z replied to ZolliStar's discussion Beating Sleep Maintenance Insomnia"Zollistar, what a good idea! The music is nice and relaxing on some of them."
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"Thanks for this information Lisa. It really helps.
Anyone else?
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Lisa replied to ZolliStar's discussion What's the Right Machine?"Hi Zollistar, I much prefer using an Apap to a straight Cpap. I changed over a few years ago and found straight away that I had much less of a problem with leaks. Another thing that I have noticed is I used to have ongoing problems with my nose…"
Terry Vella replied to ZolliStar's discussion What's the Right Machine?"He's still going, a bit of a pain sometimes but that's life, thanks for asking."
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"This helps a lot, Terry! Thanks for letting me know.
How is your dog??
"
Terry Vella replied to ZolliStar's discussion What's the Right Machine?"ZolliStar, I went straight to an auto so can't really compare but from what I have heard there are two major benefits, first, the comfort factor of not having the high pressure all night and second, it adjusts to what you require, so if you use…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"Ginny, they are probably not doing anything against the law- though it may seem like fraud to us it may be an accepted practice. I would rather change DME's. Have you talked to the manager. They don't want to lose your…"
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"It really burns me up that they are doing things like this. Monday I am going to lok up th eMedicare complaint number and give them an ear full.
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RockRpsgt replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"Companies like this will have to pay in the end. Medicare is taking no prisoners in their effort to reform medicare fraud."
RockRpsgt replied to Mary Z's discussion Symptoms"I had zero symptoms. I was testing equipment one night and fell asleep hooked up. When I woke up my doc said I had an AHI of 10 with 30 second events. I have been on PAP ever since."
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"I just use a large rubber band and safety pin to attach i tho the sheet. It doesn't exactly kink, but rather seems to have almost bends that don't quite ever go away. I have one that doesn't but all the others seem to.…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"My light weight tubing does not have a tendency to kink. It just hangs down from the stand and comes back up to the bed. I tried a hose hanger, but bought the cheaper travel model and it just wasn't up to the task."
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"I was really surprised when the congestion improved without the humidification. Yes, I use the lighter weight tubing too. Do you have trouble getting the bends and kinks out of them???? I have one favorite that is broken in and I hate…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"The reasoning behind changing the tubing is that it may develop small holes or tears which causing leakage. I am careful with my tubing and don't have any animals or children playing with the tubing. I don't feel like they have…"
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Joan
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New to forum...Anyone else have OSA and Sjogrens Syndrome?
17 Replies
Wondering how others are managing the two. Symptoms are similar (other than the actual breathing issue) and it seems not many Doctors are familiar with Sjogrens or take Sleep Anpnea seriously. …Continue
Started this discussion. Last reply by Diana Slater Mar 12, 2012.
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Diana Slater replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?"I have had OSA for about 7 years now and wouldn't give up my CPAP for anyone.
I was diagnosed with Sjogrens last week - strong positives on blood tests. However, I don't have the severe dryness of the mouth and eyes that some do. My nasal…"
Mary Z replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?"Maybe a humidifier in the room,oo. I understand about not tolerating CPAP because of the dryness. Good luck"
Rick Thompson replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?"Hi Joan,
I just signed up in this forum, as I did a search for the exact same problem you describe! I have both severe OSA, and recently diagnosed with Sjogrens. And I'm a male! One of those in the minority!I cannot tolerate…"
99 replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?"i live in uk and was wrong to suggest you hang on to machine as there are different arrangements for different countries
"
Kathy Mason replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?"Why? It's costing me about $85 a month for 12 months.
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Mary Z replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?"Thanks for the update, Kathy. If you are paying rental on the machine I would return it, too.
Have you thought about trying Provent? You might not even consider it since the recliner seems to be working so well for you. We…"
Kathy Mason replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?"It's been a while since I posted on here and I thought I'd give anyone interested an update. First, I had a lung biopsy in December and learned I have sarcoidosis, which is basically an inflammatory disease. I am on an extended period of…"
Joan replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?"Mary,
I understand what you are going through COMPLETELY! I was diagnosed with severe sleep apnea 3 years ago and when I began using the equiptment, I began having sinus infections. The sleep doctor dismissed the connection (and still…"
Kathy Mason replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?"I also have Sjogren's and sleep apnea. I was not able to use CPAP because it gave me excruciating sinus headaches. I was recently tested with the BIPAP and it did not give me a headache but it made my right ear plug up and it did not subside…"
Joan replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?"Andrew, I believe that the symptoms you mention can also just be from the osa and cpap. My bipap machine with humidifier really helps with the dryness. There is a blood test available for Sjogrens Syndrome and it might…"
Andrew M replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?"Hi Joan,
Thanks for words of encouragement,I have looked at the symptoms online and I have a to many of them to reject this.Dry eyes and mouth.The scariest one for me is the fatigue:I tend to sit on the bed or chair -directly after I wake up, for…"
Joan replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?"Thanks Mary. I do keep my equiptment clean and also soak in vinegar solution weekly. Appreciate your input.
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Joan replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?"Hi Andrew,
Sjogren's Syndrome is an Autoimmune and Inflammatory disorder that affects the exocrine/mucous-secreting (salivary) glands mostly but also causes fatigue. Most obvious symptoms are dry eyes and dry…"
Andrew M replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?"Hi Joan,I have been on cpap for 8 months and not happy with results yet -could i have this?.Can you tell more of the symptoms for you?"
Joan posted a discussionNew to forum...Anyone else have OSA and Sjogrens Syndrome?
Wondering how others are managing the two. Symptoms are similar (other than the actual breathing issue) and it seems not many Doctors are familiar with Sjogrens or take Sleep Anpnea seriously. Frustrating!See More
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Comment Wall (2 comments)
- At 9:42am on October 7, 2011, Mary Z said…
- Joan, as a fellow member of the forum and on behalf of the SleepGuide Crew I would like to welcome you to SleepGuide. I hope you find the information on the site and the discussions to be helpful. I have been on APAP for 3 1/2 years and we have complete newbies to people on the machine for many years. I hope you will feel free to post comments, suggestions, and questions. You never know what will help another user.
Glad you are already posting.
I hope you get some answers to your question. Sjogrens is not something I know about.
Mary Z.
- At 12:02pm on October 6, 2011, Mary Z said…
Joan, as a fellow member of the forum and on behalf of the SleepGuide Crew I would like to welcome you to SleepGuide. We have members from all over the world from complete newbies to those who have been on therapy for many years, and Sleep Professionals. I hope you find the information on the site and the discussions to be helpful. Please feel free to lurk or jump right in with feedback, support, or questions. We value your input.
Mary Z.
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