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Latest Activity

richard graham posted a status
"I feel like the humidifier is making me feel yucky and I'm waking up hacking and having to clear my throat a lot for a while."
Nov 3
richard graham posted a discussion

what's a good AHI?

I've been using and auto and it says my AHI HAS been between 4 and 6 and wondering what's a good range.
Nov 2
Andy posted a discussion

Resmed S10 AirSense - Anyone have one? Any feedback?

Hi All,I've just ordered a new Resmed S10 AirSense, and I was wondering if anyone here has used one?Any information or input would be appreciated!See More
Sep 29
Andy replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"Hi All, Well, I went to the sleep doc today, and he ordered a new S10 for me! I still don't know why my S8 is not tracking data anymore. Anyone have any ideas?"
Sep 29
Oscar Lemus updated their profile
Sep 25
liz4cps commented on liz4cps's group Prince William Co, VA support group
"Just found they have a Facebook for the REMedy event, 1st Class Sleep REMedy Wellness Health Fair."
Sep 25
liz4cps commented on liz4cps's group Prince William Co, VA support group
"Reminder: REMedy event is this Saturday, 10 am to 2pm.  Topics include: Nutrition and Weight Management with Sarah Kelly, Registered Nutritionist/Dietitian Oral Appliance Therapy for Sleep Apnea with Drs. Rena Vakay & Lara…"
Sep 25
Kay Day left a comment for Kay Day
"September 1, 2014 My apologies to Sleep Guide for not participating in a long time. In January 2012 I started classes at the local community college (my husband is an instructor there, and my tuition is refunded when my grades are above a C. My…"
Sep 1
Mary Z posted a discussion

Sleep apnea increases risk of osteoporosis

Sleep apnea/osteoporosis study finds “increased” health riskA recently published study may have found a connection between obstructive sleep apnea (OSA) and osteoporosis, marking yet another health…See More
Aug 23
Mary Z replied to ZolliStar's discussion Non-invasion approach that can relieve mild sleep apnea
"Hi ZolliStar, I've heard before that speech therapy, or singing lessons can help sleep apnea.  The problem at that time was there was no way to determine which exercises help.  Getting research done, rather than anecdotal would be…"
Jul 28
ZolliStar posted a discussion

Non-invasion approach that can relieve mild sleep apnea

Some people report that singing -- singing! -- really helps their sleep apnea. Dr. Stephen Park said that myology (which are exercises to strengthen muscles around the inside of one's mouth area) helps some. I think singing would be better.  If you read all the FAQs on this (click below), I think you'll agree that it makes sense for some. Maybe you.http://www.singingforsnorers.com/index.htmSee More
Jul 28
ZolliStar posted a discussion
Jul 20
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14
Joan
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  • Chesterfield, MO
  • United States
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Joan's Discussions

New to forum...Anyone else have OSA and Sjogrens Syndrome?
17 Replies

Wondering how others are managing the two.  Symptoms are similar (other than the actual breathing issue) and it seems not many Doctors are familiar with Sjogrens or take Sleep Anpnea seriously. …Continue

Started this discussion. Last reply by Diana Slater Mar 12, 2012.

 

Joan's Page

Latest Activity

Diana Slater replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"I have had OSA for about 7 years now and wouldn't give up my CPAP for anyone. I was diagnosed with Sjogrens last week - strong positives on blood tests. However, I don't have the severe dryness of the mouth and eyes that some do. My nasal…"
Mar 12, 2012
Mary Z replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"Maybe a humidifier in the room,oo.  I understand about not tolerating CPAP because of the dryness.  Good  luck"
Mar 12, 2012
Rick Thompson replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"Hi Joan, I just signed up in this forum, as I did a search for the exact same problem you describe!  I have both severe OSA, and recently diagnosed with Sjogrens.  And I'm a male!  One of those in the minority!I cannot tolerate…"
Mar 12, 2012
99 replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"i live in uk and was wrong to suggest you hang on to machine as there are different arrangements for different countries "
Mar 11, 2012
Kathy Mason replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"Why? It's costing me about $85 a month for 12 months. "
Mar 11, 2012
Mary Z replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"Thanks for the update, Kathy.  If you are paying rental on the machine I would return it, too. Have you thought about trying Provent?   You might not even consider it since the recliner seems to be working so well for you.  We…"
Mar 11, 2012
Kathy Mason replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"It's been a while since I posted on here and I thought I'd give anyone interested an update. First, I had a lung biopsy in December and learned I have sarcoidosis, which is basically an inflammatory disease. I am on an extended period of…"
Mar 11, 2012
Joan replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"Mary, I understand what you are going through COMPLETELY!  I was diagnosed with severe sleep apnea 3 years ago and when I began using the equiptment, I began having sinus infections.  The sleep doctor dismissed the connection (and still…"
Dec 19, 2011
Kathy Mason replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"I also have Sjogren's and sleep apnea. I was not able to use CPAP because it gave me excruciating sinus headaches. I was recently tested with the BIPAP and it did not give me a headache but it made my right ear plug up and it did not subside…"
Dec 19, 2011
Joan replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"Andrew,  I believe that the symptoms you mention can also just be from the osa and cpap.  My bipap machine with humidifier really helps with the dryness.  There is a blood test available for Sjogrens Syndrome and it might…"
Oct 16, 2011
Andrew M replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"Hi Joan, Thanks for words of encouragement,I have looked at the symptoms online and I have a to many of them to reject this.Dry eyes and mouth.The scariest one for me is the fatigue:I tend to sit on the bed or chair -directly after I wake up, for…"
Oct 14, 2011
Joan replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"Thanks Mary.  I do keep my equiptment clean and also soak in vinegar solution weekly.  Appreciate your input.     "
Oct 9, 2011
Joan replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"Hi Andrew,  Sjogren's Syndrome is an Autoimmune and Inflammatory disorder that affects the exocrine/mucous-secreting (salivary) glands mostly but also causes fatigue.  Most obvious symptoms are dry eyes and dry…"
Oct 7, 2011
Andrew M replied to Joan's discussion New to forum...Anyone else have OSA and Sjogrens Syndrome?
"Hi Joan,I have been on cpap for 8 months and not happy with results yet -could i have this?.Can you tell more of the symptoms for you?"
Oct 6, 2011
Joan posted a discussion

New to forum...Anyone else have OSA and Sjogrens Syndrome?

Wondering how others are managing the two.  Symptoms are similar (other than the actual breathing issue) and it seems not many Doctors are familiar with Sjogrens or take Sleep Anpnea seriously.  Frustrating!See More
Oct 6, 2011
Joan is now a member of SleepGuide
Oct 6, 2011

Profile Information

My Interest in Sleep Apnea
I have Sleep Apnea
Treatment Being Used, if any
Bi-Level
If Machine Being Used, What Type? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Respironics RemStarPlus M-Series
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
ResMed Swift Light for her

Comment Wall (2 comments)

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At 9:42am on October 7, 2011, Mary Z said…
Joan,  as a fellow member of the forum and on behalf of the SleepGuide Crew I would like to welcome you to SleepGuide.   I hope you find the information on the site and the discussions to be helpful.  I have been on APAP for 3 1/2 years and we have complete newbies to people on the machine for many years.  I hope you will feel free to post comments, suggestions, and questions.  You never know what will help another user.

Glad you are already posting. 

 I hope you get some answers to your question. Sjogrens is not something I know about.

Mary Z.

At 12:02pm on October 6, 2011, Mary Z said…

Joan, as a fellow member of the forum and on behalf of the SleepGuide Crew I would like to welcome you to SleepGuide.  We have members from all over the world from complete newbies to those who have been on therapy for many years, and Sleep Professionals.  I hope you find the information on the site and the discussions to be helpful.  Please feel free to lurk or jump right in with feedback, support, or questions.  We value your input.

Mary Z.

 
 
 

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