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99 replied to Fred's discussion CPAP - cure worse than the disease
"Do not turn light on as this hinder you from falling asleep or choose red light instead which do not afect your sleep"
Oct 27
99 left a comment for Joan Williams Rice
"Hi Joan visiting pelham and I have osa"
Oct 27
99 left a comment for martha crabtree
"Hi maths visiting pelham "
Oct 27
99 left a comment for Rhonda Harrison
"Hi Rhondda I am visiting pelham and have osa "
Oct 27
99 posted a discussion

Leaky gut

Do you have a leaky gutHow would you knowA telltale sign for leaky gut is Athletes footI wish to ask do you have or suffer from itThe reason I ask is maybe this is a common denominatorJust text yes or text noAnd if you are the first to text also keep a tallyExample38 yes 0 noYour input would alter the tally39 yes 0 noSo now I will input first1 yes. 0 noSee More
Sep 26
richard graham posted a status
"For the first time in a while I got a whole night sleep with my machine but woke up beat and left side of my head feels weird, not sure if"
Sep 2
Brendan Duffy posted a status
"How did you sl"
Jul 9
Pat Kniel updated their profile
Jul 7
ZolliStar replied to Fred's discussion CPAP - cure worse than the disease
"I'm wondering: what prompted you to consider whether you have sleep apnea in the first place? Also, waking throughout the night isn't uncommon especially as we (*sigh*) age.  I seem to every 90 minutes or so. This pattern probably…"
Jun 27
ZolliStar replied to ZolliStar's discussion New mouth device on the market
"You can try this website: I have a MAD (mandibular advancement device). Dr. Steven Park evaluated my mouth and throat (not everyone can use a MAD, it turns out) and pronounced me a candidate for it. The truth?  I…"
Jun 27
Mary Z replied to ZolliStar's discussion New mouth device on the market
"The link didn't work so me so I couldn't see the product.  I do have experience with a supposedly reliable boil and bite device.  I should know by now I have a small mouth and nothing regular size fits.  I don't think…"
Jun 27
richard graham replied to ZolliStar's discussion New mouth device on the market
"If I thought something could work other than this lousy cpap that would be awesome"
May 22
richard graham posted a status
"I moved and have been sick a lot and can't use cpap because of cough and I'm depressed a lot"
Apr 26
Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13
Fred updated their profile
Apr 13
ZolliStar posted a discussion

New mouth device on the market

I've been hearing advertising for this product over the past few days.  It's sold as something to help snoring, but as I look at the information it seems to me that it would work just as well as my mandibular advancement device (MAD).In other words, this could help some of us with sleep apnea.Read about it here.Anybody have any thoughts about this?  See More
Mar 31
99 replied to Mary Z's discussion AHI finally under five.
"Hi Richard I mainly use an empty humidifier as it reduces noise"
Feb 16
richard graham left a comment for richard graham
"When I can afford it I'd like to get New machine with heated tube"
Feb 10
richard graham replied to Mary Z's discussion AHI finally under five.
"I would like to see this forum active again as well. I will be more aware of what's going on"
Feb 10
ZolliStar posted a discussion

If you have trouble falling asleep....

I thought that when I got my sleep apnea diagnosis, that -- at last! -- all my sleep problems had come to an end.Ha!I have trouble falling asleep. Indeed, I rarely feel sleepy at night although I do feel tired. I even cut back on computer at night, etc., etc. (and installed f.lux on my computer) but I still had trouble. Now I'm doing something different: wearing special glasses (Uvex S1933X Skyper Safety Eyewear glasses). They block out the blue -- and they're making a difference! First I tried…See More
Feb 1

while wearing the cpap with the nose plugs (not the face mask) phobia & will not wear it.  I awoke suddenly and coul dnot breathe, sweating and heart pounding. I attributed it to my opening my mouth while asleep. Scared me silly. I tried again to sleep, same thing happened tht nite and for the following two nites.  I was given a chin strap to try & hold my mouth closed, which did no good. Finally, I just gave up on the machine, since I wasn't getting any sleep anyway. Any suggestions?

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Well said jnk!
You can try desensitizing yourself to the mask and the pressure. If you havent already tried, try sitting in front of the tv set with the mask on and the machine going for a little while every night before you go to sleep. I can help you get used to the pressure and the mask. It may not work but it is worth a try to help you feel better in the morning. Dont get too discouraged and dont be hard on yourself if you dont tolerate it right away. Hang in there and good luck.
Were it while watching tv or reading. Try a little at a time, telling yourself you will keep it on a little longer each time. Many of us took time to get used to wearing if every night all night. Don't give up, just work with it not against it.
I have no suggestions, although initially I thought that any kind of mask was going to cause my Claustrophobia to kick in and when I told the doctor, he said there were mild sedative he could prescribe, if it did. It hasn't yet but what you describe is exactly what my sleep technician said could happen to me in the Sleep Lab, and she made sure I knew how to get the mask off in a hurry, should it happen. She said it wasn't unusual at all.

I think you got some useful suggestion from others and all I've got to say is, "Don't give up. You can do this.!"

And with all these people to help you out, it will be easier than you think!

Good Luck!
Hi I went through the same thing. I have allergys so I had to get a full face mask so I can breathe either way. I would put it on then walk myself through the can't breathe stages by focusing on my breathing in and out. I couldnt use the chin strap. I would still some times wake up in the middle of the night and jerk the mask off but always put it back on and talked myself through since I knew I was still breathing. It just takes time. Good luck and hang in there
I'm brand new but could you perhaps change to the type of mask that I use? It's called a nasal mask vented. I could not tolerate, for more than an hour, the type of mask that shot the air straight up my nostrils. It hurt and I don't know how people do it. I know I mentioned getting an anti-anxiety drug from your doctor but first I wonder if you shouldn't try a different type of mask.

See how much I've learned in a few days?

I feel for you as I'm the queen of claustrophobia but if I can wear a mask, you can, too. You just need to start at the beginning.

Good luck to you!
It adds to your fear when you have trouble trying to breath threw a stopped up nose. That was why I got a full face. I tried for 2 weeks with tha nasal one and couldnt handle it. I'm also claustrophobic but can handle the full face. That stupid chin strap just added to the fear. gl
Good ideas here already. I was also wondering if the pressure was right for you. I had been using my mask religiously for years when last spring I started waking up with my mouth open. It was weird. (I also use nasal pillow mask.) Turned out that I'd gained 5-10 lbs since my sleep study and needed to up my pressure. I also found during that time that my pressure needs are VERY different when I'm lying down and when I'm sitting up. Sitting up I only needed about an 8. Lying down I was up to a 12. Having my pressure too high (like when I was sleeping in a recliner due to a hip injury) I found that I would wake with my mouth open too. That's why I'm hoping to get an apap that will auto adjust my pressure, but that's going to be a long fight I think.

Good luck with finding an answer. It's definitely worth doing some trial and error and detective work.
A mild sleep aid may help you with this problem.

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