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99 replied to 99's discussion colloidal silver
"i have purchased some silver the make my own colloidal silver"
8 hours ago
99 replied to 99's discussion colloidal silver
"just add to the distilled water it is antimicrobial eg cleans your machine and is beneficial for keeping you healthy  from bugs germs viruses you get the picture and when you need to clean the humidifier out, put water on your plants the silver…"
9 hours ago
Mary Z left a comment for richard graham
"If the heated tube works with your machine I would try that.  They also make covers for your tubing which may help some.  I think the heated tube may be your answer.  Keep us posted."
12 hours ago
Mary Z left a comment for richard graham
"Richard, some folks just use the humidifier in a Passover mode.  They just don't turn it on, but let the air pick up moisture without heat."
12 hours ago
Mary Z replied to 99's discussion colloidal silver
"99, where have you been?  Do you add the colloidal silver to your humidifier?"
12 hours ago
Mary Z replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"I Andy, I realize I'm months behind your post.  I have no idea why your S8 would stoop collecting data.  I'm glad to hear  you're having such improvement with your apnea.  I have made great strides since I changed…"
13 hours ago
Mary Z replied to Andy's discussion Resmed S10 AirSense - Anyone have one? Any feedback?
"Andy, just found your post.  I don't know anything about this new machine.  How are you liking your new ResMed?"
13 hours ago
Mary Z left a comment for Kay Day
"Kay, I haven't been around myself and miss the old, active forum."
13 hours ago
Mary Z left a comment for richard graham
"Hi Richard,  I don't bother with a humidifier.  Someone on the forum suggested not using it and I'm a lot less congested without it.  A good AHI is under 5.  I use the Wisp and have been since it came out.  I think…"
13 hours ago
hifay replied to Mary Z's discussion Sleep apnea increases risk of osteoporosis
"Always something. Thanks for the information."
13 hours ago
99 posted a discussion

colloidal silver

a humidifier can be used with colloidal silverthis can keep the humidifier clean for day maybe weeks or longer without the need to clean the humidifiersilver colloidal is antimicrobial and you could just top up your humidifier without cleaning and at the same time treat your bodyor you just put silver on it own into the humidifierSee More
yesterday
richard graham posted a status
"I feel like the humidifier is making me feel yucky and I'm waking up hacking and having to clear my throat a lot for a while."
Nov 3
richard graham posted a discussion

what's a good AHI?

I've been using and auto and it says my AHI HAS been between 4 and 6 and wondering what's a good range.
Nov 2
Andy posted a discussion

Resmed S10 AirSense - Anyone have one? Any feedback?

Hi All,I've just ordered a new Resmed S10 AirSense, and I was wondering if anyone here has used one?Any information or input would be appreciated!See More
Sep 29
Andy replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"Hi All, Well, I went to the sleep doc today, and he ordered a new S10 for me! I still don't know why my S8 is not tracking data anymore. Anyone have any ideas?"
Sep 29
Oscar Lemus updated their profile
Sep 25
liz4cps commented on liz4cps's group Prince William Co, VA support group
"Just found they have a Facebook for the REMedy event, 1st Class Sleep REMedy Wellness Health Fair."
Sep 25
liz4cps commented on liz4cps's group Prince William Co, VA support group
"Reminder: REMedy event is this Saturday, 10 am to 2pm.  Topics include: Nutrition and Weight Management with Sarah Kelly, Registered Nutritionist/Dietitian Oral Appliance Therapy for Sleep Apnea with Drs. Rena Vakay & Lara…"
Sep 25
Kay Day left a comment for Kay Day
"September 1, 2014 My apologies to Sleep Guide for not participating in a long time. In January 2012 I started classes at the local community college (my husband is an instructor there, and my tuition is refunded when my grades are above a C. My…"
Sep 1
Mary Z posted a discussion

Sleep apnea increases risk of osteoporosis

Sleep apnea/osteoporosis study finds “increased” health riskA recently published study may have found a connection between obstructive sleep apnea (OSA) and osteoporosis, marking yet another health…See More
Aug 23

Hello!

I'm Jen, a newbie, but not new to sleep apnea :) (or should that be a sad face)!

I've had this issue off and on for about six years, but it has been worse lately. Currently, I am not using any machine/mask or other treatment.

The last sleep study I had was three years ago, and at that time, I was told my case didn't warrant a CPAP machine, nor would my insurance cover it because my case was considered mild. Now, I sleep too much, never feel rested, and I miss work about three days a month because I am so stinkin' tired. I don't go out with my friends as often, I hardly exercise because I'm fatigued, and I generally have heavy eyelids and a heavy headed feeling all the time. My moods are iffy, I have difficulty concentrating at work, and I feel too young for all of this (I'm 41)!

 

I have another appt. scheduled for next week, and since it's been so long, I've been told the dr. will want to schedule another study. Can you share any advice or questions I should be asking the doctor? I really need some relief to improve my quality of life.

 

Glad to find this forum!

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Hi Jen: I would suggest trying to find a Dr Certified in Sleep Apnea. From my experience- ENT's 'certified in sleep therapy' seem to be the most effective in helping folks like you.

Primary physicians are fine when folks are compliant w/ the therapy and have no issue's- but in your case- it may be good to see a Doc certified in sleep.

Surgery: Most Throat Surgery has been a FAILURE at resolving apneas. So think long n hard before taking that route.

On the other hand I have had pts tell me that Nasal procedures- for say deviated septums are effective.

Meds: That could be a huge factor which meds if any you take-

Hope you find this helpful :) And you get to feeling like yourself again! You are way too young to not enjoy your life ;)

Take Care,

Clare, Respiratory Therapist 

Jen Thompson said:

Thank you for the info!
I am basically starting from scratch again. I have not seen an ENT and my last sleep study was in 2008. So, I have been reading about surgeries, CPAP, and basically feeling overloaded by info!
I am writing down my symptoms/issues along with my questions.
Mary, is there a difference with the titration study?
What bugs me the most is feeling tired all the time, the headaches, lack of energy..
I am praying for relief!

Thank you, Clare...I am seeing a specialist next week, and I will ask him to recommend an ENT.

My lower jaw is smaller, so I'm even wondering if having it moved forward would help. Even in waking hours, I seem to feel extra stuff at the back of my throat. I guess I will be asking a lot of questions.

Currently I'm on a generic antidepressant and I take generic Synthroid for my thyroid.

Thanks so much for all the helpful information. Not too thrilled about possible surgery but I almost think I would rather do that than have to sleep with a mask on my face.

Jen, an appointment with an ENT would be an excellent idea.  Sometimes even minor surgery can make a difference in tolerating therapy if your sleep test shows OSA or another form of sleep disordered breathing.  The ENT will usually want to see the results of a sleep study for some types of surgery.  Do you have a sleep study scheduled yet?  It would be helpful to know exactly what's going on in your sleep.

Wearing the mask and using the machine (if that is prescribed for you) is really not that bad and with support from members of the forum we can help you through any problems. As Chris H said, a dental device is also an option.

All of this is really a moot point until you find out if sleep diordered breathing is your problem.

Tomorrow is the big appointment. I have been reading about different treatments and surgeries, and I am hoping and praying to get the sleep study done ASAP. I am feeling so crummy. I know it may take awhile to get relief but each day seems like an eternity. I want my life back, my energy, and normal sleep.
Jen, make sure you keep pushing, 6 months ago I was diagnosed with servere sleep apnea. A year ago I was diagnosed with depression which I now believe was caused by the sleep apnea. I always knew I had a problem with sleep but the doctors kept pushing me down the depression track as a lot of my symptoms are the same as sleep apnea fatigue, waking up in the middle of the night and what I call the 'fog' of depression (feeling crummy).
This does not mean that you have depression as it takes different forms, just make sure you get the right treatment and good luck.
Jen, good luck, you are starting a long process. I hope the sleep study is scheduled quickly.  I also hope you get a good doc and support team.  Of course we are always here for you, but it is helpful to have someone with expertise in fitting that first mask and to begin getting you up to speed.
Jen, bluntly, let me expand on my previous comments. 
If you have been told that your apnea level does not warrant CPAP, it might be true. 
What you need to ask is what else can cause your signs and symptoms. You might have a small number of apneas, at the frequency considered normal for your age and gender and their duration might also be normal for your age and gender.
What is imperative is that you are told  what else can cause your symptoms. 
FYI, your signs and symptoms read like a "textbook description" of those observed in one of several disorders related to SLEEP DEPRIVATION.  Among others, and in an incomplete list: one of the hypersomnolences, such as  NARCOLEPSY, IDIOPATHIC HYPERSOMNIA, CIRCADIAN DYSSYNCHRONY, JET LAG, ATYPICAL DEPRESSION, and CHRONIC FATIGUE. None of these conditions is treated with masks, dental appliances, or PAP machines, unless they are concurrent with one of the apneas (central, obstructive, hypopnea, etc) at a level higher than the natural for the individual being studied. 
You should see a medical doctor that (a) knows more than one of the subspecialties that together constitute the field of "sleep disorders" and (b) has a good grasp of internal medicine because you could have, rather than a "sleep disordfer" an "endochrine disorder" as mentioned in a commente about thyhroid deficiencies. 
And let me be particularly blunt: let's assume that your health-care providers want to help you. If you insist in the apneas and her/his expertise/experience/business relate to breathing disorders and PAP machines, she/he will be inclined to provide you with a solution that is based in their knowledge/expertise/business. All these aspects impinge in the treatments all of us are offered by our medical doctors as discussed by Dr J Groopman in his book "How Doctors Think". He does not mention sleep disorders but gives the example of prostate cancer. Urological surgeons refer their patientes for surgery and radiation oncologists refer their patients for radiation treatments, rarely otherwise. And, frequently, no treatment at all would be as good or even a better alternative.
I wish you once more that you find a solution to all your symptoms sooner than me. Be hopeful, surely there will be light at the end of your tunnel. And cake. In April I will send you a piece of my e-cake celebrating my 80 yrs birthday with apneas, narcolepsy, dyssynchronies, and 10 yrs with prostate cancer. Without masks or machines, and neither surgery nor radiation. 
JC

Hi all;

 

Had my appt. today and another sleep study is going to be scheduled. The doctor isn't keen on oral appliances or surgery, but said I need to give the CPAP some time. Looks like the CPAP route for at least a year. If things don't improve or I find myself resistant to CPAP treatment, we'll look into other options like the UPPP.

JC, I do believe this is sleep apnea, not chronic fatigue or thyroid issues. My thyroid is checked twice a year and I'm on medication. This is not sleep deprivation. I sleep for hours and hours and do not feel rested. That is a major problem and I cannot tolerate it anymore. This is not depression, though I believe the sleep apnea is intensifying my moodiness and crankiness.

I am ready to start feeling better. I will do whatever is necessary to get a good night's sleep.

Hi Jen, How is your Sleep Hygene? .....Is your room dark? do you eat late? limit your caffein? go to bed and get up at the same times? Is the room cool ? Stuff like that matters. Good Sleep,Chris 

Hi Chris,

Room is dark. No I don't like to eat late. Caffeine? I drink it by the gallon. Doesn't help me stay awake anyways...

I try to go to sleep around the same time, but my struggle is getting up since I feel like I've never been to sleep. I'm not getting enough REM sleep. I could put my head down right now . :)

Hi Jen, I hope you get some answers at the next study. Now is the time to do your home work. Google everything  go in to the study with a list of questions about meds ,hygene, types of machines apap bipap cpap apap masks ect Good Sleep,Chris
Thank you, Chris. I will look into those terms you mentioned. :)

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