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Latest Activity

ZolliStar posted a discussion
Sunday
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14
richard graham replied to richard graham's discussion mouth breathing
"I still use humidity but less of it. It seems to be working OK.."
Jun 14
ZolliStar replied to richard graham's discussion mouth breathing
"I rarely use the humidifier. I think it's less necessary during the summer when there is humidity.   I also switch between my mouth device and the APAP.  I like each for different reasons. Not sure with which I sleep better, though.…"
May 21
Mary Z replied to richard graham's discussion sick again
"I've been doing well.  I think you were going to try the cpap without humidity- did that help at all?  I haven't had a cold for a couple of years."
May 14
Ginny Edmundson replied to richard graham's discussion sick again
"CPAP seems to cause stuffiness in many of us.  ANother reason I hate it so much!Do you rinse your nose with saline once a day…maybe before you go to bed for the night? "
May 5
richard graham replied to richard graham's discussion sick again
"I do wake up stuffed up most days"
May 5
richard graham replied to richard graham's discussion sick again
"I do have non allergic rhinitis. Now I'm thinking that's probably it because I only feel that way for a day or 2. Thank you"
May 4
Ginny Edmundson replied to richard graham's discussion sick again
"I have been lucky.  Not one cold past three years. Could some of your problem be allergies?"
May 4
richard graham posted a discussion

sick again

It seems like I am sick with colds more often when I'm on the CPAP. Anybody experience that.
Apr 30
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"As of now I no longer have to use a chin strap.  I am anxious about the sleep study.  Wondering if I will be able to sleep WITHOUT the CPAP….even thought I hate it it is a part of every night now and is what I am used to.  "
Apr 20
Clueless in Redwood Shores replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"I had it on the same outpatient basis.  Much pain, no long term gain.  I did not have the annual repetition - that might or might not have made the difference. "
Apr 20
Mary Z replied to richard graham's discussion mouth breathing
"glad to hear it, Richard.  Keep us posted."
Apr 13
about 40-60% of sleep apnea patient are unable to use cpap because of complete intolerance. out the rest 80% of the do not comply with the recommendations and the time on cpap for more than a year. these are compelling stats about a condition that still has to find a consistent and friendly approach. one of the most common causes of poor compliance is the presence of nasal congestion that for some people is even difficult to identify as the main  cause of the difficulty tolerating the mask. indeed nasal congestion can aggravate sleep apnea by increasing the negative pressure necessary to maintain air flow in the nasopharynx and also increasing the positive pressure during cpap. what is the experience of more seasoned users of cpap in regards with the management of nasal congestion during cpap use?

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I've been using my cpap for almost 6 years and cannot sleep (breathe) without it because of the nasal 'congestion' in addition to the obstruction.  I cannot use a mask, and use pillows.  When the congestion gets really bad, I also put on breathe rite strips.  If I could wear the strips 24/7, I would.  One surgeon said my turbinates collapse, and could be rectified by surgery.  I asked 3 others who had had the surgery if it was successful, 2 people told me that it worked for a while then gradually went back.  I've also found that dairy increases the congestion, and bizarre as it may sound, make my ears ring.

I find a prescription nasal spray, or on occasion, Afrin relieves my nasal congestion.  I also use a Total Face Mask (the FFM break down the bridge of my nose) which enables me to breathe through my mouth as well as my nose when  the congestion clears.  I agree the mask is the achilles heel of CPAP.  However I think those of us with severe symptoms and health consequences are more likely to make the commitment to work through all problems- including the mask and nasal congestion.

Doing research, such as figuring out dairy is the source of some problems is an example of commitment.

Hi Cesar,

               Do you have vasomotor or allergic rhinitis?

               Do you have a heated humidifier?

               Do you have a room ioniser/ filter?

               Is your machine filter replaced in a timly fashion?

               Are you using enough humidity? (Distilled water)??

                                                            Good Sleep,Chris



Chris H said:

Hi Cesar,

               Do you have vasomotor or allergic rhinitis?

               Do you have a heated humidifier?

               Do you have a room ioniser/ filter?

               Is your machine filter replaced in a timly fashion?

               Are you using enough humidity? (Distilled water)??

                                                            Good Sleep,Chris

hi chris thank you for your replay. i have chronic perennial rhinitis and i use allergy shots. when i was diagnosed of sleep apnea 4 mo ago. i thought this was no longer problem. but after i started using the cpap there were some nights that i need more pressure in the resmed to above 14 and i usually was doing fine with 12. i thought it was the mask getting old with the leakage but later i realized i had nasal congestion that likely oblige me to be a mouth breather. i use a full face mask. i started using nasal steroids with modest results. needless to mention the frustrations of trying to figure out what was going on. further research indicates this is a very common problem that apparently does not have easy solution. i am to the point of contemplating oral appliances or surgery. albeit my ahi is 30 and OA may not works as good. it is funny but my BMI is 25 and i always had athletic training. in any event thank you for your answer and concern.

Hi Cesar, 

Are you using a heated humidifier?

 Have you cranked up the humidity?

  Is the machine filter clean?

What are you cleaning your mask with??

Poorly treated apnea means you are going to have more stress hormones and that makes weight even more difficult to deal with.

How much caffein and how close to bed time are you eating?

Keep at it ,Good Sleep,Chris

hi chris

i use a resmed 9 with humidity at 3. i found out that higher condensates with in the mask. i also has dry mouth syndrome that makes more difficult to deal with mouth breathing.

i was cleaning the silicone cushion with alcohol but i found out it was not advisable now i just use soap and water.

i need to get new filters. no caffeine at night only during the day. i eat about 1 hr before bed time.

Hi Cesar,

   If you cover your hose it wont condense in it as soon so you can crank up the humidity.

   Simple soap with no perfumes and hot water is fine.

   Eating  1 hour before bed is not enough time for things to be settled . I know a busey schedual makes it difficult .  

 Good Sleep,Chris            

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