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Latest Activity

liz4cps commented on liz4cps's group Prince William Co, VA support group
"BluePoint Medical* holding their next Remedy event on June 4 with Terry Cralle, RN on "Sleep in the Mordern Family".  They will also be checking CPAP machines and providing breakfast. Click on link above for more…"
May 7
Dan Lyons posted a discussion

CPAP & Dry Mouth

In recent months, I have developed extreme dry mouth as a result of the CPAP.  I am a mouth breather when using CPAP.Recently, I saw an advertisement for the symptoms of dry mouth, but as usual, when I need the information to have a discussion with both my primary care  physician and my dentist I haven't seen the ad. Has anyone else seen the ad and can anyone remember the info in the ad?Thanks in advance,DanSee More
Mar 30
richard graham posted a status
"My deductible is double what a machine is online but I can't get the machine set up. Any ideas?"
Mar 10
BeeAsleep posted a status
"Hi all. I am just checking in and saying hi after being gone for a long time. I am doing GREAT! Just got a new machine and mask. Feel like I"
Jan 23
BeeAsleep updated their profile
Jan 23
99 replied to Fred's discussion CPAP - cure worse than the disease
"Do not turn light on as this hinder you from falling asleep or choose red light instead which do not afect your sleep"
Oct 27, 2015
99 left a comment for Joan Williams Rice
"Hi Joan visiting pelham and I have osa"
Oct 27, 2015
99 left a comment for martha crabtree
"Hi maths visiting pelham "
Oct 27, 2015
99 left a comment for Rhonda Harrison
"Hi Rhondda I am visiting pelham and have osa "
Oct 27, 2015
99 posted a discussion

Leaky gut

Do you have a leaky gutHow would you knowA telltale sign for leaky gut is Athletes footI wish to ask do you have or suffer from itThe reason I ask is maybe this is a common denominatorJust text yes or text noAnd if you are the first to text also keep a tallyExample38 yes 0 noYour input would alter the tally39 yes 0 noSo now I will input first1 yes. 0 noSee More
Sep 26, 2015
richard graham posted a status
"For the first time in a while I got a whole night sleep with my machine but woke up beat and left side of my head feels weird, not sure if"
Sep 2, 2015
Brendan Duffy posted a status
"How did you slhttp://blog.aastweb.org/winners-and-losers-food-for-thought-sleep-and-athletic-success?utm_campaign=subscribers&utm_source=hs_"
Jul 9, 2015
Pat Kniel updated their profile
Jul 7, 2015
ZolliStar replied to Fred's discussion CPAP - cure worse than the disease
"I'm wondering: what prompted you to consider whether you have sleep apnea in the first place? Also, waking throughout the night isn't uncommon especially as we (*sigh*) age.  I seem to every 90 minutes or so. This pattern probably…"
Jun 27, 2015
ZolliStar replied to ZolliStar's discussion New mouth device on the market
"You can try this website:  http://zyppah.com/ I have a MAD (mandibular advancement device). Dr. Steven Park evaluated my mouth and throat (not everyone can use a MAD, it turns out) and pronounced me a candidate for it. The truth?  I…"
Jun 27, 2015
Mary Z replied to ZolliStar's discussion New mouth device on the market
"The link didn't work so me so I couldn't see the product.  I do have experience with a supposedly reliable boil and bite device.  I should know by now I have a small mouth and nothing regular size fits.  I don't think…"
Jun 27, 2015
richard graham replied to ZolliStar's discussion New mouth device on the market
"If I thought something could work other than this lousy cpap that would be awesome"
May 22, 2015
richard graham posted a status
"I moved and have been sick a lot and can't use cpap because of cough and I'm depressed a lot"
Apr 26, 2015
Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13, 2015
Fred updated their profile
Apr 13, 2015
about 40-60% of sleep apnea patient are unable to use cpap because of complete intolerance. out the rest 80% of the do not comply with the recommendations and the time on cpap for more than a year. these are compelling stats about a condition that still has to find a consistent and friendly approach. one of the most common causes of poor compliance is the presence of nasal congestion that for some people is even difficult to identify as the main  cause of the difficulty tolerating the mask. indeed nasal congestion can aggravate sleep apnea by increasing the negative pressure necessary to maintain air flow in the nasopharynx and also increasing the positive pressure during cpap. what is the experience of more seasoned users of cpap in regards with the management of nasal congestion during cpap use?

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I've been using my cpap for almost 6 years and cannot sleep (breathe) without it because of the nasal 'congestion' in addition to the obstruction.  I cannot use a mask, and use pillows.  When the congestion gets really bad, I also put on breathe rite strips.  If I could wear the strips 24/7, I would.  One surgeon said my turbinates collapse, and could be rectified by surgery.  I asked 3 others who had had the surgery if it was successful, 2 people told me that it worked for a while then gradually went back.  I've also found that dairy increases the congestion, and bizarre as it may sound, make my ears ring.

I find a prescription nasal spray, or on occasion, Afrin relieves my nasal congestion.  I also use a Total Face Mask (the FFM break down the bridge of my nose) which enables me to breathe through my mouth as well as my nose when  the congestion clears.  I agree the mask is the achilles heel of CPAP.  However I think those of us with severe symptoms and health consequences are more likely to make the commitment to work through all problems- including the mask and nasal congestion.

Doing research, such as figuring out dairy is the source of some problems is an example of commitment.

Hi Cesar,

               Do you have vasomotor or allergic rhinitis?

               Do you have a heated humidifier?

               Do you have a room ioniser/ filter?

               Is your machine filter replaced in a timly fashion?

               Are you using enough humidity? (Distilled water)??

                                                            Good Sleep,Chris



Chris H said:

Hi Cesar,

               Do you have vasomotor or allergic rhinitis?

               Do you have a heated humidifier?

               Do you have a room ioniser/ filter?

               Is your machine filter replaced in a timly fashion?

               Are you using enough humidity? (Distilled water)??

                                                            Good Sleep,Chris

hi chris thank you for your replay. i have chronic perennial rhinitis and i use allergy shots. when i was diagnosed of sleep apnea 4 mo ago. i thought this was no longer problem. but after i started using the cpap there were some nights that i need more pressure in the resmed to above 14 and i usually was doing fine with 12. i thought it was the mask getting old with the leakage but later i realized i had nasal congestion that likely oblige me to be a mouth breather. i use a full face mask. i started using nasal steroids with modest results. needless to mention the frustrations of trying to figure out what was going on. further research indicates this is a very common problem that apparently does not have easy solution. i am to the point of contemplating oral appliances or surgery. albeit my ahi is 30 and OA may not works as good. it is funny but my BMI is 25 and i always had athletic training. in any event thank you for your answer and concern.

Hi Cesar, 

Are you using a heated humidifier?

 Have you cranked up the humidity?

  Is the machine filter clean?

What are you cleaning your mask with??

Poorly treated apnea means you are going to have more stress hormones and that makes weight even more difficult to deal with.

How much caffein and how close to bed time are you eating?

Keep at it ,Good Sleep,Chris

hi chris

i use a resmed 9 with humidity at 3. i found out that higher condensates with in the mask. i also has dry mouth syndrome that makes more difficult to deal with mouth breathing.

i was cleaning the silicone cushion with alcohol but i found out it was not advisable now i just use soap and water.

i need to get new filters. no caffeine at night only during the day. i eat about 1 hr before bed time.

Hi Cesar,

   If you cover your hose it wont condense in it as soon so you can crank up the humidity.

   Simple soap with no perfumes and hot water is fine.

   Eating  1 hour before bed is not enough time for things to be settled . I know a busey schedual makes it difficult .  

 Good Sleep,Chris            

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