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Latest Activity

richard graham posted a status
"I feel like the humidifier is making me feel yucky and I'm waking up hacking and having to clear my throat a lot for a while."
Nov 3
richard graham posted a discussion

what's a good AHI?

I've been using and auto and it says my AHI HAS been between 4 and 6 and wondering what's a good range.
Nov 2
Andy posted a discussion

Resmed S10 AirSense - Anyone have one? Any feedback?

Hi All,I've just ordered a new Resmed S10 AirSense, and I was wondering if anyone here has used one?Any information or input would be appreciated!See More
Sep 29
Andy replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"Hi All, Well, I went to the sleep doc today, and he ordered a new S10 for me! I still don't know why my S8 is not tracking data anymore. Anyone have any ideas?"
Sep 29
Oscar Lemus updated their profile
Sep 25
liz4cps commented on liz4cps's group Prince William Co, VA support group
"Just found they have a Facebook for the REMedy event, 1st Class Sleep REMedy Wellness Health Fair."
Sep 25
liz4cps commented on liz4cps's group Prince William Co, VA support group
"Reminder: REMedy event is this Saturday, 10 am to 2pm.  Topics include: Nutrition and Weight Management with Sarah Kelly, Registered Nutritionist/Dietitian Oral Appliance Therapy for Sleep Apnea with Drs. Rena Vakay & Lara…"
Sep 25
Kay Day left a comment for Kay Day
"September 1, 2014 My apologies to Sleep Guide for not participating in a long time. In January 2012 I started classes at the local community college (my husband is an instructor there, and my tuition is refunded when my grades are above a C. My…"
Sep 1
Mary Z posted a discussion

Sleep apnea increases risk of osteoporosis

Sleep apnea/osteoporosis study finds “increased” health riskA recently published study may have found a connection between obstructive sleep apnea (OSA) and osteoporosis, marking yet another health…See More
Aug 23
Mary Z replied to ZolliStar's discussion Non-invasion approach that can relieve mild sleep apnea
"Hi ZolliStar, I've heard before that speech therapy, or singing lessons can help sleep apnea.  The problem at that time was there was no way to determine which exercises help.  Getting research done, rather than anecdotal would be…"
Jul 28
ZolliStar posted a discussion

Non-invasion approach that can relieve mild sleep apnea

Some people report that singing -- singing! -- really helps their sleep apnea. Dr. Stephen Park said that myology (which are exercises to strengthen muscles around the inside of one's mouth area) helps some. I think singing would be better.  If you read all the FAQs on this (click below), I think you'll agree that it makes sense for some. Maybe you. More
Jul 28
ZolliStar posted a discussion
Jul 20
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14
CPAP was a $2.3 billion business last year, is a household word for millions of Apneacs around the world, and deserves credit for saving the lives of countless souls.  But there Colin Sullivan was tonight, the inventor of CPAP scrounging around for an available seat and eating from the same walk-up buffet of fried chicken and jambalaya as the rest of us at a routine sub-committee meeting of the American Thoracic Society.  I wouldn't have noticed him otherwise, but my dinner companion pointed him out and I made my way over to introduce myself and thank him on behalf of myself and the entire CPAP patient community. "It's really an incredible device when you use it properly," I said.  

"Yes, it really is, isn't it?" Dr. Sullivan responded, graciously ducking out of taking credit for his invention, instead seeming to marvel with me over it as if it were something that had always had a life of its own.  Then I asked if it were alright to get a picture with him, which he happily agreed to.  I expected him to be okay with that.  What I did not expect was when he pulled out his own camera and asked if he could get a picture taken of the two of us with his camera.  It then occurred to me that as star-struck as I was with him, having introduced myself as the founder of a popular Sleep Apnea forum for patients, he had a little bit of the same regard for me.  For Dr. Sullivan, it is and always has been all about the patient.

In 1979, the only treatment for Sleep Apnea was a hole in the neck, which had quite a chilling effect on the number of people who self-identified as Sleep Apneacs. Dr. Sullivan tells the story of how since there were so few patients, he had to use himself, his lab partners and their wives as guinea pigs for his crazy new idea to use positive airway pressure to splint open the airway.  Once he had demonstrated that CPAP worked, more and more people stepped forward and advocated for themselves to get the machine.  It was the patients then, just as it is the patients now, he said, who were their own advocates for getting their doctors to prescribe CPAP, and for improvements to be made to CPAP to make it more comfortable to use.  He doesn't seem to give a hoot about medical protocol, procedure or propriety unless it is in the service of patients.  

I saw Dr. Sullivan's shoes.  They look more like something picked up off the rack at Sears than Ferragamos.  You would expect the man responsible for saving countless lives and bringing about a multi-billion dollar industry to be extravagantly wealthy.  He's not. The scuttlebutt at the dinner was that the folks who made millions commercializing Dr. Sullivan's invention didn't really share the wealth.  Dr. Sullivan isn't bitter, though.  Knowing that patients like me are living better lives than we otherwise would but for his existence seems to mean something to him.  And that might explain why he wanted that picture of himself with me at least as much as I did.

Colin Sullivan, inventor of CPAP and Mike Goldman, founder of Sleep Apnea Support Forum

Colin Sullivan gave a slide presentation at the dinner I mention above.  I took many pictures, many of them of never-before seen materials from the invention of CPAP

Tags: colin, cpap, inventor, sullivan

Views: 1274

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Replies to This Discussion

Nice article. He seems like a very interesting man.
Awesome, Mike. I'm delighted that you could thank him on our behalf.
What a wonderful, humble man. I work with doctors, and they seldom are that humble. I, too, am a CPAP user. I was fortunate enough though to have an excellent physician that suspected the problem and ordered the test. I LOVE my CPAP, and don't even lie down for a nap without it being in use.
Thank you so much for sharing your humble insight into this wonderful man and his genuine concern for revealing not only the truth about an invisible death but creating the CPAP itself to overcome this unneccessary early death of so many. I have been on CPAP for 5 years and I am forever thankful and so blessed to have known this story. Dr Sullivan one of the truly good guys in this world.
Thanks, Mike. I only wish CPAP had provided for a comfortable retirement for the good doctor.
Wonderful man.I wish he could invent a mask that would fit my particular compromised anatomy. A custom made mask that would save a patient with a missing jaw bone from having a tracheostomy to breathe during sleep. I do well with cpap/bipap but not with the masks that are available.I have a closet full of unusable head gear and masks because I need a mask or headgear that does not depend on support from the lower jaw. It would save my life.
I have the same problem & I have found 2 masks that I can use. Puritan has one that goes over the head that fits very well. The other one is on this website . This is an Oral unit & I love it. Nothing touches your face except the nasal pillows against the nostrils.
I can not thank youenough for this post, Patricia, I will definately look into your reccomendations. At this point I am so desperate I will try anything.You may very well have saved my life.

Patricia Ann Shuff said:
I have the same problem & I have found 2 masks that I can use. Puritan has one that goes over the head that fits very well. The other one is on this website . This is an Oral unit & I love it. Nothing touches your face except the nasal pillows against the nostrils.
A picture of 2 heros in my book.
Absolutely fascinating, Mike!!! THANK YOU. And, jnk, THANKS for the link to that ASAA article too. Whatta guy that Dr Sullivan. AND, frankly, I'm hoping that Scott Reed DOES post his early information as well!!! It obviously took many from various walks of research and medicine before it all came together to the PAPs we have today. I'd be willing to bet that a meeting and conversation between Scott and Dr Sullivan would REALLY be fascinating discussing those early days!!!
Cool, thanks Mike and thanks to you Dr. Sullivan for giving us all hope and many help.

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