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Latest Activity

ZolliStar replied to Dan Lyons's discussion CPAP & Dry Mouth
"Dan, Do you use a chin strap?  If you're a mouth breather, you may need a chin strap so that your mouth stays closed. It's important to keep it closed throughout the night for a lot of reasons -- mouth, dental, etc., etc. I've…"
Nov 24
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Wed 9  9 mg Thursday 10 missed  Friday 11 9mg have insomnia  going skip rest until insomnia goes away Just did maths had my five days"
Nov 11
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day after tomorrow I mean trump day wed 9 9mg "
Nov 9
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day two Monday 7 Nov 9mg very relaxed Day three Tuesday 8 Nov 9mg sniffles appears to have stopped  must reduce dose"
Nov 8
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Start treatment again  Nov 6 @ 2100 first day "
Nov 6
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day 5 not quite there must quit treetment for non and have at least a five day break But even so my health has improved "
Nov 1
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
" "
Nov 1
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day three not so good with osa  DAY four better but still not quite there "
Oct 31
99 replied to 99's discussion Five Day Cure
"Day one immediate improvement to OSA but had insomnia and slight constapation Day two flatulence greatly reduced muscle tighten "
Oct 29
99 posted a discussion

Five Day Cure

I believe I have found a cure that only take five days which I am trialing now It has many benificial side effects as well by reducing snoring to name onePM ME as I do not want mainstream media to find out and have it banned as I fear that is how it will goWill try again after a little breakIn addition will increase omega 3And thirdly a chiropractic to realign atlas bone in spine is just a passing thought See More
Oct 28
liz4cps commented on liz4cps's group Prince William Co, VA support group
"BluePoint Medical* holding their next Remedy event on June 4 with Terry Cralle, RN on "Sleep in the Mordern Family".  They will also be checking CPAP machines and providing breakfast. Click on link above for more…"
May 7
Dan Lyons posted a discussion

CPAP & Dry Mouth

In recent months, I have developed extreme dry mouth as a result of the CPAP.  I am a mouth breather when using CPAP.Recently, I saw an advertisement for the symptoms of dry mouth, but as usual, when I need the information to have a discussion with both my primary care  physician and my dentist I haven't seen the ad. Has anyone else seen the ad and can anyone remember the info in the ad?Thanks in advance,DanSee More
Mar 30
richard graham posted a status
"My deductible is double what a machine is online but I can't get the machine set up. Any ideas?"
Mar 10
BeeAsleep posted a status
"Hi all. I am just checking in and saying hi after being gone for a long time. I am doing GREAT! Just got a new machine and mask. Feel like I"
Jan 23
BeeAsleep updated their profile
Jan 23
99 replied to Fred's discussion CPAP - cure worse than the disease
"Do not turn light on as this hinder you from falling asleep or choose red light instead which do not afect your sleep"
Oct 27, 2015
99 left a comment for Joan Williams Rice
"Hi Joan visiting pelham and I have osa"
Oct 27, 2015
99 left a comment for martha crabtree
"Hi maths visiting pelham "
Oct 27, 2015
99 left a comment for Rhonda Harrison
"Hi Rhondda I am visiting pelham and have osa "
Oct 27, 2015
99 posted a discussion

Leaky gut

Do you have a leaky gutHow would you knowA telltale sign for leaky gut is Athletes footI wish to ask do you have or suffer from itThe reason I ask is maybe this is a common denominatorJust text yes or text noAnd if you are the first to text also keep a tallyExample38 yes 0 noYour input would alter the tally39 yes 0 noSo now I will input first1 yes. 0 noSee More
Sep 26, 2015
CPAP was a $2.3 billion business last year, is a household word for millions of Apneacs around the world, and deserves credit for saving the lives of countless souls.  But there Colin Sullivan was tonight, the inventor of CPAP scrounging around for an available seat and eating from the same walk-up buffet of fried chicken and jambalaya as the rest of us at a routine sub-committee meeting of the American Thoracic Society.  I wouldn't have noticed him otherwise, but my dinner companion pointed him out and I made my way over to introduce myself and thank him on behalf of myself and the entire CPAP patient community. "It's really an incredible device when you use it properly," I said.  

"Yes, it really is, isn't it?" Dr. Sullivan responded, graciously ducking out of taking credit for his invention, instead seeming to marvel with me over it as if it were something that had always had a life of its own.  Then I asked if it were alright to get a picture with him, which he happily agreed to.  I expected him to be okay with that.  What I did not expect was when he pulled out his own camera and asked if he could get a picture taken of the two of us with his camera.  It then occurred to me that as star-struck as I was with him, having introduced myself as the founder of a popular Sleep Apnea forum for patients, he had a little bit of the same regard for me.  For Dr. Sullivan, it is and always has been all about the patient.

In 1979, the only treatment for Sleep Apnea was a hole in the neck, which had quite a chilling effect on the number of people who self-identified as Sleep Apneacs. Dr. Sullivan tells the story of how since there were so few patients, he had to use himself, his lab partners and their wives as guinea pigs for his crazy new idea to use positive airway pressure to splint open the airway.  Once he had demonstrated that CPAP worked, more and more people stepped forward and advocated for themselves to get the machine.  It was the patients then, just as it is the patients now, he said, who were their own advocates for getting their doctors to prescribe CPAP, and for improvements to be made to CPAP to make it more comfortable to use.  He doesn't seem to give a hoot about medical protocol, procedure or propriety unless it is in the service of patients.  

I saw Dr. Sullivan's shoes.  They look more like something picked up off the rack at Sears than Ferragamos.  You would expect the man responsible for saving countless lives and bringing about a multi-billion dollar industry to be extravagantly wealthy.  He's not. The scuttlebutt at the dinner was that the folks who made millions commercializing Dr. Sullivan's invention didn't really share the wealth.  Dr. Sullivan isn't bitter, though.  Knowing that patients like me are living better lives than we otherwise would but for his existence seems to mean something to him.  And that might explain why he wanted that picture of himself with me at least as much as I did.

Colin Sullivan, inventor of CPAP and Mike Goldman, founder of SleepGuide.com Sleep Apnea Support Forum


Colin Sullivan gave a slide presentation at the dinner I mention above.  I took many pictures, many of them of never-before seen materials from the invention of CPAP






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Nice article. He seems like a very interesting man.
Awesome, Mike. I'm delighted that you could thank him on our behalf.
What a wonderful, humble man. I work with doctors, and they seldom are that humble. I, too, am a CPAP user. I was fortunate enough though to have an excellent physician that suspected the problem and ordered the test. I LOVE my CPAP, and don't even lie down for a nap without it being in use.
Thank you so much for sharing your humble insight into this wonderful man and his genuine concern for revealing not only the truth about an invisible death but creating the CPAP itself to overcome this unneccessary early death of so many. I have been on CPAP for 5 years and I am forever thankful and so blessed to have known this story. Dr Sullivan one of the truly good guys in this world.
Thanks, Mike. I only wish CPAP had provided for a comfortable retirement for the good doctor.
Wonderful man.I wish he could invent a mask that would fit my particular compromised anatomy. A custom made mask that would save a patient with a missing jaw bone from having a tracheostomy to breathe during sleep. I do well with cpap/bipap but not with the masks that are available.I have a closet full of unusable head gear and masks because I need a mask or headgear that does not depend on support from the lower jaw. It would save my life.
I have the same problem & I have found 2 masks that I can use. Puritan has one that goes over the head that fits very well. The other one is on this website www.cpappro.com . This is an Oral unit & I love it. Nothing touches your face except the nasal pillows against the nostrils.
I can not thank youenough for this post, Patricia, I will definately look into your reccomendations. At this point I am so desperate I will try anything.You may very well have saved my life.

Patricia Ann Shuff said:
I have the same problem & I have found 2 masks that I can use. Puritan has one that goes over the head that fits very well. The other one is on this website www.cpappro.com . This is an Oral unit & I love it. Nothing touches your face except the nasal pillows against the nostrils.
A picture of 2 heros in my book.
Absolutely fascinating, Mike!!! THANK YOU. And, jnk, THANKS for the link to that ASAA article too. Whatta guy that Dr Sullivan. AND, frankly, I'm hoping that Scott Reed DOES post his early information as well!!! It obviously took many from various walks of research and medicine before it all came together to the PAPs we have today. I'd be willing to bet that a meeting and conversation between Scott and Dr Sullivan would REALLY be fascinating discussing those early days!!!
Cool, thanks Mike and thanks to you Dr. Sullivan for giving us all hope and many help.

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