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ZolliStar posted a discussion

New mouth device on the market

I've been hearing advertising for this product over the past few days.  It's sold as something to help snoring, but as I look at the information it seems to me that it would work just as well as my mandibular advancement device (MAD).In other words, this could help some of us with sleep apnea.Read about it here.Anybody have any thoughts about this?  See More
99 replied to Mary Z's discussion AHI finally under five.
"Hi Richard I mainly use an empty humidifier as it reduces noise"
Feb 16
richard graham left a comment for richard graham
"When I can afford it I'd like to get New machine with heated tube"
Feb 10
richard graham replied to Mary Z's discussion AHI finally under five.
"I would like to see this forum active again as well. I will be more aware of what's going on"
Feb 10
ZolliStar posted a discussion

If you have trouble falling asleep....

I thought that when I got my sleep apnea diagnosis, that -- at last! -- all my sleep problems had come to an end.Ha!I have trouble falling asleep. Indeed, I rarely feel sleepy at night although I do feel tired. I even cut back on computer at night, etc., etc. (and installed f.lux on my computer) but I still had trouble. Now I'm doing something different: wearing special glasses (Uvex S1933X Skyper Safety Eyewear glasses). They block out the blue -- and they're making a difference! First I tried…See More
Feb 1
99 replied to 99's discussion colloidal silver
"i have purchased some silver the make my own colloidal silver"
Dec 21, 2014
99 replied to 99's discussion colloidal silver
"just add to the distilled water it is antimicrobial eg cleans your machine and is beneficial for keeping you healthy  from bugs germs viruses you get the picture and when you need to clean the humidifier out, put water on your plants the silver…"
Dec 21, 2014
Mary Z left a comment for richard graham
"If the heated tube works with your machine I would try that.  They also make covers for your tubing which may help some.  I think the heated tube may be your answer.  Keep us posted."
Dec 21, 2014
Mary Z left a comment for richard graham
"Richard, some folks just use the humidifier in a Passover mode.  They just don't turn it on, but let the air pick up moisture without heat."
Dec 21, 2014
Mary Z replied to 99's discussion colloidal silver
"99, where have you been?  Do you add the colloidal silver to your humidifier?"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"I Andy, I realize I'm months behind your post.  I have no idea why your S8 would stoop collecting data.  I'm glad to hear  you're having such improvement with your apnea.  I have made great strides since I changed…"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S10 AirSense - Anyone have one? Any feedback?
"Andy, just found your post.  I don't know anything about this new machine.  How are you liking your new ResMed?"
Dec 21, 2014
Mary Z left a comment for Kay Day
"Kay, I haven't been around myself and miss the old, active forum."
Dec 21, 2014
Mary Z left a comment for richard graham
"Hi Richard,  I don't bother with a humidifier.  Someone on the forum suggested not using it and I'm a lot less congested without it.  A good AHI is under 5.  I use the Wisp and have been since it came out.  I think…"
Dec 21, 2014
hifay replied to Mary Z's discussion Sleep apnea increases risk of osteoporosis
"Always something. Thanks for the information."
Dec 21, 2014
99 posted a discussion

colloidal silver

a humidifier can be used with colloidal silverthis can keep the humidifier clean for day maybe weeks or longer without the need to clean the humidifiersilver colloidal is antimicrobial and you could just top up your humidifier without cleaning and at the same time treat your bodyor you just put silver on it own into the humidifierSee More
Dec 20, 2014
richard graham posted a status
"I feel like the humidifier is making me feel yucky and I'm waking up hacking and having to clear my throat a lot for a while."
Nov 3, 2014
richard graham posted a discussion

what's a good AHI?

I've been using and auto and it says my AHI HAS been between 4 and 6 and wondering what's a good range.
Nov 2, 2014
Andy posted a discussion

Resmed S10 AirSense - Anyone have one? Any feedback?

Hi All,I've just ordered a new Resmed S10 AirSense, and I was wondering if anyone here has used one?Any information or input would be appreciated!See More
Sep 29, 2014
Andy replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"Hi All, Well, I went to the sleep doc today, and he ordered a new S10 for me! I still don't know why my S8 is not tracking data anymore. Anyone have any ideas?"
Sep 29, 2014
CPAP was a $2.3 billion business last year, is a household word for millions of Apneacs around the world, and deserves credit for saving the lives of countless souls.  But there Colin Sullivan was tonight, the inventor of CPAP scrounging around for an available seat and eating from the same walk-up buffet of fried chicken and jambalaya as the rest of us at a routine sub-committee meeting of the American Thoracic Society.  I wouldn't have noticed him otherwise, but my dinner companion pointed him out and I made my way over to introduce myself and thank him on behalf of myself and the entire CPAP patient community. "It's really an incredible device when you use it properly," I said.  

"Yes, it really is, isn't it?" Dr. Sullivan responded, graciously ducking out of taking credit for his invention, instead seeming to marvel with me over it as if it were something that had always had a life of its own.  Then I asked if it were alright to get a picture with him, which he happily agreed to.  I expected him to be okay with that.  What I did not expect was when he pulled out his own camera and asked if he could get a picture taken of the two of us with his camera.  It then occurred to me that as star-struck as I was with him, having introduced myself as the founder of a popular Sleep Apnea forum for patients, he had a little bit of the same regard for me.  For Dr. Sullivan, it is and always has been all about the patient.

In 1979, the only treatment for Sleep Apnea was a hole in the neck, which had quite a chilling effect on the number of people who self-identified as Sleep Apneacs. Dr. Sullivan tells the story of how since there were so few patients, he had to use himself, his lab partners and their wives as guinea pigs for his crazy new idea to use positive airway pressure to splint open the airway.  Once he had demonstrated that CPAP worked, more and more people stepped forward and advocated for themselves to get the machine.  It was the patients then, just as it is the patients now, he said, who were their own advocates for getting their doctors to prescribe CPAP, and for improvements to be made to CPAP to make it more comfortable to use.  He doesn't seem to give a hoot about medical protocol, procedure or propriety unless it is in the service of patients.  

I saw Dr. Sullivan's shoes.  They look more like something picked up off the rack at Sears than Ferragamos.  You would expect the man responsible for saving countless lives and bringing about a multi-billion dollar industry to be extravagantly wealthy.  He's not. The scuttlebutt at the dinner was that the folks who made millions commercializing Dr. Sullivan's invention didn't really share the wealth.  Dr. Sullivan isn't bitter, though.  Knowing that patients like me are living better lives than we otherwise would but for his existence seems to mean something to him.  And that might explain why he wanted that picture of himself with me at least as much as I did.

Colin Sullivan, inventor of CPAP and Mike Goldman, founder of Sleep Apnea Support Forum

Colin Sullivan gave a slide presentation at the dinner I mention above.  I took many pictures, many of them of never-before seen materials from the invention of CPAP

Views: 1344

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Nice article. He seems like a very interesting man.
Awesome, Mike. I'm delighted that you could thank him on our behalf.
What a wonderful, humble man. I work with doctors, and they seldom are that humble. I, too, am a CPAP user. I was fortunate enough though to have an excellent physician that suspected the problem and ordered the test. I LOVE my CPAP, and don't even lie down for a nap without it being in use.
Thank you so much for sharing your humble insight into this wonderful man and his genuine concern for revealing not only the truth about an invisible death but creating the CPAP itself to overcome this unneccessary early death of so many. I have been on CPAP for 5 years and I am forever thankful and so blessed to have known this story. Dr Sullivan one of the truly good guys in this world.
Thanks, Mike. I only wish CPAP had provided for a comfortable retirement for the good doctor.
Wonderful man.I wish he could invent a mask that would fit my particular compromised anatomy. A custom made mask that would save a patient with a missing jaw bone from having a tracheostomy to breathe during sleep. I do well with cpap/bipap but not with the masks that are available.I have a closet full of unusable head gear and masks because I need a mask or headgear that does not depend on support from the lower jaw. It would save my life.
I have the same problem & I have found 2 masks that I can use. Puritan has one that goes over the head that fits very well. The other one is on this website . This is an Oral unit & I love it. Nothing touches your face except the nasal pillows against the nostrils.
I can not thank youenough for this post, Patricia, I will definately look into your reccomendations. At this point I am so desperate I will try anything.You may very well have saved my life.

Patricia Ann Shuff said:
I have the same problem & I have found 2 masks that I can use. Puritan has one that goes over the head that fits very well. The other one is on this website . This is an Oral unit & I love it. Nothing touches your face except the nasal pillows against the nostrils.
A picture of 2 heros in my book.
Absolutely fascinating, Mike!!! THANK YOU. And, jnk, THANKS for the link to that ASAA article too. Whatta guy that Dr Sullivan. AND, frankly, I'm hoping that Scott Reed DOES post his early information as well!!! It obviously took many from various walks of research and medicine before it all came together to the PAPs we have today. I'd be willing to bet that a meeting and conversation between Scott and Dr Sullivan would REALLY be fascinating discussing those early days!!!
Cool, thanks Mike and thanks to you Dr. Sullivan for giving us all hope and many help.

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