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Mary Z posted a discussion

Sleep apnea increases risk of osteoporosis

Sleep apnea/osteoporosis study finds “increased” health riskA recently published study may have found a connection between obstructive sleep apnea (OSA) and osteoporosis, marking yet another health…See More
Aug 23
Mary Z replied to ZolliStar's discussion Non-invasion approach that can relieve mild sleep apnea
"Hi ZolliStar, I've heard before that speech therapy, or singing lessons can help sleep apnea.  The problem at that time was there was no way to determine which exercises help.  Getting research done, rather than anecdotal would be…"
Jul 28
ZolliStar posted a discussion

Non-invasion approach that can relieve mild sleep apnea

Some people report that singing -- singing! -- really helps their sleep apnea. Dr. Stephen Park said that myology (which are exercises to strengthen muscles around the inside of one's mouth area) helps some. I think singing would be better.  If you read all the FAQs on this (click below), I think you'll agree that it makes sense for some. Maybe you.http://www.singingforsnorers.com/index.htmSee More
Jul 28
ZolliStar posted a discussion
Jul 20
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14
richard graham replied to richard graham's discussion mouth breathing
"I still use humidity but less of it. It seems to be working OK.."
Jun 14
ZolliStar replied to richard graham's discussion mouth breathing
"I rarely use the humidifier. I think it's less necessary during the summer when there is humidity.   I also switch between my mouth device and the APAP.  I like each for different reasons. Not sure with which I sleep better, though.…"
May 21
Mary Z replied to richard graham's discussion sick again
"I've been doing well.  I think you were going to try the cpap without humidity- did that help at all?  I haven't had a cold for a couple of years."
May 14
Ginny Edmundson replied to richard graham's discussion sick again
"CPAP seems to cause stuffiness in many of us.  ANother reason I hate it so much!Do you rinse your nose with saline once a day…maybe before you go to bed for the night? "
May 5
richard graham replied to richard graham's discussion sick again
"I do wake up stuffed up most days"
May 5
richard graham replied to richard graham's discussion sick again
"I do have non allergic rhinitis. Now I'm thinking that's probably it because I only feel that way for a day or 2. Thank you"
May 4
Ginny Edmundson replied to richard graham's discussion sick again
"I have been lucky.  Not one cold past three years. Could some of your problem be allergies?"
May 4
richard graham posted a discussion

sick again

It seems like I am sick with colds more often when I'm on the CPAP. Anybody experience that.
Apr 30

Help!? Open Sore in Nostril from Nose Pillows (Comfortlite2 / Direct Seal) - New Cpap user

Hi everybody, new here. I was just diagnosed with sleep apnea late last year and have been using a cpap since then. It's been a love/hate relationship but just as I'd found the "right" mask (Respironics Comfortlite 2 with the Direct Seal cushion) and after having struggled with adjustments until it felt FINALLY right, I suddenly developed a sore on the inside edge of my left nostril. It's so bad now after waking up bleeding for a few mornings that I'm going to have to sleep (sadly) without my machine to let it heal. I'm a side sleeper and I suspect that maybe from sleeping on my left side that the pressure of my pillow pushes the cushion up, causing irritation.I really don't want to try yet another mask because overall this one is really great for the way I sleep.

Can anybody recommend anything I should do? I don't think the mask is too tight (I've gone through that before). Moleskin? If so, how does it work with nasal pillows? Any other recommendations??? I'm at my wit's end and really hate the thought of sleeping w/o the mask.*

*note: this should give some hope to brand-new users, I went through MONTHS of struggle and heartache just getting adjusted to my diagnosis and the life sentence of sleeping with a machine. Now I can't imagine how I lived without it for my 30+ years.

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I had good luck with Ayr Saline Nasal Gel. Whatever you opt to try to soothe and heal that sore NEVER use a petroleum base product in your nose! Ayr Saline Nasal Gel IS safe to use and for me and many others very effective.

Early on I used the original ComfortLite 2. It was the first mask I had any success with. But after about 3 months I opted to continue trying other masks as the headgear just wasn't all that stable and it was thinning and breaking my hair and my scalp was uncomfortable from the constant shifting of the pressure direction on the hair follicles.
Thanks Judy! I will try the Ayr gel...will that work if the wound is along the edge of my nostril and not deep inside? I appreciate the help!!
It helped me. Both inside the nostril and just below nostrils.
Thanks Judy!!!!!!!!!!!!!!
You're welcome. I hope it works as fast and as well for you as it did for me.

You might also want to consider getting either a really soft down pillow that you can punch a hollow into for your mask when you lay on your side or something like the PAPillow where you sleep w/your face on the edge of the pillow so that mask doesn't touch the pillow at all.
I was wondering about the pillow situation...I'll have to look around online a bit. It is such a comfort to get help on here. My sleep doctor and his staff are AWFUL and I feel very on my own in some ways with this whole ordeal. Thank you.
You are NOT alone, not in having an awful sleep doctor and staff, but also not alone in dealing w/and getting acclimated to CPAP. WE are here for you!
Thank you...I can't say how many times I've been moved to TEARS just since having discovered this site yesterday. Now hopefully I can just deal with this nose sore...I feel AWFUL today after having not slept with my cpap last night.

Judy said:
You are NOT alone, not in having an awful sleep doctor and staff, but also not alone in dealing w/and getting acclimated to CPAP. WE are here for you!
I hope the Ayr works for you on this sore. And I'm glad you found this community! I too use nasal pillow masks (the Swift line of them, currently the Swift LT) and just wanted to make sure of one thing.

Don't laugh, cause someone on one of these forums actually was doing this, so I know it can happen...

Be sure that the nasal pillows are just resting outside your nose, not pushed up inside them.

Funny to those of us who never thought to stick them up in there, but it was horrible for the poor guy/girl who'd been so frustrated and in pain from their nasal mask, not knowing the right way to wear it.

Let us know if the Ayr helps out. I might try that myself as occasionally I'll get a little sore spot, especially when I have a cold and my poor nose is already raw from blowing. I've been bad though and just put my lip balm on my nose. I'm sure it's got petroleum in it though. Oops!
Ercilia,

It is a really common problem, especially when starting out on pillows and you've received some great advice. The only thing I'll add is to make sure you clean your pillows every day and keep the oils on your face down with a light wash before bed. You're probably already doing that, but I find if I let it go for a few days, problems like yours recur. Also, Ayr gel is great but can be pretty expensive. KY has the same effect. Just need something to prevent the chafing. Just a little dab will do ya!
Good luck.
Dave
Hey, that's good advice about the KY Dave. Thanks! It would be cheaper AND easier to find!
Thanks everybody!!!! Great suggestions. I'm really good about cleaning the pillows and think I've got the fitting right but the pillow, Ayr and KY suggestions I'll definitely try!

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