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Brendan Duffy posted a status
"How did you slhttp://blog.aastweb.org/winners-and-losers-food-for-thought-sleep-and-athletic-success?utm_campaign=subscribers&utm_source=hs_"
Jul 9
Pat Kniel updated their profile
Jul 7
ZolliStar replied to Fred's discussion CPAP - cure worse than the disease
"I'm wondering: what prompted you to consider whether you have sleep apnea in the first place? Also, waking throughout the night isn't uncommon especially as we (*sigh*) age.  I seem to every 90 minutes or so. This pattern probably…"
Jun 27
ZolliStar replied to ZolliStar's discussion New mouth device on the market
"You can try this website:  http://zyppah.com/ I have a MAD (mandibular advancement device). Dr. Steven Park evaluated my mouth and throat (not everyone can use a MAD, it turns out) and pronounced me a candidate for it. The truth?  I…"
Jun 27
Mary Z replied to ZolliStar's discussion New mouth device on the market
"The link didn't work so me so I couldn't see the product.  I do have experience with a supposedly reliable boil and bite device.  I should know by now I have a small mouth and nothing regular size fits.  I don't think…"
Jun 27
richard graham replied to ZolliStar's discussion New mouth device on the market
"If I thought something could work other than this lousy cpap that would be awesome"
May 22
richard graham posted a status
"I moved and have been sick a lot and can't use cpap because of cough and I'm depressed a lot"
Apr 26
Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13
Fred updated their profile
Apr 13
ZolliStar posted a discussion

New mouth device on the market

I've been hearing advertising for this product over the past few days.  It's sold as something to help snoring, but as I look at the information it seems to me that it would work just as well as my mandibular advancement device (MAD).In other words, this could help some of us with sleep apnea.Read about it here.Anybody have any thoughts about this?  See More
Mar 31
99 replied to Mary Z's discussion AHI finally under five.
"Hi Richard I mainly use an empty humidifier as it reduces noise"
Feb 16
richard graham left a comment for richard graham
"When I can afford it I'd like to get New machine with heated tube"
Feb 10
richard graham replied to Mary Z's discussion AHI finally under five.
"I would like to see this forum active again as well. I will be more aware of what's going on"
Feb 10
ZolliStar posted a discussion

If you have trouble falling asleep....

I thought that when I got my sleep apnea diagnosis, that -- at last! -- all my sleep problems had come to an end.Ha!I have trouble falling asleep. Indeed, I rarely feel sleepy at night although I do feel tired. I even cut back on computer at night, etc., etc. (and installed f.lux on my computer) but I still had trouble. Now I'm doing something different: wearing special glasses (Uvex S1933X Skyper Safety Eyewear glasses). They block out the blue -- and they're making a difference! First I tried…See More
Feb 1
99 replied to 99's discussion colloidal silver
"i have purchased some silver the make my own colloidal silver"
Dec 21, 2014
99 replied to 99's discussion colloidal silver
"just add to the distilled water it is antimicrobial eg cleans your machine and is beneficial for keeping you healthy  from bugs germs viruses you get the picture and when you need to clean the humidifier out, put water on your plants the silver…"
Dec 21, 2014
Mary Z left a comment for richard graham
"If the heated tube works with your machine I would try that.  They also make covers for your tubing which may help some.  I think the heated tube may be your answer.  Keep us posted."
Dec 21, 2014
Mary Z left a comment for richard graham
"Richard, some folks just use the humidifier in a Passover mode.  They just don't turn it on, but let the air pick up moisture without heat."
Dec 21, 2014
Mary Z replied to 99's discussion colloidal silver
"99, where have you been?  Do you add the colloidal silver to your humidifier?"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"I Andy, I realize I'm months behind your post.  I have no idea why your S8 would stoop collecting data.  I'm glad to hear  you're having such improvement with your apnea.  I have made great strides since I changed…"
Dec 21, 2014

Help!? Open Sore in Nostril from Nose Pillows (Comfortlite2 / Direct Seal) - New Cpap user

Hi everybody, new here. I was just diagnosed with sleep apnea late last year and have been using a cpap since then. It's been a love/hate relationship but just as I'd found the "right" mask (Respironics Comfortlite 2 with the Direct Seal cushion) and after having struggled with adjustments until it felt FINALLY right, I suddenly developed a sore on the inside edge of my left nostril. It's so bad now after waking up bleeding for a few mornings that I'm going to have to sleep (sadly) without my machine to let it heal. I'm a side sleeper and I suspect that maybe from sleeping on my left side that the pressure of my pillow pushes the cushion up, causing irritation.I really don't want to try yet another mask because overall this one is really great for the way I sleep.

Can anybody recommend anything I should do? I don't think the mask is too tight (I've gone through that before). Moleskin? If so, how does it work with nasal pillows? Any other recommendations??? I'm at my wit's end and really hate the thought of sleeping w/o the mask.*

*note: this should give some hope to brand-new users, I went through MONTHS of struggle and heartache just getting adjusted to my diagnosis and the life sentence of sleeping with a machine. Now I can't imagine how I lived without it for my 30+ years.

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I had good luck with Ayr Saline Nasal Gel. Whatever you opt to try to soothe and heal that sore NEVER use a petroleum base product in your nose! Ayr Saline Nasal Gel IS safe to use and for me and many others very effective.

Early on I used the original ComfortLite 2. It was the first mask I had any success with. But after about 3 months I opted to continue trying other masks as the headgear just wasn't all that stable and it was thinning and breaking my hair and my scalp was uncomfortable from the constant shifting of the pressure direction on the hair follicles.
Thanks Judy! I will try the Ayr gel...will that work if the wound is along the edge of my nostril and not deep inside? I appreciate the help!!
It helped me. Both inside the nostril and just below nostrils.
Thanks Judy!!!!!!!!!!!!!!
You're welcome. I hope it works as fast and as well for you as it did for me.

You might also want to consider getting either a really soft down pillow that you can punch a hollow into for your mask when you lay on your side or something like the PAPillow where you sleep w/your face on the edge of the pillow so that mask doesn't touch the pillow at all.
I was wondering about the pillow situation...I'll have to look around online a bit. It is such a comfort to get help on here. My sleep doctor and his staff are AWFUL and I feel very on my own in some ways with this whole ordeal. Thank you.
You are NOT alone, not in having an awful sleep doctor and staff, but also not alone in dealing w/and getting acclimated to CPAP. WE are here for you!
Thank you...I can't say how many times I've been moved to TEARS just since having discovered this site yesterday. Now hopefully I can just deal with this nose sore...I feel AWFUL today after having not slept with my cpap last night.

Judy said:
You are NOT alone, not in having an awful sleep doctor and staff, but also not alone in dealing w/and getting acclimated to CPAP. WE are here for you!
I hope the Ayr works for you on this sore. And I'm glad you found this community! I too use nasal pillow masks (the Swift line of them, currently the Swift LT) and just wanted to make sure of one thing.

Don't laugh, cause someone on one of these forums actually was doing this, so I know it can happen...

Be sure that the nasal pillows are just resting outside your nose, not pushed up inside them.

Funny to those of us who never thought to stick them up in there, but it was horrible for the poor guy/girl who'd been so frustrated and in pain from their nasal mask, not knowing the right way to wear it.

Let us know if the Ayr helps out. I might try that myself as occasionally I'll get a little sore spot, especially when I have a cold and my poor nose is already raw from blowing. I've been bad though and just put my lip balm on my nose. I'm sure it's got petroleum in it though. Oops!
Ercilia,

It is a really common problem, especially when starting out on pillows and you've received some great advice. The only thing I'll add is to make sure you clean your pillows every day and keep the oils on your face down with a light wash before bed. You're probably already doing that, but I find if I let it go for a few days, problems like yours recur. Also, Ayr gel is great but can be pretty expensive. KY has the same effect. Just need something to prevent the chafing. Just a little dab will do ya!
Good luck.
Dave
Hey, that's good advice about the KY Dave. Thanks! It would be cheaper AND easier to find!
Thanks everybody!!!! Great suggestions. I'm really good about cleaning the pillows and think I've got the fitting right but the pillow, Ayr and KY suggestions I'll definitely try!

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