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liz4cps commented on liz4cps's group Prince William Co, VA support group
"BluePoint Medical* holding their next Remedy event on June 4 with Terry Cralle, RN on "Sleep in the Mordern Family".  They will also be checking CPAP machines and providing breakfast. Click on link above for more…"
May 7
Dan Lyons posted a discussion

CPAP & Dry Mouth

In recent months, I have developed extreme dry mouth as a result of the CPAP.  I am a mouth breather when using CPAP.Recently, I saw an advertisement for the symptoms of dry mouth, but as usual, when I need the information to have a discussion with both my primary care  physician and my dentist I haven't seen the ad. Has anyone else seen the ad and can anyone remember the info in the ad?Thanks in advance,DanSee More
Mar 30
richard graham posted a status
"My deductible is double what a machine is online but I can't get the machine set up. Any ideas?"
Mar 10
BeeAsleep posted a status
"Hi all. I am just checking in and saying hi after being gone for a long time. I am doing GREAT! Just got a new machine and mask. Feel like I"
Jan 23
BeeAsleep updated their profile
Jan 23
99 replied to Fred's discussion CPAP - cure worse than the disease
"Do not turn light on as this hinder you from falling asleep or choose red light instead which do not afect your sleep"
Oct 27, 2015
99 left a comment for Joan Williams Rice
"Hi Joan visiting pelham and I have osa"
Oct 27, 2015
99 left a comment for martha crabtree
"Hi maths visiting pelham "
Oct 27, 2015
99 left a comment for Rhonda Harrison
"Hi Rhondda I am visiting pelham and have osa "
Oct 27, 2015
99 posted a discussion

Leaky gut

Do you have a leaky gutHow would you knowA telltale sign for leaky gut is Athletes footI wish to ask do you have or suffer from itThe reason I ask is maybe this is a common denominatorJust text yes or text noAnd if you are the first to text also keep a tallyExample38 yes 0 noYour input would alter the tally39 yes 0 noSo now I will input first1 yes. 0 noSee More
Sep 26, 2015
richard graham posted a status
"For the first time in a while I got a whole night sleep with my machine but woke up beat and left side of my head feels weird, not sure if"
Sep 2, 2015
Brendan Duffy posted a status
"How did you slhttp://blog.aastweb.org/winners-and-losers-food-for-thought-sleep-and-athletic-success?utm_campaign=subscribers&utm_source=hs_"
Jul 9, 2015
Pat Kniel updated their profile
Jul 7, 2015
ZolliStar replied to Fred's discussion CPAP - cure worse than the disease
"I'm wondering: what prompted you to consider whether you have sleep apnea in the first place? Also, waking throughout the night isn't uncommon especially as we (*sigh*) age.  I seem to every 90 minutes or so. This pattern probably…"
Jun 27, 2015
ZolliStar replied to ZolliStar's discussion New mouth device on the market
"You can try this website:  http://zyppah.com/ I have a MAD (mandibular advancement device). Dr. Steven Park evaluated my mouth and throat (not everyone can use a MAD, it turns out) and pronounced me a candidate for it. The truth?  I…"
Jun 27, 2015
Mary Z replied to ZolliStar's discussion New mouth device on the market
"The link didn't work so me so I couldn't see the product.  I do have experience with a supposedly reliable boil and bite device.  I should know by now I have a small mouth and nothing regular size fits.  I don't think…"
Jun 27, 2015
richard graham replied to ZolliStar's discussion New mouth device on the market
"If I thought something could work other than this lousy cpap that would be awesome"
May 22, 2015
richard graham posted a status
"I moved and have been sick a lot and can't use cpap because of cough and I'm depressed a lot"
Apr 26, 2015
Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13, 2015
Fred updated their profile
Apr 13, 2015
It seems like the effects of low blood oxygen resulting from untreated apnea are not as fully appreciated as they ought to be. Even many medical professionals think of apnea as a "sleep" disorder. Not to diminish the effects of chronic sleep deprivation over months and years (apnea victims get zero clinical sleep), the effects of chronic blood oxygen deprivation can be much worse.

There is no stronger signal to the brain than low blood oxygen. That means, quite literally, that death is imminent and all hades breaks loose. The body shunts off oxygen from everywhere except the brain, the panic hormones start flying, and your sympathetic nervous system goes into a Code Red panic. You start breathing, oxygen is restored, and the cycle repeats itself dozens or hundreds of times a night.

All of this wreaks havoc on the body. The panic hormones cause high blood pressure (including stroke) and put extraordinary stress on the heart in a low oxygen environment (resuting in, yes, heart disease). Low nighttime blood oxygen interferes with normal blood glucose processing, resulting in the overproduction of insulin and, yes, insulin resistance (also known as Type II Diabetes). The lack of blood oxygen also interferes with nighttime digestion, resulting in GERD. And who knows what all of these risk factors mean in terms of triggering diseases like cancer (my grandfather, who unknowingly suffered from apnea his entire adult life, died from colon cancer but I can't help but wonder whether the apnea somehow triggered that?). And to top it all off, the physical damage in combination with chronic sleep deprivation results in a scale of depression that cannot be described except by those who have experienced it. And I haven't even talked about all of the death and carnage on the highways from apnea-related drowsy driving.

So long story short, this is a serious condition that has a lot more to it than just SLEEP. Figuring out your therapy is worth everything you will ever put into it.

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Amen.
Great post Sleepguy!!

You are so right about the long term risks and the doubly "whammy" since it deals with a lot more than just sleep!!
I agree that desaturations are a serious problem.

But there are some of us who have no desaturations and still have severe sleep apnea problems. A much overlooked problem is the elevated intracranial brain pressure arising from an apnea.

This is in some cases a more serious problem than desaturations. But there are almost no sleep doctors who focus on this problem.

This is not an either or issue. I think that many people have both problems.

Elevated intracranial pressure is particularly associated with Sleep Apnea and studies shows that 68% of people with Stokes have Sleep Apnea and elevated intracranial pressure.
Sleepyguy. Who are you I need to know more. I can't keep my Oyg. up very high. I got to go back to the Doctor Friday. I have an in larged heart. And other things going on. G
Henning, this is the very first time I've ever heard about intracranial pressure. What's the causal link to apnea? Low blood oxygen obviously impacts the brain as well. Even though it gets priority to available oxygen, levels are low and brain damage (I believe) is common. One of the doctors here on the forum (Dr Park) had an interesting article on his website about a possible connection between apnea and anzhymers as they both cause very similar miscroscopic brain damage.

Jerry, it sounds like you're doing the right thing. Whatever it takes to get your therapy working. It's no wonder that apnea causes heart disease because the body forces it into a panic with hormones but in an oxygen deprived state. That's bound to kill heart tissue after 7 or 8 hours a day for months or years on end. Hang in there my friend. Whatever it takes to get it figured out will be worth it because it appears that the untreated apnea is probably the root of your heart problem.
Sleepguy,
you can read my story in this discussion “Apnea pressure, harmful effects on your health”:
http://www.sleepguide.com/forum/topics/apnea-pressure-harmful-effec...

Henning

Sleepguy said:
Henning, this is the very first time I've ever heard about intracranial pressure. What's the causal link to apnea? Low blood oxygen obviously impacts the brain as well. Even though it gets priority to available oxygen, levels are low and brain damage (I believe) is common. One of the doctors here on the forum (Dr Park) had an interesting article on his website about a possible connection between apnea and anzhymers as they both cause very similar miscroscopic brain damage.

"What we haven't known as well is whether or not c-pap benefits the heart," said Subha Raman, M.D., Ohio State University Medical Center.

Doctors at Ohio State University Medical Center decided to find out. They took MRI's of patients to get a good idea of the size and shape of theirs hearts when they were first diagnosed. Then patients were given c-pap masks to sleep in. After several weeks they came back for another MRI, and doctors were surprised by what they saw.

"We saw that before treatment, the heart was enlarged," said Raman. "But after three months of careful use of their c-pap, we saw a reduction in the enlargement of the heart."

In all, experts say of the 13 patients who tried it, there were "significant" changes in the right ventricle of the heart, which means this mask not only helps with sleep disorders but may be helping doctors get to the heart of much more serious problems as well.

Doctors say if left untreated, sleep apnea can lead to high blood pressure and increase your risk of diabetes or having a stroke.

http://www.wrcbtv.com/Global/story.asp?S=9866673

So the body makes the heart go like mad through hormones at exactly the same time that the blood has no oxygen. Sounds kind of like jogging with a bag over your head. Now wonder apnea results in heart disease!
One of my biggest complaints for a long time with my OSA, is that my head feels "pressure" (for lack of a better way to describe it). It's not pain like a headache, but it can feel pretty bad, making me sleepy, and wanting to lie down. This "intracraneial pressure" you are talking about here: can you feel it? Does anyone else have this head problem? It's worse at night, as I am trying to fall asleep, but can bother me all day. Exercise helps, and fun activity.

Henning said:
Sleepguy,
you can read my story in this discussion “Apnea pressure, harmful effects on your health”:
http://www.sleepguide.com/forum/topics/apnea-pressure-harmful-effec...

Henning

Sleepguy said:
Henning, this is the very first time I've ever heard about intracranial pressure. What's the causal link to apnea? Low blood oxygen obviously impacts the brain as well. Even though it gets priority to available oxygen, levels are low and brain damage (I believe) is common. One of the doctors here on the forum (Dr Park) had an interesting article on his website about a possible connection between apnea and anzhymers as they both cause very similar miscroscopic brain damage.

bump

Great post, Sleepguy. Thanks!

Interesting posting.   It would certainly explain why I often wake up feeling a combination of agitated, nervous, and tired.   I've certainly never doubted the seriousness of oxygen deprivation, but just the proper treatment.

thank you for that post.  I think many dont understand that apnea is more than just sleep deprivation.

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