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Permalink Reply by RockRpsgt on January 12, 2011 at 11:46pm

Thanks for your input Renee. Always a pleasure to hear from you.

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Permalink Reply by Peggy B. on January 13, 2011 at 10:00am

Hi Renee. I am VERY glad you have found an endocrinologist that is quite the detective. That is really great.  Have you had your adrenals tested? I know with the Pituitary tumor, there could also be some issues with the adrenal hormones. With adrenal issues, there is a problem with sleep, and there seems to be no pill that will abate that problem.

 

Best to you. 

Renee said:

Hello Peggy ~

 

I am fortunate to have found a really great endocrinologist and I was tested for every possible thyroid problem before I went for sleep studies and no problems were found.  In fact it was my endocrinologist who 1^st recommended a sleep study.  Prior to that, in connection with thyroid, I did have to have brain surgery to remove a pituitary adenoma – a fast growing non-cancerous brain tumor.  So, there remains a little question in my endocrinologist’s mind about whether my thyroid could still be contributing somehow to my tiredness.  My endocrinologist is quite a detective – he thinks of everything.  But there’s not been enough study in the area of removal of pituitary adenomas and the thyroid and excessive tiredness.  And since my MRIs, thank goodness, have shown no return of the tumor, there’s no way to figure out if that earlier situation is a factor or not. 

 

I hope you will be able to find a specialist to help you in order that you can get some MUCH needed help. 

 

Best to you,

Renee

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Peggy McGalliard said:

Hello! I am reading this coversation with great interest as I have the same problem. I wake up about every 1.5-2 hours, every night, and the addition of the CPAP machine has not helped, in fact, it causes some issues that wake me up during the night. I can't seem to get that part "fixed."

 

 I have not slept all night through in over 6 years now, and I just pray that I won't lose my mind from lack of sleep. I am unable to work because of this and because of what is causing this problem.  Anyways, I wanted to tell you what was contributed to my sleep malfunction. 

 

For me, it is adrenal and thyroid issues, which contribute to sleep apnea. I have tried all of the Rx sleep aids, and there was no relief from them. One day I was so desperate I took 2 Dalmane 4 times during the day for a total of 8, and it had no affect on my sleep pattern at all. My Dr was working with me trying to help me get some sleep, and one day I went into her office and asked her to just give me a shot of anything to "knock me out." I had someone to drive me home, she did, and I was awake and calling her after one hour. I said all of that, to say this, if the thyroid and adrenal gland are malfunctioning, then there is really almost nothing going to help with the sleep issue.  

 

And then there is the perimenopause factor, another GLANDULAR malfunction.  

 

It is very aggravating as trying to find a dr that is knowledgeable on the the thyroid and adrenal glands is next to impossible. I know I would LOVE to have a good nights sleep. 

 

Just wanted to share my sleep issue with you, and tell you that I know how horrible it is.

 

Peggy 

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