Mike

Male

New York, NY

United States

Profile Information:

My Interest in Sleep Apnea: I have Sleep Apnea, Someone I care about has Sleep Apnea
Treatment Being Used, if any: Auto-Adjusting CPAP
If Machine Being Used, What Type? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP): Philips Respironics System One APAP
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask): ResMed Activa Nasal Mask

Comment Wall:

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Renee

Mike ~
Stopping by to wish you, Melinda and your wonderful daughter Eliza Marie Holiday Greetings and all Good Wishes for a fine, healthy, splendid (and well rested) New Year !
Renee

Dec 29, 2009
susan mccord

Hi Mike--hey, Jeff has provided some really good links on the CPAP-Sinus thread today, towards the end of it.

Could you access those and maybe keep them visible somewhere so people can continue to access them? They're relevant and helpful--worth keeping available, in my opinion.

Thanks!

Susan McCord :-)

Jan 6, 2010
Ross Plotkin

A pleasure meeting you tonight, and talking after the gathering. I feel very lucky to have a new support group in Manhattan AWAKE, and look forward to sharing and contributing. Thank you for forming this chapter and for all your efforts!

Cheers,
Ross

Jan 6, 2010
susan mccord

Thanks, Mike. I appreciate it. And you.

Susan :-)

Jan 7, 2010
susan mccord

Hey, I just had another potentially brilliant (?) idea. What's the possibility of providing a site that's dedicated to good links members know about and a brief description of what each one informs about?

THAT would be handy-I'm always losing sites, or forgetting where to find them.....see if your (probably) genius mind can come up with something in your spare (yeah, right!) time. Thanks for considerating....

McCord

Jan 7, 2010
liz4cps

Thanks for the suggestion. I decided to pick one of the Manassas railroad station as that is pretty symbolic of the area. Manassas is at an important train junction in northern Virginia. I might do something different later, but it's good for now.

The folks at the meeting really liked the site here when I showed it to them.

Thanks!

Jan 22, 2010
susan mccord

Mike, the logo for your Manhattan group looks just like the little ;-) you put on your messages sometimes!

McCord

Jan 26, 2010
Mary Z

Thanks, Mike. I'm honored to be your friend.

Having some trouble on SleepSearch, though. In trying to add a review for Roberts Home Medical, Thimble Shoals Newport News, I cannot check the stars and the review won't submit. I was able to submit a review for I.A. Barot, but not Roberts.

Thanks again for the friend request.

Mary Z.

Jan 27, 2010
simanc

Hi Mike,

This is quite a site. I'm really glad I stumbled upon it. I have found the threads in the discussions to be extremely helpful. For every question I've had, there is already a conversation about it.

Currently I am going through the proces of trying to find the "right" full face mask for me. Thank you for your recommendation and the comment about the mask your wife uses. I ordered the Comfort Gel full mask by Respironics yesterday and anxiously await it's delivery.

I also ordered a Mojo Full face in a small and quickly recognized that a Medium would be more comfortable for me. There is another member (SleepyCarol) who shared her experience of buying a medium and she thinks she needs a small. I've tried to reach out to her by adding a reply in the discussion and also be sending her an invite to be friends, but haven't heard from her yet. So wondered if the members of the site might be more comfortable and responsive to you than to a new comer.

Is there any way you might be able to help SleepyCarol and I get connected and swap masks if she's interested?

Jan 27, 2010
simanc

Will do Mike. Thanks for your help and for your suggestion! So glad to be part of this group! :-) Have a good evening!

Jan 27, 2010
Ross Plotkin

Had an incredible face-to-face meeting with Chip today, Mike. I told him about my trials and tribulations and he really seems committed to helping me get a full night's rest. Just a wonderfully helpful and kind individual; I can't thank you enough for your suggesting him. Much gratitude!

Jan 29, 2010
Ross Plotkin

Will definitely make it to Wednesday's meeting, Mike. You've done a real mitzvah by setting this club up.

Having a hard time posting a review of Chip's services on your site, though. Despite having entered the preliminary information as instructed, I get a "couldn't log you in as [my email address]" message when I try to log in; when I try to reset my password, no email containing instructions on how to do so ever reaches my inbox. Might you kindly be able to offer any assistance?

I realize I posted something on my own page that I meant to post on yours: I know you had a great success story with Auto Pap, but Melinda at Restoration recommended first seeing if a week of successfully using CPAP (which I have not been able to achieve yet) did not prove regenerative before exploring that option. I've also had a respiratory tech say something similar, and that my pressure of 7.0 is lower than most Auto Pap patients use. What's your opinion on the matter?

Jan 30, 2010
Heather

Hi Mike: Well, it has been a year since I last posted a question. I only got one response and I thought maybe I should post it again. I thought I'd pass it by you first to see if you have any ideas. The problem is still bothering me and I wish I knew what is going on when it happens. Do you have any idea? Thanks so much Mike and hope you are doing well. Here's what I wrote:

Before using CPAP and sometimes even with CPAP, as I am falling asleep I am jerked awake by a total body "flush" where it feels like adrenaline pumps through my blood for 30-60 seconds. Almost like I am vibrating. Not shaking, more than tingling, and not a hot flash. I suspect it has to do with having an apnea: as I gasp for breath the oxygen flows back into the bloodstream causing this "flush." The doctors I have consulted about this say, yes, it could be the oxygen, but no one has said either they have experienced this, or they have a patient who has. I don't know for sure if I have an apnea right before this happens. I guess I am asleep during the apnea and only wake up for this weird, scary feeling.

I would love to know if others can relate to this. Or can help explain what it is. Thanks.

Feb 4, 2010
Heather

Thanks for getting back to me Mike. Yes, it is baffling to me too especially since the most likely explanation is an OSA event, but others with OSA don't immediately identify with the experience. I will post it again, if I can remember how to do it. I do read this site when I can and it is very interesting. You have a lot of followers in just a year!

Feb 5, 2010
Ross Plotkin

Mike, you sent out emails to the whole Sleep Guide community soliciting support on my behalf? You're amazing!!!! I can't even process that you did that. Wow! I mean, this was just an incredibly kind gesture. Thank you.

Feb 25, 2010
GR8SLEEP

Thank you!!

Mar 7, 2010
Lee Longnecker

Sorry it took so long to accept your frieend request....I just noticed it..

Mar 11, 2010
Mack D Jones, MD, SAAN

Mike, In a few years, it is going to be interesting to look back and see how far off base we were in our thinking about SA.

Mar 13, 2010
Banyon

Mike, You said, "If these companies protecting their turf would adapt and embrace the new technology instead of resist it, they'd stand to gain more morally and financially." That is an excellent and fundamental point. Would you want to work for a company that is resisting new technology and advances in communications, marketing and distribution? Pity their employees.

Mar 17, 2010
lia deneau

THANK YOU ! THANK YOU !

Mar 18, 2010
steve Archer

Hey Mike i will get a link to those pages for you.. look forward to helping in anyway we can with your community. Steve .. clinical sleep

Mar 21, 2010
Jackie S.

I would love to come to one of the meetings. Not sure if this Wednesday will work. Can u send me the info on when and where the meetings take place? Thanks Mike.

Apr 30, 2010
Jackie S.

Thanks for the info. I will try to make it and may drag my mother along as well. She's a RN and a clinical coordinator of a sleep lab and pulmonary rehab.

May 1, 2010
Mary Z

Mike, I think we have another salesman on board. In the thread "Sleep Meds. Ambian and Sonata" He suggests trying zaleplon and gives a link to a site that sells it on line.

Mary Z.

May 10, 2010
Richard Morgan

Mike, I would like your recommendation on a good data capable cpap machine. I have been using the ResMed lightweight for years. Lately I have been so sleepy during the day. I know my mask leaks. I am going to try the Swift FX if I can get a hold of one. I really need help with the machine. When I had my sleep study, the insurance company wouldn't approve a study to see what the machine should be set for. So they had to guess and put it at 12 cm. I would appreciate your help or help from other members. Thank you.

May 16, 2010
Mary Z

Mike, good morning. There's another one of those folks with numbers for name of machine and mask. soboqivu.

Please tell me if you want me to just sit tight about this stuf, hate to bother you. Glad that persn selling medicine, well, both of them disappeared really quickly.
Mary Z

May 28, 2010
Ross Plotkin

Mike, I think you're my Guardian Angel. You did not have to again send my query out to everyone with a special note. That is just incredibly kind. My brain is actually exploding a bit from all the information that has just *started* to flood in. How can one poster (Tony Huff) speak so derisively, so negatively, so frighteningly about this surgery, and another give it relative praise? According to Dr. Park, "Despite these complications, the vast majority (94%) were happy with the overall results [of MMA] and would recommend the procedure to family and friends." I don't yet know how to reconcile this information...but I'm glad to have it. And I haven't committed to anything yet.

Jun 8, 2010
Mack D Jones, MD, SAAN

Mike, what happened to my comment on bimax? Was it too over the top?
Mack

Jun 9, 2010
Mack D Jones, MD, SAAN

That's a relief. I have no idea what happened to it. When I get a chance, I'll resubmit. Thanks.

Jun 9, 2010
Banyon

Mike, I wonder if the kids in this study were checked for sleep apnea? There is no mention of it.

http://www.medpagetoday.com/Psychiatry/SleepDisorders/21402?utm_con...

Jul 28, 2010
jim allAn

For almost a full year I have been arguing with the veterans administration trying to get supplies for my c-pap after moving my care to NY. Well my persistance paid off and I found out why I couldn't get any supplies. It seems no recored of my needing help followed me from PA. To insure everything was being done properly I had another sleep study last week. I am awaiting the results now but I am sure they will find I need a c-pap and I will be able to get supplies. Unfortunatly due to their delaying things the machine is broke and no longer switches pressures as I sleep. I am currently getting only half the benefits from the machine but at least it is something.

Jul 29, 2010
David Starobin

Thanks for the welcome.

Aug 3, 2010
Carol Hostetter

I'm new to this site. I found it by accident. Let me hasten to inform you that I am not a dentist or physician. I am a professor. I wanted to follow up on David Lawler's comment about the OSB. I have had migraines for 36 years, have had every treatment from acupuncture to Zanadine (muscle relaxant). The migraines usually came twice a week, and lasted 1-3 days. You can see how this would define my life. I got the OSB (oral systemic balance) dental device from Dr. Lawler, and have not had a migraine in 3 months. I'm one of the people Dr. Lawler has videotaped. All I can say is, I hope the dental and medical communities embrace this research so others can benefit as I have.

Aug 5, 2010
Banyon

Hey Mike, Do you have any more details about this forthcoming product? http://www.presspubs.com/articles/2010/08/10/shoreview_press/news/d...
I have a vague memory of someone working on a CPAP that you wear like a shirt, but can't find any more references at the moment. Thanks.

Aug 11, 2010
Rooster

http://www.medscape.com/viewarticle/729361

Thinking about AHA Marketing Director.

Sep 24, 2010
Angeleque McNutt

Thanks Mike. I knew there had to be a forum for this...but I'm actually looking for advice! :) (not finding it yet)

Sep 30, 2010
Billy Hardin

Thank you very much Mike. I have Sleep Apnea. Like you I could not use a CPAP machine. After using it for 40 hours I could not stand the mask on my face. When I woke up with it on my face I would almost go into a panic attack. I'm a retired disabled VET. I have called the clinic at the VA Medical Center in my home town but always had to leave a message. No one would call back. I am going to check with the clinic in person and try to find something new. Thanks for your info. Bill Hardin, tnbill@embarqmail.com

Nov 27, 2010
Sheryl J. Runyon

i have been receiving other peoples email from sleep quide. Threads I have not participated in. I can only think that something is wrong within my email set up. I was looking for a link within the site to deal with this type of problem and could not find one,that is why I addressed the matter to you.

Feb 15, 2011
Sheryl J. Runyon

Thanks Mike,
I found that after I messages you,I got it all straighted out. Sheryl

Feb 18, 2011
susan mccord

:-)

Mar 13, 2011
Maryann

Mike, What do you think about my machine giving me an AHI reading of zero every night? I have been on my CPAP for 4 months. My original AHI at my sleep study was 82. It was up and down all over the place at first and now for about 4 weeks and now it is zero every night. My therapist acted like that was great but I think something must be wrong the machine especially since I do not any change in the way I feel. What should I do? Thanks, Maryann

Mar 30, 2011
Mary Z

bnaamhse, another one, Mike.

Thanks,

Mary Z.

Apr 3, 2011
Mack D Jones, MD, SAAN

Mike, I saw what looked like a PAP machine in bin Laden's room when the first news videos were being shown. Did he have sleep apnea?

May 13, 2011
Doranne

Thanks, Mike. New to the site - anyone out there with a Bi-PAP? If so, how's it going? Which machine do you have? Mask? The DME is calling tomorrow, and I 'm planning to succeed with my treatment. Knowledge is power.

May 22, 2011
Judy

MIKE - TONIGHT'S AWAKE MEETING!!! PLEASE!

Aug 3, 2011
Judy

MIKE - TONIGHT'S AWAKE MEETING!!! PLEASE!!!!

Please ask Ms Garrison about PR's "Auto IQ" machine. Specifically this... "After it's been used in auto mode for 30 days, and it switches to CPAP mode using the 90% pressure number, can it ever be reset (through the clinical menu) to do another 30 days of autotitration?" (And then another, and another, and another? [] )

And...a follow up question for her (yeah, wish I could be there! lol )
When it's set for the 30 days of autotitration, can the minimum/maximum pressure range be set (for example 8 - 15 ) if the doctor doesn't want it to be using 4 - 20 during those 30 days.

Maybe she'll let you look at the Provider manual while you're there?

"With the AutoIQ, after the initial autotitration, is it possible for a clinician manually to start another 30-day autotitration in a narrower range of pressures by specifying a minimum and maximum pressure?"

Aug 3, 2011
Mary Z

Mike, I'm not having any trouble with my PM's.

Should I greet new members as a member of the SleepGuide Crew and do you have a script? I can look back and find one of the old mesages if there's not a set format.

Yeah, I noticed you haven't been around much, hope all is ok.

Mary Z.

Oct 6, 2011
Mary Z

I've ben greeting every new member for a while now, so I guess I'll just keep that up, maybe change the wording to reflect a welcome from all members. Should we let iBiomed Services keep their ad for masks on the forum?

Mary Z.

Oct 6, 2011
Dr. Ruben Cohen

ok.. I am new at this so not sure where to write my posts and what to talk about!! Will spend a bit more figuring out how to do all this over the weekend!

Mar 23, 2012
Brett Husebye

Please unblock my access to the forums so I can post once again. I have some info to help several readers but cannot do so at this time. I posted an external link for a charity and called the admin a nazi. I am sorry but it WAS for charity! I was more concered with the charity drive succeeding since it was free than acting out or trying to cause trouble. Now the drive for the charity failed thanks in no part to people who would not even spend thirty seconds to vote for a children's grant which would have been given out to the winning idea for the money. Thanks Brett Husebye

May 2, 2012