'Morning, Irma--thanks for the update. I found out what I did wrong the first time. I squeezed the bottle instead of using the pump when I used it--just used doing other sprays that way, I guess, and it didn't connect that I should use the pump on this one! Duh!! Before I went to bed I pumped it into the air--it sprayed that time, so that's what I did. I had to use 2 shots as well. Just did the same--iti's 7:20 a.m. here. I only slept 4 hours--ugh! Not sure what woke me but I couldn't go back to sleep so i just got up.

We've got a big snow happening--I love it--glad I don't have to go anywhere. I do need to pick up an Rx that I brain-faded yesterday which could be a challenge. May see if my son has time to get it for me-he has a 4-wheeler. Supposed to get 3-6 inches--wind chill's -8 below zero. Brrrrrr......

Did you get snow within the past couple of days? It's coming out of the West but not sure how far out.

Gotta go get warm--hope you're doing better. I don't think I even asked you how YOU are yesterday. I'm sorry. Do you feel like you're making any headway?

Susan :-)

Hi Irma--wow, I was doing a little better for a couple of days. Yesterday, last night, and today, not good at all. Couldn't even tolerate CPAP last night--couldn't breathe with it--took it off and finally slept for awhile without it.

I don't know what I'm gonna do at this point. I'm not tolerating anything in or up my nose at all. My whole head feels like it's gonna blow up. Ayr gel seemed to help some, at least more than my Ocean stuff. Even the gel isn't helping now. I'm pretty much of a mess, seems like. Something's definitely wrong--no idea what. Gonna call sleep doc tomorrow and see if I can get in.

Carol suggested getting it cultured. Don't know how they culture sinus, but I'm gonna see about it tomorrow. Something's got to be done that works though, or I don't know what I'm gonna do. Scares me to be off CPAP but if I can't tolerate it, I'm not gonna force it.

This thing is discouraging--I'm totally not used to having THIS kind of problem. Have no idea how to proceed except to try to shake the MD trees.

I so appreciate your ongoing support. Thank you.

Susan

Hi Irma!! Glad to hear from you. Well, today's the first day since Christmas that I thought I might actually be able to get over this. It got worse before it got better. Decided not to call sleep doc--I've already mentioned having intermittent issues with the milder form of this--he kinda blew past it. I was SO sick that I was afraid if he tried to give it another pass-by, I was gonna be out of control. Went to my PCP, he put me on doxycyline--kinda helped for a couple of days, then failed.

I was talking on SG about how sick I was at that time, and Dr. Park came on and intervened. Thank God......he pretty much laid out (on SG) what was happening to me and that I'd now moved into a chronic phase of it. Said he's treated a # of apnea patients with the same thing.

He offered his thoughts re: a treatment program (didn't advise, just laid some options out). I took his comments into my PCP the next day--he concurred with Dr. Park and put me on Levaquin + some other stuff, including that nasal rinse which I can't make myself use! Stupid, but it freaks me out for some reason....... Have had one full 10-day round, am on the second round now. Went of CPAP 4 nights ago cause I couldn't tolerate it. Between that and the Rx, I'm finally improving. Last night is the first night I've been able to sleep without having to use nasal spray so I could breathe enough to sleep (I only use that stuff at bedtme--scares me!). So I feel like I turned a big corner last night. Still mildly symptomatic but NOTHING like I was.