Kath Hope www.hope2Sleep.co.uk

Female

Hull, East Yorkshire

United Kingdom

Profile Information:

My Interest in Sleep Apnea: I have Sleep Apnea, Other
Treatment Being Used, if any: Auto-Adjusting CPAP
If Machine Being Used, What Type? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP): IntelliPap
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask): Resmed Mirage Quattro, Sleepnet Hybrid, Mirage Liberty, Respironics Comfort Gel, Fisher Paykel 432 (you could say I'm a collector lol)

Comment Wall:

sleepycarol

Welcome to the forum!!

We are glad you joined. Here you will find information about sleep apnea, treatment options, and other sleep related disorders.

If you are fairly new to the world of sleep apnea, please check out the FAQ tab and under the Groups tab, the new users group and the collective wisdom section. You may find those of particular importance in learning the language often used on the forum, solutions to common issues patients may have, and other information you may find useful.

If you have been around the world of sleep apnea for a while, we hope you still find the site informative and of interest.

Please feel free to share your thoughts, ideas, comments, questions, etc.

Again, Welcome to the forum!!

Jul 13, 2010
Mary Z

Welcome to SleepGuide, Kath Hope. I'm glad you felt comfortable enough to start posting right away.
A lot of us collect masks. LOL. We do a brisk business with cpapauction!

Jul 16, 2010
Mary Z

Well, thank you Kath. Yes, we do have a bunch of great folks on the Forum. Mike has done a good job of behind the scenes moderating, unobtrusively keeping spammers off the site.
Glad to hear you can use some of our products abroad.
I hope you'll keep posting.
Mary Z.

Jul 16, 2010
Mary Z

Nice website you have there.
Mary Z.

Jul 16, 2010
Mary Z

Kath about the Fit Life, I'm a side sleeper and get 0.0 leaks. I made a few modifications is the headgear of a small mask. I tied the strap that goes over the top of the head to the X where the top and bottom straps cross. This keeps the straps from sliding down on my head. Then from front bottom connection to front bottom connection I placed a terry cloth headband that goes under my chin to keep the mask from sliding up into my mouth. Anchors it perfectly. I'm really a "medium", but they don't make one. I can work hard with Macks silicone ear plugs to make a seal around the entire mask and don't get any leaks with a large, but the small works best. I love it.

Jul 18, 2010
Mary Z

Kath, good luck with the operation.
Mary Z.

Jul 18, 2010
Mary Z

Hi, Kath, mine is not real quiet so you don't notice it's there, but my pressures are high. On the very bottom of the mask, under where the hose connections comes out, on the silicone there will be a S or L. I'm a medium, which they don't make. LOL. I hope you can get it all adjusted, it can be hard to separate the sound of leaks from the noise of the mask. I just feel around the edges with my finger for air escaping.

Mary Z.
Hope it helps. Should be good after that kind of surgery.

Jul 24, 2010
Mary Z

Yeah, Kath. That Total Face Mask is a one size fits all. I'll be interested in hearing your opinion of it.
Have fun tonight,
Mary Z.

Jul 24, 2010
Mary Z

They don't have a mask setting on these machines for these new masks. I asked my DME and he said just to set it on standard mask. Your supplier may have an idea about that. It seems to me the larger volume area inside the mask could make a difference.
Good luck.

Jul 28, 2010
Mary Z

Thanks Kath, I've been thinking about you, but the days after the 5th jusst seemed to get away from me. Sometime you can get a pretty good deal on a FitLife on cpapauctio.com. Unless you really have a big face I suggest the small. It's really too small, but I make it work and so far there's no medium. Cpap.com has them sale price at $144. I don't know if as a dealer you can get a better deal elsewhere. I'm sure you've looked into it.
So glad the surgery on the turbinates went well and you had little pain.
Thanks for writing.
Mary Z.

Aug 8, 2010
John Mclennan

thanks Kath, I have been using a res med escape2 for a year now.a great improvement in my sleeping pattern.

Oct 10, 2010
John Mclennan

Oh yes thanks

Oct 10, 2010
Chris H

Hi Kath, I still have infections so no surgery for me when do you go? Good Sleep, Chris

Jan 18, 2011
ymmits

Sounds good - saturday morning?

Jan 18, 2011
Chris H

Hi Kath, That does not sound so good .Any chance you could cross the pond we have some good doc's here.

Jan 19, 2011
Chris H

We said that about the custom masks too. So far I only won ten dollars I think dr Park charges a bit more than that : (

Jan 19, 2011
Vicki Vargerson

Thanks Kath ,im working with the hospital to try set up a support group in norwich and hopefully have monthly meetings !!

Jan 20, 2011
Vicki Vargerson

Going to call the group SASH standing for " sleep apnoea self help " basically just a get together so people dont think there alone , and to swap ideas and tips on how to cope ,,iv had to struggle through some nasty periods of panic attacks and being scared to go to bed ,, and im sure im not alone ,,so any ideas and tips on how to make it a success would be great ,,

Jan 20, 2011
Chris H

Hi Kath, 6 days til your procedure...Best wishes and a speedy recovery to you! I went for more blood testing and started another round of anitbiotics with antihistamine and a steroid too.Still no luck on the lottery, stinks that you cant come across the pond .Good Sleep,Chris

Feb 11, 2011
Chris H

Hi Kath, So can you breathe any better ? Are you back on pap? Or did they take out your appendix by mistake? : )

Mar 18, 2011
Chris H

Hi Kath, So you can use your machine and are getting better numbers .Thats good to hear. I just finished levaquin astepro and prednisalone,and started cingulair .The Dr's office messed up my blood work again .Went to an awake meeting this morning the Dr whom spoke was excellent soooo I think I 'll have him give me A look over.Good to hear you are progressing in a better direction.Good Sleep,Chris

Mar 19, 2011
Chris H

Hi Kath, How are things across the pond? have not seen posts latley,Good Sleep,Chris

May 20, 2011