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At our local AWAKE meeting last night, the Respironics rep there said dryness was the number 1 complaint among CPAP users.   I didn't expect that -- thought it would be mask leak or mask fitting or mouth breathing.  

My own #1 complaint is mouth breathing.  What is everyone's else's?

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My biggest issue is getting the mask to fit comfortably, while at the same time minimizing the leaks. I can get the leaks down to zero, of course, if I tighten the mask all the way, but then it will be so uncomfortable that I'll never sleep!
My major complaint is my insurance company. They control when I can have supplies. There have been times that I would need a replacement hose because it developed a pinhole shortly after I received it. Insurance says "no", so get out the duct tape and hope for the best.

Other than that, it is dryness, chapped lips, sore nose, etc.
For me....condensation in the hose!....My wife hates the air exhaust blowing into her face if I roll in her direction.
My #1 complaint is that I feel like I am being suffocated with air- I just want to rip the thing off my face so I can breathe!!!!
I hate the way that mask rubs and irritates my face.
My biggest problem is gas. When talking to the people about it they said take Beano, which didn't help. Their next solution was I would get use to it. Well I haven't and it has been 2 years. Does anyone know of anything I can do?
face sweat... I have remedied this with putting a handkerchief with a hole cut in it between me and the mask and have no more issues with this. this also helps with leaking .. you don't hear the hissing noise if you roll over and offset your mask.. I still get plenty of air but no noise and no wet face causing rash.
My number one complaint at the moment is my Remstar Auto M Series A-Flex water leaking. Two nights in a row the whole table was covered in water and my nose completely dry. I don't think the seal is fitting properly when I insert the water tank.

I also wish I could find comfortable headgear. My neck is sore each morning from the strap in the lower back of my head.
Regulation.

CPAP equipment needs to be OTC.

I like to buy the latest models and would like to sell my used like-new-condition machines on ebay. This would give a robust, economical market for machines and would allow people to trade up to newer technology at a low price.

New machines could be sold at department stores and discount retailers. The public could walk in without appointments and look at the machines while comparing quality, features and cost. Awareness would go up and social stigma would go down!

The same goes for hoses, masks, filters, etc.

The CPAP market is going to become huge and we need to have an efficient way to distribute the new products and the used products.

I am wanting to purchase some more equipment now but am holding off because the regulators have prevented an efficient market.
No mouth breathing since I got my chin strap, to which I'm now quite accustomed. No dryness anymore, either, since (1) my machine is humidified and (2) my mouth stays closed. I used to get condensation in the tube, but I stopped that by keeping my room from getting cold. Mask leaks are becoming much less frequent, so I guess I've gotten much better at adjusting the straps and the angle of the nasal pillow. It occurs to me, just now, that I've been sleeping through the night lately -- and by gosh, I do feel better.

My #1 complaint is that my DME, Lincare, simply cannot get their act together and mail my supplies on a regular schedule. I am constantly calling them to get replacements, and then they have to get insurance authorization, which holds it up for one or more weeks. You'd think they would have a system in place -- say, a calendar? -- so they could request authorization in advance and I could get the supplies on time, but this seems to be beyond their abilities. My doctor told me she's heard the same thing about them from other patients.

Lincare. Definitely Lincare.
Any non-CPAP using person who asks this should spend one night on CPAP to see what it feels like. Heck, it would even be instructive for them to sit there for 15 minutes with it on to see how it feels. Then, ask THEM what they don't like about it and remind them that you have to live with this apparatus on you the entire time you sleep.

Personally, I have to agree 100% with Jennifer...

My #1 complaint is that I feel like I am being suffocated with air- I just want to rip the thing off my face so I can breathe!!!!

Carl
Does the ramp button not help any? I know it does help me. What I don't understand is why not start off on the lower air pressure, then increase. That makes more sense to me. I just might have get a patent on that idea, LOL!!!

Carl said:
Any non-CPAP using person who asks this should spend one night on CPAP to see what it feels like. Heck, it would even be instructive for them to sit there for 15 minutes with it on to see how it feels. Then, ask THEM what they don't like about it and remind them that you have to live with this apparatus on you the entire time you sleep.

Personally, I have to agree 100% with Jennifer...

My #1 complaint is that I feel like I am being suffocated with air- I just want to rip the thing off my face so I can breathe!!!!

Carl
I miss sleeping with my face in the pillow, but am used to it, and sleeping just the same, Amen

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