"please keep me updated about oximeters "
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My follow-up
I've got my 6 week follow-up on thursday and I need to know what I should be asking them. As it stands I can't manage a full night's sleep with my mask. I'm using a full-face and as I'm just about falling asleep my jaw relaxes so much it drops back a little and a leak occurs along the bottom of the mask. MY mouth doesn't really open when I sleep but that action makes a leak which wakes me up. On the few occasions I do get to sleep I normally wakes up after an hour or so and take the mask off.
So what should I be saying to the sleep study people?
So what should I be saying to the sleep study people?
Views: 290
Replies to This Discussion
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Permalink Reply by Mary L. Montovio on
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It take time to get adjusted to it. I use a pillow instead of a mask, and I found I can't open my mouth with it on. I've been using it now since Feb of this year. It just takes time, but bring your all concerns to your doctor and he may have suggestions for you.
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OK thanks but as I've stated 3 times now, my mouth doesn't open when I sleep.
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If your mouth doesn't open when you sleep, I'm wondering why they prescribed a full face mask. You might ask if a nasal mask or nasal pillows would be more appropriate.
Just tell them all of the problems you're having. It's your night's sleep, be in charge! And I'm impressed that they've scheduled a follow up with you. I've yet to have one in the four plus years I've used a CPAP.
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Really? It's standard procedure to have a 6 week follow-up.
When I was given the mask, the nurse asked me if I breathe through my nose or mouth. I paused before replying as I'd never thought about it. Before answering she said "You breathe through your mouth, I can tell". Unfortunately she seemed to have an "I know best" attitude.
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You have absolutely no way of knowing if you do or don't open your mouth whilst sleeping. That being said, its YOUR therapy, YOU are paying for it, YOU are the one to endure the benefits - or the consequences of this therapy - BUT the sleep pros can't help you if they don't know you are having a problem. The squeaky wheel get the grease. Diplomatic pushes seem to be in order. For both your local DME supplier as well as your sleep doctor. So start pushing. Diplomatically, but pushing for adequate assistance and support - or find new ones as soon as your insurance allows or you can afford it.
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OK I've been told my mouth stays closed when I sleep and I don't know what sort of insurance you mean, National Insurance?
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Permalink Reply by Steve Wilhite on
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I had similar problems with leaks, Russ, and nasal pillows were the solution, one that I've been happy with for several years now. You might want to give that option a try. You'll wake up with your nose a little sore, but that goes away within a few seconds of removing the device. And any option is going to take some getting used to, so be persistent.
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Hmmm, I'm not sure the hospital will have any nasal pillows available, they're on a limited budget.
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Nasal cushions are the most popular style of CPAP mask and nasal pillows are the second most popular style of CPAP mask so I'd be surprised if your supplier doesn't have nasal pillows style masks. Full face masks are only succeeded by the hybrid style mask at the bottom of the CPAP mask popularity polls and sales.
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My supplier is the hospital though, they only give me what their budget allows.
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I too had leaks with the full face mask and it turned out my mask was not adjusted properly. I have leaks with my other Liberty mask and I was able to fix it with Mack's silicone ear plugs. I learned about Macks from this website and it works perfectly. Roll the earplug into a thin rope and press it on to the very edge of the mask were it touches your face and makes a seal. No matter how I turn or flip the mask does not leak at all.
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