Sleeping with CPAP blog post
Hi,This post is about sleep apnea and blood sugars. Thanks for reading.http://sleepingwithcpap.blogspot.com/See More
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ZolliStar replied to ZolliStar's discussion What's the Right Machine?"Thanks for this, Mary.
Worse comes to worse, I'll buy a used machine from Second Wind. First I'm going to see if I can get my doctor to prescribe one.
Maybe this is the final answer. Meanwhile, I'm surely happy to have…"
Mary Z replied to ZolliStar's discussion What's the Right Machine?"Zollistar, I think the ASV is hands down the best machine. It took me four years to get hooked up. Because of lingering depression and continued day time sleepiness with a high AHI my doctor suggested a night in the lab with an…"
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"May I ask two dumb-dumb questions? What do "Dx" and "CSA" mean?
And here is a not-so-dumb-dumb question (I hope!): From your experience, do people sleep better using an ASV machine?
I look forward to your answer.
"
RockRpsgt replied to ZolliStar's discussion What's the Right Machine?"You will most likely not be able to get insurance approval for an ASV without a Dx of CSA. I think that saying that an ASV breathes with you is false. ASV does however provide a better breath support and algorithm for auto use. The newer ASV units…"
Mary Z replied to ZolliStar's discussion Beating Sleep Maintenance Insomnia"Zollistar, what a good idea! The music is nice and relaxing on some of them."
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"Thanks for this information Lisa. It really helps.
Anyone else?
"
Lisa replied to ZolliStar's discussion What's the Right Machine?"Hi Zollistar, I much prefer using an Apap to a straight Cpap. I changed over a few years ago and found straight away that I had much less of a problem with leaks. Another thing that I have noticed is I used to have ongoing problems with my nose…"
Terry Vella replied to ZolliStar's discussion What's the Right Machine?"He's still going, a bit of a pain sometimes but that's life, thanks for asking."
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"This helps a lot, Terry! Thanks for letting me know.
How is your dog??
"
Terry Vella replied to ZolliStar's discussion What's the Right Machine?"ZolliStar, I went straight to an auto so can't really compare but from what I have heard there are two major benefits, first, the comfort factor of not having the high pressure all night and second, it adjusts to what you require, so if you use…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"Ginny, they are probably not doing anything against the law- though it may seem like fraud to us it may be an accepted practice. I would rather change DME's. Have you talked to the manager. They don't want to lose your…"
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"It really burns me up that they are doing things like this. Monday I am going to lok up th eMedicare complaint number and give them an ear full.
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RockRpsgt replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"Companies like this will have to pay in the end. Medicare is taking no prisoners in their effort to reform medicare fraud."
RockRpsgt replied to Mary Z's discussion Symptoms"I had zero symptoms. I was testing equipment one night and fell asleep hooked up. When I woke up my doc said I had an AHI of 10 with 30 second events. I have been on PAP ever since."
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"I just use a large rubber band and safety pin to attach i tho the sheet. It doesn't exactly kink, but rather seems to have almost bends that don't quite ever go away. I have one that doesn't but all the others seem to.…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"My light weight tubing does not have a tendency to kink. It just hangs down from the stand and comes back up to the bed. I tried a hose hanger, but bought the cheaper travel model and it just wasn't up to the task."
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"I was really surprised when the congestion improved without the humidification. Yes, I use the lighter weight tubing too. Do you have trouble getting the bends and kinks out of them???? I have one favorite that is broken in and I hate…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"The reasoning behind changing the tubing is that it may develop small holes or tears which causing leakage. I am careful with my tubing and don't have any animals or children playing with the tubing. I don't feel like they have…"
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Pat Kniel
- Female
- Royal Oak, MI
- United States
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Pat Kniel's Discussions
Roscoe mask success
I posted quite a while ago asking if anyone had experience with Roscoe masks. I bought this myself since my DME doesn't carry that brand. I wonder if that is partly because the mask si inexpensive…Continue
Started Dec 9, 2011
Help putting a Roscoe full face mask on
5 Replies
I have a large and medium mask. They both leak at the same place. Where the jawbone changes from going down and starts angling towards the point of my jaw. Since I am more than pleasingly plump I…Continue
Started this discussion. Last reply by Pat Kniel Oct 19, 2011.
New pressure settings. AHI down but patient triggered breaths way down.
My pressure setttings have been changed. My AHI went down from 7.6 to 4.1 but my patient triggered breaths went down from an average 85% to 50%. Is this bad?Continue
Started Mar 24, 2011
What is a reasonable number of leaks.
4 Replies
I haven't been feeling rested for the last several weeks. When I look at the Encore Viewer report my leak rate is averaging 44. I just had to switch from a nasal mask to a full face mask and I have…Continue
Started this discussion. Last reply by Pat Kniel Mar 22, 2011.
Pat Kniel's Page
Latest Activity
Pat Kniel posted a discussionRoscoe mask success
I posted quite a while ago asking if anyone had experience with Roscoe masks. I bought this myself since my DME doesn't carry that brand. I wonder if that is partly because the mask si inexpensive compared to many others. It cost me about 60 dollars including shipping. Now that I have figured out how to put it on it is wonderful. After over 10 years and many masks I think I found my soul mate. Hope the romance lasts. The next mask I receive will be a new design. I have been assured that no…See More
Pat Kniel replied to Pat Kniel's discussion Help putting a Roscoe full face mask on"I am really late following up on this. I did figure out how to adjust the Roscoe full face mask. The bottom does go under my chin. Don't know if that is what it is designed to do but it works for me. Now that I have it adjusted I love it. The…"
RockRpsgt replied to Pat Kniel's discussion Help putting a Roscoe full face mask on"I have never seen that mask before. Just looking at I would say that your chances of getting a good fit are slim at least."
Kath Hope www.hope2Sleep.co.uk replied to Pat Kniel's discussion Help putting a Roscoe full face mask on"I'd never heard of the Roscoe either Rock. Just found it http://www.ezcpap.com/roscoefullfacemask.aspx
"
RockRpsgt replied to Pat Kniel's discussion Help putting a Roscoe full face mask on"What mask are you using?"
Pat Kniel posted a discussionHelp putting a Roscoe full face mask on
I have a large and medium mask. They both leak at the same place. Where the jawbone changes from going down and starts angling towards the point of my jaw. Since I am more than pleasingly plump I would be surprised to find that I need a small mask. I tried a pad-a-cheek full face liner. I thought it was helping but my leaks are still around 50.Should this mask go under my chin? Also, I read that it should cling to my face. It doesn't feel like it is clinging. I like this mask since it is soft…See More
Pat Kniel replied to Mike's discussion Ages of Sleep Apnea Patients on this Site"I"m 78. I have a diagnosis of sleep aspnea and variable respiratory muscle weakness. I also have a diagnosis of Mitochondrial Cytopathy, a form of Muscular Dystophy."
Pat Kniel posted a discussionNew pressure settings. AHI down but patient triggered breaths way down.
My pressure setttings have been changed. My AHI went down from 7.6 to 4.1 but my patient triggered breaths went down from an average 85% to 50%. Is this bad?See More
Pat Kniel replied to Garry Conway's discussion Sleep Number Beds: Have they helped anyone & worth the money?"We bought ours from Craigs list. The adjustable ones don't come up very often but I kept watching. One came up that was too expensive but I waited some more and then got a bargain. I like it. Not as much as our old tube waterbed but I do find…"
Pat Kniel replied to Pat Kniel's discussion What is a reasonable number of leaks."Thanks Mary, sounds strange but it's worth a try. "
Pat Kniel replied to Pat Kniel's discussion What is a reasonable number of leaks."I should have added that my pressures are 17 IPAP AND 13 EPAP."
Pat Kniel posted a discussionWhat is a reasonable number of leaks.
I haven't been feeling rested for the last several weeks. When I look at the Encore Viewer report my leak rate is averaging 44. I just had to switch from a nasal mask to a full face mask and I have had to make them really, really tight to try to get the leaks under control.I've tried the Liberty, the Quatro in a small and medium and a Comfori Gel. I've boiled the Comfort Gel twice in an attempt to make it fit. HELP Pat KnielSee More
Pat Kniel replied to Corinne's discussion Newly diagnosed - OSA"I'm curious about how a mask can be fitted in the DME office. Don't you have to be laying down? Pat"
Janknitz replied to Pat Kniel's discussion I can't change the report date on encoreviewer."You get a 7 day report for efficacy and a report of compliance from the beginning of your machine usage no matter what (why PR thought it was important for the patient to have all that compliance data is beyond me--I KNOW how much I use the…"
Profile Information
- My Interest in Sleep Apnea
- I have Sleep Apnea
- Treatment Being Used, if any
- ASV
- If Machine Being Used, What Type? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
- Respironics BiPaP AutoSV Advanced
Comment Wall (3 comments)
- At 8:56pm on October 7, 2010, rose said…
- rose.devid50@yahoo.com
HELLO
My name is miss Rose i saw your profile today at(sleepguide.com) and fund you worthy to be mine as some one whom i can lay on his arms as long as love is concern, caring and teassing you all the nightlong and ,l will also like to know you the more,and l want you to send an email to my email address (rose.devid50@yahoo.com) so l can give you my picture for you to know whom l am. Here is my email address I believe we can move from here! I waiting for your mail to my email address above. miss Rose
(Remeber the distance or colour does not matter but love matters alot in life)
- At 7:12pm on August 30, 2010,
sleepycarol said… - Welcome to the forum!!
We are glad you joined. Here you will find information about sleep apnea, treatment options, and other sleep related disorders.
If you are fairly new to the world of sleep apnea, please check out the FAQ tab and under the Groups tab, the new users group and the collective wisdom section. You may find those of particular importance in learning the language often used on the forum, solutions to common issues patients may have, and other information you may find useful.
If you have been around the world of sleep apnea for a while, we hope you still find the site informative and of interest.
Please feel free to share your thoughts, ideas, comments, questions, etc.
Again, Welcome to the forum!!
- At 11:43am on August 17, 2010,
Mary Z said… - Hi Pat, welcome to SleepGuide. We don't hear from many people (not any that I can remember) on an ASV machine. I would be interested in the story of how you got on that type of machine, if you feel like starting a discussion, or just posting more here.
Mary Z.
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