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Latest Activity

ZolliStar posted a discussion
Sunday
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14
richard graham replied to richard graham's discussion mouth breathing
"I still use humidity but less of it. It seems to be working OK.."
Jun 14
ZolliStar replied to richard graham's discussion mouth breathing
"I rarely use the humidifier. I think it's less necessary during the summer when there is humidity.   I also switch between my mouth device and the APAP.  I like each for different reasons. Not sure with which I sleep better, though.…"
May 21
Mary Z replied to richard graham's discussion sick again
"I've been doing well.  I think you were going to try the cpap without humidity- did that help at all?  I haven't had a cold for a couple of years."
May 14
Ginny Edmundson replied to richard graham's discussion sick again
"CPAP seems to cause stuffiness in many of us.  ANother reason I hate it so much!Do you rinse your nose with saline once a day…maybe before you go to bed for the night? "
May 5
richard graham replied to richard graham's discussion sick again
"I do wake up stuffed up most days"
May 5
richard graham replied to richard graham's discussion sick again
"I do have non allergic rhinitis. Now I'm thinking that's probably it because I only feel that way for a day or 2. Thank you"
May 4
Ginny Edmundson replied to richard graham's discussion sick again
"I have been lucky.  Not one cold past three years. Could some of your problem be allergies?"
May 4
richard graham posted a discussion

sick again

It seems like I am sick with colds more often when I'm on the CPAP. Anybody experience that.
Apr 30
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"As of now I no longer have to use a chin strap.  I am anxious about the sleep study.  Wondering if I will be able to sleep WITHOUT the CPAP….even thought I hate it it is a part of every night now and is what I am used to.  "
Apr 20
Clueless in Redwood Shores replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"I had it on the same outpatient basis.  Much pain, no long term gain.  I did not have the annual repetition - that might or might not have made the difference. "
Apr 20
Mary Z replied to richard graham's discussion mouth breathing
"glad to hear it, Richard.  Keep us posted."
Apr 13
In doing my weekly cleaning of my CPAP equipment today I noticed an accumulation of white stuff on the bottom of the water chamber. A small section I can reach with a knife, I can scrape some of it away, but most of itI can't get to. Even letting it set with pure vinegar does not affect it. If it was a calcium deposit I would think the vinegar would dissolve it. I am worried it is some sort of fungus! My lungs are healthy right now, I would hate to make them sick. I have an appointment with the pulmonologist on Weds, two days from now, and am going to take the chamber with. In the meantime...have any of you guys seen this before?

At one time I did not know to pull off a top piece and clean that weekly as well. It had some black mold growing on it...I now clean that weekly and have no more problem with that. I just don't want the treatment of my problem to ever be worse for than the problem itself.

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It is highly recommended that you use only distilled water in your humidifier. I have used only distilled water in mine, except for one night I was in the hospital and used tap water cause I didn't want to inconvenience anyone. I have never had a deposit form in my tank.

What type of water are you using? Bottled water is not the same as distilled water. Please let us know and maybe narrow down what it might be.
I forgot to mention I only use distilled water.
Are you using ONLY DISTILLED water and directed by your device's manufacturer?

Try dissolving a Polident Denture Cleanser tablet in very warm water in your humidifier water tank. Let it set as long as possible. Shake it a time or two thru out the time it is soaking. Empty and rinse well. Rinse again w/vinegar solution.
I will try to polident and get back to you guys and let you know how it goes. Yucky white stuff!
if you can snap a picture of it, and post it, we might be able to get a better read on what the icky white stuff is.

Dawn said:
I will try to polident and get back to you guys and let you know how it goes. Yucky white stuff!
Mike said:
if you can snap a picture of it, and post it, we might be able to get a better read on what the icky white stuff is.

Dawn said:
Haha Mike...you think I am more technically saavy than I am!
no worries. the actual pix might gross some of us out anyway ;-)

Dawn said:
Mike said:
if you can snap a picture of it, and post it, we might be able to get a better read on what the icky white stuff is.

Dawn said:
Haha Mike...you think I am more technically saavy than I am!
I've been notoriously bad about using tap water in my humidifier and get those hard water deposits. Ever since I had to get my second replacement tank I've been a lot better though. My resp therapist said I could get a new reservoir every 6 months or so though, so maybe it's just time for a new one. (Maybe even sometimes the distilled water has some minerals in there. After all, if they're passing tap water off as spring water/drinking water, who knows how far you can trust them.)
maybe this is BS, but i heard somewhere that you could get a respiratory disease from using tap water instead of distilled. food for thought...

amott1973 said:
I've been notoriously bad about using tap water in my humidifier and get those hard water deposits. Ever since I had to get my second replacement tank I've been a lot better though. My resp therapist said I could get a new reservoir every 6 months or so though, so maybe it's just time for a new one. (Maybe even sometimes the distilled water has some minerals in there. After all, if they're passing tap water off as spring water/drinking water, who knows how far you can trust them.)
Yeah, I was admonished by my respiratory therapist about it too. That's why I've been a lot better about it lately. Although I'll usually just go without water at all to avoid having to mess with filling it up. (Lazy, I know!)
Dawn, You are absolutely right to check the status of the humidiffier with your Doctor. Calcium deposits look like a white material, some of it can be scraped away, others form an almost ceramic surface. . If deposits in a humidifier can be compared to calcium deposits inside a hot water tank, the heat from the electrical or gas source bakes them firmly to the sides of the tank.. I wonder if this could have happened with your humidifier? Perhaps if the humidifier ran dry several times,it might be hot enough to bake the calcium deposits to the bottom of your humidifier. You might let SleepGuide know what your doctor tells you. RuthR,
Dawn, it just occurred to me that the best thing for you to do would be to toss the humidifier and just replace it with a new one. these things are supposed to be switched out every few months anyway, and if you have insurance or Medicare, it will be reimbursed at no/little charge to you. Can you toss it and replace?

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