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Latest Activity

ZolliStar posted a discussion
Sunday
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14
richard graham replied to richard graham's discussion mouth breathing
"I still use humidity but less of it. It seems to be working OK.."
Jun 14
ZolliStar replied to richard graham's discussion mouth breathing
"I rarely use the humidifier. I think it's less necessary during the summer when there is humidity.   I also switch between my mouth device and the APAP.  I like each for different reasons. Not sure with which I sleep better, though.…"
May 21
Mary Z replied to richard graham's discussion sick again
"I've been doing well.  I think you were going to try the cpap without humidity- did that help at all?  I haven't had a cold for a couple of years."
May 14
Ginny Edmundson replied to richard graham's discussion sick again
"CPAP seems to cause stuffiness in many of us.  ANother reason I hate it so much!Do you rinse your nose with saline once a day…maybe before you go to bed for the night? "
May 5
richard graham replied to richard graham's discussion sick again
"I do wake up stuffed up most days"
May 5
richard graham replied to richard graham's discussion sick again
"I do have non allergic rhinitis. Now I'm thinking that's probably it because I only feel that way for a day or 2. Thank you"
May 4
Ginny Edmundson replied to richard graham's discussion sick again
"I have been lucky.  Not one cold past three years. Could some of your problem be allergies?"
May 4
richard graham posted a discussion

sick again

It seems like I am sick with colds more often when I'm on the CPAP. Anybody experience that.
Apr 30
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"As of now I no longer have to use a chin strap.  I am anxious about the sleep study.  Wondering if I will be able to sleep WITHOUT the CPAP….even thought I hate it it is a part of every night now and is what I am used to.  "
Apr 20
Clueless in Redwood Shores replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"I had it on the same outpatient basis.  Much pain, no long term gain.  I did not have the annual repetition - that might or might not have made the difference. "
Apr 20
Mary Z replied to richard graham's discussion mouth breathing
"glad to hear it, Richard.  Keep us posted."
Apr 13
I cannot find the perfect pillow to support my head, the mask & hose. I have several pillows,including a couple supposed to be intended for CPAP. Before I was diagnosed with Apnea, my favorite pillow was made of 100% down. I'd had it a couple of years and it nestled my head to perfection. I tried all three pillows last night nothing worked- I was very tired - we have a 2 1/2 week old grandbaby in intensive care - And I wanted comfort. .

I would appreciate knowing what type pillow has worked for others.
Ruth Rayceen

Tags: CPAP, Pillow, Sleeping, advice, comfortable, most, oxygen, pillow

Views: 2207

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Replies to This Discussion

Heart goes out to you and all hopes for your little grandbaby. I like my oxygen pillow. It's supportive and very comfortable.
I will keep your grandbaby in my prayers. I hope he has a speedy recovery.

It seems pillows, like so many things with cpap, tend be an individual thing.

For the last several years, I have used a king size memory foam pillow. This is particular pillow is dense and cradles my neck without flattening. Loved that pillow and still have it.

A few weeks ago, I was in on a trial product that www.pur-sleep.com was introducing. It is the Regenisis pillow. It is a buckwheat hull pillow. Love that pillow and now use it full time.

I have not tried the pillow that Mike has recommended but it looks like it would be a great pillow as well.
i know the manufacturer of the oxygen pillow, and he really knows his stuff. i am going to try to get him to post some on here to give his perspectives on mattresses/pillows generally (and not just his products). He's really a sharp guy.

sleepycarol said:
I will keep your grandbaby in my prayers. I hope he has a speedy recovery.

It seems pillows, like so many things with cpap, tend be an individual thing.

For the last several years, I have used a king size memory foam pillow. This is particular pillow is dense and cradles my neck without flattening. Loved that pillow and still have it.

A few weeks ago, I was in on a trial product that www.pur-sleep.com was introducing. It is the Regenisis pillow. It is a buckwheat hull pillow. Love that pillow and now use it full time.

I have not tried the pillow that Mike has recommended but it looks like it would be a great pillow as well.
I sell the Oxygen Pillows in Dallas, and yes indeed. Pillows are just as important as the bed. As a general rule, the pillow should keep your head in a neutral alignment with your spinal column. To determine your neutral alignment, just stand up normally. Then take a look at the space between your chin and your chest--that's the same amount of space you need when sleeping on your back to get in maximum oxygen without putting undue stress on your neck.

I don't know how much side sleeping you're doing (or NOT doing!) but a properly fitting pillow would once again be able to keep that space nice and open without pitching your head up, or making it drop too far towards the bed. (and when testing for proper sizing, be sure to put your hands underneath the pillow if that's how you sleep-otherwise the pillow you test without doing that will end up being too tall.

Also very important--make sure you test out a pillow on a bed that approximates the feel of the bed you have at home! What works on a super firm bed is going to be (usually) WAY too tall to get you into your neutral on a soft, plush bed.

I hope this helps. Good luck!
Super helpful and informative post, April!

April Reeves said:
I sell the Oxygen Pillows in Dallas, and yes indeed. Pillows are just as important as the bed. As a general rule, the pillow should keep your head in a neutral alignment with your spinal column. To determine your neutral alignment, just stand up normally. Then take a look at the space between your chin and your chest--that's the same amount of space you need when sleeping on your back to get in maximum oxygen without putting undue stress on your neck.

I don't know how much side sleeping you're doing (or NOT doing!) but a properly fitting pillow would once again be able to keep that space nice and open without pitching your head up, or making it drop too far towards the bed. (and when testing for proper sizing, be sure to put your hands underneath the pillow if that's how you sleep-otherwise the pillow you test without doing that will end up being too tall.

Also very important--make sure you test out a pillow on a bed that approximates the feel of the bed you have at home! What works on a super firm bed is going to be (usually) WAY too tall to get you into your neutral on a soft, plush bed.

I hope this helps. Good luck!
Sending prayers, Thanks for sharing about pillows I have arthritis everywhere, and I need a good pillow for
my neck,
Was this information helpful and did you find a pillow that you like yet?
Thanks for asking this question. Since I started with my treatment 3 weeks ago....my neck has been totally out of alignment. I think it went out of alignment when I turned to sleep on my side...and the mask put in in an unusual position. I went to a chiropractor for an adjustment.....but I'm wondering if a correct fitting pillow would help?
A good ole 100% down pillow is what has worked best for me. Simply because I can punch it into any postition I want for my head, my mask, whatever.

I tried the buckwheat hull pillow. Too hard and too NOISY for me! I tried the PAPillow, a bit too thick for me. I like something soft and "skinny". I love my down pillow and "beat up on it" as need for the position I'm in. One punch and it doesn't bother my mask at all. The "dent" is just right. Or, if I want I can punch up the end and let my mask hang over the end. Or punch a hollow in the end for my mask to lay into.
Pillows are like cpap masks -- what one loves another hates!!

I know hubby was home a few nights ago and stole my pillow for the night (he hadn't been home since I had switched pillows and he probably thought he was doing me a favor since it is on the small side) and I didn't sleep worth a hoot. I have a buckwheat pillow and love it. I have found that it has helped my neck and upper back (I have chronic back pain).
I personally am sticking to my guns that the Oxygen Pillow is the one to get.

Mary J said:
Thanks for asking this question. Since I started with my treatment 3 weeks ago....my neck has been totally out of alignment. I think it went out of alignment when I turned to sleep on my side...and the mask put in in an unusual position. I went to a chiropractor for an adjustment.....but I'm wondering if a correct fitting pillow would help?
So many people do get very attached to pillows--I always have customers who come in and tell me that their necks are killing them. Then the "probing" begins. Usually, when I ask people "okay, how are you sleeping?" the answer is "side and back." More often than not, when I ask about the pillow situation, the customer will tell me they sleep with feather pillows. (and usually, it's 2, and they're stacking to make TV watching easier, or reading).

Down pillows are very malleable, which is initially wonderful. The problem is that they do get flattened out as you change position. So you either wake up with an awfully sore neck from trying to sleep on your side with not enough lift to fill the area between the neck and bed, or you get knocked out of your sleep cycle to have to reposition and punch away at the pillow to make it fit right again. or BOTH!! I'm not sure which is worse.

Judy loves her down, because she can punch it into a good fit. I'm wondering how many times she wakes up each night to get the pillow to fit. I call it "The Never-ending Pillow Orchestration." That being said, if you love it and feel like it works for you, that's a beautiful thing!!

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