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ZolliStar replied to Fred's discussion CPAP - cure worse than the disease
"I'm wondering: what prompted you to consider whether you have sleep apnea in the first place? Also, waking throughout the night isn't uncommon especially as we (*sigh*) age.  I seem to every 90 minutes or so. This pattern probably…"
Jun 27
ZolliStar replied to ZolliStar's discussion New mouth device on the market
"You can try this website:  http://zyppah.com/ I have a MAD (mandibular advancement device). Dr. Steven Park evaluated my mouth and throat (not everyone can use a MAD, it turns out) and pronounced me a candidate for it. The truth?  I…"
Jun 27
Mary Z replied to ZolliStar's discussion New mouth device on the market
"The link didn't work so me so I couldn't see the product.  I do have experience with a supposedly reliable boil and bite device.  I should know by now I have a small mouth and nothing regular size fits.  I don't think…"
Jun 27
richard graham replied to ZolliStar's discussion New mouth device on the market
"If I thought something could work other than this lousy cpap that would be awesome"
May 22
richard graham posted a status
"I moved and have been sick a lot and can't use cpap because of cough and I'm depressed a lot"
Apr 26
Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13
Fred updated their profile
Apr 13
ZolliStar posted a discussion

New mouth device on the market

I've been hearing advertising for this product over the past few days.  It's sold as something to help snoring, but as I look at the information it seems to me that it would work just as well as my mandibular advancement device (MAD).In other words, this could help some of us with sleep apnea.Read about it here.Anybody have any thoughts about this?  See More
Mar 31
99 replied to Mary Z's discussion AHI finally under five.
"Hi Richard I mainly use an empty humidifier as it reduces noise"
Feb 16
richard graham left a comment for richard graham
"When I can afford it I'd like to get New machine with heated tube"
Feb 10
richard graham replied to Mary Z's discussion AHI finally under five.
"I would like to see this forum active again as well. I will be more aware of what's going on"
Feb 10
ZolliStar posted a discussion

If you have trouble falling asleep....

I thought that when I got my sleep apnea diagnosis, that -- at last! -- all my sleep problems had come to an end.Ha!I have trouble falling asleep. Indeed, I rarely feel sleepy at night although I do feel tired. I even cut back on computer at night, etc., etc. (and installed f.lux on my computer) but I still had trouble. Now I'm doing something different: wearing special glasses (Uvex S1933X Skyper Safety Eyewear glasses). They block out the blue -- and they're making a difference! First I tried…See More
Feb 1
99 replied to 99's discussion colloidal silver
"i have purchased some silver the make my own colloidal silver"
Dec 21, 2014
99 replied to 99's discussion colloidal silver
"just add to the distilled water it is antimicrobial eg cleans your machine and is beneficial for keeping you healthy  from bugs germs viruses you get the picture and when you need to clean the humidifier out, put water on your plants the silver…"
Dec 21, 2014
Mary Z left a comment for richard graham
"If the heated tube works with your machine I would try that.  They also make covers for your tubing which may help some.  I think the heated tube may be your answer.  Keep us posted."
Dec 21, 2014
Mary Z left a comment for richard graham
"Richard, some folks just use the humidifier in a Passover mode.  They just don't turn it on, but let the air pick up moisture without heat."
Dec 21, 2014
Mary Z replied to 99's discussion colloidal silver
"99, where have you been?  Do you add the colloidal silver to your humidifier?"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"I Andy, I realize I'm months behind your post.  I have no idea why your S8 would stoop collecting data.  I'm glad to hear  you're having such improvement with your apnea.  I have made great strides since I changed…"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S10 AirSense - Anyone have one? Any feedback?
"Andy, just found your post.  I don't know anything about this new machine.  How are you liking your new ResMed?"
Dec 21, 2014
Mary Z left a comment for Kay Day
"Kay, I haven't been around myself and miss the old, active forum."
Dec 21, 2014
I cannot find the perfect pillow to support my head, the mask & hose. I have several pillows,including a couple supposed to be intended for CPAP. Before I was diagnosed with Apnea, my favorite pillow was made of 100% down. I'd had it a couple of years and it nestled my head to perfection. I tried all three pillows last night nothing worked- I was very tired - we have a 2 1/2 week old grandbaby in intensive care - And I wanted comfort. .

I would appreciate knowing what type pillow has worked for others.
Ruth Rayceen

Views: 2255

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Heart goes out to you and all hopes for your little grandbaby. I like my oxygen pillow. It's supportive and very comfortable.
I will keep your grandbaby in my prayers. I hope he has a speedy recovery.

It seems pillows, like so many things with cpap, tend be an individual thing.

For the last several years, I have used a king size memory foam pillow. This is particular pillow is dense and cradles my neck without flattening. Loved that pillow and still have it.

A few weeks ago, I was in on a trial product that www.pur-sleep.com was introducing. It is the Regenisis pillow. It is a buckwheat hull pillow. Love that pillow and now use it full time.

I have not tried the pillow that Mike has recommended but it looks like it would be a great pillow as well.
i know the manufacturer of the oxygen pillow, and he really knows his stuff. i am going to try to get him to post some on here to give his perspectives on mattresses/pillows generally (and not just his products). He's really a sharp guy.

sleepycarol said:
I will keep your grandbaby in my prayers. I hope he has a speedy recovery.

It seems pillows, like so many things with cpap, tend be an individual thing.

For the last several years, I have used a king size memory foam pillow. This is particular pillow is dense and cradles my neck without flattening. Loved that pillow and still have it.

A few weeks ago, I was in on a trial product that www.pur-sleep.com was introducing. It is the Regenisis pillow. It is a buckwheat hull pillow. Love that pillow and now use it full time.

I have not tried the pillow that Mike has recommended but it looks like it would be a great pillow as well.
I sell the Oxygen Pillows in Dallas, and yes indeed. Pillows are just as important as the bed. As a general rule, the pillow should keep your head in a neutral alignment with your spinal column. To determine your neutral alignment, just stand up normally. Then take a look at the space between your chin and your chest--that's the same amount of space you need when sleeping on your back to get in maximum oxygen without putting undue stress on your neck.

I don't know how much side sleeping you're doing (or NOT doing!) but a properly fitting pillow would once again be able to keep that space nice and open without pitching your head up, or making it drop too far towards the bed. (and when testing for proper sizing, be sure to put your hands underneath the pillow if that's how you sleep-otherwise the pillow you test without doing that will end up being too tall.

Also very important--make sure you test out a pillow on a bed that approximates the feel of the bed you have at home! What works on a super firm bed is going to be (usually) WAY too tall to get you into your neutral on a soft, plush bed.

I hope this helps. Good luck!
Super helpful and informative post, April!

April Reeves said:
I sell the Oxygen Pillows in Dallas, and yes indeed. Pillows are just as important as the bed. As a general rule, the pillow should keep your head in a neutral alignment with your spinal column. To determine your neutral alignment, just stand up normally. Then take a look at the space between your chin and your chest--that's the same amount of space you need when sleeping on your back to get in maximum oxygen without putting undue stress on your neck.

I don't know how much side sleeping you're doing (or NOT doing!) but a properly fitting pillow would once again be able to keep that space nice and open without pitching your head up, or making it drop too far towards the bed. (and when testing for proper sizing, be sure to put your hands underneath the pillow if that's how you sleep-otherwise the pillow you test without doing that will end up being too tall.

Also very important--make sure you test out a pillow on a bed that approximates the feel of the bed you have at home! What works on a super firm bed is going to be (usually) WAY too tall to get you into your neutral on a soft, plush bed.

I hope this helps. Good luck!
Sending prayers, Thanks for sharing about pillows I have arthritis everywhere, and I need a good pillow for
my neck,
Was this information helpful and did you find a pillow that you like yet?
Thanks for asking this question. Since I started with my treatment 3 weeks ago....my neck has been totally out of alignment. I think it went out of alignment when I turned to sleep on my side...and the mask put in in an unusual position. I went to a chiropractor for an adjustment.....but I'm wondering if a correct fitting pillow would help?
A good ole 100% down pillow is what has worked best for me. Simply because I can punch it into any postition I want for my head, my mask, whatever.

I tried the buckwheat hull pillow. Too hard and too NOISY for me! I tried the PAPillow, a bit too thick for me. I like something soft and "skinny". I love my down pillow and "beat up on it" as need for the position I'm in. One punch and it doesn't bother my mask at all. The "dent" is just right. Or, if I want I can punch up the end and let my mask hang over the end. Or punch a hollow in the end for my mask to lay into.
Pillows are like cpap masks -- what one loves another hates!!

I know hubby was home a few nights ago and stole my pillow for the night (he hadn't been home since I had switched pillows and he probably thought he was doing me a favor since it is on the small side) and I didn't sleep worth a hoot. I have a buckwheat pillow and love it. I have found that it has helped my neck and upper back (I have chronic back pain).
I personally am sticking to my guns that the Oxygen Pillow is the one to get.

Mary J said:
Thanks for asking this question. Since I started with my treatment 3 weeks ago....my neck has been totally out of alignment. I think it went out of alignment when I turned to sleep on my side...and the mask put in in an unusual position. I went to a chiropractor for an adjustment.....but I'm wondering if a correct fitting pillow would help?
So many people do get very attached to pillows--I always have customers who come in and tell me that their necks are killing them. Then the "probing" begins. Usually, when I ask people "okay, how are you sleeping?" the answer is "side and back." More often than not, when I ask about the pillow situation, the customer will tell me they sleep with feather pillows. (and usually, it's 2, and they're stacking to make TV watching easier, or reading).

Down pillows are very malleable, which is initially wonderful. The problem is that they do get flattened out as you change position. So you either wake up with an awfully sore neck from trying to sleep on your side with not enough lift to fill the area between the neck and bed, or you get knocked out of your sleep cycle to have to reposition and punch away at the pillow to make it fit right again. or BOTH!! I'm not sure which is worse.

Judy loves her down, because she can punch it into a good fit. I'm wondering how many times she wakes up each night to get the pillow to fit. I call it "The Never-ending Pillow Orchestration." That being said, if you love it and feel like it works for you, that's a beautiful thing!!

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