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CPAP Supplies

Latest Activity

ZolliStar replied to Fred's discussion CPAP - cure worse than the disease
"I'm wondering: what prompted you to consider whether you have sleep apnea in the first place? Also, waking throughout the night isn't uncommon especially as we (*sigh*) age.  I seem to every 90 minutes or so. This pattern probably…"
Jun 27
ZolliStar replied to ZolliStar's discussion New mouth device on the market
"You can try this website:  http://zyppah.com/ I have a MAD (mandibular advancement device). Dr. Steven Park evaluated my mouth and throat (not everyone can use a MAD, it turns out) and pronounced me a candidate for it. The truth?  I…"
Jun 27
Mary Z replied to ZolliStar's discussion New mouth device on the market
"The link didn't work so me so I couldn't see the product.  I do have experience with a supposedly reliable boil and bite device.  I should know by now I have a small mouth and nothing regular size fits.  I don't think…"
Jun 27
richard graham replied to ZolliStar's discussion New mouth device on the market
"If I thought something could work other than this lousy cpap that would be awesome"
May 22
richard graham posted a status
"I moved and have been sick a lot and can't use cpap because of cough and I'm depressed a lot"
Apr 26
Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13
Fred updated their profile
Apr 13
ZolliStar posted a discussion

New mouth device on the market

I've been hearing advertising for this product over the past few days.  It's sold as something to help snoring, but as I look at the information it seems to me that it would work just as well as my mandibular advancement device (MAD).In other words, this could help some of us with sleep apnea.Read about it here.Anybody have any thoughts about this?  See More
Mar 31
99 replied to Mary Z's discussion AHI finally under five.
"Hi Richard I mainly use an empty humidifier as it reduces noise"
Feb 16
richard graham left a comment for richard graham
"When I can afford it I'd like to get New machine with heated tube"
Feb 10
richard graham replied to Mary Z's discussion AHI finally under five.
"I would like to see this forum active again as well. I will be more aware of what's going on"
Feb 10
ZolliStar posted a discussion

If you have trouble falling asleep....

I thought that when I got my sleep apnea diagnosis, that -- at last! -- all my sleep problems had come to an end.Ha!I have trouble falling asleep. Indeed, I rarely feel sleepy at night although I do feel tired. I even cut back on computer at night, etc., etc. (and installed f.lux on my computer) but I still had trouble. Now I'm doing something different: wearing special glasses (Uvex S1933X Skyper Safety Eyewear glasses). They block out the blue -- and they're making a difference! First I tried…See More
Feb 1
99 replied to 99's discussion colloidal silver
"i have purchased some silver the make my own colloidal silver"
Dec 21, 2014
99 replied to 99's discussion colloidal silver
"just add to the distilled water it is antimicrobial eg cleans your machine and is beneficial for keeping you healthy  from bugs germs viruses you get the picture and when you need to clean the humidifier out, put water on your plants the silver…"
Dec 21, 2014
Mary Z left a comment for richard graham
"If the heated tube works with your machine I would try that.  They also make covers for your tubing which may help some.  I think the heated tube may be your answer.  Keep us posted."
Dec 21, 2014
Mary Z left a comment for richard graham
"Richard, some folks just use the humidifier in a Passover mode.  They just don't turn it on, but let the air pick up moisture without heat."
Dec 21, 2014
Mary Z replied to 99's discussion colloidal silver
"99, where have you been?  Do you add the colloidal silver to your humidifier?"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"I Andy, I realize I'm months behind your post.  I have no idea why your S8 would stoop collecting data.  I'm glad to hear  you're having such improvement with your apnea.  I have made great strides since I changed…"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S10 AirSense - Anyone have one? Any feedback?
"Andy, just found your post.  I don't know anything about this new machine.  How are you liking your new ResMed?"
Dec 21, 2014
Mary Z left a comment for Kay Day
"Kay, I haven't been around myself and miss the old, active forum."
Dec 21, 2014

What To Expect From Your Local Durable Medical Equipment Provider

These are compliments of rjjayrt, a DME RRT who has been gracing cpaptalk's forum w/his patience and presence:

What To Expect From Your Local Durable Medical Equipment Provider

1. DME should explain to the patient what their insurance requirements will be.
2. Should discuss the cost schedule based on coding, and what the patient will be responsible for.
3. Should provide the patient with dispute resolution options.

What To Expect From Your Local Durable Medical Equipment Provider's Registered Respiratory Therapist

1. The RT should have a discussion with the patient concerning Diagnosis (make sure the patient understands what the diagnosis is), and treatment (explain what Cpap, bipap, fully data capable, auto titrating mean)
2. Discuss the available machine options. If the patient wants an auto titrating machine the RT should be agreeable to pursue with the physician the ability to do so.
3. Once a machine is decided on discuss and demonstrate all functions of the machine. Show the patient a demo download and explain what each value means.
4. Discuss with the patient their sleep habits, if they sleep on their back or stomach, if they're a mouth breather or nose breather. Find out if the patient is claustrophobic or not.
5. Based on #4 discuss the available mask possibilities, let the patient try the mask on while under pressure.
6. After a mask is decided upon, demonstrate proper donning and removal of mask.
7. Assuming you've discussed and demonstrated everything in a way the patient understands, you should be able to have the patient setup their machine, apply their mask, set their humidifier and start therapy. If the patient has problems or is hesitant repeat instruction until patient can complete the task from start to finish without error.
Before the patient leaves discuss known problems with cpap, discuss with them the problems they may have over the next few days or so and discuss with them ways to avoid the problems or ways in which to deal with the problems.
8. Ensure the patient understands accessory replacement schedule, cleaning procedures and most importantly has a way to get in touch with you if there's a problem.
9. Finally make a follow up schedule with the patient so downloads can be done to check progress. I suggest one at 1 week, at 1 month and again at 6 months.

And I would suggest printing these out and taking them to your next local apnea support group meeting!

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All of this would be great. None of this is what I got.
Pipe dream.
Judy you made me LOL I also have to deal with Apria what a joke. I have been on CPAP for 7 yrs. with no monitoring I finally requested a sleep study be done again. I use the CPAP because of breathing restriction from throat cancer. I have found out more just reading some of the discussion on this website then I have from my DME.

Judy said:
Well, it certainly does NOT speak well for the DME provider profession. And what is REALLY scarey is that Medicare/CMS and the health care reform movement is pushing for bidding for providers. Can you imagine all of us being victims of Apria as the lowest bidder???
I have kept my mouth shut since this was first posted for fear of reprisals, but the BS meter was continually going off with each visit to this posting.

When I read it, I had to step outside and do a reality check, once I figured out how to get off the ladder without falling into the pile of crap that this posting poured out.

The patient/customer who walked into the DME and received this treatment and service must have walked in waiving hundred dollar bills in the air.
It does sound like DreamLand, Dan Lyons, but take it up w/rjjayrt over at cpaptalk.com who insists he is a DME RRT.

HOWEVER, given the markup on xPAPs and accessories that local DME providers receive, even allowing for the expense of insurance paperwork and the necessary staff to complete it .... it is what EACH and EVERY xPAP patient SHOULD encounter from their local DME provider.
Judy said:
It does sound like DreamLand, Dan Lyons, but take it up w/rjjayrt over at cpaptalk.com who insists he is a DME RRT.

HOWEVER, given the markup on xPAPs and accessories that local DME providers receive, even allowing for the expense of insurance paperwork and the necessary staff to complete it .... it is what EACH and EVERY xPAP patient SHOULD encounter from their local DME provider.

Judy,
I so do agree with your statement that every patient should expect this type of treatment. I will also state that the greater majority of patient can only dream of this type of fantasy service.

It is such a shame that greed has become the standard of service in almost every industry. The only way that this will be changed is by forcibly making the industry comply with a set of standards.

I for one am not afraid of pursuing external measures against a "professional." Respect is a two way street.
Yeah, from the posts we read in the various apnea support forums, I reluctantly have to agree w/you, Dan Lyons. *sigh*
Does the patient have any responsibility? I would like to see a post, "The Patient's Responsibilities."
As the world of sleep medicine matures, hopefully all involved will become more informed and better able to provide the support needed. As it stands I am sure glad I was dxed in the early beginnings. We complain and gripe now, just think how horrid it was back then when little was known. For those brave souls, I salute them.

Unless the RT/DME reps have used some type of machine, mask I don't think they really have an understanding of it all. Not making excuses for them, but face it -- they don't have a clue as to the comfort of masks, the feeling of suffocation when the pressure is too low, the gale force winds of the higher pressures, etc. They have nothing to base how we feel as they have not experienced it.

It is like I have always said about male OB's. They can't know what it is like to give birth as they have never done it.

As far as patient responibilty, yes we should have some -- but when you are looking to the medical profession to guide you and it isn't forthcoming how is the patient going to learn what THEIR responsiblities are.
Banyon said:
Does the patient have any responsibility? I would like to see a post, "The Patient's Responsibilities."

Banyon,
We as patients and as human beings, through our upbringing, have been taught that "professionals" would not cheat, deceive or mislead a person intentionally. These “professionals” were supposed to be above questionability, and they made sure you knew it.

Our "responsibility" was to listen and pay attention to these "professionals" and to follow their directions and instructions.

The reality of the situation is, we now have to approach every situation we face in our life with total speculation and caution. That these "professionals", and every other person has but one goal in their life - THEMSELVES. If that involves cheating, lying or misleading, they will do it.

The desire for the almighty dollar has taken over their scruples. Not to stand on a soap box and preach, but this is clearing referenced in the Bible where greed is the sin.

We, as patients, don't realize the facts of the business world until after we have been victimized. What is even more revolting is the fact that we though of these folks as "professionals".
This is exactly what you should expect from a provider. If the provider does not know the anything about sleep they should not be providing service to a patient.
Sleep apnea is so much more improtant then anyone realizes.
Make sure you change companies if you are not receiving the services listed up above. Usually smaller companies go over and beyond and hire really good people. Look for a good therapist. It is your health and you deserve the best care. After all you pay for the services they are providing.
I won't get into Patient Responsibilities because I have a husband who still for some unknown reason blindly accepts and never questions his doctor. I don't understand that type of person and never will.

The majority of patients would never be able to stand up to my personal list of Patient Responsibilities and they/we would probably antagonize 95% of the medical profession.

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