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Latest Activity

ZolliStar replied to Dan Lyons's discussion CPAP & Dry Mouth
"Dan, Do you use a chin strap?  If you're a mouth breather, you may need a chin strap so that your mouth stays closed. It's important to keep it closed throughout the night for a lot of reasons -- mouth, dental, etc., etc. I've…"
Nov 24
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Wed 9  9 mg Thursday 10 missed  Friday 11 9mg have insomnia  going skip rest until insomnia goes away Just did maths had my five days"
Nov 11
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day after tomorrow I mean trump day wed 9 9mg "
Nov 9
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day two Monday 7 Nov 9mg very relaxed Day three Tuesday 8 Nov 9mg sniffles appears to have stopped  must reduce dose"
Nov 8
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Start treatment again  Nov 6 @ 2100 first day "
Nov 6
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day 5 not quite there must quit treetment for non and have at least a five day break But even so my health has improved "
Nov 1
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
" "
Nov 1
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day three not so good with osa  DAY four better but still not quite there "
Oct 31
99 replied to 99's discussion Five Day Cure
"Day one immediate improvement to OSA but had insomnia and slight constapation Day two flatulence greatly reduced muscle tighten "
Oct 29
99 posted a discussion

Five Day Cure

I believe I have found a cure that only take five days which I am trialing now It has many benificial side effects as well by reducing snoring to name onePM ME as I do not want mainstream media to find out and have it banned as I fear that is how it will goWill try again after a little breakIn addition will increase omega 3And thirdly a chiropractic to realign atlas bone in spine is just a passing thought See More
Oct 28
liz4cps commented on liz4cps's group Prince William Co, VA support group
"BluePoint Medical* holding their next Remedy event on June 4 with Terry Cralle, RN on "Sleep in the Mordern Family".  They will also be checking CPAP machines and providing breakfast. Click on link above for more…"
May 7
Dan Lyons posted a discussion

CPAP & Dry Mouth

In recent months, I have developed extreme dry mouth as a result of the CPAP.  I am a mouth breather when using CPAP.Recently, I saw an advertisement for the symptoms of dry mouth, but as usual, when I need the information to have a discussion with both my primary care  physician and my dentist I haven't seen the ad. Has anyone else seen the ad and can anyone remember the info in the ad?Thanks in advance,DanSee More
Mar 30
richard graham posted a status
"My deductible is double what a machine is online but I can't get the machine set up. Any ideas?"
Mar 10
BeeAsleep posted a status
"Hi all. I am just checking in and saying hi after being gone for a long time. I am doing GREAT! Just got a new machine and mask. Feel like I"
Jan 23
BeeAsleep updated their profile
Jan 23
99 replied to Fred's discussion CPAP - cure worse than the disease
"Do not turn light on as this hinder you from falling asleep or choose red light instead which do not afect your sleep"
Oct 27, 2015
99 left a comment for Joan Williams Rice
"Hi Joan visiting pelham and I have osa"
Oct 27, 2015
99 left a comment for martha crabtree
"Hi maths visiting pelham "
Oct 27, 2015
99 left a comment for Rhonda Harrison
"Hi Rhondda I am visiting pelham and have osa "
Oct 27, 2015
99 posted a discussion

Leaky gut

Do you have a leaky gutHow would you knowA telltale sign for leaky gut is Athletes footI wish to ask do you have or suffer from itThe reason I ask is maybe this is a common denominatorJust text yes or text noAnd if you are the first to text also keep a tallyExample38 yes 0 noYour input would alter the tally39 yes 0 noSo now I will input first1 yes. 0 noSee More
Sep 26, 2015

What To Expect From Your Local Durable Medical Equipment Provider

These are compliments of rjjayrt, a DME RRT who has been gracing cpaptalk's forum w/his patience and presence:

What To Expect From Your Local Durable Medical Equipment Provider

1. DME should explain to the patient what their insurance requirements will be.
2. Should discuss the cost schedule based on coding, and what the patient will be responsible for.
3. Should provide the patient with dispute resolution options.

What To Expect From Your Local Durable Medical Equipment Provider's Registered Respiratory Therapist

1. The RT should have a discussion with the patient concerning Diagnosis (make sure the patient understands what the diagnosis is), and treatment (explain what Cpap, bipap, fully data capable, auto titrating mean)
2. Discuss the available machine options. If the patient wants an auto titrating machine the RT should be agreeable to pursue with the physician the ability to do so.
3. Once a machine is decided on discuss and demonstrate all functions of the machine. Show the patient a demo download and explain what each value means.
4. Discuss with the patient their sleep habits, if they sleep on their back or stomach, if they're a mouth breather or nose breather. Find out if the patient is claustrophobic or not.
5. Based on #4 discuss the available mask possibilities, let the patient try the mask on while under pressure.
6. After a mask is decided upon, demonstrate proper donning and removal of mask.
7. Assuming you've discussed and demonstrated everything in a way the patient understands, you should be able to have the patient setup their machine, apply their mask, set their humidifier and start therapy. If the patient has problems or is hesitant repeat instruction until patient can complete the task from start to finish without error.
Before the patient leaves discuss known problems with cpap, discuss with them the problems they may have over the next few days or so and discuss with them ways to avoid the problems or ways in which to deal with the problems.
8. Ensure the patient understands accessory replacement schedule, cleaning procedures and most importantly has a way to get in touch with you if there's a problem.
9. Finally make a follow up schedule with the patient so downloads can be done to check progress. I suggest one at 1 week, at 1 month and again at 6 months.

And I would suggest printing these out and taking them to your next local apnea support group meeting!

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All of this would be great. None of this is what I got.
Pipe dream.
Judy you made me LOL I also have to deal with Apria what a joke. I have been on CPAP for 7 yrs. with no monitoring I finally requested a sleep study be done again. I use the CPAP because of breathing restriction from throat cancer. I have found out more just reading some of the discussion on this website then I have from my DME.

Judy said:
Well, it certainly does NOT speak well for the DME provider profession. And what is REALLY scarey is that Medicare/CMS and the health care reform movement is pushing for bidding for providers. Can you imagine all of us being victims of Apria as the lowest bidder???
I have kept my mouth shut since this was first posted for fear of reprisals, but the BS meter was continually going off with each visit to this posting.

When I read it, I had to step outside and do a reality check, once I figured out how to get off the ladder without falling into the pile of crap that this posting poured out.

The patient/customer who walked into the DME and received this treatment and service must have walked in waiving hundred dollar bills in the air.
It does sound like DreamLand, Dan Lyons, but take it up w/rjjayrt over at cpaptalk.com who insists he is a DME RRT.

HOWEVER, given the markup on xPAPs and accessories that local DME providers receive, even allowing for the expense of insurance paperwork and the necessary staff to complete it .... it is what EACH and EVERY xPAP patient SHOULD encounter from their local DME provider.
Judy said:
It does sound like DreamLand, Dan Lyons, but take it up w/rjjayrt over at cpaptalk.com who insists he is a DME RRT.

HOWEVER, given the markup on xPAPs and accessories that local DME providers receive, even allowing for the expense of insurance paperwork and the necessary staff to complete it .... it is what EACH and EVERY xPAP patient SHOULD encounter from their local DME provider.

Judy,
I so do agree with your statement that every patient should expect this type of treatment. I will also state that the greater majority of patient can only dream of this type of fantasy service.

It is such a shame that greed has become the standard of service in almost every industry. The only way that this will be changed is by forcibly making the industry comply with a set of standards.

I for one am not afraid of pursuing external measures against a "professional." Respect is a two way street.
Yeah, from the posts we read in the various apnea support forums, I reluctantly have to agree w/you, Dan Lyons. *sigh*
Does the patient have any responsibility? I would like to see a post, "The Patient's Responsibilities."
As the world of sleep medicine matures, hopefully all involved will become more informed and better able to provide the support needed. As it stands I am sure glad I was dxed in the early beginnings. We complain and gripe now, just think how horrid it was back then when little was known. For those brave souls, I salute them.

Unless the RT/DME reps have used some type of machine, mask I don't think they really have an understanding of it all. Not making excuses for them, but face it -- they don't have a clue as to the comfort of masks, the feeling of suffocation when the pressure is too low, the gale force winds of the higher pressures, etc. They have nothing to base how we feel as they have not experienced it.

It is like I have always said about male OB's. They can't know what it is like to give birth as they have never done it.

As far as patient responibilty, yes we should have some -- but when you are looking to the medical profession to guide you and it isn't forthcoming how is the patient going to learn what THEIR responsiblities are.
Banyon said:
Does the patient have any responsibility? I would like to see a post, "The Patient's Responsibilities."

Banyon,
We as patients and as human beings, through our upbringing, have been taught that "professionals" would not cheat, deceive or mislead a person intentionally. These “professionals” were supposed to be above questionability, and they made sure you knew it.

Our "responsibility" was to listen and pay attention to these "professionals" and to follow their directions and instructions.

The reality of the situation is, we now have to approach every situation we face in our life with total speculation and caution. That these "professionals", and every other person has but one goal in their life - THEMSELVES. If that involves cheating, lying or misleading, they will do it.

The desire for the almighty dollar has taken over their scruples. Not to stand on a soap box and preach, but this is clearing referenced in the Bible where greed is the sin.

We, as patients, don't realize the facts of the business world until after we have been victimized. What is even more revolting is the fact that we though of these folks as "professionals".
This is exactly what you should expect from a provider. If the provider does not know the anything about sleep they should not be providing service to a patient.
Sleep apnea is so much more improtant then anyone realizes.
Make sure you change companies if you are not receiving the services listed up above. Usually smaller companies go over and beyond and hire really good people. Look for a good therapist. It is your health and you deserve the best care. After all you pay for the services they are providing.
I won't get into Patient Responsibilities because I have a husband who still for some unknown reason blindly accepts and never questions his doctor. I don't understand that type of person and never will.

The majority of patients would never be able to stand up to my personal list of Patient Responsibilities and they/we would probably antagonize 95% of the medical profession.

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