"Thanks for this, Mary.
Worse comes to worse, I'll buy a used machine from Second Wind. First I'm going to see if I can get my doctor to prescribe one.
Maybe this is the final answer. Meanwhile, I'm surely happy to have…"
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Mary Z replied to ZolliStar's discussion What's the Right Machine?"Zollistar, I think the ASV is hands down the best machine. It took me four years to get hooked up. Because of lingering depression and continued day time sleepiness with a high AHI my doctor suggested a night in the lab with an…"
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"May I ask two dumb-dumb questions? What do "Dx" and "CSA" mean?
And here is a not-so-dumb-dumb question (I hope!): From your experience, do people sleep better using an ASV machine?
I look forward to your answer.
"
RockRpsgt replied to ZolliStar's discussion What's the Right Machine?"You will most likely not be able to get insurance approval for an ASV without a Dx of CSA. I think that saying that an ASV breathes with you is false. ASV does however provide a better breath support and algorithm for auto use. The newer ASV units…"
Mary Z replied to ZolliStar's discussion Beating Sleep Maintenance Insomnia"Zollistar, what a good idea! The music is nice and relaxing on some of them."
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"Thanks for this information Lisa. It really helps.
Anyone else?
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Lisa replied to ZolliStar's discussion What's the Right Machine?"Hi Zollistar, I much prefer using an Apap to a straight Cpap. I changed over a few years ago and found straight away that I had much less of a problem with leaks. Another thing that I have noticed is I used to have ongoing problems with my nose…"
Terry Vella replied to ZolliStar's discussion What's the Right Machine?"He's still going, a bit of a pain sometimes but that's life, thanks for asking."
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"This helps a lot, Terry! Thanks for letting me know.
How is your dog??
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Terry Vella replied to ZolliStar's discussion What's the Right Machine?"ZolliStar, I went straight to an auto so can't really compare but from what I have heard there are two major benefits, first, the comfort factor of not having the high pressure all night and second, it adjusts to what you require, so if you use…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"Ginny, they are probably not doing anything against the law- though it may seem like fraud to us it may be an accepted practice. I would rather change DME's. Have you talked to the manager. They don't want to lose your…"
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"It really burns me up that they are doing things like this. Monday I am going to lok up th eMedicare complaint number and give them an ear full.
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RockRpsgt replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"Companies like this will have to pay in the end. Medicare is taking no prisoners in their effort to reform medicare fraud."
RockRpsgt replied to Mary Z's discussion Symptoms"I had zero symptoms. I was testing equipment one night and fell asleep hooked up. When I woke up my doc said I had an AHI of 10 with 30 second events. I have been on PAP ever since."
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"I just use a large rubber band and safety pin to attach i tho the sheet. It doesn't exactly kink, but rather seems to have almost bends that don't quite ever go away. I have one that doesn't but all the others seem to.…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"My light weight tubing does not have a tendency to kink. It just hangs down from the stand and comes back up to the bed. I tried a hose hanger, but bought the cheaper travel model and it just wasn't up to the task."
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"I was really surprised when the congestion improved without the humidification. Yes, I use the lighter weight tubing too. Do you have trouble getting the bends and kinks out of them???? I have one favorite that is broken in and I hate…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"The reasoning behind changing the tubing is that it may develop small holes or tears which causing leakage. I am careful with my tubing and don't have any animals or children playing with the tubing. I don't feel like they have…"
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"I have ben using one of my cushions for 3 months now. I think I will just see how long I can actually use it without leaks before I replace it. I wonder if it is OK that I do not replace the tubing but about every 6 months???? I…"
Vitamins And Sleep
After twenty-five years of wearing a CPAP machine and a lifetime of struggling with sleep issues, I've learned a few things about sleep hygiene. One thing I am still tinkering with is vitamin consumption and how it affects the quality of my sleep. For most of my life I have been General Nutrition's best customer. If there is such a thing as a vitamin addict then that's what I am / was. At one time in my twenty's, I was popping upwards of forty types of vitamins a day. That's probably why my disco partying days didn't kill me back then. :) I was certainly burning up the dance floor as well as the proverbial candle at both ends. Funny - back then I was going to great lengths to stay awake all night so I could party. Now, I'm fighting for my life for a good night's sleep... My how times have changed!
But - the vitamin habit persisted throughout the years. I found a combination of three supplements that pretty much guaranteed me I was going to sleep for 14 solid hours. ( fourteen... that's NOT a typo )
2,000 units of vitamin C
2,000 units of Calcium
2 ea 500 mg aspirins.
Taken an hour or so after supper, I would sleep like a dead woman. Still don't understand why. This worked great until the day I took the two aspirin and went into shock - again. So, now I'm officially listed as allergic to aspirin, penicillin, and ibuprofen.
One other vitamin that affects my sleep is a B-vitamin complex tablet. This one, though, I had to take at noon to get the bulk of it out of my system before bedtime. Once again, if I took one, I could easily sleep for 10 straight hours. If taken in the evening, however, it will keep you up at night.
You guys on this sight have taught me more in the few weeks I have been registered here than my "lovely" sleep doctors have in 25 years. I hope sharing some of my experiences will help others just as much. Thank-you!
Kate
But - the vitamin habit persisted throughout the years. I found a combination of three supplements that pretty much guaranteed me I was going to sleep for 14 solid hours. ( fourteen... that's NOT a typo )
2,000 units of vitamin C
2,000 units of Calcium
2 ea 500 mg aspirins.
Taken an hour or so after supper, I would sleep like a dead woman. Still don't understand why. This worked great until the day I took the two aspirin and went into shock - again. So, now I'm officially listed as allergic to aspirin, penicillin, and ibuprofen.
One other vitamin that affects my sleep is a B-vitamin complex tablet. This one, though, I had to take at noon to get the bulk of it out of my system before bedtime. Once again, if I took one, I could easily sleep for 10 straight hours. If taken in the evening, however, it will keep you up at night.
You guys on this sight have taught me more in the few weeks I have been registered here than my "lovely" sleep doctors have in 25 years. I hope sharing some of my experiences will help others just as much. Thank-you!
Kate
Views: 662
Replies to This Discussion
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Permalink Reply by Kate on -
Check out some of the newest research on D3. It is fast becoming the wonder drug of the century. Because it is fat soluble, it accumulates in your system and high doses of calcium will aggravate that process to a toxic level. You never used to have to worry about taking a d3 supplement since vitamin D is always added to milk. Now they are starting to think it might have all kinds of benefits in higher doses. If you get those cheapie, clear plastic throw away cups, you can actually see the sediment. A little is perfectly normal. Weird test but I don't do doctors unless I'm dying. I'm a firm believer in educated self-reliance. And the key word here is "educated". I was bitten by a nasty spider once, right on the waistband of my jeans. I did a ton of research and discovered a way to heal myself. The wound looked like a brown recluse bite. The resulting hole left in my gut by the rotting tissue was pretty scary but - As long as I kept it clean and dry, I had just as good a chance at beating that mess as a very expensive trip to the doctor. And I did win. that was two years ago. The ONLY thing a Dr could have done for me that I could not do myself was the pain management. The whole ordeal was excruciating. but it's amazing what a good bottle of Black Velvet whiskey can do in that department. LOL
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Permalink Reply by ZolliStar on -
Black Velvet can handle more than pain management. It celebrates with you when you're glad, commiserates with you when you're sad, keeps you company when you read the paper or a book -- without interrupting you with its opinions and comments -- and it....
Oh, shucks! I don't want to think about it especially since I can't drink at this hour. The only thing Black Velvet doesn't do is shoo away sleep apnea if taken just before bedtime!
Kate said:Check out some of the newest research on D3. It is fast becoming the wonder drug of the century. Because it is fat soluble, it accumulates in your system and high doses of calcium will aggravate that process to a toxic level. You never used to have to worry about taking a d3 supplement since vitamin D is always added to milk. Now they are starting to think it might have all kinds of benefits in higher doses. If you get those cheapie, clear plastic throw away cups, you can actually see the sediment. A little is perfectly normal. Weird test but I don't do doctors unless I'm dying. I'm a firm believer in educated self-reliance. And the key word here is "educated". I was bitten by a nasty spider once, right on the waistband of my jeans. I did a ton of research and discovered a way to heal myself. The wound looked like a brown recluse bite. The resulting hole left in my gut by the rotting tissue was pretty scary but - As long as I kept it clean and dry, I had just as good a chance at beating that mess as a very expensive trip to the doctor. And I did win. that was two years ago. The ONLY thing a Dr could have done for me that I could not do myself was the pain management. The whole ordeal was excruciating. but it's amazing what a good bottle of Black Velvet whiskey can do in that department. LOL
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Permalink Reply by Kate on
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ROTFLMBO! You are SO right! It is my go-to medicinal for a number of things. And as smooth as it gets! Funny, it's the ONLY kind of alcohol that doesn't mess up my sleep. Think I'll have another! LOL
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Permalink Reply by ZolliStar on
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Black Velvet doesn't mess up your sleep? Maybe this single response is the repayment for all my hours on this site!
Kate said:ROTFLMBO! You are SO right! It is my go-to medicinal for a number of things. And as smooth as it gets! Funny, it's the ONLY kind of alcohol that doesn't mess up my sleep. Think I'll have another! LOL
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Permalink Reply by MZH on
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Well, FWIW, wine messes with my sleep and adds a bit of reflux sometimes, but gin and tonic doesn't. When I have nothing at all to drink at night it makes no different in my sleep quality either. I'm not sure about scotch since I don't have it very often.
Studying D3 and calcium is a research chore for today. I may be back asking you for a good link on that if I have no luck. I do take calcium but it can't be more than 1,000. I'm not a milk drinker or cheese eater so I'm not getting it from dairy.
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Permalink Reply by MZH on
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OK, I'm having trouble finding a link about the dangers of calcium and D3. Could you provide one?
I know my D levels are around 30 even when I take 2-4000 units a day and the usual amount of calcium supps (1000-1200 a day.) I've never had kidney stones, knock on wood it stays that way.
Do you think all D3 supps are bad even when one has a low D3 level? Incidentally, an endocrinologist had me taking 50,000 units of D2 *A DAY* for several months and my level finally got up to 70. I also felt much better. When I went back to normal levels of D2 or D3 it dropped right back to between 24 and 30 and my energy level dropped and never really came back. Long story short, everyone is different but I'd sure appreciate your posting a link to what you're saying. Maybe I'm doing something wrong.
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Permalink Reply by ZolliStar on
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An endocrinologist whom I saw because I thought there might be a hormonal basis to my constant wakings throughout the night -- like every other medical professional, he missed the real diagnosis of OSA -- noted one problem: very low Vitamin D level.
I'm mindful of that problem/risk. As such, I've been taking Vitamin D ever since, using this product: http://www.drhoffman.com/page.cfm/381
Hope this helps someone.
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Permalink Reply by Kate on
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I googled "vitamin D toxic calcium" and it turns up a whole host of articles. Check them out.
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Permalink Reply by Kate on
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http://www.google.com/url?sa=t&rct=j&q=hypercalcemia&so...
Here's one that seems pretty reliable linking too much calcium supplements with too much vitamin D supplements.
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Permalink Reply by ZolliStar on
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I contacted a nutritionist friend who really knows her stuff.
My friend is keenly interested in magnesium and believes most people are deficient in this mineral. She urged me to encourage all of you to visit www.mgwater.com and learn more about the mineral.
She is also keen on this book (which can be downloaded for free):
http://www.mgwater.com/rodtitle.shtml
My friend highly recommends this blog: http://drcarolyndean.com/
My nutritionist friend also urged me to read Dr. Dean's books on magnesium as well as other magnesium-related book. Several are listed on Dr. Dean's site: http://drcarolyndean.com/natural-health-books-by-dr-dean/
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Permalink Reply by ZolliStar on
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My friend the nutritionist just sent me this note: "If you want to know why I asked Perlmutter to mention magnesium in neurology, please see this free, recentebook,which is a compilation from scientists all over the world."
ZolliStar said:I contacted a nutritionist friend who really knows her stuff.
My friend is keenly interested in magnesium and believes most people are deficient in this mineral. She urged me to encourage all of you to visit www.mgwater.com and learn more about the mineral.
She is also keen on this book (which can be downloaded for free):
http://www.mgwater.com/rodtitle.shtml
My friend highly recommends this blog: http://drcarolyndean.com/
My nutritionist friend also urged me to read Dr. Dean's books on magnesium as well as other magnesium-related book. Several are listed on Dr. Dean's site: http://drcarolyndean.com/natural-health-books-by-dr-dean/
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