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Latest Activity

ZolliStar posted a discussion
Sunday
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14
richard graham replied to richard graham's discussion mouth breathing
"I still use humidity but less of it. It seems to be working OK.."
Jun 14
ZolliStar replied to richard graham's discussion mouth breathing
"I rarely use the humidifier. I think it's less necessary during the summer when there is humidity.   I also switch between my mouth device and the APAP.  I like each for different reasons. Not sure with which I sleep better, though.…"
May 21
Mary Z replied to richard graham's discussion sick again
"I've been doing well.  I think you were going to try the cpap without humidity- did that help at all?  I haven't had a cold for a couple of years."
May 14
Ginny Edmundson replied to richard graham's discussion sick again
"CPAP seems to cause stuffiness in many of us.  ANother reason I hate it so much!Do you rinse your nose with saline once a day…maybe before you go to bed for the night? "
May 5
richard graham replied to richard graham's discussion sick again
"I do wake up stuffed up most days"
May 5
richard graham replied to richard graham's discussion sick again
"I do have non allergic rhinitis. Now I'm thinking that's probably it because I only feel that way for a day or 2. Thank you"
May 4
Ginny Edmundson replied to richard graham's discussion sick again
"I have been lucky.  Not one cold past three years. Could some of your problem be allergies?"
May 4
richard graham posted a discussion

sick again

It seems like I am sick with colds more often when I'm on the CPAP. Anybody experience that.
Apr 30
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"As of now I no longer have to use a chin strap.  I am anxious about the sleep study.  Wondering if I will be able to sleep WITHOUT the CPAP….even thought I hate it it is a part of every night now and is what I am used to.  "
Apr 20
Clueless in Redwood Shores replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"I had it on the same outpatient basis.  Much pain, no long term gain.  I did not have the annual repetition - that might or might not have made the difference. "
Apr 20
Mary Z replied to richard graham's discussion mouth breathing
"glad to hear it, Richard.  Keep us posted."
Apr 13

I've been using a CPAP machine for sleep apnea for over a year now.  During that time, I've lost a lot of weight and there are times when I feel like I don't need the CPAP.  I've gone a few nights without it and actually feel better the next day.  I didn't snore those nights according to my husband.  My question here, does anyone know if you have ever been diagnosed with sleep apnea, do you always have it?  Do I need to continue to use the CPAP?  A friend of ours said that once you start using the CPAP you need to KEEP using it, forever.  We just recently moved out of state so I don't have a new doctor yet.  I will be seeing one next week so I'll ask that question and see if I should have another sleep test.  Just curious if anyone has had this experience themselves.

 

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That would be great if with the weight loss you no longer needed the machine.  I would contune to use it faithfully to have your most recent data available for the sleep doc when you go.  Only a sleep test will tell you for certain if you no longer need the machine.  I know I feel better because of the machine, but that doesn't mean I don't need it anymore- it means it's working.  Keep us posted.  It would be good to hear from someone who was able to come off CPAP because if weight loss.

I've been told by my GP that losing weight can help you become less dependent on CPAP therapy. But I agree with Mary, only a sleep study will tell you for sure if your loss was enough to shelf your machine.

If you've been on it for a short time, you might feel better when you sleep with out it because you've not gotten "the system" you need to get a good night sleep with CPAP. I had a friend with CPAP that took almost 2 years to really work out all her issues and get the best result with CPAP (took some mask changes, machine adjustments, moving the machine around, adding a nasal spray, working with the humidifier to keep from drying out, ect).

Good luck!

Thanks Jackie.   I figured as much, having another sleep study before making any changes with it.

 

Jackie said:

I've been told by my GP that losing weight can help you become less dependent on CPAP therapy. But I agree with Mary, only a sleep study will tell you for sure if your loss was enough to shelf your machine.

If you've been on it for a short time, you might feel better when you sleep with out it because you've not gotten "the system" you need to get a good night sleep with CPAP. I had a friend with CPAP that took almost 2 years to really work out all her issues and get the best result with CPAP (took some mask changes, machine adjustments, moving the machine around, adding a nasal spray, working with the humidifier to keep from drying out, ect).

Good luck!


Thanks, Mary, I see a new doctor on Tuesday and we'll say what he says.  Being a new patient, he may wait to do anything.  We'll see.


Mary Z said:

That would be great if with the weight loss you no longer needed the machine.  I would contune to use it faithfully to have your most recent data available for the sleep doc when you go.  Only a sleep test will tell you for certain if you no longer need the machine.  I know I feel better because of the machine, but that doesn't mean I don't need it anymore- it means it's working.  Keep us posted.  It would be good to hear from someone who was able to come off CPAP because if weight loss.

ask for a b12 mma urine test at the same time

urine not a blood test

What is the "mma?"  I am making a list for my appointment on Tueday.  Thanks for your reply.

i am not sure

try and google it

MMA (Methylmalonic Acid) tests

2 May 2011 – MMA (Methylmalonic Acid) tests are often mentioned when B12 (and homocysteine) is discussed. Some claim that MMA tests is a 'gold .

From what I read when I googled the test I wouldn't worry about it.

http://labtestsonline.org/understanding/analytes/mma/tab/test

Yeah, I heard the same spiel from my ENT.  However, it's slowly becoming apparent that having sleep apnea is what causes a person to gain weight in the first place.  

Jackie said:

I've been told by my GP that losing weight can help you become less dependent on CPAP therapy. But I agree with Mary, only a sleep study will tell you for sure if your loss was enough to shelf your machine.

If you've been on it for a short time, you might feel better when you sleep with out it because you've not gotten "the system" you need to get a good night sleep with CPAP. I had a friend with CPAP that took almost 2 years to really work out all her issues and get the best result with CPAP (took some mask changes, machine adjustments, moving the machine around, adding a nasal spray, working with the humidifier to keep from drying out, ect).

Good luck!

As a followup here; I did see my new doctor yesterday & he said in another month he would like to schedule a sleep study to see exactly where I stand with sleep apnea.  He also said that if one is using a CPAP or BIPAP and doesn't really need one, that it can cause lung damage.  The only way to test for it is by a sleep test. 

Kate,

I agree. It's a catch-22.  I do think that sleep apnea does contribute to weight gain. I remember being sooo tired before I got my CPAP that I could nod off anywhere. And I mean anywhere (noisy cafes, in the middle of conversations) and I could sleep through fire alarms. How can you have energy to execise when it's taking all of your will just get to the end of the day so you get home and crash on the sofa.

I read somewhere that Harvard did a study where they briefly woke up healthy college kids during sleep studies, not enough for them to even remember being woken but enough to cause a sleep disturbance - the next day they were tired, cranky and craved more high carb food.  I'll see if I can find it and link it. My sleep doc told me that not getting good quality sleep can mess with hormones, including those that control hunger and your sense of fullness.

Patricia - good luck on your next study!!

Kate said:

Yeah, I heard the same spiel from my ENT.  However, it's slowly becoming apparent that having sleep apnea is what causes a person to gain weight in the first place.  

Jackie said:

I've been told by my GP that losing weight can help you become less dependent on CPAP therapy. But I agree with Mary, only a sleep study will tell you for sure if your loss was enough to shelf your machine.

If you've been on it for a short time, you might feel better when you sleep with out it because you've not gotten "the system" you need to get a good night sleep with CPAP. I had a friend with CPAP that took almost 2 years to really work out all her issues and get the best result with CPAP (took some mask changes, machine adjustments, moving the machine around, adding a nasal spray, working with the humidifier to keep from drying out, ect).

Good luck!

Patricia, please keep us posted on what happens.  You will help a lot of people in the same situation.

Thanks

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