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Brendan Duffy posted a status
"How did you slhttp://blog.aastweb.org/winners-and-losers-food-for-thought-sleep-and-athletic-success?utm_campaign=subscribers&utm_source=hs_"
Jul 9
Pat Kniel updated their profile
Jul 7
ZolliStar replied to Fred's discussion CPAP - cure worse than the disease
"I'm wondering: what prompted you to consider whether you have sleep apnea in the first place? Also, waking throughout the night isn't uncommon especially as we (*sigh*) age.  I seem to every 90 minutes or so. This pattern probably…"
Jun 27
ZolliStar replied to ZolliStar's discussion New mouth device on the market
"You can try this website:  http://zyppah.com/ I have a MAD (mandibular advancement device). Dr. Steven Park evaluated my mouth and throat (not everyone can use a MAD, it turns out) and pronounced me a candidate for it. The truth?  I…"
Jun 27
Mary Z replied to ZolliStar's discussion New mouth device on the market
"The link didn't work so me so I couldn't see the product.  I do have experience with a supposedly reliable boil and bite device.  I should know by now I have a small mouth and nothing regular size fits.  I don't think…"
Jun 27
richard graham replied to ZolliStar's discussion New mouth device on the market
"If I thought something could work other than this lousy cpap that would be awesome"
May 22
richard graham posted a status
"I moved and have been sick a lot and can't use cpap because of cough and I'm depressed a lot"
Apr 26
Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13
Fred updated their profile
Apr 13
ZolliStar posted a discussion

New mouth device on the market

I've been hearing advertising for this product over the past few days.  It's sold as something to help snoring, but as I look at the information it seems to me that it would work just as well as my mandibular advancement device (MAD).In other words, this could help some of us with sleep apnea.Read about it here.Anybody have any thoughts about this?  See More
Mar 31
99 replied to Mary Z's discussion AHI finally under five.
"Hi Richard I mainly use an empty humidifier as it reduces noise"
Feb 16
richard graham left a comment for richard graham
"When I can afford it I'd like to get New machine with heated tube"
Feb 10
richard graham replied to Mary Z's discussion AHI finally under five.
"I would like to see this forum active again as well. I will be more aware of what's going on"
Feb 10
ZolliStar posted a discussion

If you have trouble falling asleep....

I thought that when I got my sleep apnea diagnosis, that -- at last! -- all my sleep problems had come to an end.Ha!I have trouble falling asleep. Indeed, I rarely feel sleepy at night although I do feel tired. I even cut back on computer at night, etc., etc. (and installed f.lux on my computer) but I still had trouble. Now I'm doing something different: wearing special glasses (Uvex S1933X Skyper Safety Eyewear glasses). They block out the blue -- and they're making a difference! First I tried…See More
Feb 1
99 replied to 99's discussion colloidal silver
"i have purchased some silver the make my own colloidal silver"
Dec 21, 2014
99 replied to 99's discussion colloidal silver
"just add to the distilled water it is antimicrobial eg cleans your machine and is beneficial for keeping you healthy  from bugs germs viruses you get the picture and when you need to clean the humidifier out, put water on your plants the silver…"
Dec 21, 2014
Mary Z left a comment for richard graham
"If the heated tube works with your machine I would try that.  They also make covers for your tubing which may help some.  I think the heated tube may be your answer.  Keep us posted."
Dec 21, 2014
Mary Z left a comment for richard graham
"Richard, some folks just use the humidifier in a Passover mode.  They just don't turn it on, but let the air pick up moisture without heat."
Dec 21, 2014
Mary Z replied to 99's discussion colloidal silver
"99, where have you been?  Do you add the colloidal silver to your humidifier?"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"I Andy, I realize I'm months behind your post.  I have no idea why your S8 would stoop collecting data.  I'm glad to hear  you're having such improvement with your apnea.  I have made great strides since I changed…"
Dec 21, 2014

I've been using a CPAP machine for sleep apnea for over a year now.  During that time, I've lost a lot of weight and there are times when I feel like I don't need the CPAP.  I've gone a few nights without it and actually feel better the next day.  I didn't snore those nights according to my husband.  My question here, does anyone know if you have ever been diagnosed with sleep apnea, do you always have it?  Do I need to continue to use the CPAP?  A friend of ours said that once you start using the CPAP you need to KEEP using it, forever.  We just recently moved out of state so I don't have a new doctor yet.  I will be seeing one next week so I'll ask that question and see if I should have another sleep test.  Just curious if anyone has had this experience themselves.

 

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That would be great if with the weight loss you no longer needed the machine.  I would contune to use it faithfully to have your most recent data available for the sleep doc when you go.  Only a sleep test will tell you for certain if you no longer need the machine.  I know I feel better because of the machine, but that doesn't mean I don't need it anymore- it means it's working.  Keep us posted.  It would be good to hear from someone who was able to come off CPAP because if weight loss.

I've been told by my GP that losing weight can help you become less dependent on CPAP therapy. But I agree with Mary, only a sleep study will tell you for sure if your loss was enough to shelf your machine.

If you've been on it for a short time, you might feel better when you sleep with out it because you've not gotten "the system" you need to get a good night sleep with CPAP. I had a friend with CPAP that took almost 2 years to really work out all her issues and get the best result with CPAP (took some mask changes, machine adjustments, moving the machine around, adding a nasal spray, working with the humidifier to keep from drying out, ect).

Good luck!

Thanks Jackie.   I figured as much, having another sleep study before making any changes with it.

 

Jackie said:

I've been told by my GP that losing weight can help you become less dependent on CPAP therapy. But I agree with Mary, only a sleep study will tell you for sure if your loss was enough to shelf your machine.

If you've been on it for a short time, you might feel better when you sleep with out it because you've not gotten "the system" you need to get a good night sleep with CPAP. I had a friend with CPAP that took almost 2 years to really work out all her issues and get the best result with CPAP (took some mask changes, machine adjustments, moving the machine around, adding a nasal spray, working with the humidifier to keep from drying out, ect).

Good luck!


Thanks, Mary, I see a new doctor on Tuesday and we'll say what he says.  Being a new patient, he may wait to do anything.  We'll see.


Mary Z said:

That would be great if with the weight loss you no longer needed the machine.  I would contune to use it faithfully to have your most recent data available for the sleep doc when you go.  Only a sleep test will tell you for certain if you no longer need the machine.  I know I feel better because of the machine, but that doesn't mean I don't need it anymore- it means it's working.  Keep us posted.  It would be good to hear from someone who was able to come off CPAP because if weight loss.

ask for a b12 mma urine test at the same time

urine not a blood test

What is the "mma?"  I am making a list for my appointment on Tueday.  Thanks for your reply.

i am not sure

try and google it

MMA (Methylmalonic Acid) tests

2 May 2011 – MMA (Methylmalonic Acid) tests are often mentioned when B12 (and homocysteine) is discussed. Some claim that MMA tests is a 'gold .

From what I read when I googled the test I wouldn't worry about it.

http://labtestsonline.org/understanding/analytes/mma/tab/test

Yeah, I heard the same spiel from my ENT.  However, it's slowly becoming apparent that having sleep apnea is what causes a person to gain weight in the first place.  

Jackie said:

I've been told by my GP that losing weight can help you become less dependent on CPAP therapy. But I agree with Mary, only a sleep study will tell you for sure if your loss was enough to shelf your machine.

If you've been on it for a short time, you might feel better when you sleep with out it because you've not gotten "the system" you need to get a good night sleep with CPAP. I had a friend with CPAP that took almost 2 years to really work out all her issues and get the best result with CPAP (took some mask changes, machine adjustments, moving the machine around, adding a nasal spray, working with the humidifier to keep from drying out, ect).

Good luck!

As a followup here; I did see my new doctor yesterday & he said in another month he would like to schedule a sleep study to see exactly where I stand with sleep apnea.  He also said that if one is using a CPAP or BIPAP and doesn't really need one, that it can cause lung damage.  The only way to test for it is by a sleep test. 

Kate,

I agree. It's a catch-22.  I do think that sleep apnea does contribute to weight gain. I remember being sooo tired before I got my CPAP that I could nod off anywhere. And I mean anywhere (noisy cafes, in the middle of conversations) and I could sleep through fire alarms. How can you have energy to execise when it's taking all of your will just get to the end of the day so you get home and crash on the sofa.

I read somewhere that Harvard did a study where they briefly woke up healthy college kids during sleep studies, not enough for them to even remember being woken but enough to cause a sleep disturbance - the next day they were tired, cranky and craved more high carb food.  I'll see if I can find it and link it. My sleep doc told me that not getting good quality sleep can mess with hormones, including those that control hunger and your sense of fullness.

Patricia - good luck on your next study!!

Kate said:

Yeah, I heard the same spiel from my ENT.  However, it's slowly becoming apparent that having sleep apnea is what causes a person to gain weight in the first place.  

Jackie said:

I've been told by my GP that losing weight can help you become less dependent on CPAP therapy. But I agree with Mary, only a sleep study will tell you for sure if your loss was enough to shelf your machine.

If you've been on it for a short time, you might feel better when you sleep with out it because you've not gotten "the system" you need to get a good night sleep with CPAP. I had a friend with CPAP that took almost 2 years to really work out all her issues and get the best result with CPAP (took some mask changes, machine adjustments, moving the machine around, adding a nasal spray, working with the humidifier to keep from drying out, ect).

Good luck!

Patricia, please keep us posted on what happens.  You will help a lot of people in the same situation.

Thanks

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