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Permalink Reply by Ernestine Webster on August 2, 2011 at 5:46pm

just wanted to let everyone know i returned the nasal pillow mask today and going back to the full mask, i knew if i kept the nasal mask i would not have the 94 % compliance rate the next doctor visit  unless things improved  bigtime. did not sleep much at all last night .did not go to sleep until after 4 am this morning and up at 7:30 am and this is a every night thing so knew i had to do something. i feel better about my decision and had hoped it would work out but you don't never know if you do not try.

thank everyone for your suggestions and encouragement.         

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Permalink Reply by Mary Z on August 3, 2011 at 8:49am

There have been discussions about this appliance and I believe it is mentioned in one going on now started by Mike last year.  There is even a picture of the appliance.  We have heard from several people that it worked for, but practioners are few and far between.  On the main page there is a search engine with lots of discussion, Please do check it out.

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Permalink Reply by Mary Z on August 3, 2011 at 8:56am

Hope the full mask works better for you.  I was just reading on another forum about a man lucky enough to be given a loaner machine by his hospital, but his compliance is nearly 0%.  He's scared their are going to take it away.  This is an extreme example, but it's important for our doctors and DMES to see we are serious about our therapy if we expect them to help us.  Of course if you are having problems with compliance due to the wrong mask something has to change.  Good luck, Ernestine

Ernestine Webster said:

just wanted to let everyone know i returned the nasal pillow mask today and going back to the full mask, i knew if i kept the nasal mask i would not have the 94 % compliance rate the next doctor visit...

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Permalink Reply by Ernestine Webster on August 3, 2011 at 9:49am

i did sleep very well last night , of course i did take a sleep aid before i went to bed which is Gabapentin 400 mg. it does not work every night but the new full mask is going to be shipped to me but i used the old full mask last night and kept it on ALL NIGHT LONG ! i did not get much needed sleep the night before. have been out of work for 1 1/2 years due to a layoff and am trying to find a job but in my area it is hard to find a decent paying job , the unemployment rate is real high. thought if i went back to work it may help me sleep alittle better plus help with my insurance and medical bills as far as insurance goes, have gone in the donut hole with medicare so i have to pay 100 % of my medication. 2 of my medications is over $220 a month each. not complaining and i know this is another subject but just venting .

thanks all  

      

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Permalink Reply by Mary Callahan on August 3, 2011 at 11:05am

If you have a Costco nearby, try using that for your RX. I priced my Ambien at CVS it would be $50, at Costco the same exact thing was only $12. You don't have to be a member, and it could surely help. YOu might even be able to do it online with mailing in your prescriptions. Worth a call.

Ernestine Webster said:

i did sleep very well last night , of course i did take a sleep aid before i went to bed which is Gabapentin 400 mg. it does not work every night but the new full mask is going to be shipped to me but i used the old full mask last night and kept it on ALL NIGHT LONG ! i did not get much needed sleep the night before. have been out of work for 1 1/2 years due to a layoff and am trying to find a job but in my area it is hard to find a decent paying job , the unemployment rate is real high. thought if i went back to work it may help me sleep alittle better plus help with my insurance and medical bills as far as insurance goes, have gone in the donut hole with medicare so i have to pay 100 % of my medication. 2 of my medications is over $220 a month each. not complaining and i know this is another subject but just venting .

thanks all  

 

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Permalink Reply by Jay Polatnick on August 3, 2011 at 11:59am

Thank You!

Mary Z said:

There have been discussions about this appliance and I believe it is mentioned in one going on now started by Mike last year.  There is even a picture of the appliance.  We have heard from several people that it worked for, but practioners are few and far between.  On the main page there is a search engine with lots of discussion, Please do check it out.

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Permalink Reply by Jay Polatnick on August 3, 2011 at 1:51pm

Every experiment with L-Theanine supplements 200mg derived from Green Tea ?  It has a calming effect on brainwaves.   Also, your cortisol levels might be 'upside' down due to diminished adrenal function.    Brainstorming for you.

Ernestine Webster said:

just wanted to let everyone know i returned the nasal pillow mask today and going back to the full mask, i knew if i kept the nasal mask i would not have the 94 % compliance rate the next doctor visit  unless things improved  bigtime. did not sleep much at all last night .did not go to sleep until after 4 am this morning and up at 7:30 am and this is a every night thing so knew i had to do something. i feel better about my decision and had hoped it would work out but you don't never know if you do not try.

thank everyone for your suggestions and encouragement.         

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Permalink Reply by Ernestine Webster on August 4, 2011 at 8:29am

thanks mary we are a member of sam's club but will check costco out with that , have to save wherever you can. am also going to check walmart out on certsins meds you can get generic meds chesper and am going to do some research on cost of meds.did sleep well last night , took my Gabapentin befoee going to bed and slept for 7 hours. oh how good that felt.

have a wonderful and blessed day  

Mary Callahan said:

If you have a Costco nearby, try using that for your RX. I priced my Ambien at CVS it would be $50, at Costco the same exact thing was only $12. You don't have to be a member, and it could surely help. YOu might even be able to do it online with mailing in your prescriptions. Worth a call.

Ernestine Webster said:

i did sleep very well last night , of course i did take a sleep aid before i went to bed which is Gabapentin 400 mg. it does not work every night but the new full mask is going to be shipped to me but i used the old full mask last night and kept it on ALL NIGHT LONG ! i did not get much needed sleep the night before. have been out of work for 1 1/2 years due to a layoff and am trying to find a job but in my area it is hard to find a decent paying job , the unemployment rate is real high. thought if i went back to work it may help me sleep alittle better plus help with my insurance and medical bills as far as insurance goes, have gone in the donut hole with medicare so i have to pay 100 % of my medication. 2 of my medications is over $220 a month each. not complaining and i know this is another subject but just venting .

thanks all  

 

• ▶ Reply

Permalink Reply by Mary Callahan on August 4, 2011 at 8:42am

Thanks, and glad to hear you had a good night's rest. Nothing like it in the world. Better than a vacation sometimes!

Ernestine Webster said:

thanks mary we are a member of sam's club but will check costco out with that , have to save wherever you can. am also going to check walmart out on certsins meds you can get generic meds chesper and am going to do some research on cost of meds.did sleep well last night , took my Gabapentin befoee going to bed and slept for 7 hours. oh how good that felt.

have a wonderful and blessed day  

Mary Callahan said:

If you have a Costco nearby, try using that for your RX. I priced my Ambien at CVS it would be $50, at Costco the same exact thing was 

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Permalink Reply by Matt Kesner on August 5, 2011 at 6:18pm

Try a Quietus Liner with your full face mask and experience cool comfort!

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Permalink Reply by Jay Polatnick on August 7, 2011 at 9:16pm

Experiencing some noted success with reducing mouth-breathing with use of a product I came across (www.ChinUpStrip.com)

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Permalink Reply by Mary Z on August 8, 2011 at 9:00am

Jay, thanks for the heads up about this product.

Jay Polatnick said:

Experiencing some noted success with reducing mouth-breathing with use of a product I came across (www.ChinUpStrip.com)

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