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CPAP Supplies

Latest Activity

richard graham replied to ZolliStar's discussion New mouth device on the market
"If I thought something could work other than this lousy cpap that would be awesome"
Friday
richard graham posted a status
"I moved and have been sick a lot and can't use cpap because of cough and I'm depressed a lot"
Apr 26
Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13
Fred updated their profile
Apr 13
ZolliStar posted a discussion

New mouth device on the market

I've been hearing advertising for this product over the past few days.  It's sold as something to help snoring, but as I look at the information it seems to me that it would work just as well as my mandibular advancement device (MAD).In other words, this could help some of us with sleep apnea.Read about it here.Anybody have any thoughts about this?  See More
Mar 31
99 replied to Mary Z's discussion AHI finally under five.
"Hi Richard I mainly use an empty humidifier as it reduces noise"
Feb 16
richard graham left a comment for richard graham
"When I can afford it I'd like to get New machine with heated tube"
Feb 10
richard graham replied to Mary Z's discussion AHI finally under five.
"I would like to see this forum active again as well. I will be more aware of what's going on"
Feb 10
ZolliStar posted a discussion

If you have trouble falling asleep....

I thought that when I got my sleep apnea diagnosis, that -- at last! -- all my sleep problems had come to an end.Ha!I have trouble falling asleep. Indeed, I rarely feel sleepy at night although I do feel tired. I even cut back on computer at night, etc., etc. (and installed f.lux on my computer) but I still had trouble. Now I'm doing something different: wearing special glasses (Uvex S1933X Skyper Safety Eyewear glasses). They block out the blue -- and they're making a difference! First I tried…See More
Feb 1
99 replied to 99's discussion colloidal silver
"i have purchased some silver the make my own colloidal silver"
Dec 21, 2014
99 replied to 99's discussion colloidal silver
"just add to the distilled water it is antimicrobial eg cleans your machine and is beneficial for keeping you healthy  from bugs germs viruses you get the picture and when you need to clean the humidifier out, put water on your plants the silver…"
Dec 21, 2014
Mary Z left a comment for richard graham
"If the heated tube works with your machine I would try that.  They also make covers for your tubing which may help some.  I think the heated tube may be your answer.  Keep us posted."
Dec 21, 2014
Mary Z left a comment for richard graham
"Richard, some folks just use the humidifier in a Passover mode.  They just don't turn it on, but let the air pick up moisture without heat."
Dec 21, 2014
Mary Z replied to 99's discussion colloidal silver
"99, where have you been?  Do you add the colloidal silver to your humidifier?"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"I Andy, I realize I'm months behind your post.  I have no idea why your S8 would stoop collecting data.  I'm glad to hear  you're having such improvement with your apnea.  I have made great strides since I changed…"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S10 AirSense - Anyone have one? Any feedback?
"Andy, just found your post.  I don't know anything about this new machine.  How are you liking your new ResMed?"
Dec 21, 2014
Mary Z left a comment for Kay Day
"Kay, I haven't been around myself and miss the old, active forum."
Dec 21, 2014
Mary Z left a comment for richard graham
"Hi Richard,  I don't bother with a humidifier.  Someone on the forum suggested not using it and I'm a lot less congested without it.  A good AHI is under 5.  I use the Wisp and have been since it came out.  I think…"
Dec 21, 2014
hifay replied to Mary Z's discussion Sleep apnea increases risk of osteoporosis
"Always something. Thanks for the information."
Dec 21, 2014
99 posted a discussion

colloidal silver

a humidifier can be used with colloidal silverthis can keep the humidifier clean for day maybe weeks or longer without the need to clean the humidifiersilver colloidal is antimicrobial and you could just top up your humidifier without cleaning and at the same time treat your bodyor you just put silver on it own into the humidifierSee More
Dec 20, 2014


Treatment of Last Resort



Folks  I was first diagnosed with Sleep Apnea in 2003.


Over the last 7 years I have had 7 sleep studies, seen 6 different sleep doctors, I used 6 different machines, including CPAP, BiPAP, BiFLEX and
AutoSV’s.



I also had the UPPP surgery early on in 2004, it  made things worse.


--Long sob story deleted --




In Oct 2009 I went in for Nasal Surgery, turbinate reduction and to fix a deviated septum. The ENT who did that surgery decided to keep me overnight in the Hospital even though this is
normally an outpatient procedure. He saved my life by doing this, the nurses
found that my heart rate was going down below 20. They held me over another
night to be sure the anesthesia was not doing it, same thing happened. Off to
the OR again for a pacemaker. The cardio guy said that the heart rate was a
direct result of uncontrolled sleep apnea.




The Nasal surgery was a Godsend, for the first time I could comfortably use the BiFLEX machine. This was one of Respirtonics “System One”
machines. I really thought I finally found an acceptable way to manage my Apnea,
but no,

like so many times before, we try something new, It works for awhile, but my AHI starts creeping up again right, now it is over 30.


Before the nasal surgery, I had the problem with mask leaks and comfort (compliance). But the pattern was still there, one
Sleep Study shows OSH only, the next study, shows mixed OSA, CSA, then back to OSH.



The last sleep study in May showed OSH, and “periodic breathing”. So he took away the System1 BiFLEX and gave me the new System1 AutoSV. Now he wants another sleep study.

He claims that this is necessary because Respironics will not say how the AHI is calculated (for another thread).


 My insurance company, United Health Care, has been so good to me and has covered a lot of
these expenses, but they will not approve another sleep study or a different
machine. But its not really a money thing, I can't keep doing the same things over and over and expect any different results.


So, the real reason for the thread – What is the treatment of last resort ?I asked if a tracheostomy would be the answer, he said no.


Thanks all .. I really could use some ideas ..


-Fred Stellabotte

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Replies to This Discussion

yes, tracheostomy is generally considered the treatment of last resort. it is 100% effective for OSA. in fact, it's often considered the only obstructive sleep apnea cure. some people also speak highly of MMA surgery, which restructures the facial anatomy/ jaw. but given a choice between the two, i'd personally go with the tracheostomy because it's more of a guarantee/ cure, less complicated surgery so less can go wrong, and is totally reversible in case something comes down the pike that gives us all a better treatment option than what exists now. keep in mind that neither MMA surgery nor tracheostomy will treat central sleep apnea.
What type of apnea do you have? OSA, CSA, or complex? A trach will cure OSA, but not CSA.
Rock Hinkle said:
What type of apnea do you have? OSA, CSA, or complex? A trach will cure OSA, but not CSA.
I have had 3 sleep studies in the 18 months .. the first 2 said I only had OSA .. The last study said that I had OSA and complex. This is not unusual for me .. of 10 year and almost as many sleep studies .. I diagnose flips back and forth.

I am thinking .. if I could get the OSA cured .. I would be a whole lot better .. But I can't get a doctor to consider it.
you should leave a comment for Mack Jones. He's a doctor who has had the tracheostemy himself and is a big advocate for it when all else fails. he's also in Florida, which is where i see you are. Although he himself wouldn't be the doctor to do it for you, i'm sure he'd be able to recommend someone near you who would.

Fred J. Stellabotte said:
I have had 3 sleep studies in the 18 months .. the first 2 said I only had OSA .. The last study said that I had OSA and complex. This is not unusual for me .. of 10 year and almost as many sleep studies .. I diagnose flips back and forth.

I am thinking .. if I could get the OSA cured .. I would be a whole lot better .. But I can't get a doctor to consider it.
I responded to your other thread and now see where you have some mixed and conflicting reports from previous sleep studies.

If Dr. Jones sees your post maybe he will give you some input that may help in your situtation.

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