Treatment of Last Resort
Folks I was first diagnosed with Sleep Apnea in 2003.
Over the last 7 years I have had 7 sleep studies, seen 6 different sleep doctors, I used 6 different machines, including CPAP, BiPAP, BiFLEX and
I also had the UPPP surgery early on in 2004, it made things worse.
--Long sob story deleted --
In Oct 2009 I went in for Nasal Surgery, turbinate reduction and to fix a deviated septum. The ENT who did that
surgery decided to keep me overnight in the Hospital even though this is
normally an outpatient procedure. He saved my life by doing this, the nurses
found that my heart rate was going down below 20. They held me over another
night to be sure the anesthesia was not doing it, same thing happened. Off to
the OR again for a pacemaker. The cardio guy said that the heart rate was a
direct result of uncontrolled sleep apnea.
The Nasal surgery was a Godsend, for the first time I could comfortably use the BiFLEX machine. This was one of Respirtonics “System One”
machines. I really thought I finally found an acceptable way to manage my Apnea,
like so many times before, we try something new, It works for awhile, but my AHI starts creeping up again right, now it is over 30.
Before the nasal surgery, I had the problem with mask leaks and comfort (compliance). But the pattern was still there, one
Sleep Study shows OSH only, the next study, shows mixed OSA, CSA, then back to OSH.
The last sleep study in May showed OSH, and “periodic breathing”. So he took away the System1 BiFLEX and gave me the new System1 AutoSV. Now he wants another sleep study.
He claims that this is necessary because Respironics will not say how the AHI is calculated (for another thread).
My insurance company, United Health Care, has been so good to me and has covered a lot of
these expenses, but they will not approve another sleep study or a different
machine. But its not really a money thing, I can't keep doing the same things over and over and expect any different results.
So, the real reason for the thread – What is the treatment of last resort ?I asked if a tracheostomy would be the answer, he said no.
Thanks all .. I really could use some ideas ..
What type of apnea do you have? OSA, CSA, or complex? A trach will cure OSA, but not CSA.
I have had 3 sleep studies in the 18 months .. the first 2 said I only had OSA .. The last study said that I had OSA and complex. This is not unusual for me .. of 10 year and almost as many sleep studies .. I diagnose flips back and forth.
I am thinking .. if I could get the OSA cured .. I would be a whole lot better .. But I can't get a doctor to consider it.