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Mary Z replied to ZolliStar's discussion Non-invasion approach that can relieve mild sleep apnea
"Hi ZolliStar, I've heard before that speech therapy, or singing lessons can help sleep apnea.  The problem at that time was there was no way to determine which exercises help.  Getting research done, rather than anecdotal would be…"
Jul 28
ZolliStar posted a discussion

Non-invasion approach that can relieve mild sleep apnea

Some people report that singing -- singing! -- really helps their sleep apnea. Dr. Stephen Park said that myology (which are exercises to strengthen muscles around the inside of one's mouth area) helps some. I think singing would be better.  If you read all the FAQs on this (click below), I think you'll agree that it makes sense for some. Maybe you.http://www.singingforsnorers.com/index.htmSee More
Jul 28
ZolliStar posted a discussion
Jul 20
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14
richard graham replied to richard graham's discussion mouth breathing
"I still use humidity but less of it. It seems to be working OK.."
Jun 14
ZolliStar replied to richard graham's discussion mouth breathing
"I rarely use the humidifier. I think it's less necessary during the summer when there is humidity.   I also switch between my mouth device and the APAP.  I like each for different reasons. Not sure with which I sleep better, though.…"
May 21
Mary Z replied to richard graham's discussion sick again
"I've been doing well.  I think you were going to try the cpap without humidity- did that help at all?  I haven't had a cold for a couple of years."
May 14
Ginny Edmundson replied to richard graham's discussion sick again
"CPAP seems to cause stuffiness in many of us.  ANother reason I hate it so much!Do you rinse your nose with saline once a day…maybe before you go to bed for the night? "
May 5
richard graham replied to richard graham's discussion sick again
"I do wake up stuffed up most days"
May 5
richard graham replied to richard graham's discussion sick again
"I do have non allergic rhinitis. Now I'm thinking that's probably it because I only feel that way for a day or 2. Thank you"
May 4
Ginny Edmundson replied to richard graham's discussion sick again
"I have been lucky.  Not one cold past three years. Could some of your problem be allergies?"
May 4
richard graham posted a discussion

sick again

It seems like I am sick with colds more often when I'm on the CPAP. Anybody experience that.
Apr 30
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"As of now I no longer have to use a chin strap.  I am anxious about the sleep study.  Wondering if I will be able to sleep WITHOUT the CPAP….even thought I hate it it is a part of every night now and is what I am used to.  "
Apr 20
Ugh, so have a cold and have not been able to sleep w/ my c-pap for about four nights (I've been a faithful user of my machine for about 1.5 years). Last night, I had my second lifetime (at least in my memory) occurrence of waking up biting my tongue VERY hard. It was painful/scary. The first time this happened, I thought it was odd but didn't make much of it. This time, I wonder if it's something related to the apnea. Super frightening. Any ideas?

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Never heard of that before, but maybe in it's fight to wake you to breathe your body just had your teeth bite down on your tongue. I mean maybe it was just part of that arousal reflex when we're not breathing. It does hurt. Your body was freaking out from lask of oxygen.
could it be possible that you had a nocturnal seizure triggered by low oxygen levels and/or poor sleep? I
have known that I have had mild seizures for 20 years or so, but I have only been diagnosed with sleep apnea
for six months. Through at least the last 10 years I had felt like I was having some sort of seizure or something
once a month or so. Finally after biting my tongue for the first time (had bit my cheek many times) My doctor
sent me for the sleep test. I remember the technologist coming in and waking me and asking me if I knew
where I was and if I was alright. I had assumed that I had a seizure since she did that. Most of the time I
don't feel any after effects of the seizure unless I have bit something or an occasional bad taste for 24-48 hours.
When I went back to see the doctor he said there wasn't any sign of a seizure that night, but my oxygen
level had dropped to "around 50 percent." From what I have read there seems to be enough growing evidence
that seizures can be triggered from sleep apnea when the oxygen level drops significantly. Some people do
suffer exclusively from nocturnal seizures. Hope you are able to get some answers.
Sorry to see about your tongue biting. I'm not a MD, just a sleep tech. Just wondering if perhaps you're a diabetic and your potassium levels are off a bit?
Thanks everybody. I started poking around online a bit and it certainly sounds like what Joe mentions. Really not thrilled about this. I've scheduled follow ups with my doctor, we'll see. I do so appreciate the help!!!
Dear Sleepy Em: I have been diagnosed with OSA and have been on CPAP for about 6 wks. Over the past couple of years I have had many episodes of tongue biting. I grind my teeth at night when sleeping (Bruxism) and my dentist had provided a device to help me stop. It worked very well and I used it for a few years. Occasionally I would nap without it and noted that I would wake suddenly due to very sharp pain from biting the sides of my tongue. (similar to your experience, the pain is very bad - brings tears to your eyes and stays sore for many hours). If I don't wear the device now, I sometimes awaken from biting other parts of the tongue - including the tip. Won't go into the details, but I was recently having dental work and was not able to bite properly. Got mad at my dentist b/c he kept saying the crown was fine....but it wasn't. After refusal on my part for him to grind down any of my other teeth in order to make the crown fit, he finally referred me to a "bite specialist". The bite specialist has been great - he explained that misalignment of my jaw due to muscle problems has contributed to the grinding. For some reason the tongue tries to cushion the teeth from grinding and that is one of the reasons for the tongue biting. This is a long story, but the bottom line is that bruxism is very common and it is also pretty tightly correlated with sleep disorders. Unfortunately the bite specialist told me that so far correcting the sleep disorders does not necessarily correct the bruxism. He said that there has recently been a lot of renewed interest in this and that there is a lot of research underway to understand the reasons for bruxism and also the connection to obstructive sleep apnea. On a related note - If you do find that you have bruxism (your dentist can probably tell you) and you get a night grinding device - make sure that they give you one that covers several teeth (not just 2 front teeth) so that the pressure is spread and you don't end up breaking teeth due to the grinding device. Don't know if this is the cause of your tongue biting, but I read your post and thought it would be helpful to share what I've learned. Hope this helps.
Wow, thanks so much Mary. This is really interesting and sounds very similar to what's happening to me. I appreciate the help!!!

Mary Smith said:
Dear Sleepy Em: I have been diagnosed with OSA and have been on CPAP for about 6 wks. Over the past couple of years I have had many episodes of tongue biting. I grind my teeth at night when sleeping (Bruxism) and my dentist had provided a device to help me stop. It worked very well and I used it for a few years. Occasionally I would nap without it and noted that I would wake suddenly due to very sharp pain from biting the sides of my tongue. (similar to your experience, the pain is very bad - brings tears to your eyes and stays sore for many hours). If I don't wear the device now, I sometimes awaken from biting other parts of the tongue - including the tip. Won't go into the details, but I was recently having dental work and was not able to bite properly. Got mad at my dentist b/c he kept saying the crown was fine....but it wasn't. After refusal on my part for him to grind down any of my other teeth in order to make the crown fit, he finally referred me to a "bite specialist". The bite specialist has been great - he explained that misalignment of my jaw due to muscle problems has contributed to the grinding. For some reason the tongue tries to cushion the teeth from grinding and that is one of the reasons for the tongue biting. This is a long story, but the bottom line is that bruxism is very common and it is also pretty tightly correlated with sleep disorders. Unfortunately the bite specialist told me that so far correcting the sleep disorders does not necessarily correct the bruxism. He said that there has recently been a lot of renewed interest in this and that there is a lot of research underway to understand the reasons for bruxism and also the connection to obstructive sleep apnea. On a related note - If you do find that you have bruxism (your dentist can probably tell you) and you get a night grinding device - make sure that they give you one that covers several teeth (not just 2 front teeth) so that the pressure is spread and you don't end up breaking teeth due to the grinding device. Don't know if this is the cause of your tongue biting, but I read your post and thought it would be helpful to share what I've learned. Hope this helps.
Mary- My wife had big problems with her bite also, it was after she had 2 crowns replaced, one on each side. She was told it would get better, but she went to another dentist who said it's not recommended to do 2 crowns at the same time, especially on opposite sides. He did say it's BAD to start grinding the other teeth down, and one crown was done wrong & needed replacing. She had discomfort after one crown, but the new dentist told her the bit is good, not to worry. They use that blue paper, over & over, they can tell if it's perfect or not , and I remember distinctly, it took about 2 months for her mouth to adjust and was fine but that's a pain of an adjustment period.


Mary Smith said:
Dear Sleepy Em: I have been diagnosed with OSA and have been on CPAP for about 6 wks. Over the past couple of years I have had many episodes of tongue biting. I grind my teeth at night when sleeping (Bruxism) and my dentist had provided a device to help me stop. It worked very well and I used it for a few years. Occasionally I would nap without it and noted that I would wake suddenly due to very sharp pain from biting the sides of my tongue. (similar to your experience, the pain is very bad - brings tears to your eyes and stays sore for many hours). If I don't wear the device now, I sometimes awaken from biting other parts of the tongue - including the tip. Won't go into the details, but I was recently having dental work and was not able to bite properly. Got mad at my dentist b/c he kept saying the crown was fine....but it wasn't. After refusal on my part for him to grind down any of my other teeth in order to make the crown fit, he finally referred me to a "bite specialist". The bite specialist has been great - he explained that misalignment of my jaw due to muscle problems has contributed to the grinding. For some reason the tongue tries to cushion the teeth from grinding and that is one of the reasons for the tongue biting. This is a long story, but the bottom line is that bruxism is very common and it is also pretty tightly correlated with sleep disorders. Unfortunately the bite specialist told me that so far correcting the sleep disorders does not necessarily correct the bruxism. He said that there has recently been a lot of renewed interest in this and that there is a lot of research underway to understand the reasons for bruxism and also the connection to obstructive sleep apnea. On a related note - If you do find that you have bruxism (your dentist can probably tell you) and you get a night grinding device - make sure that they give you one that covers several teeth (not just 2 front teeth) so that the pressure is spread and you don't end up breaking teeth due to the grinding device. Don't know if this is the cause of your tongue biting, but I read your post and thought it would be helpful to share what I've learned. Hope this helps.
Thanks for sharing, Gordon. It's too bad that we have to find out the hard way on some of these experiences - that's why it's important to compare notes. I've had to get several crowns over the years & am now being told that a lot of my dental problems have been due to the bruxism. My regular dentist frequently referred to the fact that I'm a "grinder" and prescribed the grinding device but didn't refer me to anyone else until this recent experience. I wish I would have known to go to someone like a "bite specialist" sooner. There is supposed to be some better device to help protect the teeth - I will be getting that in a few weeks & will let you know. Again, the reason I especially mention it is b/c of the original post here on tongue biting, but also because of the strong link between obstructive sleep apnea and bruxism.

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