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John Threevolta updated their profile
Aug 24
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"hi rock how are you"
Aug 10
RockRpsgt replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Hello, 99"
Aug 10
Maggie Buehler updated their profile
Apr 18
ZolliStar replied to Dan Lyons's discussion CPAP & Dry Mouth
"Dan, Do you use a chin strap?  If you're a mouth breather, you may need a chin strap so that your mouth stays closed. It's important to keep it closed throughout the night for a lot of reasons -- mouth, dental, etc., etc. I've…"
Nov 24, 2016
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Wed 9  9 mg Thursday 10 missed  Friday 11 9mg have insomnia  going skip rest until insomnia goes away Just did maths had my five days"
Nov 11, 2016
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day after tomorrow I mean trump day wed 9 9mg "
Nov 9, 2016
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day two Monday 7 Nov 9mg very relaxed Day three Tuesday 8 Nov 9mg sniffles appears to have stopped  must reduce dose"
Nov 8, 2016
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Start treatment again  Nov 6 @ 2100 first day"
Nov 6, 2016
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day 5 not quite there must quit treetment for non and have at least a five day break But even so my health has improved "
Nov 1, 2016
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
Nov 1, 2016
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day three not so good with osa  DAY four better but still not quite there "
Oct 31, 2016
99 replied to 99's discussion Five Day Cure
"Day one immediate improvement to OSA but had insomnia and slight constapation Day two flatulence greatly reduced muscle tighten"
Oct 29, 2016
99 posted a discussion

Five Day Cure

I believe I have found a cure that only take five days which I am trialing now It has many benificial side effects as well by reducing snoring to name onePM ME as I do not want mainstream media to find out and have it banned as I fear that is how it will goWill try again after a little breakIn addition will increase omega 3And thirdly a chiropractic to realign atlas bone in spine is just a passing thought See More
Oct 28, 2016
liz4cps commented on liz4cps's group Prince William Co, VA support group
"BluePoint Medical* holding their next Remedy event on June 4 with Terry Cralle, RN on "Sleep in the Mordern Family".  They will also be checking CPAP machines and providing breakfast. Click on link above for more…"
May 7, 2016
Dan Lyons posted a discussion

CPAP & Dry Mouth

In recent months, I have developed extreme dry mouth as a result of the CPAP.  I am a mouth breather when using CPAP.Recently, I saw an advertisement for the symptoms of dry mouth, but as usual, when I need the information to have a discussion with both my primary care  physician and my dentist I haven't seen the ad. Has anyone else seen the ad and can anyone remember the info in the ad?Thanks in advance,DanSee More
Mar 30, 2016
richard graham posted a status
"My deductible is double what a machine is online but I can't get the machine set up. Any ideas?"
Mar 10, 2016
BeeAsleep posted a status
"Hi all. I am just checking in and saying hi after being gone for a long time. I am doing GREAT! Just got a new machine and mask. Feel like I"
Jan 23, 2016
BeeAsleep updated their profile
Jan 23, 2016
99 replied to Fred's discussion CPAP - cure worse than the disease
"Do not turn light on as this hinder you from falling asleep or choose red light instead which do not afect your sleep"
Oct 27, 2015

I said some things about the patient's perspective on OSA diagnosis, treatment and follow-up that were controversial to my audience of sleep technologists and respiratory therapists seeking the new Clinical Sleep Educator credential.  Starting this thread to invite anyone to comment, positive or negative on what I said and your reaction to it.

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HI Mike ,

               Did you talk about patients knowing their numbers??? Good Sleep,Chris

I was at the Clinical Sleep Educator at Focus, and I found your presentation to be very informative and enjoyable.  I think alot of times physicians (and some techs as well) think they know what is best for the patient and do not see the patient as an individual, but rather as a classification of people  (which I feel is the way you were initially stereotyped).  Hopefully, your presentation has opened some eyes!!!!

 

What did you say? Will you be in Vegas? I will.

Thanks! Chris and Rock, I spoke about my personal "journey" with Sleep Apnea, meaning how I was able to become fully "compliant" and achieve success despite coming into a medical system where the odds were stacked against me.  It's an important story given how many people have OSA, but how few are actually doing something about it, let alone having successful outcomes.

Robin Rohlfing RPSGT said:

I was at the Clinical Sleep Educator at Focus, and I found your presentation to be very informative and enjoyable.  I think alot of times physicians (and some techs as well) think they know what is best for the patient and do not see the patient as an individual, but rather as a classification of people  (which I feel is the way you were initially stereotyped).  Hopefully, your presentation has opened some eyes!!!!

 

Mike can you post a little more about what the techs found controversial?  It is a shame that more techs/DME's/doctors seem to ignore the patient and how their treatment affects them 

 

I'd be interested in hearing more about what you said, Mike.  If you pointed out the dismal figures on compliance and  lay the blame at their feet where it belongs, I imagine they would  find your comments controversial.  The medical community should be giving much more support to CPAP users.  In fact I think each sleep doctor's office should have a person, even part time, who would check in weekly with new users and help them with problems.  The tech who did my sleep study feels the information on these forums is dangerous because we teach people to take control of their therapy.  Well, if someone from the office was available to us to deal with problems in the beginning I don't believe as many machines would end up in the closet.  He's  not available to me to deal with problems, I have to make an appointment with the doctor.  When you do call the DME for help with mask fitting  from what I hear they are not very helpful.  I was lucky to have a great RT.  My doctor is surprised by my 100% compliance which is mostly due to the support from this forum.There are so many things a layperson could do to help make therapy more comfortable- dealing with ramp and flex for more comfort are two.

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