"Thanks for this, Mary.
Worse comes to worse, I'll buy a used machine from Second Wind. First I'm going to see if I can get my doctor to prescribe one.
Maybe this is the final answer. Meanwhile, I'm surely happy to have…"
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Mary Z replied to ZolliStar's discussion What's the Right Machine?"Zollistar, I think the ASV is hands down the best machine. It took me four years to get hooked up. Because of lingering depression and continued day time sleepiness with a high AHI my doctor suggested a night in the lab with an…"
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"May I ask two dumb-dumb questions? What do "Dx" and "CSA" mean?
And here is a not-so-dumb-dumb question (I hope!): From your experience, do people sleep better using an ASV machine?
I look forward to your answer.
"
RockRpsgt replied to ZolliStar's discussion What's the Right Machine?"You will most likely not be able to get insurance approval for an ASV without a Dx of CSA. I think that saying that an ASV breathes with you is false. ASV does however provide a better breath support and algorithm for auto use. The newer ASV units…"
Mary Z replied to ZolliStar's discussion Beating Sleep Maintenance Insomnia"Zollistar, what a good idea! The music is nice and relaxing on some of them."
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"Thanks for this information Lisa. It really helps.
Anyone else?
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Lisa replied to ZolliStar's discussion What's the Right Machine?"Hi Zollistar, I much prefer using an Apap to a straight Cpap. I changed over a few years ago and found straight away that I had much less of a problem with leaks. Another thing that I have noticed is I used to have ongoing problems with my nose…"
Terry Vella replied to ZolliStar's discussion What's the Right Machine?"He's still going, a bit of a pain sometimes but that's life, thanks for asking."
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"This helps a lot, Terry! Thanks for letting me know.
How is your dog??
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Terry Vella replied to ZolliStar's discussion What's the Right Machine?"ZolliStar, I went straight to an auto so can't really compare but from what I have heard there are two major benefits, first, the comfort factor of not having the high pressure all night and second, it adjusts to what you require, so if you use…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"Ginny, they are probably not doing anything against the law- though it may seem like fraud to us it may be an accepted practice. I would rather change DME's. Have you talked to the manager. They don't want to lose your…"
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"It really burns me up that they are doing things like this. Monday I am going to lok up th eMedicare complaint number and give them an ear full.
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RockRpsgt replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"Companies like this will have to pay in the end. Medicare is taking no prisoners in their effort to reform medicare fraud."
RockRpsgt replied to Mary Z's discussion Symptoms"I had zero symptoms. I was testing equipment one night and fell asleep hooked up. When I woke up my doc said I had an AHI of 10 with 30 second events. I have been on PAP ever since."
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"I just use a large rubber band and safety pin to attach i tho the sheet. It doesn't exactly kink, but rather seems to have almost bends that don't quite ever go away. I have one that doesn't but all the others seem to.…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"My light weight tubing does not have a tendency to kink. It just hangs down from the stand and comes back up to the bed. I tried a hose hanger, but bought the cheaper travel model and it just wasn't up to the task."
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"I was really surprised when the congestion improved without the humidification. Yes, I use the lighter weight tubing too. Do you have trouble getting the bends and kinks out of them???? I have one favorite that is broken in and I hate…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"The reasoning behind changing the tubing is that it may develop small holes or tears which causing leakage. I am careful with my tubing and don't have any animals or children playing with the tubing. I don't feel like they have…"
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"I have ben using one of my cushions for 3 months now. I think I will just see how long I can actually use it without leaks before I replace it. I wonder if it is OK that I do not replace the tubing but about every 6 months???? I…"
terrible headaches, sore throat and sinus pain and drip
I have been using the Liberty Mirage mask since the middle of the summer. I had no problems with it (other than leaking that was taken care of by Mack's silicone) but over the last 3 weeks I have been having terrible headaches, sore throat, sinus pain, now I have developed a nasty nasal drip and my sinuses feel stuffed up ( I think I have developed an infection). My mouth constantly tastes like metal.
I have the humidifier attached to my machine but I have it set on ' 0 '. The air was too humid, hot and heavy at a 1 or 2 setting so I was told to put the setting on '0' allowing the air to pass over the water. Even with the setting on 0 I was waking up in the middle of the night with a nose full of water and water dripping down my throat (I am a nose breather).
I don't know if the drier fall/winter air is what is causing the problem. I can't crank up the humidifier or I will drown. I do clean my humidifier tank regularly so I don't think I am having problems from bacteria in the water.
Does anyone have any suggestions? Luckily I have a quattro mask to use until my sinuses clear. I have not been able to use my quattro consistently because of a sore I keep getting on the bridge of my nose but I do prefer the way the air feels in a full face mask.
I have the humidifier attached to my machine but I have it set on ' 0 '. The air was too humid, hot and heavy at a 1 or 2 setting so I was told to put the setting on '0' allowing the air to pass over the water. Even with the setting on 0 I was waking up in the middle of the night with a nose full of water and water dripping down my throat (I am a nose breather).
I don't know if the drier fall/winter air is what is causing the problem. I can't crank up the humidifier or I will drown. I do clean my humidifier tank regularly so I don't think I am having problems from bacteria in the water.
Does anyone have any suggestions? Luckily I have a quattro mask to use until my sinuses clear. I have not been able to use my quattro consistently because of a sore I keep getting on the bridge of my nose but I do prefer the way the air feels in a full face mask.
Views: 24
Replies to This Discussion
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Permalink Reply by Tim on -
Many people don't need to use a humidifier. Count yourself lucky if you don't need to use a humidifier. I believe that humidifiers at least double the hassle factor of using CPAP. Without a humidifier, there is no water, no rainout, and you don't have to carry it when you travel.
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Permalink Reply by sleepycarol on -
I don't know where you live but here in the midwest almost everyone around our community has the symptoms you describe, cpap or not.
Some are getting sicker than others and no it isn't the H1N1 (although I do admit it is going around as well). In fact I was just at the doctor yesterday since I have asthma and tend to get bronchitis. Mine has turned into bronchitis.
I suggest you make an appointment with the doc to make sure you don't need an antibotic since you have pain and headaches with it. That tends to mean it has turned into a nasty infection.
Do you have your hose covered? I would start by covering your hose with fleece or other insulating type material. That should greatly reduce any water dripping. If it is covered you may want to check on a heated hose.
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Permalink Reply by RockRpsgt on -
I just got over those same symptoms. I had them for a month. I would be fine one day and crappy the next. I went to the doc on Wed. They told me I was being plagued by a low grade something or other. 3 days of antibiotics and I am starting to feel consistent again.
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Permalink Reply by Lynne O'Luanaigh on -
I don't know where you live but here in the midwest almost everyone around our community has the symptoms you describe, cpap or not.
I live in New England. It does get dry during the winter months.
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Permalink Reply by sleepycarol on
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Being in the midwest our indoor areas are dry because of the heating systems, probably the same as yours. I know you all can get some really nasty weather as well.
Our weather has been odd this year. Rain when it typically is dry, dry when we usually get rain, cool rainy summer, etc.
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Permalink Reply by RockRpsgt on
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We did not have much of a Summer in Indy this year. It stayed pretty cool with the exception of a few weeks.
sleepycarol said:Being in the midwest our indoor areas are dry because of the heating systems, probably the same as yours. I know you all can get some really nasty weather as well.
Our weather has been odd this year. Rain when it typically is dry, dry when we usually get rain, cool rainy summer, etc.
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Permalink Reply by sleepycarol on
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Mack's silicone is actually silicone ear plugs that you can purchase over the counter at any WalMart, Walgreens, many grocery stores and other outlets. They come either 3 pairs to a package or 6 pairs in a package (if my memory serves me correctly).
The "blobs" are uniform in size and are malleable, meaning that you can roll them into a long "snake" like rope.
Here is how I have done it, pinch off a glob of the silicone. Depending how long, thick you need it, you will have to use your own judgement and add more or less depending. Roll it into a thin rope, typically it doesn't need to be very thick as your mask should fit without large gaps. Place the rolled silicone onto the gasket of the mask where it touches your face. Put the mask on and adjust it as needed. The silicone will adhere to your skin making for a better seal, but is easily removeable. I have heard some say it can be a pain to remove though. It can be peeled off and reused until it looses it stickiness.
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