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liz4cps commented on liz4cps's group Prince William Co, VA support group
"BluePoint Medical* holding their next Remedy event on June 4 with Terry Cralle, RN on "Sleep in the Mordern Family".  They will also be checking CPAP machines and providing breakfast. Click on link above for more…"
May 7
Dan Lyons posted a discussion

CPAP & Dry Mouth

In recent months, I have developed extreme dry mouth as a result of the CPAP.  I am a mouth breather when using CPAP.Recently, I saw an advertisement for the symptoms of dry mouth, but as usual, when I need the information to have a discussion with both my primary care  physician and my dentist I haven't seen the ad. Has anyone else seen the ad and can anyone remember the info in the ad?Thanks in advance,DanSee More
Mar 30
richard graham posted a status
"My deductible is double what a machine is online but I can't get the machine set up. Any ideas?"
Mar 10
BeeAsleep posted a status
"Hi all. I am just checking in and saying hi after being gone for a long time. I am doing GREAT! Just got a new machine and mask. Feel like I"
Jan 23
BeeAsleep updated their profile
Jan 23
99 replied to Fred's discussion CPAP - cure worse than the disease
"Do not turn light on as this hinder you from falling asleep or choose red light instead which do not afect your sleep"
Oct 27, 2015
99 left a comment for Joan Williams Rice
"Hi Joan visiting pelham and I have osa"
Oct 27, 2015
99 left a comment for martha crabtree
"Hi maths visiting pelham "
Oct 27, 2015
99 left a comment for Rhonda Harrison
"Hi Rhondda I am visiting pelham and have osa "
Oct 27, 2015
99 posted a discussion

Leaky gut

Do you have a leaky gutHow would you knowA telltale sign for leaky gut is Athletes footI wish to ask do you have or suffer from itThe reason I ask is maybe this is a common denominatorJust text yes or text noAnd if you are the first to text also keep a tallyExample38 yes 0 noYour input would alter the tally39 yes 0 noSo now I will input first1 yes. 0 noSee More
Sep 26, 2015
richard graham posted a status
"For the first time in a while I got a whole night sleep with my machine but woke up beat and left side of my head feels weird, not sure if"
Sep 2, 2015
Brendan Duffy posted a status
"How did you slhttp://blog.aastweb.org/winners-and-losers-food-for-thought-sleep-and-athletic-success?utm_campaign=subscribers&utm_source=hs_"
Jul 9, 2015
Pat Kniel updated their profile
Jul 7, 2015
ZolliStar replied to Fred's discussion CPAP - cure worse than the disease
"I'm wondering: what prompted you to consider whether you have sleep apnea in the first place? Also, waking throughout the night isn't uncommon especially as we (*sigh*) age.  I seem to every 90 minutes or so. This pattern probably…"
Jun 27, 2015
ZolliStar replied to ZolliStar's discussion New mouth device on the market
"You can try this website:  http://zyppah.com/ I have a MAD (mandibular advancement device). Dr. Steven Park evaluated my mouth and throat (not everyone can use a MAD, it turns out) and pronounced me a candidate for it. The truth?  I…"
Jun 27, 2015
Mary Z replied to ZolliStar's discussion New mouth device on the market
"The link didn't work so me so I couldn't see the product.  I do have experience with a supposedly reliable boil and bite device.  I should know by now I have a small mouth and nothing regular size fits.  I don't think…"
Jun 27, 2015
richard graham replied to ZolliStar's discussion New mouth device on the market
"If I thought something could work other than this lousy cpap that would be awesome"
May 22, 2015
richard graham posted a status
"I moved and have been sick a lot and can't use cpap because of cough and I'm depressed a lot"
Apr 26, 2015
Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13, 2015
Fred updated their profile
Apr 13, 2015
I've heard that studies are being conducted of people who still subjectively report feeling sleepy even after having successfully used CPAP. Wondering if this has happened to anyone, or how common it is?

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Replies to This Discussion

Hi Everyone,

I've been using CPAP for about 18months. Although i had LOADS of problems with mask fitting in the early days I'm kind of happy with the liberty mask now.

I still get sleepy during the day, and I find motivating myself very difficult. However, i was recently prescribed Provigil which does seem to have had a good (if not brilliant) effect.

I'm seeing my Consultant tomorrow (I only get 6 monthly appointments).

Is there any way i can get a memory stick thing for my ResMed to record my own data and upload it onto my own PC?

Thanks

Neil
Neil, I'll start a new thread on this to get it some more attention. Good question. I believe ResMed has a good software solution out there. I know some folks have set themselves up with Restrax, but I'll post to the other thread and see whether our ResMed experts can weigh in.

Neil James said:
Hi Everyone,

I've been using CPAP for about 18months. Although i had LOADS of problems with mask fitting in the early days I'm kind of happy with the liberty mask now.

I still get sleepy during the day, and I find motivating myself very difficult. However, i was recently prescribed Provigil which does seem to have had a good (if not brilliant) effect.

I'm seeing my Consultant tomorrow (I only get 6 monthly appointments).

Is there any way i can get a memory stick thing for my ResMed to record my own data and upload it onto my own PC?

Thanks

Neil
Rock,

The time ran out at my last study so they never got the apneas to completely go away but my first study fixed the apneas at 19/17 so I'm set for a range from 14E to 20I. I did post the sleep study in this thread.

I'm noticing at night that there is a pattern. I have often have hypopneas at sleep onset, this is what wakes me according to EncoreViewer, I had thought that these might be centrals but I see no indication that they are anything other than hypopneas.. My leaks usually stay around a mid to high 40's range for awhile then I often get a cluster of apneas around the 3rd and around the 6th-7th hours, my pressure then goes up and my mask leaks go much higher, I think I'm briefly waking up to fix the leaks, I often but not always remember doing this.

Rock Hinkle said:
co2 is carbon dioxide. usually it would be documented bt ETCO2= a range of 30-50. spo2 is oxygen.

I noticed in your titration that they were never really able to get your apneas to go away?

is there anyway you can post the study.

So the apneas you are having at sleep onset are keeping you from going to sleep? Leaks at onset? What exactly is going on when you fall asleep?

What did they say about your heart in the study? Any palpitations.

Break down the numbers individually for the 16/14 and 18/16. I do not believe that I am lining them up right.
Agreed.

Amy said:
I have had several patients who have had this issue. There are a couple of new studies out on the issue as well. Sometimes there are other issues that are hiding behind sleep apnea like medication interaction or idopathic hypersomnia or restless legs. If your machine is working well and your mask is fitting you properly then I would call your sleep specialist and talk to him or her. They know yoru history and they will know where to look next.
it's 4 leg movements to 1 PLM. Sorry thanks for correcting me Mollet. I must have hit the wrong key.

Mollete said:
Rock Hinkle said:
You actually have to have 3 leg movemnts in 90 sec to count one PLM. While I am not sure on the scoring of your test this could mean that your actual leg movements was 63x. When you look at the movement index in this light it makes a little more sense. However it could also mean that you only had 7 PLMs. Depends on the interpretation. You might want to find out how they came up with the #21.
This is incorrect information. There is no factor of 3 involved in the calculation of PLMs.
So what is next for BP Mollete? You seem to know alot more about this than I do. Please help me help him.

Rock Hinkle said:
it's 4 leg movements to 1 PLM. Sorry thanks for correcting me Mollet. I must have hit the wrong key.

Mollete said:
Rock Hinkle said:
You actually have to have 3 leg movemnts in 90 sec to count one PLM. While I am not sure on the scoring of your test this could mean that your actual leg movements was 63x. When you look at the movement index in this light it makes a little more sense. However it could also mean that you only had 7 PLMs. Depends on the interpretation. You might want to find out how they came up with the #21.
This is incorrect information. There is no factor of 3 involved in the calculation of PLMs.
Once again thanks for correcting me. I was taught that 4 leg movements in 90 seconds = 1 plm. I do not know why I said 3 in my previous post. Brainfart sorry sleepguide.

Mollete said:
Rock Hinkle said:
it's 4 leg movements to 1 PLM. Sorry thanks for correcting me Mollet. I must have hit the wrong key.

Mollete said:
Rock Hinkle said:
You actually have to have 3 leg movemnts in 90 sec to count one PLM. While I am not sure on the scoring of your test this could mean that your actual leg movements was 63x. When you look at the movement index in this light it makes a little more sense. However it could also mean that you only had 7 PLMs. Depends on the interpretation. You might want to find out how they came up with the #21.
This is incorrect information. There is no factor of 3 involved in the calculation of PLMs.
The rule is that you need 4 LMs within 90 seconds to identify the series as periodic and start scoring PLMs. However, they are scored as 4 PLMs, not 1.

mollete
You seem to know alot about sleep Mollete. Are you a tech?

Mollete said:
Rock Hinkle said:
So what is next for BP
As noted, he needs to get the graphics of his sleep studies scanned and posted. A picture may be worth a thousand words, but a thousand words still can't make a picture.

mollete

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