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ZolliStar posted a discussion
yesterday
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14
richard graham replied to richard graham's discussion mouth breathing
"I still use humidity but less of it. It seems to be working OK.."
Jun 14
ZolliStar replied to richard graham's discussion mouth breathing
"I rarely use the humidifier. I think it's less necessary during the summer when there is humidity.   I also switch between my mouth device and the APAP.  I like each for different reasons. Not sure with which I sleep better, though.…"
May 21
Mary Z replied to richard graham's discussion sick again
"I've been doing well.  I think you were going to try the cpap without humidity- did that help at all?  I haven't had a cold for a couple of years."
May 14
Ginny Edmundson replied to richard graham's discussion sick again
"CPAP seems to cause stuffiness in many of us.  ANother reason I hate it so much!Do you rinse your nose with saline once a day…maybe before you go to bed for the night? "
May 5
richard graham replied to richard graham's discussion sick again
"I do wake up stuffed up most days"
May 5
richard graham replied to richard graham's discussion sick again
"I do have non allergic rhinitis. Now I'm thinking that's probably it because I only feel that way for a day or 2. Thank you"
May 4
Ginny Edmundson replied to richard graham's discussion sick again
"I have been lucky.  Not one cold past three years. Could some of your problem be allergies?"
May 4
richard graham posted a discussion

sick again

It seems like I am sick with colds more often when I'm on the CPAP. Anybody experience that.
Apr 30
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"As of now I no longer have to use a chin strap.  I am anxious about the sleep study.  Wondering if I will be able to sleep WITHOUT the CPAP….even thought I hate it it is a part of every night now and is what I am used to.  "
Apr 20
Clueless in Redwood Shores replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"I had it on the same outpatient basis.  Much pain, no long term gain.  I did not have the annual repetition - that might or might not have made the difference. "
Apr 20
Mary Z replied to richard graham's discussion mouth breathing
"glad to hear it, Richard.  Keep us posted."
Apr 13
I've heard that studies are being conducted of people who still subjectively report feeling sleepy even after having successfully used CPAP. Wondering if this has happened to anyone, or how common it is?

Tags: after, cpap, sleepy, still

Views: 2566

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Hi Everyone,

I've been using CPAP for about 18months. Although i had LOADS of problems with mask fitting in the early days I'm kind of happy with the liberty mask now.

I still get sleepy during the day, and I find motivating myself very difficult. However, i was recently prescribed Provigil which does seem to have had a good (if not brilliant) effect.

I'm seeing my Consultant tomorrow (I only get 6 monthly appointments).

Is there any way i can get a memory stick thing for my ResMed to record my own data and upload it onto my own PC?

Thanks

Neil
Neil, I'll start a new thread on this to get it some more attention. Good question. I believe ResMed has a good software solution out there. I know some folks have set themselves up with Restrax, but I'll post to the other thread and see whether our ResMed experts can weigh in.

Neil James said:
Hi Everyone,

I've been using CPAP for about 18months. Although i had LOADS of problems with mask fitting in the early days I'm kind of happy with the liberty mask now.

I still get sleepy during the day, and I find motivating myself very difficult. However, i was recently prescribed Provigil which does seem to have had a good (if not brilliant) effect.

I'm seeing my Consultant tomorrow (I only get 6 monthly appointments).

Is there any way i can get a memory stick thing for my ResMed to record my own data and upload it onto my own PC?

Thanks

Neil
Rock,

The time ran out at my last study so they never got the apneas to completely go away but my first study fixed the apneas at 19/17 so I'm set for a range from 14E to 20I. I did post the sleep study in this thread.

I'm noticing at night that there is a pattern. I have often have hypopneas at sleep onset, this is what wakes me according to EncoreViewer, I had thought that these might be centrals but I see no indication that they are anything other than hypopneas.. My leaks usually stay around a mid to high 40's range for awhile then I often get a cluster of apneas around the 3rd and around the 6th-7th hours, my pressure then goes up and my mask leaks go much higher, I think I'm briefly waking up to fix the leaks, I often but not always remember doing this.

Rock Hinkle said:
co2 is carbon dioxide. usually it would be documented bt ETCO2= a range of 30-50. spo2 is oxygen.

I noticed in your titration that they were never really able to get your apneas to go away?

is there anyway you can post the study.

So the apneas you are having at sleep onset are keeping you from going to sleep? Leaks at onset? What exactly is going on when you fall asleep?

What did they say about your heart in the study? Any palpitations.

Break down the numbers individually for the 16/14 and 18/16. I do not believe that I am lining them up right.
Agreed.

Amy said:
I have had several patients who have had this issue. There are a couple of new studies out on the issue as well. Sometimes there are other issues that are hiding behind sleep apnea like medication interaction or idopathic hypersomnia or restless legs. If your machine is working well and your mask is fitting you properly then I would call your sleep specialist and talk to him or her. They know yoru history and they will know where to look next.
it's 4 leg movements to 1 PLM. Sorry thanks for correcting me Mollet. I must have hit the wrong key.

Mollete said:
Rock Hinkle said:
You actually have to have 3 leg movemnts in 90 sec to count one PLM. While I am not sure on the scoring of your test this could mean that your actual leg movements was 63x. When you look at the movement index in this light it makes a little more sense. However it could also mean that you only had 7 PLMs. Depends on the interpretation. You might want to find out how they came up with the #21.
This is incorrect information. There is no factor of 3 involved in the calculation of PLMs.
So what is next for BP Mollete? You seem to know alot more about this than I do. Please help me help him.

Rock Hinkle said:
it's 4 leg movements to 1 PLM. Sorry thanks for correcting me Mollet. I must have hit the wrong key.

Mollete said:
Rock Hinkle said:
You actually have to have 3 leg movemnts in 90 sec to count one PLM. While I am not sure on the scoring of your test this could mean that your actual leg movements was 63x. When you look at the movement index in this light it makes a little more sense. However it could also mean that you only had 7 PLMs. Depends on the interpretation. You might want to find out how they came up with the #21.
This is incorrect information. There is no factor of 3 involved in the calculation of PLMs.
Once again thanks for correcting me. I was taught that 4 leg movements in 90 seconds = 1 plm. I do not know why I said 3 in my previous post. Brainfart sorry sleepguide.

Mollete said:
Rock Hinkle said:
it's 4 leg movements to 1 PLM. Sorry thanks for correcting me Mollet. I must have hit the wrong key.

Mollete said:
Rock Hinkle said:
You actually have to have 3 leg movemnts in 90 sec to count one PLM. While I am not sure on the scoring of your test this could mean that your actual leg movements was 63x. When you look at the movement index in this light it makes a little more sense. However it could also mean that you only had 7 PLMs. Depends on the interpretation. You might want to find out how they came up with the #21.
This is incorrect information. There is no factor of 3 involved in the calculation of PLMs.
The rule is that you need 4 LMs within 90 seconds to identify the series as periodic and start scoring PLMs. However, they are scored as 4 PLMs, not 1.

mollete
You seem to know alot about sleep Mollete. Are you a tech?

Mollete said:
Rock Hinkle said:
So what is next for BP
As noted, he needs to get the graphics of his sleep studies scanned and posted. A picture may be worth a thousand words, but a thousand words still can't make a picture.

mollete

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