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Latest Activity

richard graham posted a status
"I moved and have been sick a lot and can't use cpap because of cough and I'm depressed a lot"
3 hours ago
Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13
Fred updated their profile
Apr 13
ZolliStar posted a discussion

New mouth device on the market

I've been hearing advertising for this product over the past few days.  It's sold as something to help snoring, but as I look at the information it seems to me that it would work just as well as my mandibular advancement device (MAD).In other words, this could help some of us with sleep apnea.Read about it here.Anybody have any thoughts about this?  See More
Mar 31
99 replied to Mary Z's discussion AHI finally under five.
"Hi Richard I mainly use an empty humidifier as it reduces noise"
Feb 16
richard graham left a comment for richard graham
"When I can afford it I'd like to get New machine with heated tube"
Feb 10
richard graham replied to Mary Z's discussion AHI finally under five.
"I would like to see this forum active again as well. I will be more aware of what's going on"
Feb 10
ZolliStar posted a discussion

If you have trouble falling asleep....

I thought that when I got my sleep apnea diagnosis, that -- at last! -- all my sleep problems had come to an end.Ha!I have trouble falling asleep. Indeed, I rarely feel sleepy at night although I do feel tired. I even cut back on computer at night, etc., etc. (and installed f.lux on my computer) but I still had trouble. Now I'm doing something different: wearing special glasses (Uvex S1933X Skyper Safety Eyewear glasses). They block out the blue -- and they're making a difference! First I tried…See More
Feb 1
99 replied to 99's discussion colloidal silver
"i have purchased some silver the make my own colloidal silver"
Dec 21, 2014
99 replied to 99's discussion colloidal silver
"just add to the distilled water it is antimicrobial eg cleans your machine and is beneficial for keeping you healthy  from bugs germs viruses you get the picture and when you need to clean the humidifier out, put water on your plants the silver…"
Dec 21, 2014
Mary Z left a comment for richard graham
"If the heated tube works with your machine I would try that.  They also make covers for your tubing which may help some.  I think the heated tube may be your answer.  Keep us posted."
Dec 21, 2014
Mary Z left a comment for richard graham
"Richard, some folks just use the humidifier in a Passover mode.  They just don't turn it on, but let the air pick up moisture without heat."
Dec 21, 2014
Mary Z replied to 99's discussion colloidal silver
"99, where have you been?  Do you add the colloidal silver to your humidifier?"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"I Andy, I realize I'm months behind your post.  I have no idea why your S8 would stoop collecting data.  I'm glad to hear  you're having such improvement with your apnea.  I have made great strides since I changed…"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S10 AirSense - Anyone have one? Any feedback?
"Andy, just found your post.  I don't know anything about this new machine.  How are you liking your new ResMed?"
Dec 21, 2014
Mary Z left a comment for Kay Day
"Kay, I haven't been around myself and miss the old, active forum."
Dec 21, 2014
Mary Z left a comment for richard graham
"Hi Richard,  I don't bother with a humidifier.  Someone on the forum suggested not using it and I'm a lot less congested without it.  A good AHI is under 5.  I use the Wisp and have been since it came out.  I think…"
Dec 21, 2014
hifay replied to Mary Z's discussion Sleep apnea increases risk of osteoporosis
"Always something. Thanks for the information."
Dec 21, 2014
99 posted a discussion

colloidal silver

a humidifier can be used with colloidal silverthis can keep the humidifier clean for day maybe weeks or longer without the need to clean the humidifiersilver colloidal is antimicrobial and you could just top up your humidifier without cleaning and at the same time treat your bodyor you just put silver on it own into the humidifierSee More
Dec 20, 2014
richard graham posted a status
"I feel like the humidifier is making me feel yucky and I'm waking up hacking and having to clear my throat a lot for a while."
Nov 3, 2014
This may have been brought up before, but I don't get on here very often. Because I have been fighting an upper respiratory virus for several months, I can't lay flat without bringing on a coughing fit. Therefore, I have been sleeping in my husband's oversized recliner. I haven't used my CPAP since I started this, but I haven't seemed to need it either. My husband says he's never seen me sleep so soundly, and I wake up feeling better than I ever have before! Could it be that my head is reclined enough to keep the OSA from being an issue?

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Short answer: yes. Sleeping at an incline is positional therapy for sleep apnea, and can work for some people. Now don't all you go out and throw away your CPAP machines. very limited population that this will work for, and I would insist on some hard data to support the claim that the positional therapy is working -- perhaps a home test run while sleeping at an incline. But no doubt -- getting gravity less in the picture can help prevent collapse of tissue in the airway.
I slept in a recliner for more than ten years because of my back! (I can not lay flat) Eventually I got an adjustable bed about 3 or so years ago and I sleep in roughly the same position as the recliner. All of my six in house sleep studies was done in an adjustible bed in that position, except for one study, and that study I actually slept in a oversized recliner, it was heaven the most comfortable recliner I had ever sat in or shall I say slept in. But even in a recliner sleeping in a "Fowlers" position, I still had severe complex sleep apnea with extremely low O2 saturations! When I worked in the hospital ( I was an RN on an Oncology unit, I am now on disability) many times patients with respiratory problems would sleep in a Fowlers position, it was much more comfortable for them to breath and be able to get to sleep! And although it can help some people with OSA, it will not necessarily prevent it, nor stop it completely! But for some it can help, for me sleeping like that is a necessity, because of my back and yet I still have sleep apnea, and I use the ResMed VPAP ASV machine with 3LPM of supplemental oxygen, using the Respironics Fit Life full face mask.
So I guess my question is, should I contact my pulmonologist about this? He released me for a year since I was doing well on my CPAP. I have a sinking feeling that the "virus" I can't shake is really asthma. Do I see my primary care to get the asthma diagnosed or go straight to my pulmonologist?
Either one, but if you do have asthma and you go to your PCP, you are most likely going to be referred to a Pulmonologist anyway, so why not got to the pulmonologist in the first place? Might save a step or two and definitely save some time and possible so grief depending on what your PCP does! But you should definitely see one or the other and the sooner the better!
Hi Laurie--

My suggestion is also to go to pulmonologist. If you have asthma or a respiratory infection, he is the one you want.

I have asthma which has been very under control for the last 10 years but just flared up. Before even being diagnosed with OSA (a few months ago) I intuitively knew that sleeping on a little of an incline was more comfortable for me-- so I have one of those adjustable beds in my primary residence.

There were/are a few things going on simultaneously and I am oversimplifying this but....when I went down to my place in FL about a month ago, both my breathing and apneas numbers deteriorated. I have a flat bed there and just purchased an adjustable bed to see if that would help. Immediately, my AHI numbers started coming down again and the sleep portion of my program started feeling a lot better.

For me, the adjustable bed is an additional tool in my arsenal, and not a substitute for my XPAP. It was striking though, to see how immediately there was an improvement in my AHI and how I felt after one day in the new adjustable bed. The XPAP in conjunction with a slight incline in my sleeping seems to work best for me. It makes sense to me given the little I understand about the physical aspects of OSA...

Hope this helps.

Jan
Are you on any blood pressure medication?
Rock Hinkle said: Are you on any blood pressure medication?


I'm not sure whether this is a question for me or not, but yes, I am. My BP is under control.
It is rumored that some blood pressure meds might cause a chronic cough or other respiratory issues. Could be a bad rumor though as I have not found anything that gave it any merit. Search cough and blood pressure medication.
White Beard said:
I slept in a recliner for more than ten years because of my back! (I can not lay flat) Eventually I got an adjustable bed about 3 or so years ago and I sleep in roughly the same position as the recliner. All of my six in house sleep studies was done in an adjustible bed in that position, except for one study, and that study I actually slept in a oversized recliner, it was heaven the most comfortable recliner I had ever sat in or shall I say slept in. But even in a recliner sleeping in a "Fowlers" position, I still had severe complex sleep apnea with extremely low O2 saturations! When I worked in the hospital ( I was an RN on an Oncology unit, I am now on disability) many times patients with respiratory problems would sleep in a Fowlers position, it was much more comfortable for them to breath and be able to get to sleep! And although it can help some people with OSA, it will not necessarily prevent it, nor stop it completely! But for some it can help, for me sleeping like that is a necessity, because of my back and yet I still have sleep apnea, and I use the ResMed VPAP ASV machine with 3LPM of supplemental oxygen, using the Respironics Fit Life full face mask.
Some BP medicines do cause a chronic cough. I learned this while working in hemodialysis. The prescribing doc should know about the cough as there should be an alternate medicine.

Mary Z.
am new here but do have a sleeping problem, have not slept in a bed in about 6 months and have high blood pressure as well as diabetes, am overweight. i have to sleep in a recliner to be able to get any sleep at all and have not had a sleep study done yet. talked to my doctor about giving me something to help me sleep but she refuses to do that. i have tried to sleep in my bed but am unable to sleep in it, lay there for hours without going to sleep, i do have arthiritis of the knee and when i lay down for a few minutes my knee gets stiff and starts to hurt so i have to get up after a short period of time.
have thought about getting an adjustable bed but they are so exspensive . the recliner is in the living room and that makes it hard to get to sleep when my husband is not ready to go to bed and wants to watch the tv. or get up in the midde of the night wanting something to drink and i am in the recliner in the living room and the kitchen is just in the next room and it is a open floor plan so i am waking up when he comes in the kitchen to get something to drink. i do not think i would be able to sleep in a sleep study because i cannot sleep in a place where i am not used to being unless they would have a recliner. would love to be able to get back in my bed and get a good nights sleep.
The main culprit can be Lisinopril, even after a couple of does some patients have the "Lisinopril cough" for a month.

Mary Z said:
Some BP medicines do cause a chronic cough. I learned this while working in hemodialysis. The prescribing doc should know about the cough as there should be an alternate medicine.

Mary Z.

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