"Thanks for this, Mary.
Worse comes to worse, I'll buy a used machine from Second Wind. First I'm going to see if I can get my doctor to prescribe one.
Maybe this is the final answer. Meanwhile, I'm surely happy to have…"
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Mary Z replied to ZolliStar's discussion What's the Right Machine?"Zollistar, I think the ASV is hands down the best machine. It took me four years to get hooked up. Because of lingering depression and continued day time sleepiness with a high AHI my doctor suggested a night in the lab with an…"
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"May I ask two dumb-dumb questions? What do "Dx" and "CSA" mean?
And here is a not-so-dumb-dumb question (I hope!): From your experience, do people sleep better using an ASV machine?
I look forward to your answer.
"
RockRpsgt replied to ZolliStar's discussion What's the Right Machine?"You will most likely not be able to get insurance approval for an ASV without a Dx of CSA. I think that saying that an ASV breathes with you is false. ASV does however provide a better breath support and algorithm for auto use. The newer ASV units…"
Mary Z replied to ZolliStar's discussion Beating Sleep Maintenance Insomnia"Zollistar, what a good idea! The music is nice and relaxing on some of them."
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"Thanks for this information Lisa. It really helps.
Anyone else?
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Lisa replied to ZolliStar's discussion What's the Right Machine?"Hi Zollistar, I much prefer using an Apap to a straight Cpap. I changed over a few years ago and found straight away that I had much less of a problem with leaks. Another thing that I have noticed is I used to have ongoing problems with my nose…"
Terry Vella replied to ZolliStar's discussion What's the Right Machine?"He's still going, a bit of a pain sometimes but that's life, thanks for asking."
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"This helps a lot, Terry! Thanks for letting me know.
How is your dog??
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Terry Vella replied to ZolliStar's discussion What's the Right Machine?"ZolliStar, I went straight to an auto so can't really compare but from what I have heard there are two major benefits, first, the comfort factor of not having the high pressure all night and second, it adjusts to what you require, so if you use…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"Ginny, they are probably not doing anything against the law- though it may seem like fraud to us it may be an accepted practice. I would rather change DME's. Have you talked to the manager. They don't want to lose your…"
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"It really burns me up that they are doing things like this. Monday I am going to lok up th eMedicare complaint number and give them an ear full.
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RockRpsgt replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"Companies like this will have to pay in the end. Medicare is taking no prisoners in their effort to reform medicare fraud."
RockRpsgt replied to Mary Z's discussion Symptoms"I had zero symptoms. I was testing equipment one night and fell asleep hooked up. When I woke up my doc said I had an AHI of 10 with 30 second events. I have been on PAP ever since."
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"I just use a large rubber band and safety pin to attach i tho the sheet. It doesn't exactly kink, but rather seems to have almost bends that don't quite ever go away. I have one that doesn't but all the others seem to.…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"My light weight tubing does not have a tendency to kink. It just hangs down from the stand and comes back up to the bed. I tried a hose hanger, but bought the cheaper travel model and it just wasn't up to the task."
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"I was really surprised when the congestion improved without the humidification. Yes, I use the lighter weight tubing too. Do you have trouble getting the bends and kinks out of them???? I have one favorite that is broken in and I hate…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"The reasoning behind changing the tubing is that it may develop small holes or tears which causing leakage. I am careful with my tubing and don't have any animals or children playing with the tubing. I don't feel like they have…"
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"I have ben using one of my cushions for 3 months now. I think I will just see how long I can actually use it without leaks before I replace it. I wonder if it is OK that I do not replace the tubing but about every 6 months???? I…"
Skin irritation and allergies...and the story of a regular person who found an answer
Hey folks, I just wanted to let you know that I've posted a new video on the forum that gives the story of how RemZzzs mask liners were born. The story is not about some giant corporate machine offering another contraption, but a story about how a regular person found an answer to an extremely discouraging problem. Have you ever struggled with blow-out leaks or with an allergic reaction to the silicone in the mask skirt? If so, I'd like to hear your story.
http://www.sleepguide.com/video/remzzzs-cpap-mask-liners
http://www.sleepguide.com/video/remzzzs-cpap-mask-liners
Tags: allergic, cpap, cpap mask, mask liner, skin irritiation
Views: 4
Replies to This Discussion
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Permalink Reply by bonesigh on -
I'm sure that these liners are great for some users. It really is a great idea and it does work to reduce the leaks but it creates a constant (tiny) leak all around the mask that was just intolerable to me. Instead of the mask feeling warm around where it touched my face it was now very cold and uncomfortable to me. I have a high pressure of 18/14 maybe that's why? I also found the liners hard to deal with because they are so small and flimsy, curl up, hard to keep in place. I ordered the ffm kind and I'm not sure I got the right kind because there was only enough space for the nose and the mouth area was covered. I know you could breath through it but I found that uncomfortable too. I think the product could be improved by having it attach in some way to the mask or by making the edge of it stiffer or something, I don't know. I'm not trying to put down the product but just to give my experience with it. I'm glad you designed it and hope it helps many people.
Thank you.
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Permalink Reply by Becky on -
Thanks for the great input @bonesigh! From your description I am certain that you must have used the wrong size liner for your mask. Do you mind if I ask what mask style and size you use? When RemZzzs are fitted correctly, they should extend past the edge of the mask skirt slightly. Also, if fitted correctly, you should have space for both your nose and mouth in the center area of the liner. The liners will feel snug at first around the mouth and nose, however, a little tug on the outside edges will stretch and adjust the liner for a perfect fit. As far as not being attached to the mask, this is actually one of the best features of RemZzzs. We have found that when the liners are allowed to "float" on the surface of the mask they can better accommodate many facial features and abnormalities. We would love to have you try RemZzzs one more time with the right size, so that you can make sure that RemZzzs is not right for you. Send an email to help AT remzzzs DOT com and mention that you are from SleepGuide and we'll send you a free sample pack in the right size.
Thanks again for the input!
Nathan
bonesigh said:I'm sure that these liners are great for some users. It really is a great idea and it does work to reduce the leaks but it creates a constant (tiny) leak all around the mask that was just intolerable to me. Instead of the mask feeling warm around where it touched my face it was now very cold and uncomfortable to me. I have a high pressure of 18/14 maybe that's why? I also found the liners hard to deal with because they are so small and flimsy, curl up, hard to keep in place. I ordered the ffm kind and I'm not sure I got the right kind because there was only enough space for the nose and the mouth area was covered. I know you could breath through it but I found that uncomfortable too. I think the product could be improved by having it attach in some way to the mask or by making the edge of it stiffer or something, I don't know. I'm not trying to put down the product but just to give my experience with it. I'm glad you designed it and hope it helps many people.
Thank you.
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Permalink Reply by bonesigh on
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Hi Nathan,
I was using a Mirage Quattro full face mask size small. They just switched me to a size extra small. My pressure was reduced last week so I asked to try a Swift light with nose tubes, no mouth covering. I seem to have been able to train my brain to only breath through the mouth. The nose mask seems to be working. I feel a little better. I will still be using the M.Quattro when I have a stuffy nose though. I'm not sure if I should try the liners another time since I was uncomfortable with the coldness of the air surrounding the edge of the mask. What have you to say about the coldness? Just another thing to have to get used to? Oh, and I wasn't trying to say that the whole liner should be stiffer, just the edge so it does not curl up and it would be easier to put in place. Or you could make it so it slips over the mask like a mini shower cap, then it would totally stay in place with no fuss.
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Permalink Reply by Becky on
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Hi @bonesigh, thank you for the feedback. I'm glad to hear that you are doing better with the Swift nasal pillows. Getting a good night's sleep makes such a huge difference in quality of life! As far as the "coldness" you experienced with RemZzzs, I am fairly certain that this was a result of the poor fit from using the wrong size. Additionally, we have found that many, many people have reported a big increase in their overall comfort levels while using RemZzzs. I would imagine that with the right size the "coldness" might be lessened, however, matters of this nature are sometimes very personal and one person may report something that another might not, even with the same exact conditions. Thank you for the great feedback and the recommendations. I hope that you continue to have success with your therapy!
Blessings,
Nathan
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Permalink Reply by sleepycarol on -
Interesting. I had apparently missed this post. I have sensitive skin and will keep this product in mind if and when I need something to soothe my face when wearing a full face mask. I typically use the Headrest as there is little contact with your face.
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