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Latest Activity

Andy posted a discussion

Resmed S10 AirSense - Anyone have one? Any feedback?

Hi All,I've just ordered a new Resmed S10 AirSense, and I was wondering if anyone here has used one?Any information or input would be appreciated!See More
Sep 29
Andy replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"Hi All, Well, I went to the sleep doc today, and he ordered a new S10 for me! I still don't know why my S8 is not tracking data anymore. Anyone have any ideas?"
Sep 29
Oscar Lemus updated their profile
Sep 25
liz4cps commented on liz4cps's group Prince William Co, VA support group
"Just found they have a Facebook for the REMedy event, 1st Class Sleep REMedy Wellness Health Fair."
Sep 25
liz4cps commented on liz4cps's group Prince William Co, VA support group
"Reminder: REMedy event is this Saturday, 10 am to 2pm.  Topics include: Nutrition and Weight Management with Sarah Kelly, Registered Nutritionist/Dietitian Oral Appliance Therapy for Sleep Apnea with Drs. Rena Vakay & Lara…"
Sep 25
Kay Day left a comment for Kay Day
"September 1, 2014 My apologies to Sleep Guide for not participating in a long time. In January 2012 I started classes at the local community college (my husband is an instructor there, and my tuition is refunded when my grades are above a C. My…"
Sep 1
Mary Z posted a discussion

Sleep apnea increases risk of osteoporosis

Sleep apnea/osteoporosis study finds “increased” health riskA recently published study may have found a connection between obstructive sleep apnea (OSA) and osteoporosis, marking yet another health…See More
Aug 23
Mary Z replied to ZolliStar's discussion Non-invasion approach that can relieve mild sleep apnea
"Hi ZolliStar, I've heard before that speech therapy, or singing lessons can help sleep apnea.  The problem at that time was there was no way to determine which exercises help.  Getting research done, rather than anecdotal would be…"
Jul 28
ZolliStar posted a discussion

Non-invasion approach that can relieve mild sleep apnea

Some people report that singing -- singing! -- really helps their sleep apnea. Dr. Stephen Park said that myology (which are exercises to strengthen muscles around the inside of one's mouth area) helps some. I think singing would be better.  If you read all the FAQs on this (click below), I think you'll agree that it makes sense for some. Maybe you.http://www.singingforsnorers.com/index.htmSee More
Jul 28
ZolliStar posted a discussion
Jul 20
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14
richard graham replied to richard graham's discussion mouth breathing
"I still use humidity but less of it. It seems to be working OK.."
Jun 14
ZolliStar replied to richard graham's discussion mouth breathing
"I rarely use the humidifier. I think it's less necessary during the summer when there is humidity.   I also switch between my mouth device and the APAP.  I like each for different reasons. Not sure with which I sleep better, though.…"
May 21

Well, I finally got the FitLife Total Face Mask that will spare the bridge of my nose.  My nose could not take any more punishment, even after more than 15 days off the Quattro, within three days I was back to square one.

I used the FitLife for the first time last night.  I'll add to this as I get more experience with it.

I liked it last night.  I had some minor leaks but they were easily dealt with by lifting the mask off my face (straps attached) and gently repositioning it.  I had to wear the quattro tight, in spite of what everyone says I could never get it to float on a cushion of air on my face.  Loosening the straps made the leaks worse.  I just had to tighten that thing down.  The FitLife is totally different - it's a very simple mask with one  cushion- not one over another one  like the quattro (I know I'm not saying that very well) . It was easy to run my finger along the seal to reseat it.  It looks more like a scuba mask that also covers your mouth.  I do have to sleep on my back with it as it extends so far out around the side of my face- from over the eyebrows, around the eyes and under the lower lip.

I did have to change some machine settings so I need to get the DME to make sure everything is right and that I'm getting the right pressure this mask is so big. The machine was set on spontaneous and that won't work with this mask.  It felt like it was breathing without me instead of with me.  I sure have more sympathy now for people who say they feel like they're fighting the machine.  My leak was good- 0.12, but as I said I'm not sure of the numbers with this mask.  AHI and AI were high (32.6/19), but that's after about 20 days off the machine.. The mask solves my nose problem, seems like it's going to work, and is comfortable.  As I said I need to get with the DME and make sure the machine settings are correct.  This mask is so different things might need to be tweaked to use it with my ResMed machine.  The mask is so new I went online to Phillips web site to register it and they don't even list it as a choice.  I bought it at CPAP.com for $144.00, still would be waiting on the DME who only has small ones.

Sorry to be so long winded.

Thanks,

Mary Z.

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Hope it continues to work for you.
Thanks, sleepycarol! Me, too.
Mary Z.

sleepycarol said:
Hope it continues to work for you.
Well, so far I haven't been able to get the leaks under control with the FitLife Total Face Mask. My IPAP is 22; if I use the ramp I know right away when the numbers get higher as the seals start to blow out. I am working on this, I tried a stocking over the top part of the mask last night as the forehead is mainly where it blows out, but that wasn't effective. Tonight I'm just going to work on getting the straps arranged better. I have an idea- if anyone has a good reason not to try this please
tell me. You know the foam strips that you can buy to insulate a door or window ledge? I was thinking of using a piece of this under the forehead seal. I wouldn't use the adhesive on the strip as it's almost impossible to remove, I'd tape it in. I was thinking that a bit more stiffness to the headpiece may help with the seal. I like the mask, I really like bypassing the bridge of my nose. A pressure of 18/22 has been hard on any mask as far as sealing around the edges. I am going to make this new mask work.

Mary Z.
The FitLife may be an excellent mask for someone with a lower pressure than 18/22. It's somewhat flimsy on the sides and blows out at the top and on the sides. I'm trying Macks silicone right now, but feel like I'm still having (and the machine says) bad leaks. I am determined to make this mask work.
Thanks,
Mary Z.

Mary Z said:
Well, so far I haven't been able to get the leaks under control with the FitLife Total Face Mask. My IPAP is 22; if I use the ramp I know right away when the numbers get higher as the seals start to blow out. I am working on this, I tried a stocking over the top
Judy, or anybody, do you replace the Macks silicone nightly? I was sure I had a good seal last night, but the leak data still said 1.7. I was sure I didn't have any leaks until after I went to the bathroom during the night so I checked before I hooked back up (don't take the mask off) and the leak then was 1.7. The lowest has been 0.76. Last night I managed to stay on my back all night, too. I need a different pillow LOL. Was using the regenesis which is great for side sleeping,, but felt like a brick last night. I'm posting this also to my review of the FitLife mask.
Appreciate any help re: Macks.

Thanks,
Mary Z.
Well, I'm doing better with the mask. I'm using Macks silicone around the whole perimeter of the mask. I also found that the top back strap was sliding down the back of my head pulling the mask down with it. There is also a strap that goes over the top of your head, so I tied the top back strap to the top of the head strap which prevents the strap from sliding down on my head- great improvement. I also find if I score the macks silicone with a small pocket knife each night it seems to adhere better. One thing about this mask is that the headgear is large and I may have to do some sewing to shorten some straps. I'm finally getting used to sleeping on my back. It doesn't seem to be a real sturdy mask. I hope it will last three months.

Mary Z.
I have gotten at least several days of 0 leaks like this. I have to repply the silicone each night, but I find it I take if off and roll it into a ball it works longer. Thanks for the tips, it's been worth sticking with this mask.

Mary Z.

Mary Z said:
Well, I'm doing better with the mask. I'm using Macks silicone around the whole perimeter of the mask. I also found that the top back strap was sliding down the back of my head pulling the mask down with it. There is also a strap that goes over the top of your head, so I tied the top back strap to the top of the head strap which prevents the strap from sliding down on my head- great improvement. I also find if I score the macks silicone with a small pocket knife each night it seems to adhere better. One thing about this mask is that the headgear is large and I may have to do some sewing to shorten some straps. I'm finally getting used to sleeping on my back. It doesn't seem to be a real sturdy mask. I hope it will last three months.

Mary Z.
I appreciate your updates on this mask. Your reviews indicate that this mask can be a viable option for those that need it.
Sorry I've been missing this, MaryZ. I just got a FitLife last week too. I was only able to use it two naps (I think) because I also got the loan of a PR SystemOne BPAP Auto w/Bi-Flex so I just used it w/my Resmed VPAP Auto before I tucked it away. I'll go back to working on the FitLife when I get a month's use and data w/the PR S1 to compare to the VPAP Auto.

The only area I had a problem w/leak at was, as you have mentioned, the forehead. It is like the frame and cushion are too bowed or arched - or my forehead is too flat - so that the two aren't compatible. Or maybe it is that the cushion is too short in that area and needs to be "deeper"/"longer", whatever. But that sure is an odd place to "blow out", don't you think? The center of the forehead??!!

I LIKE this mask, the two times I was able to try it. And I look forward to being able to spend more time w/it. You, my dear lady, are doing a GREAT lab-ratting job. I will remember to try your trick of tieing the top back strap to the top strap. The headgear was too big for me too.

I know I looked up and found the leak rate chart for the FitLIfe and I'll be darned if I can remember what Mask Selection I used for it. Duh! I don't even remember if I posted it somewhere or if I made a note in my files or, heaven forbid, didn't save that info SOMEWHERE.

Whatever is going on w/me I think I'm going to have to call tomorrow and maybe get some Levaquin much as I don't want to. Trouble is, I don't know if it is the Crohn's or the COPD or what .... maybe I'm just not giving the Zithromax long enough. I'm bloating after a meal, I'm queasy at times, chills on occasion, mostly feeling feverish on and off but temp not going over 99+, and more SOB than usual. 18 years after menopause seem the wrong time to be starting hot flashes!!! Both my gastro and my family doctor are on vacation this next week. *sigh* I'll probably have to go to MedExpress to get the Levaquin.

The one bright spot is this PR SystemOne BPAP Auto. I fall asleep as soon as my head hits the pillow, get about 5 1/2 -6 hours sleep, make a "pit stop" and right back to sleep for another 1-2 hours. I finally got the software for it - but - I just do NOT feel up to tackling the installation and have e-mailed my 'puter guru to see if he can squeeze me in this week to do the installation for me. I so miss my morning "data fix".
If I replied to this twice, sorry. Yes, re: the leaks with the FitLife. It does have those weird forehead leaks. It's pretty amazing when you think of it covers so much of the face there are a lot of possibilities for leaks. The only thing that works is as I said above, the macks applied every night. I just peel it off and roll it in a ball and then roll it out the next night. It does provide a seal. I've never had 0 leaks with any mask, though three nights is not much to go on. Because of some recent surgery, I'm having to hold my cpap another month. This is getting old. I was 100% compliant, so the time for my nose to heal , 19 days, and now another month off is really bothering me. But it can't be helped.
Judy, I sure hope you get to feeling better soon. Sounds like you're on top of things.
Ohh and that sounds like one great machine you've got now. Instead of comparing computers or cars, we're compairing the versatility and power of our BPAP machInes!
Mary Z.
I read somewhere else of someone w/a FitLife who just took the two ends of the forehead area and applied pressure to flatten the center of the forehead area while putting the FitLife on and that ended the center of the forehead leak for him.
Many plastics are capable of holding a new form after being reformed using heat, similar to fitting eyeglasses. Seeing now that I have mine, the seal is already attached to the mask by heat, I would rather ask Respironics before damaging a new mask. After some trial and error the first night I have a good enough seal to sleep freely left, right, back, and on my face to some extent. The mask seems to tolerate some up/ down movement but realy very little side to side. A quick nudge to recenter it usually works for me. The mask is loud. It hisses on the inhale caused by the flapper in the E-valve elbow. I'm hoping that goes away with some use as I've had the mask two nights. On the funny side, you can create a variety of tones by adjusting the seal leakage. The Fitlife does have a high leak rate. The RT at the DME said to try the Quatro mask setting so I compared the two, the FitL. is way higher. I wonder how ResMed determines those presets and are the values posted somewhere. Then the question, can a preset called Fitlife be added to the menu? Seems to me switching masks without selecting the proper mask, from the menu, would cause some data error.

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