Join Our Newsletter

New? Free Sign Up

Then check our Welcome Center to a Community Caring about Sleep Apnea diagnosis and Sleep Apnea treatment:

CPAP machines, Sleep Apnea surgery and dental appliances.

CPAP Supplies

Latest Activity

ZolliStar replied to Dan Lyons's discussion CPAP & Dry Mouth
"Dan, Do you use a chin strap?  If you're a mouth breather, you may need a chin strap so that your mouth stays closed. It's important to keep it closed throughout the night for a lot of reasons -- mouth, dental, etc., etc. I've…"
Nov 24
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Wed 9  9 mg Thursday 10 missed  Friday 11 9mg have insomnia  going skip rest until insomnia goes away Just did maths had my five days"
Nov 11
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day after tomorrow I mean trump day wed 9 9mg "
Nov 9
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day two Monday 7 Nov 9mg very relaxed Day three Tuesday 8 Nov 9mg sniffles appears to have stopped  must reduce dose"
Nov 8
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Start treatment again  Nov 6 @ 2100 first day "
Nov 6
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day 5 not quite there must quit treetment for non and have at least a five day break But even so my health has improved "
Nov 1
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
" "
Nov 1
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day three not so good with osa  DAY four better but still not quite there "
Oct 31
99 replied to 99's discussion Five Day Cure
"Day one immediate improvement to OSA but had insomnia and slight constapation Day two flatulence greatly reduced muscle tighten "
Oct 29
99 posted a discussion

Five Day Cure

I believe I have found a cure that only take five days which I am trialing now It has many benificial side effects as well by reducing snoring to name onePM ME as I do not want mainstream media to find out and have it banned as I fear that is how it will goWill try again after a little breakIn addition will increase omega 3And thirdly a chiropractic to realign atlas bone in spine is just a passing thought See More
Oct 28
liz4cps commented on liz4cps's group Prince William Co, VA support group
"BluePoint Medical* holding their next Remedy event on June 4 with Terry Cralle, RN on "Sleep in the Mordern Family".  They will also be checking CPAP machines and providing breakfast. Click on link above for more…"
May 7
Dan Lyons posted a discussion

CPAP & Dry Mouth

In recent months, I have developed extreme dry mouth as a result of the CPAP.  I am a mouth breather when using CPAP.Recently, I saw an advertisement for the symptoms of dry mouth, but as usual, when I need the information to have a discussion with both my primary care  physician and my dentist I haven't seen the ad. Has anyone else seen the ad and can anyone remember the info in the ad?Thanks in advance,DanSee More
Mar 30
richard graham posted a status
"My deductible is double what a machine is online but I can't get the machine set up. Any ideas?"
Mar 10
BeeAsleep posted a status
"Hi all. I am just checking in and saying hi after being gone for a long time. I am doing GREAT! Just got a new machine and mask. Feel like I"
Jan 23
BeeAsleep updated their profile
Jan 23
99 replied to Fred's discussion CPAP - cure worse than the disease
"Do not turn light on as this hinder you from falling asleep or choose red light instead which do not afect your sleep"
Oct 27, 2015
99 left a comment for Joan Williams Rice
"Hi Joan visiting pelham and I have osa"
Oct 27, 2015
99 left a comment for martha crabtree
"Hi maths visiting pelham "
Oct 27, 2015
99 left a comment for Rhonda Harrison
"Hi Rhondda I am visiting pelham and have osa "
Oct 27, 2015
99 posted a discussion

Leaky gut

Do you have a leaky gutHow would you knowA telltale sign for leaky gut is Athletes footI wish to ask do you have or suffer from itThe reason I ask is maybe this is a common denominatorJust text yes or text noAnd if you are the first to text also keep a tallyExample38 yes 0 noYour input would alter the tally39 yes 0 noSo now I will input first1 yes. 0 noSee More
Sep 26, 2015
Can anyone please tell me if they are using oxygen instead of the CPAP machine. I could not tolerate the CPAP machine, I told my Dr I wouldnt be able to use that and sleep. The forced air would wake me up when it ramped up as I had a feeling of bein suffocated. So she put me on Oxygen.

Views: 4719

Reply to This

Replies to This Discussion

Sue,
Hi! This is Melodie (Mel) and I am also an oxygen patient, but I have central sleep apnea too. I am on oxygen due to the fact that I have Emphysema. When my pulmonologist found that I also have the central sleep apnea, he added a Bi-PAP Auto SV unit to my oxygen and the oxygen is bled into the Bi-PAP at a rate of 4 liters per minute for "nocturnal" usage. My actual Bi-PAP Auto SC unit has 3 different settings, and it is set at 14-4-14.

The forced air is actually quite helpful to me, as just the oxygen itself wasn't helping me enough. Now that the oxygen is bled into my Bi-PAP, I actually sleep and feel much better - that is WHEN I SLEEP. I also have Narcolepsy and fall asleep during the day and have no control over it, so I am prescribed "Provigil" to keep me awake, and then "Seroquel" at night to help me sleep. It sounds crazy - and trust me - it is!!!!!!!!!!!!!!! If I take a whole Provigil tablet in the morning, then I cannot sleep at all that night, and sometimes the next night too. I feel like a total zombie half the time and am just waiting for the doctors to figure out the best combinaton to help both problems.

Hope this crazy response is helpful to you or anyone else in the group. And if anyone has any suggestions for me, I would greatly appreciate it.

Melodie (Mel) Aultman-Morris
Melodie said:
Sue,
Hi! This is Melodie (Mel) and I am also an oxygen patient, but I have central sleep apnea too. I am on oxygen due to the fact that I have Emphysema. When my pulmonologist found that I also have the central sleep apnea, he added a Bi-PAP Auto SV unit to my oxygen and the oxygen is bled into the Bi-PAP at a rate of 4 liters per minute for "nocturnal" usage. My actual Bi-PAP Auto SC unit has 3 different settings, and it is set at 14-4-14.

The forced air is actually quite helpful to me, as just the oxygen itself wasn't helping me enough. Now that the oxygen is bled into my Bi-PAP, I actually sleep and feel much better - that is WHEN I SLEEP. I also have Narcolepsy and fall asleep during the day and have no control over it, so I am prescribed "Provigil" to keep me awake, and then "Seroquel" at night to help me sleep. It sounds crazy - and trust me - it is!!!!!!!!!!!!!!! If I take a whole Provigil tablet in the morning, then I cannot sleep at all that night, and sometimes the next night too. I feel like a total zombie half the time and am just waiting for the doctors to figure out the best combinaton to help both problems.

Hope this crazy response is helpful to you or anyone else in the group. And if anyone has any suggestions for me, I would greatly appreciate it.

Melodie (Mel) Aultman-Morris
Sue said:
Melodie said:
Sue,
Hi! This is Melodie (Mel) and I am also an oxygen patient, but I have central sleep apnea too. I am on oxygen due to the fact that I have Emphysema. When my pulmonologist found that I also have the central sleep apnea, he added a Bi-PAP Auto SV unit to my oxygen and the oxygen is bled into the Bi-PAP at a rate of 4 liters per minute for "nocturnal" usage. My actual Bi-PAP Auto SC unit has 3 different settings, and it is set at 14-4-14.

The forced air is actually quite helpful to me, as just the oxygen itself wasn't helping me enough. Now that the oxygen is bled into my Bi-PAP, I actually sleep and feel much better - that is WHEN I SLEEP. I also have Narcolepsy and fall asleep during the day and have no control over it, so I am prescribed "Provigil" to keep me awake, and then "Seroquel" at night to help me sleep. It sounds crazy - and trust me - it is!!!!!!!!!!!!!!! If I take a whole Provigil tablet in the morning, then I cannot sleep at all that night, and sometimes the next night too. I feel like a total zombie half the time and am just waiting for the doctors to figure out the best combinaton to help both problems.

Hope this crazy response is helpful to you or anyone else in the group. And if anyone has any suggestions for me, I would greatly appreciate it.

Melodie (Mel) Aultman-Morris
Hi Melodie,
I am a first time user here and as you can see tried to send a response a couple of times without my response. :)
I thank you for your response because Sleep apnea is a new diagnosis for me. I have several other diagnosis I am dealing with as well. I have COPD, yup from smoking but i have been smoke free for 2years 2months and 14 days. How about knowing those exact numbers :) only from an ex smoker counting the days in hopes of better lung capacity. I see you were on oxygen first due to emphysema.
I was on oxygen but they took it away when my readings were high enough to not be qualified per the insurance company. Then, after having a sleep study done they found my levels went down several times during the night due to apneas. I think i have central apnea as well and am going to ask my Pulmanologist about your set up with the Bi-Pap. I would think they would have asked to have another oximeter overnight reading with the oxygen to see what if anything it is doing. Thank you again for your reply because it has given me another idea.
Thanks, Sue Grasso
Sue,

Please follow up with your doctor on this. Typically oxygen will not keep the throat open. One has to adjust to therapy and it is not overnight process. For many it takes several weeks to a few months to become adjusted to therapy.

What was your pressure? You may see if it could be turned down some -- or better yet try getting an apap so that the machine can have a range of pressures. You could stay at a lower pressure and have the machine go up when you are having apnea events.

You may need another sleep study to see about a bipap or other type of machine depending upon your diagnosis. Just don't give up.
Oxygen and CPAP or BiPAP (bilevel) is not the same thing. Sleep apnea (at least obstructive sleep apnea) is a mechanical problem that 9 out of 10 times is caused by a weakness of the tissue in the back of the throat above the voice box. Depending how bad the sleep apnea is, one may experience low oxygen levels during apneic episodes. While using oxygen alone can help with the low oxygen produced by the sleep apnea, it in no way treats the sleep apnea. It is the sleep apnea that causes the stress on the heart and other organ systems.

The goal is treating the sleep apnea. If you're having problems with CPAP you need to speak with your sleep professional to find other options. Find a lab that will work with you as much as you need.
Sue said:
Hi Melodie,
I am a first time user here and as you can see tried to send a response a couple of times without my response. :)
I thank you for your response because Sleep apnea is a new diagnosis for me. I have several other diagnosis I am dealing with as well. I have COPD, yup from smoking but i have been smoke free for 2years 2months and 14 days. How about knowing those exact numbers :) only from an ex smoker counting the days in hopes of better lung capacity. I see you were on oxygen first due to emphysema.
I was on oxygen but they took it away when my readings were high enough to not be qualified per the insurance company. Then, after having a sleep study done they found my levels went down several times during the night due to apneas. I think i have central apnea as well and am going to ask my Pulmanologist about your set up with the Bi-Pap. I would think they would have asked to have another oximeter overnight reading with the oxygen to see what if anything it is doing. Thank you again for your reply because it has given me another idea.
Thanks, Sue Grasso


Sue,
My Pulmonologist didn't find the Central Sleep Apnea until he realized that the C-PAP wasn't giving the results he had hoped for, so he ordered another sleep study and then found that I actually have the Central Sleep Apnea.

I AM getting MUCH BETTER results from the Bi-PAP (bilevel) device and now my oxygen levels during the daytime are improving as the physician had hope for, but he is still continuing the oxygen bleed into the Bi-PAP at this time and until further notice.

You MUST see your physician and do not get frustrated and give up on the PAP machine until another sleep study has been done! Hopefully your physician will obtain a better overview of your particular needs in another sleep study and if necessary change your PAP machine accordingly. If he/she feels that you also need oxygen - they will order it to be bled into the PAP device for you and the DME will give you the proper equipment according to the doctor's findings. And do keep taking any medications for your COPD!!!!!!!!!!!

Keep us informed on your situation and good luck!
Melodie (Mel)
Dave D. said:
Oxygen and CPAP or BiPAP (bilevel) is not the same thing. Sleep apnea (at least obstructive sleep apnea) is a mechanical problem that 9 out of 10 times is caused by a weakness of the tissue in the back of the throat above the voice box. Depending how bad the sleep apnea is, one may experience low oxygen levels during apneic episodes. While using oxygen alone can help with the low oxygen produced by the sleep apnea, it in no way treats the sleep apnea. It is the sleep apnea that causes the stress on the heart and other organ systems.

The goal is treating the sleep apnea. If you're having problems with CPAP you need to speak with your sleep professional to find other options. Find a lab that will work with you as much as you need.
Sue, I have COPD and when I was Dx'd w/OSA via an in-lab sleep evaluation I read up on all the problems patients have acclimating to CPAP therapy. My Dx was mild OSA. After thinking it over I cancelled the in-lab titration study and asked my family doctor to order an overnight oximetry. The overnight oximetry readings qualified me for overnight oxygen use and my family doctor scripted the overnight oxygen.

Sometime later the sleep pulmonologist called me to ask if I intended to reschedule the titration study and I told him I had opted to go on oxygen instead. He suggested that after I had been on overnight oxygen for 3 months to call him and he would order an overnight oximetry w/the overnight oxygen. He was a heck of a nice sleep pulmo so I obliged - and the overnight oximetry showed I was still desatting w/the oxygen!

So, I scheduled the in-lab titration study (oh yeah! despite I like this doc, trusting soul that I am (not) I still got a copy of the results to see for myself!) and sure enough I needed the titration study - and CPAP. *sigh*

The good news tho is that while after a goodly amount of time on CPAP w/2L of oxygen bled in another overnight oximetry w/CPAP indicated I no longer needed the oxygen bled in, CPAP was sufficient. And altho I was sleeping so much better and feeling so much more rested I still wasn't really up to par. I was switched to a bi-level and am doing great - finally.

So be patient and be willing to work your way thru this. If you and your doctor work as a team you can make a success of this therapy.
Can anyone please tell me if they are using oxygen instead of the CPAP machine. I could not tolerate the CPAP machine, I told my Dr I wouldnt be able to use that and sleep. The forced air would wake me up when it ramped up as I had a feeling of bein suffocated. So she put me on Oxygen.

I have heard of this treatment before, even from several nurses who refused to tolerate CPAP. It makes no sense to me. With sleep apnea, air cannot enter your lungs. What makes the doctor think supplemental oxygen will enter your lungs when you are having an apnea?
If you cannot tolerate the xPAP treatment at all, then you have to consider other treatments. Oxygen itself cannot treat your SA.
Henning
I was put on oxygen in 2006, the study showed I needed it at night. I had 3 sleep studies over a period of three years. The first two studies, the attendants had me use the oxygen. Sleep study almost normal, the last study without oxygen showed that I average going into shallow breathing or stopped breathing 51 times an hour. You can use the oxygen, but don't neglect apnea, either can kill.

Reply to Discussion

RSS

© 2016   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service