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Latest Activity

Brendan Duffy posted a status
"How did you slhttp://blog.aastweb.org/winners-and-losers-food-for-thought-sleep-and-athletic-success?utm_campaign=subscribers&utm_source=hs_"
Jul 9
Pat Kniel updated their profile
Jul 7
ZolliStar replied to Fred's discussion CPAP - cure worse than the disease
"I'm wondering: what prompted you to consider whether you have sleep apnea in the first place? Also, waking throughout the night isn't uncommon especially as we (*sigh*) age.  I seem to every 90 minutes or so. This pattern probably…"
Jun 27
ZolliStar replied to ZolliStar's discussion New mouth device on the market
"You can try this website:  http://zyppah.com/ I have a MAD (mandibular advancement device). Dr. Steven Park evaluated my mouth and throat (not everyone can use a MAD, it turns out) and pronounced me a candidate for it. The truth?  I…"
Jun 27
Mary Z replied to ZolliStar's discussion New mouth device on the market
"The link didn't work so me so I couldn't see the product.  I do have experience with a supposedly reliable boil and bite device.  I should know by now I have a small mouth and nothing regular size fits.  I don't think…"
Jun 27
richard graham replied to ZolliStar's discussion New mouth device on the market
"If I thought something could work other than this lousy cpap that would be awesome"
May 22
richard graham posted a status
"I moved and have been sick a lot and can't use cpap because of cough and I'm depressed a lot"
Apr 26
Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13
Fred updated their profile
Apr 13
ZolliStar posted a discussion

New mouth device on the market

I've been hearing advertising for this product over the past few days.  It's sold as something to help snoring, but as I look at the information it seems to me that it would work just as well as my mandibular advancement device (MAD).In other words, this could help some of us with sleep apnea.Read about it here.Anybody have any thoughts about this?  See More
Mar 31
99 replied to Mary Z's discussion AHI finally under five.
"Hi Richard I mainly use an empty humidifier as it reduces noise"
Feb 16
richard graham left a comment for richard graham
"When I can afford it I'd like to get New machine with heated tube"
Feb 10
richard graham replied to Mary Z's discussion AHI finally under five.
"I would like to see this forum active again as well. I will be more aware of what's going on"
Feb 10
ZolliStar posted a discussion

If you have trouble falling asleep....

I thought that when I got my sleep apnea diagnosis, that -- at last! -- all my sleep problems had come to an end.Ha!I have trouble falling asleep. Indeed, I rarely feel sleepy at night although I do feel tired. I even cut back on computer at night, etc., etc. (and installed f.lux on my computer) but I still had trouble. Now I'm doing something different: wearing special glasses (Uvex S1933X Skyper Safety Eyewear glasses). They block out the blue -- and they're making a difference! First I tried…See More
Feb 1
99 replied to 99's discussion colloidal silver
"i have purchased some silver the make my own colloidal silver"
Dec 21, 2014
99 replied to 99's discussion colloidal silver
"just add to the distilled water it is antimicrobial eg cleans your machine and is beneficial for keeping you healthy  from bugs germs viruses you get the picture and when you need to clean the humidifier out, put water on your plants the silver…"
Dec 21, 2014
Mary Z left a comment for richard graham
"If the heated tube works with your machine I would try that.  They also make covers for your tubing which may help some.  I think the heated tube may be your answer.  Keep us posted."
Dec 21, 2014
Mary Z left a comment for richard graham
"Richard, some folks just use the humidifier in a Passover mode.  They just don't turn it on, but let the air pick up moisture without heat."
Dec 21, 2014
Mary Z replied to 99's discussion colloidal silver
"99, where have you been?  Do you add the colloidal silver to your humidifier?"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"I Andy, I realize I'm months behind your post.  I have no idea why your S8 would stoop collecting data.  I'm glad to hear  you're having such improvement with your apnea.  I have made great strides since I changed…"
Dec 21, 2014

It is now about a year since I got my last surgery. 3 months after I got out a full in-lab PSG study that showed that I was completely cured. I've now completed my first

annual sleep test.


How have I experienced this first year?


I need hardly tell how nice it is to get rid of my CPAP, it is wonderful.


The first 7-8 months I had a strange feeling in my remaining Uvula. It was not unpleasant, just weird. I think that it has been a kind of a phantom sensation of still
having my full Uvula. I have read that there are some nerves in the Uvula. Then
this feeling disappeared, and today I just have a normal (but much smaller)
Uvula.


At my first PSG study after my surgery, they found a little snoring I did not have before my surgery.


The new result from my annual follow-up sleep tests shows that I still have no Apneas or 

Hypopneas, so I'm still fully cured, but my snoring has largely disappeared again.


Simultaneously, I was studied in the nose and throat, which showed that everything was very nice looking.


I think that when you once have or have had Sleep Apnea so you will always have a lot of focus on your quality of sleep. I've had an extreme focus on this, which may be
a problem. 


Even people without sleep apnea may have a bad night. This, I immediately perceived as though my sleep apnea had perhaps come again.


I have talked this through with my Sleep Doctor and my ENT, and we agreed that I must now try to "forget" my fear of Sleep Apnea. In my situation there is only a minimal risk that I might have a relapse because my soft palate and my tongue are

not affected.


So I will now try to "forget" my former Sleep Apnea. I will nevertheless from time

to time look in to this website.


I will have my next sleep study (and maybe the last) within 3 years.


If someone responds to this thread, I will of course respond back, just as anyone has questions you are obviously free to PM me.


Thank you to everyone on this forum. It has been (and are) great to be a member of a forum among so many competent people.


To Mike,


I was among the first who became a member of this forum. It's amazing what you have
accomplished.


Henning

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Henning, I am very happy for your good results. I suspect that the tonsillectomy was 95% of the cure and the nasal surgery and uvula trimming were 5%. What do you or your doctor think ?

Henning said, To Mike,
I was among the first who became a member of this forum. It's amazing what you have
accomplished.


Yes Mike, that is a reminder for me to thank you for the good work you have done with the forum. You are improving people's lives.
Hi Banyon,

I am not sure which of my operations in the nose worked most. These together changed my AHI from moderate to mild.

Actually, I think in my case was the reduction of my Uvula the biggest prize, but I cannot know for sure when I got my tonsils removed simultaneously.

Henning


Banyon said:
Henning, I am very happy for your good results. I suspect that the tonsillectomy was 95% of the cure and the nasal surgery and uvula trimming were 5%. What do you or your doctor think ?

Henning said, To Mike,
I was among the first who became a member of this forum. It's amazing what you have
accomplished.


Yes Mike, that is a reminder for me to thank you for the good work you have done with the forum. You are improving people's lives.
Great to hear, Henning.

For those of you who may have questions regarding surgery for sleep apnea, I'm hosting an Ask Dr. Park Teleseminar tonight at 8PM Eastern. You can call on or listen on the web.

Register here for free access:
http://doctorstevenpark.com/ask-dr-park-insider-secrets-to-sleep-ap...
I will miss you Henning.

You have helped others that might be contemplating surgery and show that for some it works.

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