Join Our Newsletter

New? Free Sign Up

Then check our Welcome Center to a Community Caring about Sleep Apnea diagnosis and Sleep Apnea treatment:

CPAP machines, Sleep Apnea surgery and dental appliances.

CPAP Supplies

Latest Activity

ZolliStar posted a discussion

Beating Sleep Maintenance Insomnia

I read Dr. Krakow's SOUND SLEEP, SOUND MIND and grasped the concept about slowing brainwave activity for better sleep. I found myself not able to sleep through the night, so Dr. Krakow's book was quite enlightening. Terry Vella, a poster on this site, chimed it to point out that sleep apnea is actually a breathing disorder, not a sleepdisorder. Great clarification!  This explains why I'm not sleeping through the night (I have sleep maintenance insomnia) BUT at least am sleeping when I'm…See More
8 hours ago
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp
"Ginny, they are probably not doing anything against the law- though it may seem like fraud to us it may be an accepted practice.  I would rather change DME's.  Have you talked to the manager.  They don't want to lose your…"
yesterday
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp
"It really burns me up that they are doing things like this.   Monday I am going to lok up th eMedicare complaint number and give them an ear full.   "
Friday
RockRpsgt replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp
"Companies like this will have to pay in the end. Medicare is taking no prisoners in their effort to reform medicare fraud."
Friday
RockRpsgt replied to Mary Z's discussion Symptoms
"I had zero symptoms. I was testing equipment one night and fell asleep hooked up. When I woke up my doc said I had an AHI of 10 with 30 second events. I have been on PAP ever since."
Friday
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp
"I just use a large rubber band and safety pin to attach i tho the sheet.  It doesn't exactly kink, but rather seems to have almost bends that don't quite ever go away.  I have one that doesn't but all the others seem to.…"
Friday
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp
"My light weight tubing does not have a tendency to kink.  It just hangs down from the stand and comes back up to the bed.  I tried a hose hanger, but bought the cheaper travel model and it just wasn't up to the task."
Friday
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp
"I was really surprised when the congestion improved without the humidification. Yes, I use the lighter weight tubing too.   Do you have trouble getting the bends and kinks out of them????  I have one favorite that is broken in and I hate…"
Thursday
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp
"The reasoning behind changing the tubing is that it may develop small holes or tears which causing leakage.  I am careful with my tubing and don't have any animals or children playing with the tubing.  I don't feel like they have…"
Thursday
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp
"I have ben using one of my cushions for 3 months now.  I think I will just see how long I can actually use it without leaks before I replace it.  I wonder if it is OK that I do not replace the tubing but about every 6 months????   I…"
Thursday
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp
"I agree Ginny, it does come out of all our pockets.  I too have Medicare with a Humana supplement and insurance with my partners work.  This is the only year I will have anything but Medicare and supplement.  My last two Medicare…"
Thursday
Terry Vella replied to Mary Z's discussion Symptoms
"Good post Mary, I was like you when I was younger but the the sleep deprivation really started kicking in a few years ago my symptoms change, actually didn't change but got much, much worse. I was diagnosed with depression and on meds for 2…"
Thursday
Mary Z posted a discussion

Symptoms

Just trying to drum up a few posts-What symptoms did you have that got you to the sleep apnea diagnosis?I was excessively tired during the day- falling asleep eating breakfast and standing on my feet.  I couldn't drive or stay awake during appointments.  I thought this was the beginning of my apnea.  Then I remembered the mandatory 4-5 hour naps in the afternoon when I was  dead to the world.  That must have been the real beginning.  I went to my family practice doctor hoping for a prescription…See More
Wednesday
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp
"My insurance is Medicare plus supplement.  SO I pay nothing out of my pocket.  BUT it is coming out of ALL out pockets...........My DME is a nationally known company.  I am really thinking of calling the medicare hotline.   "
Wednesday
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp
"I think this kind of behavior may be the norm with DMEs.  I happen to have one of the good ones so I'm lucky.  It would be great if you called your insurance company.  You can steal millions if you steal $40 from a bunch of…"
Wednesday
Ginny Edmundson commented on Mary Z's status
"I was thinking the same thing, Mary.  I did make a new post today regarding the Wisp and  my DME."
Tuesday
Ginny Edmundson posted a discussion

New "Rant" about DME/Wisp

Well, it had been three months since I received my original Wisp.  And while it is still working well I wanted a "spare" on hand...just in case!   So I called my DME to ask if they had the one with the fabric frame in stock.   They did.  The next day I drove there and picked up the new mask and one extra cushion. All to be billed to my Insurance.  When I got home I realized they had the clear frame and not the fabric.  I called and told them I would take it back today and exchange for the…See More
Tuesday
Jackie Chan left a comment for Mike
"Mike when is the next Manhattan Awake meeting? I would like to attend"
May 12
Mary Z replied to ZolliStar's discussion Beware: It's possible to have sleep apnea AND insomnia
"Yeah, Dr.  Krakow on a YouTube video addresses insomnia while on CPAP.  Some people just do not for many reasons adapt to CPAP and may have numerous arousals during the night.  These people don't feel rested in the morning or…"
May 11
Mary Z replied to Louise's discussion An Article that was shared on the radio this morning
"Good the see you Rock. Do you mean CPAP as opposed to BPAP, AUTO, and ASV?  Barry Krakow has several videos on YouTube talking about this subject.  Many people just don't tolerate CPAP.  Dr. Krakow said the central apneas that…"
May 11

It is now about a year since I got my last surgery. 3 months after I got out a full in-lab PSG study that showed that I was completely cured. I've now completed my first

annual sleep test.


How have I experienced this first year?


I need hardly tell how nice it is to get rid of my CPAP, it is wonderful.


The first 7-8 months I had a strange feeling in my remaining Uvula. It was not unpleasant, just weird. I think that it has been a kind of a phantom sensation of still
having my full Uvula. I have read that there are some nerves in the Uvula. Then
this feeling disappeared, and today I just have a normal (but much smaller)
Uvula.


At my first PSG study after my surgery, they found a little snoring I did not have before my surgery.


The new result from my annual follow-up sleep tests shows that I still have no Apneas or 

Hypopneas, so I'm still fully cured, but my snoring has largely disappeared again.


Simultaneously, I was studied in the nose and throat, which showed that everything was very nice looking.


I think that when you once have or have had Sleep Apnea so you will always have a lot of focus on your quality of sleep. I've had an extreme focus on this, which may be
a problem. 


Even people without sleep apnea may have a bad night. This, I immediately perceived as though my sleep apnea had perhaps come again.


I have talked this through with my Sleep Doctor and my ENT, and we agreed that I must now try to "forget" my fear of Sleep Apnea. In my situation there is only a minimal risk that I might have a relapse because my soft palate and my tongue are

not affected.


So I will now try to "forget" my former Sleep Apnea. I will nevertheless from time

to time look in to this website.


I will have my next sleep study (and maybe the last) within 3 years.


If someone responds to this thread, I will of course respond back, just as anyone has questions you are obviously free to PM me.


Thank you to everyone on this forum. It has been (and are) great to be a member of a forum among so many competent people.


To Mike,


I was among the first who became a member of this forum. It's amazing what you have
accomplished.


Henning

Views: 12

Reply to This

Replies to This Discussion

Henning, I am very happy for your good results. I suspect that the tonsillectomy was 95% of the cure and the nasal surgery and uvula trimming were 5%. What do you or your doctor think ?

Henning said, To Mike,
I was among the first who became a member of this forum. It's amazing what you have
accomplished.


Yes Mike, that is a reminder for me to thank you for the good work you have done with the forum. You are improving people's lives.
Hi Banyon,

I am not sure which of my operations in the nose worked most. These together changed my AHI from moderate to mild.

Actually, I think in my case was the reduction of my Uvula the biggest prize, but I cannot know for sure when I got my tonsils removed simultaneously.

Henning


Banyon said:
Henning, I am very happy for your good results. I suspect that the tonsillectomy was 95% of the cure and the nasal surgery and uvula trimming were 5%. What do you or your doctor think ?

Henning said, To Mike,
I was among the first who became a member of this forum. It's amazing what you have
accomplished.


Yes Mike, that is a reminder for me to thank you for the good work you have done with the forum. You are improving people's lives.
Great to hear, Henning.

For those of you who may have questions regarding surgery for sleep apnea, I'm hosting an Ask Dr. Park Teleseminar tonight at 8PM Eastern. You can call on or listen on the web.

Register here for free access:
http://doctorstevenpark.com/ask-dr-park-insider-secrets-to-sleep-ap...
I will miss you Henning.

You have helped others that might be contemplating surgery and show that for some it works.

Reply to Discussion

RSS

© 2013   Created by The SleepGuide Crew.

Badges  |  Report an Issue  |  Terms of Service