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Latest Activity

ZolliStar posted a discussion
Sunday
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14
richard graham replied to richard graham's discussion mouth breathing
"I still use humidity but less of it. It seems to be working OK.."
Jun 14
ZolliStar replied to richard graham's discussion mouth breathing
"I rarely use the humidifier. I think it's less necessary during the summer when there is humidity.   I also switch between my mouth device and the APAP.  I like each for different reasons. Not sure with which I sleep better, though.…"
May 21
Mary Z replied to richard graham's discussion sick again
"I've been doing well.  I think you were going to try the cpap without humidity- did that help at all?  I haven't had a cold for a couple of years."
May 14
Ginny Edmundson replied to richard graham's discussion sick again
"CPAP seems to cause stuffiness in many of us.  ANother reason I hate it so much!Do you rinse your nose with saline once a day…maybe before you go to bed for the night? "
May 5
richard graham replied to richard graham's discussion sick again
"I do wake up stuffed up most days"
May 5
richard graham replied to richard graham's discussion sick again
"I do have non allergic rhinitis. Now I'm thinking that's probably it because I only feel that way for a day or 2. Thank you"
May 4
Ginny Edmundson replied to richard graham's discussion sick again
"I have been lucky.  Not one cold past three years. Could some of your problem be allergies?"
May 4
richard graham posted a discussion

sick again

It seems like I am sick with colds more often when I'm on the CPAP. Anybody experience that.
Apr 30
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"As of now I no longer have to use a chin strap.  I am anxious about the sleep study.  Wondering if I will be able to sleep WITHOUT the CPAP….even thought I hate it it is a part of every night now and is what I am used to.  "
Apr 20
Clueless in Redwood Shores replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"I had it on the same outpatient basis.  Much pain, no long term gain.  I did not have the annual repetition - that might or might not have made the difference. "
Apr 20
Mary Z replied to richard graham's discussion mouth breathing
"glad to hear it, Richard.  Keep us posted."
Apr 13

It is now about a year since I got my last surgery. 3 months after I got out a full in-lab PSG study that showed that I was completely cured. I've now completed my first

annual sleep test.


How have I experienced this first year?


I need hardly tell how nice it is to get rid of my CPAP, it is wonderful.


The first 7-8 months I had a strange feeling in my remaining Uvula. It was not unpleasant, just weird. I think that it has been a kind of a phantom sensation of still
having my full Uvula. I have read that there are some nerves in the Uvula. Then
this feeling disappeared, and today I just have a normal (but much smaller)
Uvula.


At my first PSG study after my surgery, they found a little snoring I did not have before my surgery.


The new result from my annual follow-up sleep tests shows that I still have no Apneas or 

Hypopneas, so I'm still fully cured, but my snoring has largely disappeared again.


Simultaneously, I was studied in the nose and throat, which showed that everything was very nice looking.


I think that when you once have or have had Sleep Apnea so you will always have a lot of focus on your quality of sleep. I've had an extreme focus on this, which may be
a problem. 


Even people without sleep apnea may have a bad night. This, I immediately perceived as though my sleep apnea had perhaps come again.


I have talked this through with my Sleep Doctor and my ENT, and we agreed that I must now try to "forget" my fear of Sleep Apnea. In my situation there is only a minimal risk that I might have a relapse because my soft palate and my tongue are

not affected.


So I will now try to "forget" my former Sleep Apnea. I will nevertheless from time

to time look in to this website.


I will have my next sleep study (and maybe the last) within 3 years.


If someone responds to this thread, I will of course respond back, just as anyone has questions you are obviously free to PM me.


Thank you to everyone on this forum. It has been (and are) great to be a member of a forum among so many competent people.


To Mike,


I was among the first who became a member of this forum. It's amazing what you have
accomplished.


Henning

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Henning, I am very happy for your good results. I suspect that the tonsillectomy was 95% of the cure and the nasal surgery and uvula trimming were 5%. What do you or your doctor think ?

Henning said, To Mike,
I was among the first who became a member of this forum. It's amazing what you have
accomplished.


Yes Mike, that is a reminder for me to thank you for the good work you have done with the forum. You are improving people's lives.
Hi Banyon,

I am not sure which of my operations in the nose worked most. These together changed my AHI from moderate to mild.

Actually, I think in my case was the reduction of my Uvula the biggest prize, but I cannot know for sure when I got my tonsils removed simultaneously.

Henning


Banyon said:
Henning, I am very happy for your good results. I suspect that the tonsillectomy was 95% of the cure and the nasal surgery and uvula trimming were 5%. What do you or your doctor think ?

Henning said, To Mike,
I was among the first who became a member of this forum. It's amazing what you have
accomplished.


Yes Mike, that is a reminder for me to thank you for the good work you have done with the forum. You are improving people's lives.
Great to hear, Henning.

For those of you who may have questions regarding surgery for sleep apnea, I'm hosting an Ask Dr. Park Teleseminar tonight at 8PM Eastern. You can call on or listen on the web.

Register here for free access:
http://doctorstevenpark.com/ask-dr-park-insider-secrets-to-sleep-ap...
I will miss you Henning.

You have helped others that might be contemplating surgery and show that for some it works.

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