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CPAP Supplies

Latest Activity

Brendan Duffy posted a status
"How did you slhttp://blog.aastweb.org/winners-and-losers-food-for-thought-sleep-and-athletic-success?utm_campaign=subscribers&utm_source=hs_"
Jul 9
Pat Kniel updated their profile
Jul 7
ZolliStar replied to Fred's discussion CPAP - cure worse than the disease
"I'm wondering: what prompted you to consider whether you have sleep apnea in the first place? Also, waking throughout the night isn't uncommon especially as we (*sigh*) age.  I seem to every 90 minutes or so. This pattern probably…"
Jun 27
ZolliStar replied to ZolliStar's discussion New mouth device on the market
"You can try this website:  http://zyppah.com/ I have a MAD (mandibular advancement device). Dr. Steven Park evaluated my mouth and throat (not everyone can use a MAD, it turns out) and pronounced me a candidate for it. The truth?  I…"
Jun 27
Mary Z replied to ZolliStar's discussion New mouth device on the market
"The link didn't work so me so I couldn't see the product.  I do have experience with a supposedly reliable boil and bite device.  I should know by now I have a small mouth and nothing regular size fits.  I don't think…"
Jun 27
richard graham replied to ZolliStar's discussion New mouth device on the market
"If I thought something could work other than this lousy cpap that would be awesome"
May 22
richard graham posted a status
"I moved and have been sick a lot and can't use cpap because of cough and I'm depressed a lot"
Apr 26
Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13
Fred updated their profile
Apr 13
ZolliStar posted a discussion

New mouth device on the market

I've been hearing advertising for this product over the past few days.  It's sold as something to help snoring, but as I look at the information it seems to me that it would work just as well as my mandibular advancement device (MAD).In other words, this could help some of us with sleep apnea.Read about it here.Anybody have any thoughts about this?  See More
Mar 31
99 replied to Mary Z's discussion AHI finally under five.
"Hi Richard I mainly use an empty humidifier as it reduces noise"
Feb 16
richard graham left a comment for richard graham
"When I can afford it I'd like to get New machine with heated tube"
Feb 10
richard graham replied to Mary Z's discussion AHI finally under five.
"I would like to see this forum active again as well. I will be more aware of what's going on"
Feb 10
ZolliStar posted a discussion

If you have trouble falling asleep....

I thought that when I got my sleep apnea diagnosis, that -- at last! -- all my sleep problems had come to an end.Ha!I have trouble falling asleep. Indeed, I rarely feel sleepy at night although I do feel tired. I even cut back on computer at night, etc., etc. (and installed f.lux on my computer) but I still had trouble. Now I'm doing something different: wearing special glasses (Uvex S1933X Skyper Safety Eyewear glasses). They block out the blue -- and they're making a difference! First I tried…See More
Feb 1
99 replied to 99's discussion colloidal silver
"i have purchased some silver the make my own colloidal silver"
Dec 21, 2014
99 replied to 99's discussion colloidal silver
"just add to the distilled water it is antimicrobial eg cleans your machine and is beneficial for keeping you healthy  from bugs germs viruses you get the picture and when you need to clean the humidifier out, put water on your plants the silver…"
Dec 21, 2014
Mary Z left a comment for richard graham
"If the heated tube works with your machine I would try that.  They also make covers for your tubing which may help some.  I think the heated tube may be your answer.  Keep us posted."
Dec 21, 2014
Mary Z left a comment for richard graham
"Richard, some folks just use the humidifier in a Passover mode.  They just don't turn it on, but let the air pick up moisture without heat."
Dec 21, 2014
Mary Z replied to 99's discussion colloidal silver
"99, where have you been?  Do you add the colloidal silver to your humidifier?"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"I Andy, I realize I'm months behind your post.  I have no idea why your S8 would stoop collecting data.  I'm glad to hear  you're having such improvement with your apnea.  I have made great strides since I changed…"
Dec 21, 2014
I'm cranky 'cause today I feel horrible, so please bear with me.

Today's the 18th, Monday. On Thursday I saw my DME because I was feeling worse and worse, sleep had decreased significantly over a period of time (from 6-7 hours to 4-5 hours every night).

He ran my data card = I had a massive leak due to mouth breathing (I love the mask I had--NO leaks and very comfortable but knew I was mouth breathing due to extremely dry mouth q a.m.). SO, since I was due for a new mask anyway, he suggested I try a full face mask. I was admittedly leery, thinking it would be claustrophobic, which it wasn't, even in the DME office.

Came home, have used it nightly since. First night 7 hours sleep. Second night 7 hours sleep. I was lovin' it! Mask was comfortable, no leaking, and SLEPT, better than before.

Saturday night, sleep was down to 6 hours. Last night the machine was acting up in some way. I went to sleep initially per usual and slept for awhile soundly. Then about 3 hours in I woke up and realized the machine wasn't running. Hit the button, it started up fine. Went back to sleep.

Long story short, I was back and forth with the stupid thing the rest of the night, ended up sleeping, probably a total of 4 hours. Also, the mask was weird for the first time. Seemed to be leaking from different places at different times. I was constantly having to mess with it. The machine was running off and on; mostly it seemed to be on ramp speed (which I only use once when initially going to sleep). At times it was running full steam, at other times, it clearly was blowing way too slow.

I have a call in to my DME. There's definitely something wrong with equipment somewhere. I know I got poor quality sleep 'cause I feel like crap, have a bad headache (unusual for me).

I really like my DME and he provides good service. However, I know he exchanges parts in machines, etc., which has never caused me a problem. This is the same machine I've had from the beginning. It's NEVER acted up like this. AND I don't understand why a new (?) mask that was working fine for 2-3 nights, suddenly started leaking like a sieve.

My question is--what should I ask DME for when I see him?, which I'm pretty sure will be later today. I feel as though there's SOMETHING I need to insist on, but I don't know what it is.

Any thoughts on this??? I sure hope so, 'cause I haven't had effective CPAP results for some time, first because of mouth breathing (which I didn't realize were CPAP leaks!), and second, I just want to get this crap under control. I'm 100% compliant but it's not doing me a damn bit of good if the equipment's not working right.....

Will appreciate anyone's ideas about this. I'm feeling clueless, for the first time in several weeks now.

Susan McCord

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Replies to This Discussion

Susan,
Sorry to hear about your troubles. I completely understand the frustration. It does sound like you machine needs "checking out". I hope it is not a case of the car runs fine when you take it to a mechanic. As far as your full face mask. I hyad the same thing happen to me. Got the mask, it was fine for a few nights and then started to leak. You may need to change...that is what I had to do. Have you changed settings recently? I had a couple of bad nights recently too. For me, sometimes I will have a couple bad nights and have to get really tired to get a good nights sleep with my cpap. Let me know if you find out anything today.

Ralph
Hi Ralph--thanks for the speedy response. I appreciate it.

I've been on CPAP for 4 months. Once adjusted, I really haven't had much difficulty. Did have a pressure change to 10 but that was 9/1/09. No problems with it, even early on.

I'ts a mystery to me. When it happened to you, did you change to a different full face or go back to a nasal mask? I loved my previous mask, which I still have--it NEVER leaked and was totally comfortable. But I was mouth breathing so much that I was losing at least 65% of my CPAP benefit. Can't be doing' that!!

I'll definitely let you know what I find out. I'm kinda disappointed with this ff mask. I've really liked it--not as much as my prior mask, but it's really okay. Till last night anyway. As for the machine, I have no idea.........

I'm gonna send you a friend request. If you don't like to do that, just ignore me!!! :-)

Susan McCord


Ralph C. Stewart said:
Susan,
Sorry to hear about your troubles. I completely understand the frustration. It does sound like you machine needs "checking out". I hope it is not a case of the car runs fine when you take it to a mechanic. As far as your full face mask. I hyad the same thing happen to me. Got the mask, it was fine for a few nights and then started to leak. You may need to change...that is what I had to do. Have you changed settings recently? I had a couple of bad nights recently too. For me, sometimes I will have a couple bad nights and have to get really tired to get a good nights sleep with my cpap. Let me know if you find out anything today.

Ralph
Oh jeez, Ralph, we're already friends. I looked at your picture and remembered immediately.

Just chalk it up to old age or apnea fog, whichever is more appealling to you!!!

Susan :-)
Hi Ralph--just wanted to update you re: my DME visit today. You were so kind to me about last night's equipment debacle and I want to thank you for that.

Long story short---my machine was malfunctioning. My DME guy, who is great, always, didn't blink an eye. He gave me a new one. I asked him about the mask leaking and also about the fact that several times when I woke up the mask was in my mouth instead of against my chin. He said it was likely because my machine wasn't putting out the proper amount of air, and that when it actually stopped running my instinctive response, even though still asleep, would have been to pull it up so I could breathe through my mouth. That also accounts for the mask leaking 'cause it was being moved around all night.

He re-fitted the full face mask to be sure, hooked it up and put me back in his big recliner to check it out. It was fine. No leaks whatsoever. So I think I'm good to go. Glad to have a new machine. I didn't like knowing the other one could just stop running!!!

Thanks again for your kindness and concern, Ralph. I'm glad you're on SleepGuide.....

Susan McCord :-)

Ralph C. Stewart said:
Susan,
Sorry to hear about your troubles. I completely understand the frustration. It does sound like you machine needs "checking out". I hope it is not a case of the car runs fine when you take it to a mechanic. As far as your full face mask. I hyad the same thing happen to me. Got the mask, it was fine for a few nights and then started to leak. You may need to change...that is what I had to do. Have you changed settings recently? I had a couple of bad nights recently too. For me, sometimes I will have a couple bad nights and have to get really tired to get a good nights sleep with my cpap. Let me know if you find out anything today.

Ralph
not to add to your day's agaony Susan but today was Monday the 19th. just didn't want you to be a day off all week. i really hate it when that happens. Who is you DME? Being in the same area i would like to have a good local guy to referr patients to. Have you gone to the St. Francis AWAKE meeting.

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