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liz4cps commented on liz4cps's group Prince William Co, VA support group
"BluePoint Medical* holding their next Remedy event on June 4 with Terry Cralle, RN on "Sleep in the Mordern Family".  They will also be checking CPAP machines and providing breakfast. Click on link above for more…"
May 7
Dan Lyons posted a discussion

CPAP & Dry Mouth

In recent months, I have developed extreme dry mouth as a result of the CPAP.  I am a mouth breather when using CPAP.Recently, I saw an advertisement for the symptoms of dry mouth, but as usual, when I need the information to have a discussion with both my primary care  physician and my dentist I haven't seen the ad. Has anyone else seen the ad and can anyone remember the info in the ad?Thanks in advance,DanSee More
Mar 30
richard graham posted a status
"My deductible is double what a machine is online but I can't get the machine set up. Any ideas?"
Mar 10
BeeAsleep posted a status
"Hi all. I am just checking in and saying hi after being gone for a long time. I am doing GREAT! Just got a new machine and mask. Feel like I"
Jan 23
BeeAsleep updated their profile
Jan 23
99 replied to Fred's discussion CPAP - cure worse than the disease
"Do not turn light on as this hinder you from falling asleep or choose red light instead which do not afect your sleep"
Oct 27, 2015
99 left a comment for Joan Williams Rice
"Hi Joan visiting pelham and I have osa"
Oct 27, 2015
99 left a comment for martha crabtree
"Hi maths visiting pelham "
Oct 27, 2015
99 left a comment for Rhonda Harrison
"Hi Rhondda I am visiting pelham and have osa "
Oct 27, 2015
99 posted a discussion

Leaky gut

Do you have a leaky gutHow would you knowA telltale sign for leaky gut is Athletes footI wish to ask do you have or suffer from itThe reason I ask is maybe this is a common denominatorJust text yes or text noAnd if you are the first to text also keep a tallyExample38 yes 0 noYour input would alter the tally39 yes 0 noSo now I will input first1 yes. 0 noSee More
Sep 26, 2015
richard graham posted a status
"For the first time in a while I got a whole night sleep with my machine but woke up beat and left side of my head feels weird, not sure if"
Sep 2, 2015
Brendan Duffy posted a status
"How did you slhttp://blog.aastweb.org/winners-and-losers-food-for-thought-sleep-and-athletic-success?utm_campaign=subscribers&utm_source=hs_"
Jul 9, 2015
Pat Kniel updated their profile
Jul 7, 2015
ZolliStar replied to Fred's discussion CPAP - cure worse than the disease
"I'm wondering: what prompted you to consider whether you have sleep apnea in the first place? Also, waking throughout the night isn't uncommon especially as we (*sigh*) age.  I seem to every 90 minutes or so. This pattern probably…"
Jun 27, 2015
ZolliStar replied to ZolliStar's discussion New mouth device on the market
"You can try this website:  http://zyppah.com/ I have a MAD (mandibular advancement device). Dr. Steven Park evaluated my mouth and throat (not everyone can use a MAD, it turns out) and pronounced me a candidate for it. The truth?  I…"
Jun 27, 2015
Mary Z replied to ZolliStar's discussion New mouth device on the market
"The link didn't work so me so I couldn't see the product.  I do have experience with a supposedly reliable boil and bite device.  I should know by now I have a small mouth and nothing regular size fits.  I don't think…"
Jun 27, 2015
richard graham replied to ZolliStar's discussion New mouth device on the market
"If I thought something could work other than this lousy cpap that would be awesome"
May 22, 2015
richard graham posted a status
"I moved and have been sick a lot and can't use cpap because of cough and I'm depressed a lot"
Apr 26, 2015
Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13, 2015
Fred updated their profile
Apr 13, 2015

Can some one tell me about wether they have experienced  memery decline due to sleep apnea?

Have noticed improvement after starting cpap/apap therapy?

 How long did it take to notice improvement?

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Apnea effects us in two very different ways. First we have the all talked about loss of oxygen. This loss by itslef can cause a cognitive loss on our functioning and memory. The second is the inrterruption in deep sleep. Right now while awake your body requires a certain amount of muscle tone just to hold your head up. As we enter the deeper stages of sleep we lose muscle tone to the point of paralysis in stage REM. This is a safety mechanism so that we do not act out our dreams. People with REM Behavior Disorder do not have this safet mechanism. As we relax or lose muscle tone our apnea becomes worse in stage 3 an REM sleep. As the Apnea becomes worse we lose the restoritive power of deep sleep. If we lose stage 3 sleep we do not heal properly and begin to age faster. If we lose REM sleep we lose the abilty to organize our brain. Conn put it best in computer terms. REM sleep is when we defrag or get rid of our cookies. Over time the lack of deep sleep makes us "foggy" or unable to remember simple tasks.
Hello-

It happens and you can fix it with a combination of CPAP and provigil.

you can use CPAP with a battery pack in places where no power is available and I have used it on an overnight airplane trip.

The brain makes memory in the hippocampus - which looks like 2 bumps at the base of the brain. One study using MRI shows a control group compared to OSA group where the OSA group has really smaller bumps - so it can be seen whether or not there is a loss of tissue. I expect that the person felt a change way before anything could be seen on MRI.

What happened to me--
I experienced dramatic memory decline to the point I had to take a medical leave from my jobs; I could not perform work that I had done just a few months earlier. This change was apparent to others and I had no idea why. I was working on a project to replace a legacy sytstem with new hardware and software, and the tasks involved learning the business and figuring out how to improve it. I also taught a class at night.

This what happened\
had I but known at each of these events that osa was really possible, I would not have had to suffer through all the rest--
2 years before: my blood pressure went up even though I was riding a bike 10 miles 3 times per week
1 year before: I am a software programmer and easy tasks became harder
3 months before: falling asleep on a plane and waking myself up by talking when I thought I was dreaming.
1 month before: warned at work about performance
-- resigned teaching job, took health leave
Sleep test: no doubt about sleep apnea!, started using cpap
next 2 months:
off work, sitting around, being dumb and not bored, enjoying repetative chores

3 months after: found new software analysis work providing expertise to a pilot project- I had to develop new methods and explain how they worked to all levels at the agency. And I could do this well with the CPAP.
So Holly,
How long would you estimate that you were experiencing some effects of OSA? Was it only when your Blood Pressure began to rise unexpectedly, or before? Has your BP returned to normal with no other treatment? It sounds like you adapted to CPAP treatment fairly quickly. That's great. Thanks for your encouraging story.
Hello-

The first time I had trouble thinking was right about the time my blood pressure went up. I was able to bring the bp down by exercising, however I gained weight again and use medication now. The weirdest thing was that I began to have trouble reading people's nonverbal cues so my responses were off target and it took more effort to communicate.
It took me a year to keep the mask on all night. I would start with it on, and take it off sometime in the night. I still hate it. I asked myself - if I was doing this and having a great time, what would it be? So I pretended that I was a deep sea diver or an astronaut where it was just part of the job. In my closet there are 4 or 5 masks that did not work for me when I was trying to find one that I could keep on. But I can't stand being dumb so I keep at it. Life is so much less interesting and fun then.
Holly
Yes, I have also experienced memory decline. In the first time I was very tired during the day and couldn't focus on my work. Then I noticed that I had forgot a few things - I could not remember passwords or missed important appointments. I was sad and realized that there was something wrong with me. After I had started my therapy (CPAP), my memory improved again and I felt much better. So I can really recommend a therapy, I am sure it will increase the quality of your life.
holly,
Thank u for the info.
How long did it take for u to realize objective benefit?
Did u ever come back to near normal state?
Did u notice any benefits with any meds or nutrition?
Did u have any neuro-psych testing?


Steph Serrano said:
Yes, I have also experienced memory decline. In the first time I was very tired during the day and couldn't focus on my work. Then I noticed that I had forgot a few things - I could not remember passwords or missed important appointments. I was sad and realized that there was something wrong with me. After I had started my therapy (CPAP), my memory improved again and I felt much better. So I can really recommend a therapy, I am sure it will increase the quality of your life.
The new research articles that came out this month have said in no uncertain terms that sleep apnea does affect memory. Part due to the significant sleep deprivation and part due to the damage done by the lack of oxygen and increase in bp caused by each event.

Over the multiple years I have cared for pts i can tell you that if you use your cpap and if you use your mind you will see a diffence that will slowly increase over a 6-8 month period. But that is not scientific that is just my experience.
I had a long history of memory and focusing difficulties. According to my Doctor, I have a fairly rare form of apnea and have probably had it to some degree most of my life. Post menopause increased the problem until I just was barely functioning, could not remember anything...even the day of the week. I could not process on my computer to do my post retirement contract jobs. I have been on CPAP for a little over a year. I am diligent about wearing my mask and rarely take it off for any length of time..though I have had to try many mask to find the best solution. Sometimes I even enjoy sleeping late or just lying in bed enjoying the practice of breathing in and breathing out with my air flow. I think that it helps me to think of it as a pleasurable experience that relaxes and energizes me. Sometimes I envision connecting with the universal energy...as in Avatar. All these visualizations have helped me become more accepting. I am so grateful that I live in a time when this is treatable. I have a deep internal sense of organization as well as much improved memory that I have ever had in my life. My doctor thinks that my memory function will continue to improve even though it may never be 100% that it would have been in younger years. The brain has a remarkable ability to continue to develop and grow throughout a persons's life. I practice using my memory and gain confidence that it will serve me well now. I will be 63 tomorrow and grateful to be well and alive.
I have had memory loss for some time now, but I hadn't connected it to sleep apnea, but this does make sense. I have had central and obstructive sleep apnea for about 10 years or more. I noticed that I have a hard time remembering the simplest things. I make myself notes daily to remind myself of what I need to do for the day. I have had problems with my work as well.
Thanks Holly, I could related to your story as I am with same professional background and been having similar problems. I am transitioning into more humanistic role in Project Management in software industry to better manage condition/lifestyle. Continue sharing your experience.

Holly Glaser said:
Hello-

It happens and you can fix it with a combination of CPAP and provigil.

you can use CPAP with a battery pack in places where no power is available and I have used it on an overnight airplane trip.

The brain makes memory in the hippocampus - which looks like 2 bumps at the base of the brain. One study using MRI shows a control group compared to OSA group where the OSA group has really smaller bumps - so it can be seen whether or not there is a loss of tissue. I expect that the person felt a change way before anything could be seen on MRI.

What happened to me--
I experienced dramatic memory decline to the point I had to take a medical leave from my jobs; I could not perform work that I had done just a few months earlier. This change was apparent to others and I had no idea why. I was working on a project to replace a legacy sytstem with new hardware and software, and the tasks involved learning the business and figuring out how to improve it. I also taught a class at night.

This what happened\
had I but known at each of these events that osa was really possible, I would not have had to suffer through all the rest--
2 years before: my blood pressure went up even though I was riding a bike 10 miles 3 times per week
1 year before: I am a software programmer and easy tasks became harder
3 months before: falling asleep on a plane and waking myself up by talking when I thought I was dreaming.
1 month before: warned at work about performance
-- resigned teaching job, took health leave
Sleep test: no doubt about sleep apnea!, started using cpap
next 2 months:
off work, sitting around, being dumb and not bored, enjoying repetative chores

3 months after: found new software analysis work providing expertise to a pilot project- I had to develop new methods and explain how they worked to all levels at the agency. And I could do this well with the CPAP.
My OSA came on very slowly over 10 years, and I know my memory declined, as my family told me. I quit a very high powered job, as I was exhausted all the time, yet I had been working for 30 years and was due to retire. During the 10 years, I repeatedly sought medical help, and went to the ER four times, but no one mentioned the possibility of OSA. I was put on various anxiety, depression, and sleeping medications, which I stopped as they only made things worse. I had a total workup from a cardiologist, and pulmonary team. No one suggested OSA. I trudged through each day, under a dark cloud but struggled to make the best of things

When skiing on vacation at over 9,000 feet for 3 days, I fainted. I was taken to an urgent care clinic and my oxygen saturation was low, and the doctor was pulmonary specialist working part time. He suggested I be tested for a sleep disorder. I left the high altitude area immediately, as he suggested, and had a sleep disorder test one month later, in 2008. I have moderate OSA, and I have a CPAP. I was frightened enough to be REALLY compliant with my CPAP, and it took months, but the fog lifted, and I began to feel SO much better. I am working part time again, at a fast paced job, and I seem to be able to learn new systems and react fairly quickly, and have been promoted twice. I have had no depression, or episodes like before. But, who can tell? Is my memory part of normal again (where the heck are those car keys?) or is it impaired? My daily functioning is good, but I do not have the energy that I used to have, but I am 60. Do I have good quality of life? Most of the time. Does my family like me better this way? Hope so. They love me anyway that I am, so who knows!

My questions are the same, what is normal? What should my memory be like? How would I compare memory ? Is my energy and cognitive processing normal? What the heck is normal, anyway? I still hate mathmatical issues, but that is not new. I do know every penny in the budget, because I am thrifty. I sit on boards, and do community service, and end up being the chair of the committees. I am highly organized, but now I try not to be so perfect at everything, as it is annoying. I seem to "get" social cues from others better now, as I am not foggy or exhausted, yet no one ever complained that I was poor at this while sleep deprived.


Normal aging? My mom died recently of dementia at 82, my father of heart disease. Come to find out that Dad was diagnosed with OSA years ago but would not use a CPAP, and never mentioned it to us. He had 5 brothers die of heart attacks in the 1950's before they were 50 years of age, and he had 8 bypasses (total) and 13 stents plus a pacemaker, so his life was extended greatly, to age 84. So my family history would make my questions of what is normal rather complex. Yet, I am engaged in what I choose to be, living a full and interesting life, and am doing what I can to participate. Life is pretty good most of the time, and I can ski, walk 3 miles daily, and no one mentions that I am zoned out, or "look exhausted" after being in bed for 9 hours. My nurse daughter watches me like a hawk, and she would certainly tell me if she felt I was declining. Also, my sister was recently diagnosed with OSA, but since she is younger, she knew sooner what was happening.

Hope my story helps. It is SO hard to be foggy and find a path toward wellness. Fighting masks and learning to deal with the issues would be challenging for ANYONE, yet those who are exhausted and defeated. When I went to the sleep disorders clinic, I was so frightened that the sleep professionals would find NOTHING wrong with me, and that if I did not have a sleep disorder, I would be simply crazy, and hopeless. The diagnosis gave me HOPE, and I found a way to fix my issues. Given that, I charged forward and did my very best to work toward wellness. OSA probably aged me quicker, but I have found a way to slow the process down. Now, on to the weight issues....but that is another story........and I am working on it.
The oxygen starvation from sleep apna effects the brain in many ways. In my case, I had depression and just some mild confusion. These symptons resolved over the course of a couple of months after starting C-Pap. I'm sure that it could take longer depending on how long and how severe the sleep apnea is.

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