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CPAP Supplies

Latest Activity

richard graham posted a status
"I feel like the humidifier is making me feel yucky and I'm waking up hacking and having to clear my throat a lot for a while."
Nov 3
richard graham posted a discussion

what's a good AHI?

I've been using and auto and it says my AHI HAS been between 4 and 6 and wondering what's a good range.
Nov 2
Andy posted a discussion

Resmed S10 AirSense - Anyone have one? Any feedback?

Hi All,I've just ordered a new Resmed S10 AirSense, and I was wondering if anyone here has used one?Any information or input would be appreciated!See More
Sep 29
Andy replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"Hi All, Well, I went to the sleep doc today, and he ordered a new S10 for me! I still don't know why my S8 is not tracking data anymore. Anyone have any ideas?"
Sep 29
Oscar Lemus updated their profile
Sep 25
liz4cps commented on liz4cps's group Prince William Co, VA support group
"Just found they have a Facebook for the REMedy event, 1st Class Sleep REMedy Wellness Health Fair."
Sep 25
liz4cps commented on liz4cps's group Prince William Co, VA support group
"Reminder: REMedy event is this Saturday, 10 am to 2pm.  Topics include: Nutrition and Weight Management with Sarah Kelly, Registered Nutritionist/Dietitian Oral Appliance Therapy for Sleep Apnea with Drs. Rena Vakay & Lara…"
Sep 25
Kay Day left a comment for Kay Day
"September 1, 2014 My apologies to Sleep Guide for not participating in a long time. In January 2012 I started classes at the local community college (my husband is an instructor there, and my tuition is refunded when my grades are above a C. My…"
Sep 1
Mary Z posted a discussion

Sleep apnea increases risk of osteoporosis

Sleep apnea/osteoporosis study finds “increased” health riskA recently published study may have found a connection between obstructive sleep apnea (OSA) and osteoporosis, marking yet another health…See More
Aug 23
Mary Z replied to ZolliStar's discussion Non-invasion approach that can relieve mild sleep apnea
"Hi ZolliStar, I've heard before that speech therapy, or singing lessons can help sleep apnea.  The problem at that time was there was no way to determine which exercises help.  Getting research done, rather than anecdotal would be…"
Jul 28
ZolliStar posted a discussion

Non-invasion approach that can relieve mild sleep apnea

Some people report that singing -- singing! -- really helps their sleep apnea. Dr. Stephen Park said that myology (which are exercises to strengthen muscles around the inside of one's mouth area) helps some. I think singing would be better.  If you read all the FAQs on this (click below), I think you'll agree that it makes sense for some. Maybe you.http://www.singingforsnorers.com/index.htmSee More
Jul 28
ZolliStar posted a discussion
Jul 20
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14

If you had two pieces of advice to give a newbie....

...what would those two pieces be?

A lot of us would really benefit from the been-there, endured-that experience you veterans have to offer us.

AND....

Happy New Year!

Views: 2115

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Replies to This Discussion

Reply from Susan

I have had my bipap machine for 10 days. The technician led me to believe I would feel better the next day. My days have not been good but today I got up feeling much better. I have no problems with my mask or sleeping, just feeling bad when I awake in the morning. After reading these comments I feel much better knowing it does take time. Hope it will lead to getting rid of my Paxil in the future. Thank you so much for your helpful comments.

(1) Don't trust your equipment supplier.

(2) Question everything that you are told. Do your own research.

Where do you find the think that hangs your hose above your head?  Thanks, Marianne

Many good suggestions here. Some of them will work for some people and some will not work for some people. For instance, hose hangers I hate and they are counterproductive to my therapy but others swear by them. Same for mask liners.

Now for a couple of things that are critical and will help 99.9% of dedicated users. First, is get a data capable machine and software. It is true with all processes, and CPAP is a process, it is very difficult to improve that which you don't measure. The software gives you the measures of your therapy's effectiveness. It can be used to improve the therapy.

Also what Wade says is true for all CPAPers:

Wade Hampton said:

(1) Don't trust your equipment supplier.

(2) Question everything that you are told. Do your own research.

 

 

I have had a few suppliers.  First it was praxaire.  They would not let you try on.  Not good.  Find a supplier that you can try as many masks as you would like and lay down with them with cpap pressure adjusted to your pressure.  Also find a supplier that has a return policy of some kind and ask what all that entails.  I made the mistake of not asking for details in how it worked. 

I ended up with an infection from the Opus nasal pillows.  Then they told me when using Nasal pillows to use KY Jelly with them since I tend to get sores.  I have used a CPAP and Nasal Pillows for maybe 6 years and never once has anyone told me that. 

 

Praxaire was bought out by Apria and they were a joke.  Told me they had a return policy and that I could try on masks, so went through the whole process to get the script and get the insurance co to authorize the mask and then got there and they said they have neither option and did i want to take a mask with me.  I was furious and asked to talk to a Manager.  I got a phone number and it took days for me to find him!  He said they did have a return policy but no they could not allow me to try on masks.  I opted to find another supplier.  The RT that I had seen was so ineffective she never called me back as promised by the manager anyway. 

 

So advice is be diligent and don't let people drag you around by your nose!  LOL, litterally!

 

1. Don't quit, It will get easier.

2. If the stress builds up, get help just don't quit.

 

 

 

 

As an RT, this is so difficult to answer because one answer leads to another question or question set....

 

I'll try though ;)

 

1) Be a stickler for a very comfortable mask, full face masks wear differently than nasal pllows and each type of mask demands a different breathing pattern, which determines how quickly you can get used to the mask and positive pressure from the sleep device you ultimately acquire.

2) Get as educated about your OSA (mild, moderate, severe, etc) as much as possible.  

And know how you can achieve optimal sleep with the mode of treatment that is decided along with your doctor, RT, clinician, sleep technician etc.

Sometimes, this optimal sleep formula involves information that is very consistent with all of the professionals involved in your care.

And sometimes information can get misinterpreted easily (no one's fault, it has to do with how much information is passed along the professional chain).

And each person has a slightly different focus for your proper care;

1) mask fit and ideal PAP unit (from RT or clinician perspective)

2) ideal pressure (from sleep technician perspective)

3) AHI control (sleep doctor perspective)

 etc.

 

I could write volumes more but this is the heart of it all.

 

Here's to great sleep!

 

Bill 

Say that again, Wade!

My DME contact offered "advice" that was completely wrong (he suggested that I add some nice smelling lavendar to the water in my humidifier) and their RT, who was supposed to show me how to use my equipment, told me I could use ordinary tap water. When I found out (thanks to this web site) that I should use distilled water, not tap water, I called him to let him know so that he wouldn't pass along this mistaken advice to any other new CPAP user.

Do YES! to both pieces of advice, Wade.



Wade Hampton said:

(1) Don't trust your equipment supplier.

(2) Question everything that you are told. Do your own research.

 

 

@ Susan:  Hang in there! You've got the hard part down--sleeping with the mask on :) You won't feel better overnight. The damage that apnea did to your body didn't just happen overnight so neither will the repair. But now there's no more damage being done and you'll notice that you feel better gradually. I realized it one day at work. It was the middle of the afternoon and I thought, "hey--I'm not exhausted!" and realized I hadn't been in a while. Keep it up!

Susan Jane Lau said:

Reply from Susan

I have had my bipap machine for 10 days. The technician led me to believe I would feel better the next day. My days have not been good but today I got up feeling much better. I have no problems with my mask or sleeping, just feeling bad when I awake in the morning. After reading these comments I feel much better knowing it does take time. Hope it will lead to getting rid of my Paxil in the future. Thank you so much for your helpful comments.

Not all machines are created  equal/ as well not all masks are going to work for you. Here are the two pieces of advice. If you are having problems, ask the folks here who have experience instead of asking your equipment provider. They are in it for the profit.

My first CPAP was used and was sold to me as new. it had problems with the humidifier.

After talking to the person who helped me, she went against her employers orders and sent me out the door with a brand new up to date machine that worked, It cost her her job.

And get the mask that works for you once again don't listen to the sellers, ask those who have the experience and not everyone has the same needs.

I don't have a data capable machine.

I think I'm going to spend my own green money to get one. I'm using the machine I was "issued". I didn't know as much as I know now, thanks to this forum and the support group meetings.

One learns. Oh! How one learns!

Banyon said:

Many good suggestions here. Some of them will work for some people and some will not work for some people. For instance, hose hangers I hate and they are counterproductive to my therapy but others swear by them. Same for mask liners.

Now for a couple of things that are critical and will help 99.9% of dedicated users. First, is get a data capable machine and software. It is true with all processes, and CPAP is a process, it is very difficult to improve that which you don't measure. The software gives you the measures of your therapy's effectiveness. It can be used to improve the therapy.

Also what Wade says is true for all CPAPers:

Wade Hampton said:

(1) Don't trust your equipment supplier.

(2) Question everything that you are told. Do your own research.

 

 

Thank you so much for your encouraging words.  I am in the beginning stages of trying to get used to sleeping strapped to a machine and have been having just as hard of a time mentally getting used to the idea as physically.  I have wanted to give up, throw the machine out the window, and scream in frustration, but reading posts like yours helps me to calm down and keep on keeping on. 
 
John Camacho said:

1) Don't give up.

2) Don't give up.

 

I waited 8 long years to try again. It is so unnatural to sleep with an aparatus strapped to your face, but the benefits far outweigh the uncomfortable feelings that many of us struggle with in the beginning. Trust that it will get easier and know that you are not alone in what you are going through.  If only I had been connected to a community 9 years ago, or that the science had progressed as much and the care workers understood it all back then as they do now I would not had struggled for so long.

 

I have been using the cpap for 1.5 years now, and its as natural as breathing!

 

God Bless and Good Luck 

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