Join Our Newsletter

New? Free Sign Up

Then check our Welcome Center to a Community Caring about Sleep Apnea diagnosis and Sleep Apnea treatment:

CPAP machines, Sleep Apnea surgery and dental appliances.

CPAP Supplies

Latest Activity

ZolliStar replied to Dan Lyons's discussion CPAP & Dry Mouth
"Dan, Do you use a chin strap?  If you're a mouth breather, you may need a chin strap so that your mouth stays closed. It's important to keep it closed throughout the night for a lot of reasons -- mouth, dental, etc., etc. I've…"
Nov 24
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Wed 9  9 mg Thursday 10 missed  Friday 11 9mg have insomnia  going skip rest until insomnia goes away Just did maths had my five days"
Nov 11
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day after tomorrow I mean trump day wed 9 9mg "
Nov 9
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day two Monday 7 Nov 9mg very relaxed Day three Tuesday 8 Nov 9mg sniffles appears to have stopped  must reduce dose"
Nov 8
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Start treatment again  Nov 6 @ 2100 first day "
Nov 6
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day 5 not quite there must quit treetment for non and have at least a five day break But even so my health has improved "
Nov 1
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
" "
Nov 1
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day three not so good with osa  DAY four better but still not quite there "
Oct 31
99 replied to 99's discussion Five Day Cure
"Day one immediate improvement to OSA but had insomnia and slight constapation Day two flatulence greatly reduced muscle tighten "
Oct 29
99 posted a discussion

Five Day Cure

I believe I have found a cure that only take five days which I am trialing now It has many benificial side effects as well by reducing snoring to name onePM ME as I do not want mainstream media to find out and have it banned as I fear that is how it will goWill try again after a little breakIn addition will increase omega 3And thirdly a chiropractic to realign atlas bone in spine is just a passing thought See More
Oct 28
liz4cps commented on liz4cps's group Prince William Co, VA support group
"BluePoint Medical* holding their next Remedy event on June 4 with Terry Cralle, RN on "Sleep in the Mordern Family".  They will also be checking CPAP machines and providing breakfast. Click on link above for more…"
May 7
Dan Lyons posted a discussion

CPAP & Dry Mouth

In recent months, I have developed extreme dry mouth as a result of the CPAP.  I am a mouth breather when using CPAP.Recently, I saw an advertisement for the symptoms of dry mouth, but as usual, when I need the information to have a discussion with both my primary care  physician and my dentist I haven't seen the ad. Has anyone else seen the ad and can anyone remember the info in the ad?Thanks in advance,DanSee More
Mar 30
richard graham posted a status
"My deductible is double what a machine is online but I can't get the machine set up. Any ideas?"
Mar 10
BeeAsleep posted a status
"Hi all. I am just checking in and saying hi after being gone for a long time. I am doing GREAT! Just got a new machine and mask. Feel like I"
Jan 23
BeeAsleep updated their profile
Jan 23
99 replied to Fred's discussion CPAP - cure worse than the disease
"Do not turn light on as this hinder you from falling asleep or choose red light instead which do not afect your sleep"
Oct 27, 2015
99 left a comment for Joan Williams Rice
"Hi Joan visiting pelham and I have osa"
Oct 27, 2015
99 left a comment for martha crabtree
"Hi maths visiting pelham "
Oct 27, 2015
99 left a comment for Rhonda Harrison
"Hi Rhondda I am visiting pelham and have osa "
Oct 27, 2015
99 posted a discussion

Leaky gut

Do you have a leaky gutHow would you knowA telltale sign for leaky gut is Athletes footI wish to ask do you have or suffer from itThe reason I ask is maybe this is a common denominatorJust text yes or text noAnd if you are the first to text also keep a tallyExample38 yes 0 noYour input would alter the tally39 yes 0 noSo now I will input first1 yes. 0 noSee More
Sep 26, 2015

If you had two pieces of advice to give a newbie....

...what would those two pieces be?

A lot of us would really benefit from the been-there, endured-that experience you veterans have to offer us.

AND....

Happy New Year!

Views: 2333

Reply to This

Replies to This Discussion

Reply from Susan

I have had my bipap machine for 10 days. The technician led me to believe I would feel better the next day. My days have not been good but today I got up feeling much better. I have no problems with my mask or sleeping, just feeling bad when I awake in the morning. After reading these comments I feel much better knowing it does take time. Hope it will lead to getting rid of my Paxil in the future. Thank you so much for your helpful comments.

(1) Don't trust your equipment supplier.

(2) Question everything that you are told. Do your own research.

Where do you find the think that hangs your hose above your head?  Thanks, Marianne

Many good suggestions here. Some of them will work for some people and some will not work for some people. For instance, hose hangers I hate and they are counterproductive to my therapy but others swear by them. Same for mask liners.

Now for a couple of things that are critical and will help 99.9% of dedicated users. First, is get a data capable machine and software. It is true with all processes, and CPAP is a process, it is very difficult to improve that which you don't measure. The software gives you the measures of your therapy's effectiveness. It can be used to improve the therapy.

Also what Wade says is true for all CPAPers:

Wade Hampton said:

(1) Don't trust your equipment supplier.

(2) Question everything that you are told. Do your own research.

 

 

I have had a few suppliers.  First it was praxaire.  They would not let you try on.  Not good.  Find a supplier that you can try as many masks as you would like and lay down with them with cpap pressure adjusted to your pressure.  Also find a supplier that has a return policy of some kind and ask what all that entails.  I made the mistake of not asking for details in how it worked. 

I ended up with an infection from the Opus nasal pillows.  Then they told me when using Nasal pillows to use KY Jelly with them since I tend to get sores.  I have used a CPAP and Nasal Pillows for maybe 6 years and never once has anyone told me that. 

 

Praxaire was bought out by Apria and they were a joke.  Told me they had a return policy and that I could try on masks, so went through the whole process to get the script and get the insurance co to authorize the mask and then got there and they said they have neither option and did i want to take a mask with me.  I was furious and asked to talk to a Manager.  I got a phone number and it took days for me to find him!  He said they did have a return policy but no they could not allow me to try on masks.  I opted to find another supplier.  The RT that I had seen was so ineffective she never called me back as promised by the manager anyway. 

 

So advice is be diligent and don't let people drag you around by your nose!  LOL, litterally!

 

1. Don't quit, It will get easier.

2. If the stress builds up, get help just don't quit.

 

 

 

 

As an RT, this is so difficult to answer because one answer leads to another question or question set....

 

I'll try though ;)

 

1) Be a stickler for a very comfortable mask, full face masks wear differently than nasal pllows and each type of mask demands a different breathing pattern, which determines how quickly you can get used to the mask and positive pressure from the sleep device you ultimately acquire.

2) Get as educated about your OSA (mild, moderate, severe, etc) as much as possible.  

And know how you can achieve optimal sleep with the mode of treatment that is decided along with your doctor, RT, clinician, sleep technician etc.

Sometimes, this optimal sleep formula involves information that is very consistent with all of the professionals involved in your care.

And sometimes information can get misinterpreted easily (no one's fault, it has to do with how much information is passed along the professional chain).

And each person has a slightly different focus for your proper care;

1) mask fit and ideal PAP unit (from RT or clinician perspective)

2) ideal pressure (from sleep technician perspective)

3) AHI control (sleep doctor perspective)

 etc.

 

I could write volumes more but this is the heart of it all.

 

Here's to great sleep!

 

Bill 

Say that again, Wade!

My DME contact offered "advice" that was completely wrong (he suggested that I add some nice smelling lavendar to the water in my humidifier) and their RT, who was supposed to show me how to use my equipment, told me I could use ordinary tap water. When I found out (thanks to this web site) that I should use distilled water, not tap water, I called him to let him know so that he wouldn't pass along this mistaken advice to any other new CPAP user.

Do YES! to both pieces of advice, Wade.



Wade Hampton said:

(1) Don't trust your equipment supplier.

(2) Question everything that you are told. Do your own research.

 

 

@ Susan:  Hang in there! You've got the hard part down--sleeping with the mask on :) You won't feel better overnight. The damage that apnea did to your body didn't just happen overnight so neither will the repair. But now there's no more damage being done and you'll notice that you feel better gradually. I realized it one day at work. It was the middle of the afternoon and I thought, "hey--I'm not exhausted!" and realized I hadn't been in a while. Keep it up!

Susan Jane Lau said:

Reply from Susan

I have had my bipap machine for 10 days. The technician led me to believe I would feel better the next day. My days have not been good but today I got up feeling much better. I have no problems with my mask or sleeping, just feeling bad when I awake in the morning. After reading these comments I feel much better knowing it does take time. Hope it will lead to getting rid of my Paxil in the future. Thank you so much for your helpful comments.

Not all machines are created  equal/ as well not all masks are going to work for you. Here are the two pieces of advice. If you are having problems, ask the folks here who have experience instead of asking your equipment provider. They are in it for the profit.

My first CPAP was used and was sold to me as new. it had problems with the humidifier.

After talking to the person who helped me, she went against her employers orders and sent me out the door with a brand new up to date machine that worked, It cost her her job.

And get the mask that works for you once again don't listen to the sellers, ask those who have the experience and not everyone has the same needs.

I don't have a data capable machine.

I think I'm going to spend my own green money to get one. I'm using the machine I was "issued". I didn't know as much as I know now, thanks to this forum and the support group meetings.

One learns. Oh! How one learns!

Banyon said:

Many good suggestions here. Some of them will work for some people and some will not work for some people. For instance, hose hangers I hate and they are counterproductive to my therapy but others swear by them. Same for mask liners.

Now for a couple of things that are critical and will help 99.9% of dedicated users. First, is get a data capable machine and software. It is true with all processes, and CPAP is a process, it is very difficult to improve that which you don't measure. The software gives you the measures of your therapy's effectiveness. It can be used to improve the therapy.

Also what Wade says is true for all CPAPers:

Wade Hampton said:

(1) Don't trust your equipment supplier.

(2) Question everything that you are told. Do your own research.

 

 

Thank you so much for your encouraging words.  I am in the beginning stages of trying to get used to sleeping strapped to a machine and have been having just as hard of a time mentally getting used to the idea as physically.  I have wanted to give up, throw the machine out the window, and scream in frustration, but reading posts like yours helps me to calm down and keep on keeping on. 
 
John Camacho said:

1) Don't give up.

2) Don't give up.

 

I waited 8 long years to try again. It is so unnatural to sleep with an aparatus strapped to your face, but the benefits far outweigh the uncomfortable feelings that many of us struggle with in the beginning. Trust that it will get easier and know that you are not alone in what you are going through.  If only I had been connected to a community 9 years ago, or that the science had progressed as much and the care workers understood it all back then as they do now I would not had struggled for so long.

 

I have been using the cpap for 1.5 years now, and its as natural as breathing!

 

God Bless and Good Luck 

Reply to Discussion

RSS

© 2016   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service