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Latest Activity

ZolliStar replied to Dan Lyons's discussion CPAP & Dry Mouth
"Dan, Do you use a chin strap?  If you're a mouth breather, you may need a chin strap so that your mouth stays closed. It's important to keep it closed throughout the night for a lot of reasons -- mouth, dental, etc., etc. I've…"
Nov 24
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Wed 9  9 mg Thursday 10 missed  Friday 11 9mg have insomnia  going skip rest until insomnia goes away Just did maths had my five days"
Nov 11
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day after tomorrow I mean trump day wed 9 9mg "
Nov 9
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day two Monday 7 Nov 9mg very relaxed Day three Tuesday 8 Nov 9mg sniffles appears to have stopped  must reduce dose"
Nov 8
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Start treatment again  Nov 6 @ 2100 first day "
Nov 6
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day 5 not quite there must quit treetment for non and have at least a five day break But even so my health has improved "
Nov 1
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
" "
Nov 1
99 replied to 99's discussion Five Day Cure obstructI've sleep apnea
"Day three not so good with osa  DAY four better but still not quite there "
Oct 31
99 replied to 99's discussion Five Day Cure
"Day one immediate improvement to OSA but had insomnia and slight constapation Day two flatulence greatly reduced muscle tighten "
Oct 29
99 posted a discussion

Five Day Cure

I believe I have found a cure that only take five days which I am trialing now It has many benificial side effects as well by reducing snoring to name onePM ME as I do not want mainstream media to find out and have it banned as I fear that is how it will goWill try again after a little breakIn addition will increase omega 3And thirdly a chiropractic to realign atlas bone in spine is just a passing thought See More
Oct 28
liz4cps commented on liz4cps's group Prince William Co, VA support group
"BluePoint Medical* holding their next Remedy event on June 4 with Terry Cralle, RN on "Sleep in the Mordern Family".  They will also be checking CPAP machines and providing breakfast. Click on link above for more…"
May 7
Dan Lyons posted a discussion

CPAP & Dry Mouth

In recent months, I have developed extreme dry mouth as a result of the CPAP.  I am a mouth breather when using CPAP.Recently, I saw an advertisement for the symptoms of dry mouth, but as usual, when I need the information to have a discussion with both my primary care  physician and my dentist I haven't seen the ad. Has anyone else seen the ad and can anyone remember the info in the ad?Thanks in advance,DanSee More
Mar 30
richard graham posted a status
"My deductible is double what a machine is online but I can't get the machine set up. Any ideas?"
Mar 10
BeeAsleep posted a status
"Hi all. I am just checking in and saying hi after being gone for a long time. I am doing GREAT! Just got a new machine and mask. Feel like I"
Jan 23
BeeAsleep updated their profile
Jan 23
99 replied to Fred's discussion CPAP - cure worse than the disease
"Do not turn light on as this hinder you from falling asleep or choose red light instead which do not afect your sleep"
Oct 27, 2015
99 left a comment for Joan Williams Rice
"Hi Joan visiting pelham and I have osa"
Oct 27, 2015
99 left a comment for martha crabtree
"Hi maths visiting pelham "
Oct 27, 2015
99 left a comment for Rhonda Harrison
"Hi Rhondda I am visiting pelham and have osa "
Oct 27, 2015
99 posted a discussion

Leaky gut

Do you have a leaky gutHow would you knowA telltale sign for leaky gut is Athletes footI wish to ask do you have or suffer from itThe reason I ask is maybe this is a common denominatorJust text yes or text noAnd if you are the first to text also keep a tallyExample38 yes 0 noYour input would alter the tally39 yes 0 noSo now I will input first1 yes. 0 noSee More
Sep 26, 2015

How can I bring the monthly cost down for oxygen with my Bi-pap?

When I use my Bi-pap with oxygen every night my electric bill is so high I can't afford to pay for it. If I don't use the oxygen my blood level falls to a low level. I contacted the electric company and they said I bring in just a little too much money monthly to qualify for a discount. I don't know what to do right now.

Is anyone else in this situation?

Does anyone have any creative ideas for me?

How do people afford the monthly cost of the oxygen?

Views: 303

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Replies to This Discussion

It might help to let us know your location. I don't use oxygen so don't have any personal knowledge.

I know some have talked about different programs, etc. but it depends upon your region. I know where I live our electric company only offers help to those that are unable to leave their homes as far as power outages, etc. If you are mobile then you don't qualify for priority when restoring power. Other electric companies are far more lenient and some even offer discounts for medical devices, which cpap qualifies.

I know you have said you don't qualify for assistance but there maybe someone that can offer suggestions to help you out.
keep on asking until you find the right people
it may be a government department that you need to approach
with your script in hand
maybe you need a script for the electrical company just in case they will not accept your word
Are you using a concentrator? What flow of oxygen do you need? Maybe a liquid oxygen set up will be better. How long do you you sleep at night? You might benefit from tanks instead of a concentrator.

Linda
Copy of my notes on a another thread:

"...3. Regarding the oxygen concentrator: I just got an exchange of my unit from my DME to a new unit that has a 25% lower energy consumption as well as being a little quieter. The original unit was rated at 390 watts at 3 lpm usasge compared to 280 watts for the new unit. The DME tech originally mentioned that some clients had stated their using a concentrator made an increase to their electric bill of about $20 per month, so any savings here is appreciated. I am also wondering if using a lower lpm setting, say 2 or 1 would have a significant effect on energy consumption by the concentrator. Of course changing this setting would have to be with consultation with my doctor."

Also: "RT...did get me the improved oxygen concentrator they just got in, right away. BTW - this is an Invacare IRC5P and I think it may be a new model."

Also: "I would still like to know what the criteria is for determining the O2 level for Rx, at least as it relates to the apnea & CPAP therapy if anyone can point me in the direction of such an explanation I could read."

Sorry to hear you're having this type of problem. I imagine you're not alone, but most people in this situation would probably not be looking for answers on the internet, so good for you.

I think you should talk first with your RT to see if they have any oxygen concentrators that use less energy that they could trade for you. Are you renting your unit or own it? Does your insurance cover the rental fee? Also talk to your doctor about your need for the oxygen and whether a lower level of oxygen might work for you. I say this because I think that the lower the level, the lower the power consumption by the concentrator, but check that with the RT as well. It could be a good option to use liquid oxygen tanks instead, as mentioned by Linda B. , if your insurance will cover that, since that uses no electricity at all.

It would be helpful if you could calculate just how much energy and cost is added to your monthly bill for this, so as to determine how much of a difference in energy use you need to balance your budget. You might want to talk to your energy supplier again, maybe talk to a manager, stressing the medical necessity and explain the energy cost of this particular appliance. Also maybe check with state social services or not-for-profit social service agencies that might have some way to support. I can only imagine that it could be difficult with California under severe budget crisis right now to get help from them, but it doesn't mean it is impossible. I know that some HUD subsidized housing apartments include all energy costs in the rent, and charge your rent based on your income, so maybe long term, something like that might be practical, too.

Best of luck to you for finding the solution best for you.
Some power companies give discounts for off peak hours. Night time should qualify. Maybe your power company has such a program. Barring that, an extention cord to a neighbors outside outlet buried in the ground in PVC pipe might not be noticed . Hope something comes along that works for you. The big H tanks may be an affordable alternative. Also if it takes you awhile to go to sleep you could use a timer and set it nightly to give you that extra 15 or 20 minutes with the concentrator off.
Good Luck,
Mary Z.
You may also want to explore the O2 generators electrical capabilities. If you are using the unit on standard 110-vac and the unit is also capable of operation of 220-vac, you may want to consider installing a 220-vac outlet so you can operate the unit at that voltage. Operating the unit at 220-vac should reduce the power consumption dramatically, maybe up to 1/2. Check the owner’s manual for the operating voltages and consumption ratings.

(Basically the same as a window AC unit. A 110-vac unit uses twice as much power to achieve the same cooling as a 220-vac unit does.)

Then consult a qualified electrician to determine the viability.
Oh Dan, you're an angel!
This is wonderful news to my ears. I was worrying about this every time I used the Bi-pap which was not every night because I couldn't afford it. I am moving to a new place soon and installing the 220 outlet will be a priority to me. Of course I will make sure my unit can take 220 before calling the electrician.
You have made much more than my day.My appreciation is immense.
Thank you.
Carol
Thank you SleepyCarol for responding. I spent significant time with my electric company personnel talking about the programs they have to offer and, unfortunately, none were a match for me. I do have my location in my profile and it is Grass Valley, CA. I don't think contacting them again would be beneficial for me at this time. I am moving soon to a different county so maybe they have different programs. I will check that out for sure. Carol

sleepycarol said:
It might help to let us know your location. I don't use oxygen so don't have any personal knowledge.

I know some have talked about different programs, etc. but it depends upon your region. I know where I live our electric company only offers help to those that are unable to leave their homes as far as power outages, etc. If you are mobile then you don't qualify for priority when restoring power. Other electric companies are far more lenient and some even offer discounts for medical devices, which cpap qualifies.

I know you have said you don't qualify for assistance but there maybe someone that can offer suggestions to help you out.
As I said above, I am moving soon to a different county and if I'm lucky they will have a program for me. If not, I will consider escalating as you suggest. I know it will be no problem getting a script for the need for oxygen. Thanks for the suggestion. Carol

99 said:
keep on asking until you find the right people
it may be a government department that you need to approach
with your script in hand
maybe you need a script for the electrical company just in case they will not accept your word
Yes, I am using a concentrator and my level is 4. I sleep anywhere from 0-12 hrs. a night. I suffer from chronic low back and hip pain that, sometimes, causes me to be awake all night. When I have a few nights with diminished sleep I might then have a 12-hour night. I don't know much about the tanks, in terms of how long they last, so I don't know if that is a good solution for me or not. I will check into the number of hours on their largest tank. Thank you so much, Carol

Linda Birnbaum said:
Are you using a concentrator? What flow of oxygen do you need? Maybe a liquid oxygen set up will be better. How long do you you sleep at night? You might benefit from tanks instead of a concentrator.

Linda
Thank you, RL, for the many suggestions. I got my unit exchanged already for the one you referred to and it does use less energy and it is quite a bit quieter. I am going to check into using tanks instead of the concentrator. The need to use O2 with my Bi-pap was determined by a combination of many readings with an oximeter at home and at the sleep study clinic over different days. My O2 level fell into the 70s many times (can't remember exact number of times right now). My level was again measured at the clinic, with the O2 included, and my level was over 95. The O2 level of 4 was determined to be the proper number, to increase my level sufficently, by the results of these studies. I will talk to my doctor about lowering my level but my feeling is that it can't be lowered and maintain a healthy blood O2 level but I might be wrong. I don't know what the correlation between my need for O2 and my sleep apnea is and sorry but I don't have anything for you to read regarding any of this. It may be a common occurrence or not I don't know. I am interested to know if it is common or not so if you find something on it would you please consider emailing it to me?
Soon, I am moving to a house that should have a smaller heating area thus effecting my bill. It has a pellet stove which I am told is an inexpensive method for heating. Again, thank you for your considerate and kind response. Carol

RL said:
Copy of my notes on a another thread:

"...3. Regarding the oxygen concentrator: I just got an exchange of my unit from my DME to a new unit that has a 25% lower energy consumption as well as being a little quieter. The original unit was rated at 390 watts at 3 lpm usasge compared to 280 watts for the new unit. The DME tech originally mentioned that some clients had stated their using a concentrator made an increase to their electric bill of about $20 per month, so any savings here is appreciated. I am also wondering if using a lower lpm setting, say 2 or 1 would have a significant effect on energy consumption by the concentrator. Of course changing this setting would have to be with consultation with my doctor."

Also: "RT...did get me the improved oxygen concentrator they just got in, right away. BTW - this is an Invacare IRC5P and I think it may be a new model."

Also: "I would still like to know what the criteria is for determining the O2 level for Rx, at least as it relates to the apnea & CPAP therapy if anyone can point me in the direction of such an explanation I could read."

Sorry to hear you're having this type of problem. I imagine you're not alone, but most people in this situation would probably not be looking for answers on the internet, so good for you.

I think you should talk first with your RT to see if they have any oxygen concentrators that use less energy that they could trade for you. Are you renting your unit or own it? Does your insurance cover the rental fee? Also talk to your doctor about your need for the oxygen and whether a lower level of oxygen might work for you. I say this because I think that the lower the level, the lower the power consumption by the concentrator, but check that with the RT as well. It could be a good option to use liquid oxygen tanks instead, as mentioned by Linda B. , if your insurance will cover that, since that uses no electricity at all.

It would be helpful if you could calculate just how much energy and cost is added to your monthly bill for this, so as to determine how much of a difference in energy use you need to balance your budget. You might want to talk to your energy supplier again, maybe talk to a manager, stressing the medical necessity and explain the energy cost of this particular appliance. Also maybe check with state social services or not-for-profit social service agencies that might have some way to support. I can only imagine that it could be difficult with California under severe budget crisis right now to get help from them, but it doesn't mean it is impossible. I know that some HUD subsidized housing apartments include all energy costs in the rent, and charge your rent based on your income, so maybe long term, something like that might be practical, too.

Best of luck to you for finding the solution best for you.
Again, I have pretty much exausted my possiblities with this electric company but I am moving and, hopefully, the new one will have more programs for people in my position. The extension cord suggestion was very funny and my neighbors are probably not in any better position to pay than I am.
Do you know how many hours one big H tank will hold? Is that the biggest tank? I can research a little and see if the tanks are exchangeable with the concentrator. I am not sure whether I own the concentrator or not yet. It seems like I have been paying long enougth to have paid for it completely but I bet they are pretty expensive.
I appreciate your help, Mary. Thanks, Carol

Mary Z said:
Some power companies give discounts for off peak hours. Night time should qualify. Maybe your power company has such a program. Barring that, an extention cord to a neighbors outside outlet buried in the ground in PVC pipe might not be noticed . Hope something comes along that works for you. The big H tanks may be an affordable alternative. Also if it takes you awhile to go to sleep you could use a timer and set it nightly to give you that extra 15 or 20 minutes with the concentrator off.
Good Luck,
Mary Z.

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