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99 posted a discussion

colloidal silver

a humidifier can be used with colloidal silverthis can keep the humidifier clean for day maybe weeks or longer without the need to clean the humidifiersilver colloidal is antimicrobial and you could just top up your humidifier without cleaning and at the same time treat your bodyor you just put silver on it own into the humidifierSee More
3 hours ago
richard graham posted a status
"I feel like the humidifier is making me feel yucky and I'm waking up hacking and having to clear my throat a lot for a while."
Nov 3
richard graham posted a discussion

what's a good AHI?

I've been using and auto and it says my AHI HAS been between 4 and 6 and wondering what's a good range.
Nov 2
Andy posted a discussion

Resmed S10 AirSense - Anyone have one? Any feedback?

Hi All,I've just ordered a new Resmed S10 AirSense, and I was wondering if anyone here has used one?Any information or input would be appreciated!See More
Sep 29
Andy replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"Hi All, Well, I went to the sleep doc today, and he ordered a new S10 for me! I still don't know why my S8 is not tracking data anymore. Anyone have any ideas?"
Sep 29
Oscar Lemus updated their profile
Sep 25
liz4cps commented on liz4cps's group Prince William Co, VA support group
"Just found they have a Facebook for the REMedy event, 1st Class Sleep REMedy Wellness Health Fair."
Sep 25
liz4cps commented on liz4cps's group Prince William Co, VA support group
"Reminder: REMedy event is this Saturday, 10 am to 2pm.  Topics include: Nutrition and Weight Management with Sarah Kelly, Registered Nutritionist/Dietitian Oral Appliance Therapy for Sleep Apnea with Drs. Rena Vakay & Lara…"
Sep 25
Kay Day left a comment for Kay Day
"September 1, 2014 My apologies to Sleep Guide for not participating in a long time. In January 2012 I started classes at the local community college (my husband is an instructor there, and my tuition is refunded when my grades are above a C. My…"
Sep 1
Mary Z posted a discussion

Sleep apnea increases risk of osteoporosis

Sleep apnea/osteoporosis study finds “increased” health riskA recently published study may have found a connection between obstructive sleep apnea (OSA) and osteoporosis, marking yet another health…See More
Aug 23
Mary Z replied to ZolliStar's discussion Non-invasion approach that can relieve mild sleep apnea
"Hi ZolliStar, I've heard before that speech therapy, or singing lessons can help sleep apnea.  The problem at that time was there was no way to determine which exercises help.  Getting research done, rather than anecdotal would be…"
Jul 28
ZolliStar posted a discussion

Non-invasion approach that can relieve mild sleep apnea

Some people report that singing -- singing! -- really helps their sleep apnea. Dr. Stephen Park said that myology (which are exercises to strengthen muscles around the inside of one's mouth area) helps some. I think singing would be better.  If you read all the FAQs on this (click below), I think you'll agree that it makes sense for some. Maybe you.http://www.singingforsnorers.com/index.htmSee More
Jul 28
ZolliStar posted a discussion
Jul 20
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
How often should you go in for a follow up sleep study? I went on C-Pap in 1995 and haven't been back for a study since. The only reason why is that it works, but I told a friend of mine who is a respiratory therapist and she said "oh my god" Get in for another study right away. So what is the norm?

Tags: follow, sleep, studies, study, up

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the fact that you are dreaming is good

it means  you are getting REM sleep which is much needed

Ernestine, sorry to hear about the job situation, I would try another Dr it can't hurt. Mine is the opposite I can fall asleep but wake up early and can't get back to sleep. CPAP won't always fix all your sleep problems, it will assist your breathing when you have an apnea. I thought the same when I started that it would solve all my problems, it doesn't but it has helped me dramatically compared to what I was like. I think your sleep problems probably are caused by your work issues. I was diagnosed with depression prior to SA and I don't know which came first but I think it was SA which then caused the depression. Unfortunately Dr's want to fix symptoms not causes. You may need to see someone like a Psychologist to talk you through your issues. I know you have done all the sleep hygiene things have you try meditation or mindfulness to try to calm or relax you. I didn't think much of it but have converted when the meds didn't work, I never wanted to be on them in the first place. Keep us updated on how you are going.

Ernestine, you may certainly have some depression.  Losing a job you loved is a major stressor.  Add to that the insomnia and poor quality of sleep, the OSA... A consultation with a psychiatrist- if you don't have insurance contact your local Community Services Board and see if they can help- might be helpful.  I wouldn't even speculate what the suggestion from a psychiatrist might be, but I do think it's worth a try.  Good luck.

To add something.  I was surprised that one of the things mentioned on a placard in my doctors office that improved sleep would be a result of CPAP.  I don't necessarily think this is the case.  Perhaps the sleep is healthier, but many of the sleep problems we had before our diagnosis and use of the machine carry over.  There are many reasons our sleep is disturbed that CPAP won't help. Stress, depression, insomnia, being a caregiver during the night, shift work, to name just a few.  I bought some sleeptime tea yesterday and have resolved to work on my sleep hygiene a bit more.

     I really agree with what Mary says. CPAP is not a panacea, which is something I learned a bit to my regret. I thought that once I knew the reason I was always so tired, all I had to do was slap on my mask, turn on my CPAP, and off to dreamland with getting lots of wonderful sleep to power my day.

      Hah!

      That said, I've learned that good leep hygiene is really important and makes a difference. Really. In addition, something that is wholly underappreciated is the powerful effect of exercise on how we feel.

      Below is a YouTube video that Rock posted some time ago. Please watch it,  particularly those of you coping with depression, which can be -- and is -- so devastating.

 http://www.youtube.com/watch?v=aUaInS6HIGo

Lots of interest and discussion here. I myself having been on c-pap for 16 years had a marked improvment in how I felt. I probably improved about 80%. The depression went away, the bone tired that I had went away, but I still need a nap most days, or I'll be quite sleepy if I have to sit down at a desk at work in the afternoon. I don't remember feeling that way years before c-pap, but that was a symptom for the five, or so years leading up to the OSA diagnosis. C-pap doesn't cure everything, but it certainly works very well. I don't know what kind of shape I'd be in by now if I didn't have it, or if I wound even be still alive by now without it.

Hi Ernestine and others

Your advice is excellent.

I just want to plead to people to use the new electric candles and not to resort to wax candles.

Especially before bedtime, wax candles can be a real fire hazard.

Thanks and have great and safe sleep.

Jan

ZolliStar said:

Ernestine,

      I was misdiagnosed at a sleep disorder clinic as having insomnia when, in fact, I have SA. The clinic never ordered an overnight because it was so sure that all I have (had?) is garden variety insomnia. That said, the doctors did convey useful sleep hygiene tips. I suspect that they would help you, so I'll pass them on.

      In addition to keeping to regular bedtime and waking hours, including on weekends, observe the following:

  1. No alcohol four hours before bedtime.
  2. No eating (other than a small, non-sugary snack) for 3 to 4 hours before bedtime.
  3. Close down your computer 60 to 90 minutes before bedtime.
  4. Lower your lights (for a while, I even resorted to candlelight!) an hour or so before bedtime.
  5. Do things that calm and relax you an hour to 90 minutes before retiring. Examples: read, listen to music, pet your dog or cat, chat with a family member or call a friend, etc.
  6. Go to bed when you're drowsy.

     Don't forget the basics like: a dark room, cool ambient temperature, and a comfortable bed and bed clothes.

     These are small things but all together, I've found that they make a difference.



Ernestine Webster said:

i was wondering the same thing about going in for a followup sleep study, as you know i have been on cpap for about 8 months now and am still having problems falling asleep even with going to bed as soon as i take the ambien, thinking i may be growing a tolorance to this sleep aid i started taking 300 mg of the Gab, capsule that was prescribed by my sleep doctor , i have been going to the same sleep doctor for the entire time of 8 months and he is always wanting to change mask which i keep telling him it is not the mask it is me but i still do not know why i still have problems falling asleep . i still see no difference in the quanity of sleep i get. the quality of sleep is better . i wonder if i should see a different sleep doctor and have another sleep study done. i have no doubt i have sleep apnea because of the way i feel when i get up in the mornings but i have insomina as well and really do not know where to turn to find out what the problem is with that.          

Many sleep meds can cause scary dreams. Gabapentin didn't do that to me, although it made me moody/grumpy (but didn't get me to sleep well either), but Ambien gave me absolutely disgusting (rather than scary) dreams after about a week and half of use. Different brains, different brain chemistry issues. If Gabapentin gives you bad dreams, talk with your doctor about using a different med. I've been on several, currently using Restoril (temazepam), but it's effect is lessening over time (been on it for about a year), so time to go back and see what comes next. I have RLS (restless leg syndrome) extreme SA (AHI at clinic 18 months ago was 63).

From my experience (have had a CPAP for about nine years) - a CPAP doesn't help me get to sleep, it improves the quality of sleep. Insomnia is 'orthogonal' to SA - you can have one, the other, or both. My specialist tells me that I have good 'sleep architecture' when I can get to sleep and am on my CPAP. The downside is that my body gets me absolutely wired at night time, partly related to thyroid issues. I had low thyroid and was taking levothyroxine, which also made me wired. I started taking iron, and my thyroid kicked back in, so I no longer take levothyroxine, but now my own thyroid levels make me wired. I used to go out and walk for a couple of hours a night (or more) when this happened, and then could sleep. Several years ago I developed RA (rheumatoid arthritis), with complications in my feet make my nightly walks impossible. Hence, the sleeping meds.

You need to work out these combination issues with your doctors. In addition to my sleep doc, I have been seeing an Integrative Medicine doc, and the supplements have made it possible to get off several of my meds by actually correcting underlying conditions. My GERD is gone, so don't need PPIs - was on Prilosec for several years - my thyroid is working, so don't need levothyroxine - my RA is improving, but still working on it. Insomnia is still an issue for me, but working on it - none of the supplements that I've tried work for me, almost anything that modifies GABA, and any SSRI causes me to be moody or unable to work (can't get things done). Valerian makes me grumpy. L-Tryptophan makes me more wakeful (so much for the stories of Turkey making us sleepy!'Supplements' are not necessarily better (or worse) than 'drugs' - supplements like these are really drugs with different label. Mineral supplements like magnesium can help sleep too, especially if you are not getting enough of it in your diet (which most of us aren't).

Find a good doctor that you can work with (that is a tall order, I know!) and see if you can correct the underlying conditions causing your insomnia, and you may be able to get away from the stronger sleep meds (and their side effects), or at least use them less.

I'm still not there yet - but taking it one step at a time.

Ernestine Webster said:

really do not feel my sleep specialist is listening to me , i thought once i had the sleep study and found out i had OSA i would get wonderful sleep but that has not been the case with me at all, the first week was great but after that first week it went downhill and has not improved without some kind of sleep aid and then it still takes me hours to go to sleep. i have tried all the sleep hygene i have read about . the medication my sleep doctor prescribed for me is Gabapentin 300 mg. , 2 out of 3 times i have taken it i have scary dreams . don't know if it is the medication or there is a problem with my mask and am not waking up to know it, all i know i dream about snakes everywhere and i horrified of snakes so i manage to get woke up enough to get out of bed  and stay up for awhile til i get settled down enough to get back to sleep. so i guess i need to start looking for a doctor that will hear me when i tell them i cannot fall asleep even with the cpap machine. i wonder if i may be depressed since i have lost a job i loved dearly and got laid off over 2 years ago and am not enjoying staying at home. thanks for listening      
Terry Vella said:

Ernestine, I know how you feel, I have the opposite, I can fall asleep but still wake up earlier than I want, but do feel 100% better now that I'm on CPAP. What med is Gab? There are a huge amount of meds you can take to try to get you back in the proper sleep pattern, but you don't want to stay on them too long and get addicted. Some may also interact with SA and not give you the benefits. If you are no happy with your sleep Dr, try another, it can't hurt and you have already been diagnosed with SA. I'm not sure another sleep study would be worth it just yet as your problem isn't during sleep it's getting to sleep. let us know how you go.

I am a similar position as you. I have insomnia from all the stress in my life. Was taking 30 mg temazepan and still not getting to sleep till midnight or later then had to get up at 4.  It god not help that I need to be on my stumick (sp?) to get to sleep. Have never gotten along with my cpap and after an issue during a surgery (mind woke up but the body did not) I really have an issue with anything on my face.  with help from God I am slowly working out the stress but still don't like anything on my face. I would try different masks but once you use one you have bought it.

Ernestine Webster said:

really do not feel my sleep specialist is listening to me , i thought once i had the sleep study and found out i had OSA i would get wonderful sleep but that has not been the case with me at all, the first week was great but after that first week it went downhill and has not improved without some kind of sleep aid and then it still takes me hours to go to sleep. i have tried all the sleep hygene i have read about . the medication my sleep doctor prescribed for me is Gabapentin 300 mg. , 2 out of 3 times i have taken it i have scary dreams . don't know if it is the medication or there is a problem with my mask and am not waking up to know it, all i know i dream about snakes everywhere and i horrified of snakes so i manage to get woke up enough to get out of bed  and stay up for awhile til i get settled down enough to get back to sleep. so i guess i need to start looking for a doctor that will hear me when i tell them i cannot fall asleep even with the cpap machine. i wonder if i may be depressed since i have lost a job i loved dearly and got laid off over 2 years ago and am not enjoying staying at home. thanks for listening      
Terry Vella said:

Ernestine, I know how you feel, I have the opposite, I can fall asleep but still wake up earlier than I want, but do feel 100% better now that I'm on CPAP. What med is Gab? There are a huge amount of meds you can take to try to get you back in the proper sleep pattern, but you don't want to stay on them too long and get addicted. Some may also interact with SA and not give you the benefits. If you are no happy with your sleep Dr, try another, it can't hurt and you have already been diagnosed with SA. I'm not sure another sleep study would be worth it just yet as your problem isn't during sleep it's getting to sleep. let us know how you go.

http://www.cpaplibrary.com/mask-trials

 

Richard,  this is the URL for a mask trial program.  For $14, the cost of postage each way, you can try out a mask for a week.  It's a relatively inexpensive way to try out different masks.  I tried out the quattro fx and didn't have to wait long at all to get one in the mail.  If you like the mask, buy it the least expensive place, or wait for insurance to pay for a new mask.  Hope this helps.

If you want less face coverage (I can understand that, it took my mother several months to get used to regular CPAP use, she didn't like anything on her face either), you might try nose pillows. I use the 'Breeze SleepGear' (Puritan Bennett- oops, "Covidien' now!), which only touches my nostrils - the rest of the set is on my head (they make a 'DreamSeal' version that covers the nose instead of nose pillows, I've used that one too. There are other nose pillows as well, some have a small band that goes around the head. You may find that once you have CPAP running that you can sleep on your side, sleeping on your stomach is sometimes a reaction to the apnea - your airway might be more open when on your stomach. The Breeze is excellent for side-sleeping (the reason I started using it), but might require customising a pillow to use when on your stomach. It's air vent is directly forward, and you don't want to cover it up or you will breathe too much carbon dioxide.

Definitely try different masks and even different CPAP machine settings to see if you can find a combination that works for you. It can take a while to get used to any CPAP configuration.

Some doctors may have 'sample' headgear that they will lend (or give) you. My wife, who is a recent CPAP user, just got a new mask from our sleep doc, as the first mask wasn't sized correctly.

If you have to buy gear, it's usually less expensive over the net, at sites like cpap.com and cpapwholesale.com than at most local providers - for equipment not covered by my insurance, some of the differences are staggering! When out of town and one of my nasal pillows went missing, the local provider charged me $50 for a pair of pillows! They apologised profusely while taking my money... CPAP isn't 'optional' for me, I must use it every night, so I paid the $50. The price on the net - $10. Sigh. I now make sure that I always have spare nose pillows in my CPAP bag!

Mary Z said:

http://www.cpaplibrary.com/mask-trials

 

Richard,  this is the URL for a mask trial program.  For $14, the cost of postage each way, you can try out a mask for a week.  It's a relatively inexpensive way to try out different masks.  I tried out the quattro fx and didn't have to wait long at all to get one in the mail.  If you like the mask, buy it the least expensive place, or wait for insurance to pay for a new mask.  Hope this helps.

Hi Ernestine!

Have you been evaluated for anxiety?  Even GAD which is Generalized Anxiety Disorder?

I deal every day with anxiety (am medicated for it) but a couple years ago I was hit with it so bad (for about 6 months) that I couldn't leave the house without crying, I hid important things when I went to bed, I couldn't watch anything on TV other than comedies (literally nothing but comedies), etc.

But my reason for bringing it up is because I had severe troubles falling asleep during that time frame and when I did finally fall asleep the slightest noise, or flash of light, would wake me up and I was then awake for the rest of the night and then dragging myself out of bed.

I do take Ambien regularly and during that time frame they had me on two different forms of Ambien, one "regular release" and one "extended release" and even that didn't help.

Based on what you've gone through lately you could be experiencing anxiety (instead of or in addition to depression) over what's going to happen, and you might not even realize that you're experiencing anxiety, and that might be what's causing troubles with falling asleep.

Also, I read that doing gentle yoga (easy stretching moves) can help.  There are also some "sleep CD's" (couldn't think of what else to call it but I have mine on my iPod and I put it in my iHome to listen to it) that you can play low in the background (I'm not talking the sound of waves or that sort of thing) and it slows you down and hopefully helps you to go to sleep.  I use "Chakra Chants" by Jonathan Goldman. :)

Just a thought... :)

Best of luck with it!!

Diane


Ernestine Webster said:

really do not feel my sleep specialist is listening to me , i thought once i had the sleep study and found out i had OSA i would get wonderful sleep but that has not been the case with me at all, the first week was great but after that first week it went downhill and has not improved without some kind of sleep aid and then it still takes me hours to go to sleep. i have tried all the sleep hygene i have read about . the medication my sleep doctor prescribed for me is Gabapentin 300 mg. , 2 out of 3 times i have taken it i have scary dreams . don't know if it is the medication or there is a problem with my mask and am not waking up to know it, all i know i dream about snakes everywhere and i horrified of snakes so i manage to get woke up enough to get out of bed  and stay up for awhile til i get settled down enough to get back to sleep. so i guess i need to start looking for a doctor that will hear me when i tell them i cannot fall asleep even with the cpap machine. i wonder if i may be depressed since i have lost a job i loved dearly and got laid off over 2 years ago and am not enjoying staying at home. thanks for listening      
Terry Vella said:

Ernestine, I know how you feel, I have the opposite, I can fall asleep but still wake up earlier than I want, but do feel 100% better now that I'm on CPAP. What med is Gab? There are a huge amount of meds you can take to try to get you back in the proper sleep pattern, but you don't want to stay on them too long and get addicted. Some may also interact with SA and not give you the benefits. If you are no happy with your sleep Dr, try another, it can't hurt and you have already been diagnosed with SA. I'm not sure another sleep study would be worth it just yet as your problem isn't during sleep it's getting to sleep. let us know how you go.

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